,i #aaf? ,,congress #a/ ,session ,h4 ,r4 #bbhc ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,april #aj1 #bjai,ms4 ,sn*ez 7= h]self1 ,mr4 ,la,hood1 ,ms4 ,matsui1 & ,mrs4 ,rodg]s ( ,wa%+ton7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce1 & 9 addition to ! ,committee on ,ways & ,means1 = a p]iod to be subsequ5tly det]m9$ by ! ,speak]1 9 ea* case = consid]ation ( su* provisions z fall )9 ! jurisdiction ( ! committee conc]n$ ,a ,,bill ,to provide bett] c>e & outcomes = ,am]icans liv+ ) ,alzheim]'s disease & relat$ dem5tias & _! c>egiv]s :ile accel]at+ progress t[>d prev5tion /rategies1 disease modify+ treatm5ts1 &1 ultimately1 a cure4 #a4 ,%ort title2 table ( cont5ts2 f9d+s 7a7 ,%ort title ,?is ,act may be cit$ z ! ,conc5trat+ on ,high-value ,alzheim]'s ,ne$s to ,get to an ,end ,act ( #bjai or ! ,,*ange ,act ( #bjai4 7b7 ,table ( cont5ts ,! table ( cont5ts ( ?is ,act is z foll[s3 ,sec4 #a4 ,%ort title2 table ( cont5ts2 f9d+s4 ,sec4 #b4 ,cognitive impairm5t detection b5efit 9 ! ,m$ic>e annual wellness visit & initial prev5tive physical exam9ation4 ,sec4 #c4 ,m$ic>e quality paym5t program4 ,sec4 #d4 ,report to ,congress on implem5tation ( ?is ,act4 ,sec4 #e4 ,/udy & report on regulatory & legislative *anges or ref9em5ts t w\ld accel]ate ,alzheim]'s disease rese>* progress4 7c7 ,f9d+s ,congress f9ds z foll[s3 7#a7 ,x is e/imat$ t #e4h million ,am]icans are liv+ ) ,alzheim]'s disease 9 #bjai4 ,?is includes an e/imat$ #e4f million p age #fe & old] & approximately #bjj1jjj individuals "u age #fe :o h y\ng]-onset ,alzheim]'s4 ,by #bjej1 ! numb] ( p age #fe & old] ) ,alzheim]'s dem5tia is project$ to increase to #ac4h million ,am]icans4 7#b7 ,z _m z half ( ! e/imat$ #e1ajj1jjj ,am]ican s5iors ) ,alzheim]'s disease & o!r dem5tias h nev] receiv$ a diagnosis4 7#c7 ,9 #bjai1 x is e/imat$ t ,alzheim]'s & relat$ dem5tias w h co/ ! ,m$ic>e & ,m$icaid programs #aie billion4 ,by #bjej1 x is e/imat$ t ^! direct co/s w increase to z mu* z #a4a trillion4 7#d7 ,alzheim]'s exacts an emotional & physical toll on c>egiv]s1 result+ 9 high] incid5ce ( he>t disease1 canc]1 depression1 & o!r heal? consequ5ces4 7#e7 ,alzheim]'s disease disproportionately impacts wom5 & p ( color4 ,wom5 are twice z likely to develop ,alzheim]'s z !y are brea/ canc]4 ,african ,am]icans are ab\t two times m likely ?an ,:ite ,am]icans to h ,alzheim]'s disease & o!r dem5tias4 ,lat9os are ab\t "o & "o-half times m likely ?an ,:ite ,am]icans to h ,alzheim]'s disease & o!r dem5tias4 ,accord+ to ! ,c5t]s = ,disease ,control & ,prev5tion1 among p ages #fe & old]1 ,african ,am]icans h ! highe/ preval5ce ( ,alzheim]'s disease & relat$ dem5tias 7#ac4h p]c5t71 foll[$ by ,hispanics 7#ab4b p]c5t71 & non-,hispanic ,:ites 7#aj4c p]c5t71 ,am]ican ,indian & ,alaska ,natives 7#i4a p]c5t71 & ,asian & ,pacific ,isl&]s 7#h4d p]c5t74 ,?is high] preval5ce translates into a high] dea? rate3 ,alzheim]'s dea?s increas$ #ee p]c5t among all ,am]icans betwe5 #aiii & #bjad1 :ile ! numb] 0 #ajg p]c5t = ,lat9os & #ii p]c5t = ,african ,am]icans4 7#f7 ,!re are evid5ce-bas$1 reliable1 & ,,nih-id5tifi$ cognitive impairm5t detection tools available at ! ,national ,in/itute on ,ag+'s ,alzheim]'s & ,dem5tia ,res\rces = ,pr(essionals website t mu/ replace detection by direct obs]vation 9 ! ,m$ic>e ,annual visits & ,welcome to ,m$ic>e visits4 ,! ,,nih-id5tifi$ tools w all[ = appropriate foll[-up in/ead ( delay+ diagnosis or imp$+ opportunities = pati5ts to access timely treatm5t options1 includ+ cl9ical trial p>ticipation4 7#g7 ,an e>ly1 docum5t$ diagnosis1 communicat$ to ! pati5t & c>egiv]1 enables e>ly access to c>e plann+ s]vices & available m$ical & nonm$ical treatm5ts1 & optimizes pati5ts' ability to build a c>e team1 p>ticipate 9 support s]vices1 & enroll 9 cl9ical trials4 7#h7 ,african ,am]icans repres5t #ac p]c5t ( ! population ( ! ,unit$ ,/ates b only #e p]c5t ( cl9ical trial p>ticipants1 & ,lat9os repres5t #ag p]c5t ( ! population ( ! ,unit$ ,/ates b less ?an "o p]c5t ( cl9ical trial p>ticipants4 ,fur!r1 ,lat9os & ,african ,am]icans acc\nt = only #c4e p]c5t & #a4b p]c5t1 respectively1 ( pr9cipal inve/igators support$ by ! ,national ,in/itutes ( ,heal? fund+1 limit+ ?is p]spective 9 rese>*4 ,bett] recruitm5t & trial designs are critical to address+ innovation 9 ,alzheim]'s g5]ally1 includ+ ! und]repres5tation ( ,african ,am]icans & ,lat9os4 7#i7 ,inability to id5tify eligible pati5ts at ! e>lie/ /ages ( disease is a sub/antial imp$im5t to effici5t rese>* t[>d ,alzheim]'s disease prev5tion1 treatm5t1 & cure4 7#aj7 ,advanc+ treatm5t options to prev5t1 treat1 or cure ,alzheim]'s is an urg5t national priority4 7#aa7 ,a p>adigm %ift to drive syn]gies betwe5 high-value pati5t c>e1 c>egiv] support1 bra9 heal? promotion1 & rese>* initiatives is our be/ hope = prev5t+1 treat+1 & cur+ ,alzheim]'s disease4 #b4 ,cognitive impairm5t detection b5efit 9 ! ,m$ic>e annual wellness visit & initial prev5tive physical exam9ation 7a7 ,annual wellness visit 7#a7 ,9 g5]al ,section #ahfa7;hhh77#b7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #aciex7hhh77#b77 is am5d$-- 7,a7 by /rik+ subp>agraph 7,d7 & ins]t+ ! foll[+3 7,d7 ,detection ( any cognitive impairm5t or progression ( cognitive impairm5t t %all-- 7i7 be p]=m$ us+ a cognitive impairm5t detection tool id5tifi$ by ! ,national ,in/itute on ,ag+ z meet+ its crit]ia = select+ in/rum5ts to detect cognitive impairm5t 9 ! prim>y c>e sett+1 & o!r validat$ cognitive detection tools z ! ,secret>y det]m9es2 7ii7 include docum5tation ( ! tool us$ = detect+ cognitive impairm5t & results ( ! assessm5t 9 ! pati5t's m$ical record2 & 7iii7 take into consid]ation ! tool us$1 & results (1 any previ\sly p]=m$ cognitive impairm5t detection assessm5t4 2 7,b7 by r$esignat+ subp>agraph 7,i7 z subp>agraph 7,j72 & 7,c7 by ins]t+ aft] subp>agraph 7,h7 ! foll[+ new subp>agraph3 7,i7 ,ref]ral ( pati5ts ) detect$ cognitive impairm5t or pot5tial cognitive decl9e to-- 7i7 appropriate ,alzheim]'s disease & dem5tia diagno/ic s]vices1 includ+ amyloid positron emission tomography1 & o!r m$ically accept$ diagno/ic te/s t ! ,secret>y det]m9es are safe & effective2 7ii7 speciali/s & o!r cl9icians ) exp]tise 9 diagnos+ or treat+ ,alzheim]'s disease & relat$ dem5tias2 7iii7 available community-bas$ s]vices1 includ+ pati5t & c>egiv] c\nsel+ & social support s]vices2 & 7iv7 appropriate