,,ib ,union ,cal5d> ,no4 #dbd #aaf? ,,congress #b;d ,session ,h4 ,r4 #bbga ,report ,no4 #aaf-ebd ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,april #aj1 #bjai,ms4 ,moore 7= h]self1 ,mr4 ,cole1 ,ms4 ,h]r]a ,beutl]1 ,mr4 ,got!im]1 ,ms4 ,cl>ke ( ,new ,york1 ,mrs4 ,rodg]s ( ,wa%+ton1 ,ms4 ,wass]man ,s*ultz1 ,mr4 ,grijalva1 ,mr4 ,khanna1 ,ms4 ,norton1 ,mr4 ,k+ ( ,new ,york1 ,ms4 ,mc,collum1 ,mr4 ,c>twright1 & ,ms4 ,del,bene7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,septemb] #ba1 #bjbj;,additional sponsors3 ,mr4 ,ryan1 ,ms4 ,sewell ( ,alabama1 ,mr4 ,fitzpatrick1 ,ms4 ,de,lauro1 ,mr4 ,heck1 ,mr4 ,wittman1 ,mrs4 ,watson ,coleman1 ,ms4 ,fudge1 ,mr4 ,neguse1 ,mr4 ,lawson ( ,florida1 ,mr4 ,payne1 ,mr4 ,?ompson ( ,mississippi1 ,mr4 ,ri*mond1 ,mr4 ,cleav]1 ,mr4 ,clyburn1 ,mr4 ,gre5 ( ,texas1 ,mrs4 ,dem+s1 ,ms4 ,pressley1 ,ms4 ,kelly ( ,ill9ois1 ,ms4 ,johnson ( ,texas1 ,ms4 ,bass1 ,ms4 ,wilson ( ,florida1 ,mr4 ,evans1 ,mr4 ,johnson ( ,georgia1 ,mrs4 ,lawr5ce1 ,ms4 ,jackson ,lee1 ,mr4 ,meeks1 ,mr4 ,k9d1 ,mr4 ,ha/+s1 ,ms4 ,roybal-,all>d1 ,mr4 ,danny ,k4 ,davis ( ,ill9ois1 ,mr4 ,rask91 ,ms4 ,blunt ,ro*e/]1 ,mr4 ,k5n$y1 ,mr4 ,case1 ,mr4 ,coh51 ,mr4 ,h>d] ( ,cali=nia1 ,mr4 ,lip9ski1 ,mr4 ,g>ca ( ,ill9ois1 ,mr4 ,mc,govern1 ,mr4 ,lyn*1 ,mr4 ,pet]son1 ,ms4 ,p+ree1 ,mr4 ,mi*ael ,f4 ,doyle ( ,p5nsylvania1 ,ms4 ,s*ri]1 ,ms4 ,%]rill1 ,ms4 ,spanb]g]1 ,mr4 ,coop]1 ,mr4 ,ru%1 ,ms4 ,craig1 ,mr4 ,upton1 ,mr4 ,gu?rie1 ,ms4 ,ku/] ( ,new ,hamp%ire1 ,mrs4 ,axne1 ,mr4 ,swalwell ( ,cali=nia1 ,mr4 ,"y1 ,mr4 ,cox ( ,cali=nia1 ,mr4 ,soto1 ,mr4 ,connolly1 & ,mr4 ,burgess ,septemb] #ba1 #bjbj,report$ ) an am5dm5t1 committ$ to ! ,committee ( ! ,:ole ,h\se on ! ,/ate ( ! ,union1 & ord]$ to be printed,strike out all aft] ! enact+ clause & ins]t ! "p pr9t$ 9 italic,for text ( introduc$ bill1 see copy ( bill z introduc$ on ,april #aj1 #bjai ,a ,,bill ,to am5d ! ,public ,heal? ,s]vice ,act to improve ! heal? ( *ildr5 & help bett] und]/& & enhance aw>5ess ab\t unexpect$ sudd5 dea? 9 e>ly life4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,sc>lett's ,sun%9e on ,sudd5 ,unexpect$ ,dea? ,act4 #b4 ,address+ sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood ,"p ,b ( title ,,xi ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bda et seq47 is am5d$-- 7#a7 9 ! "p head+1 by /rik+ ,sudd5 ,infant ,dea? ,syndrome & ins]t+ ,sudd5 ,unexpect$ ,infant ,dea?1 ,sudd5 ,infant ,dea? ,syndrome1 & ,sudd5 ,unexpect$ ,dea? 9 ,*ildhood2 & 7#b7 by ins]t+ be=e section #aabb ! foll[+3 #aaba4 ,address+ sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood 7a7 ,9 g5]al ,! ,secret>y may develop1 support1 or ma9ta9 programs or activities to address sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 includ+ by-- 7#a7 cont9u+ to support ! ,sudd5 ,unexpect$ ,infant ,dea? & ,sudd5 ,dea? 9 ! ,"y ,case ,regi/ry ( ! ,c5t]s = ,disease ,control & ,prev5tion & o!r fatality