,i  #aaf? ,,congress  #a/ ,session  ,h4 
,r4 #edhj  ,,9 ,,! ,,h\se ,,(           
,,repres5tatives  ,decemb] #ah1 #bjai   
,mr4 ,=t5b]ry introduc$ ! foll[+ bill2  
:i* 0 ref]r$ to ! ,committee on ,en]gy &
 ,comm]ce  ,a ,,bill  ,to ensure t ,,als
 pati5ts h access to treatm5t )9 cl9ical
 trials4  #a4 ,%ort title ,?is ,act may 
be cit$ z ! ,,als ,placebo ,no ,m ,act4 
#b4 ,au?ority = ,,hhs & ag5cies to      
develop res\rces & policies to provide  
access to promis+ treatm5ts = pati5ts ) 
,,als  ,! ,food & ,drug ,adm9i/ration   
7,,fda7 & ! ,national ,in/itutes (      
,heal? 7,,nih7 %all collaborate on any  
curr5t amyotrophic lat]al scl]osis      
7,,als7 trial to ensure t all pati5ts 9 
treatm5t & placebo arms are provid$     
access to ! drug4  ,! ,,fda %all move   
exp$iti\sly to implem5t its guidance on 
,,als cl9ical trials to assure t all    
trials go+ =w>d %all require treatm5t   
arms = all pati5ts4  ,! ,f$]al ,gov]nm5t
 %all develop inc5tives to exp& access  
to inve/igational !rapies = life-?reat5+

 conditions ) few] ?an two treatm5ts4