cl9ical trials4 4 7#b7 ,effective date ,! am5dm5ts made by p>agraph 7#a7 %all apply to annual wellness visits furni%$ on or aft] ,janu>y #a1 #bjbj4 7b7 ,initial prev5tive physical exam9ation 7#a7 ,9 g5]al ,section #ahfa7ww77#a7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #aciex7ww77#a77 is am5d$ by /rik+ agreem5t ) ! individual1 & & ins]t+ agreem5t ) ! individual1 detection ( any cognitive impairm5t or progression ( cognitive impairm5t z describ$ 9 subp>agraph 7,d7 ( subsection 7hhh77#b7 & ref]rals z describ$ 9 subp>agraph 7,i7 ( su* subsection1 &4 7#b7 ,effective date ,! am5dm5ts made by p>agraph 7#a7 %all apply to initial prev5tive physical exam9ations furni%$ on or aft] ,janu>y #a1 #bjbj4 #c4 ,m$ic>e quality paym5t program ,n lat] ?an ,janu>y #a1 #bjbj1 ! ,secret>y ( ,heal? & ,human ,s]vices %all implem5t ,m$ic>e policies "u title ,,xviii ( ! ,social ,security ,act1 includ+ quality measures & ,m$ic>e ,advantage plan rat+ & risk adju/m5t me*anisms1 t reflect ! public heal? imp]ative (-- 7#a7 promot+ heal?y bra9 life/yle *oices2 7#b7 id5tify+ & respond+ to pati5t risk factors = ,alzheim]'s disease & relat$ dem5tias2 & 7#c7 inc5tiviz+ provid]s =-- 7,a7 adequate & reliable cognitive impairm5t detection 9 ! prim>y c>e sett+1 t is docum5t$ 9 ! pati5t's electronic heal? record & communicat$ to ! pati5t2 7,b7 timely ,alzheim]'s disease diagnosis2 & 7,c7 appropriate c>e plann+ s]vices1 includ+ id5tification (1 & communication ) pati5ts & c>egiv]s ab\t1 ! pot5tial = cl9ical trial p>ticipation4 #d4 ,report to ,congress on implem5tation ( ?is ,act ,n lat] ?an #c ye>s aft] ! date ( ! enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices %all submit a report to ,congress on ! implem5tation ( ! provisions (1 & am5dm5ts made by1 ?is ,act1 includ+-- 7#a7 ! increas$ use ( validat$ tools = detection ( cognitive impairm5t & ,alzheim]'s disease2 7#b7 utilization ( ,alzheim]'s disease diagno/ic & c>e plann+ s]vices2 & 7#c7 outrea* ef=ts 9 ! prim>y c>e & pati5t communities4 #e4 ,/udy & report on regulatory & legislative *anges or ref9em5ts t w\ld accel]ate ,alzheim]'s disease rese>* progress 7a7 ,9 g5]al ,! ,comptroll] ,g5]al ( ! ,unit$ ,/ates 79 ?is section ref]r$ to z ! ,comptroll] ,g5]al7 %all conduct a /udy on regulatory & legislative *anges or ref9em5ts t w\ld accel]ate ,alzheim]'s disease rese>* progress4 ,9 conduct+ su* /udy1 ! ,comptroll] ,g5]al %all consult ) int]e/$ /akehold]s1 includ+ indu/ry lead]s1 rese>*]s1 cl9ical exp]ts1 pati5t advocacy gr\ps1 c>egiv]s1 pati5ts1 provid]s1 & ,/ate lead]s4 ,su* /udy %all include an analysis ( innovative public-private p>tn]%ips1 innovative f9anc+ tools1 inc5tives1 & o!r me*anisms to enhance ! quality ( c>e = individuals diagnos$ ) ,alzheim]'s disease1 r$uce ! emotional1 f9ancial1 & physical burd5 on familial c>e p>tn]s1 & accel]ate developm5t ( prev5tative1 curative1 & disease-modify+ !rapies4 7b7 ,report ,n lat] ?an #a ye> aft] ! date ( ! enactm5t ( ?is ,act1 ! ,comptroll] ,g5]al %all submit to ,congress a report conta9+ ! results ( ! /udy conduct$ "u subsection 7a71 toge!r ) recomm5dations = su* legislation & adm9i/rative action z ! ,comptroll] ,g5]al det]m9es appropriate4