case report+ sy/ems t include data p]ta9+ to sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 z appropriate1 includ+ su* sy/ems support$ by ! ,heal? ,res\rces & ,s]vices ,adm9i/ration1 9 ord] to-- 7,a7 increase ! numb] ( ,/ates & jurisdictions p>ticipat+ 9 su* sy/ems2 or 7,b7 improve ! utility ( su* sy/ems1 :i* may include-- 7i7 mak+ summ>y data available to ! public 9 a timely mann] on ! int]net website ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices1 9 a mann] t1 at a m9imum1 protects p]sonal privacy to ! ext5t requir$ by applicable ,f$]al & ,/ate law2 & 7ii7 mak+ ! data submitt$ to su* sy/ems available to rese>*]s1 9 a mann] t1 at a m9imum1 protects p]sonal privacy to ! ext5t requir$ by applicable ,f$]al & ,/ate law2 & 7#b7 aw>d+ grants or coop]ative agreem5ts to ,/ates1 ,indian ,tribes1 & ,tribal organizations = purposes (-- 7,a7 support+ fetal & infant mortality & *ild dea? review programs = sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 includ+ by e/abli%+ su* programs at ! local level2 7,b7 improv+ data collection relat$ to sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 includ+ by-- 7i7 improv+ ! completion ( dea? sc5e inve/igations & compreh5sive autopsies t include a review ( cl9ical hi/ory & circum/ances ( dea? ) appropriate ancill>y te/+2 & 7ii7 tra9+ m$ical exam9]s1 coron]s1 dea? sc5e inve/igators1 law en=cem5t p]sonnel1 em]g5cy m$ical te*nicians1 p>am$ics1 em]g5cy dep>tm5t p]sonnel1 & o!rs :o p]=m dea? sc5e inve/igations ) respect to ! dea?s ( infants & *ildr51 z appropriate2 7,c7 id5tify+1 develop+1 & implem5t+ be/ practices to r$uce or prev5t sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 includ+ practices to r$uce sleep-relat$ infant dea?s2 7,d7 increas+ ! volunt>y inclusion1 9 fatality case report+ sy/ems e/abli%$ = ! purpose ( conduct+ rese>* on sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 ( samples ( tissues or g5etic mat]ials f autopsies t h be5 collect$ pursuant to ,f$]al or ,/ate law2 or 7,e7 dissem9at+ in=mation & mat]ials to heal? c>e pr(essionals & ! public on risk factors t contribute to sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood1 :i* may include in=mation on risk factors t contribute to sleep-relat$ sudd5 unexpect$ infant dea? or sudd5 unexpect$ dea? 9 *ildhood4 7b7 ,application ,to be eligible to receive a grant or coop]ative agreem5t "u subsection 7a77#b71 a ,/ate1 ,indian ,tribe1 or ,tribal organization %all submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require1 includ+ in=mation on h[ su* ,/ate w ensure activities conduct$ "u ?is section are coord9at$ ) o!r f$]ally-fund$ programs to r$uce infant mortality1 z appropriate4 7c7 ,te*nical assi/ance ,! ,secret>y %all provide te*nical assi/ance to ,/ates1 ,tribes1 & ,tribal organizations receiv+ a grant or coop]ative agreem5t "u subsection 7a77#b7 = purposes ( c>ry+ out activities fund$ ?r\gh ! grant or coop]ative agreem5t4 7d7 ,report+ =ms 7#a7 ,9 g5]al ,! ,secret>y %all1 z appropriate1 enc\rage ! use ( sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood report+ =ms develop$ 9 collaboration ) ! ,c5t]s = ,disease ,control & ,prev5tion to improve ! quality ( data submitt$ to ! ,sudd5 ,unexpect$ ,infant ,dea? & ,sudd5 ,dea? 9 ! ,"y ,case ,regi/ry1 & o!r fatality case report+ sy/ems t include data p]ta9+ to sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood4 7#b7 ,update ( =ms ,! ,secret>y %all assess :e!r updates are ne$$ to ! sudd5 unexpect$ infant dea? inve/igation report+ =m us$ by ! ,c5t]s = ,disease ,control & ,prev5tion 9 ord] to improve ! use ( su* =m ) o!r fatality case report+ sy/ems support$ by ! ,dep>tm5t ( ,heal? & ,human ,s]vices1 & %all make su* updates z appropriate4 7e7 ,support s]vices 7#a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,adm9i/rator1 %all aw>d grants to national organizations1 ,/ate & local heal? dep>tm5ts1 community-bas$ organizations1 & nonpr(it organizations = ! provision ( support s]vices to families :o h _h a *ild die ( sudd5 unexpect$ infant dea? or sudd5 unexpect$ dea? 9 *ildhood4 7#b7 ,application ,to be eligible to receive a grant "u subsection 7#a71 an entity %all submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require4 7#c7 ,use ( funds ,am\nts receiv$ "u a grant aw>d$ "u p>agraph 7#a7 may be us$-- 7,a7 to provide grief c\nsel+1 education1 home visits1 #bd-;h\r hotl9es1 or in=mation1 res\rces1 & ref]rals2 7,b7 to ensure access to grief & b]eavem5t s]vices2 7,c7 to build capacity 9 pr(essionals work+ ) families :o exp]i5ce a sudd5 dea?2 or 7,d7 to support pe]-to-pe] gr\ps = families :o h lo/ a *ild to sudd5 unexpect$ infant dea? or sudd5 unexpect$ dea? 9 *ildhood4 7#d7 ,pref]5ce ,9 aw>d+ grants "u p>agraph 7#a71 ! ,secret>y %all give pref]5ce to applicants t-- 7,a7 h a prov5 hi/ory ( effective direct support s]vices & int]v5tions = sudd5 unexpect$ infant dea? & sudd5 unexpla9$ dea? 9 *ildhood2 & 7,b7 demon/rate exp]i5ce ?r\gh collaborations & p>tn]%ips = deliv]+ s]vices describ$ 9 p>agraph 7#c74 7f7 ,def9itions ,9 ?is section3 7#a7 ,sudd5 unexpect$ infant dea? ,! t]m sudd5 unexpect$ infant dea?-- 7,a7 means ! sudd5 dea? ( an infant "u #a ye> ( age t :5 fir/ discov]$ did n h an obvi\s cause2 & 7,b7 includes-- 7i7 su* dea?s t are expla9$2 & 7ii7 su* dea?s t rema9 unexpla9$ 7:i* are kn[n z sudd5 infant dea? syndrome74 7#b7 ,sudd5 unexpect$ dea? 9 *ildhood ,! t]m sudd5 unexpect$ dea? 9 *ildhood-- 7,a7 means ! sudd5 dea? ( a *ild :o is at lea/ #a ye> ( age b n m ?an #ag ye>s ( age t1 :5 fir/ discov]$1 did n h an obvi\s cause2 & 7,b7 includes-- 7i7 su* dea?s t are expla9$2 & 7ii7 su* dea?s t rema9 unexpla9$ 7:i* are kn[n z sudd5 unexpla9$ dea? 9 *ildhood74 7#c7 ,sudd5 unexpla9$ dea? 9 *ildhood ,! t]m sudd5 unexpla9$ dea? 9 *ildhood means a sudd5 unexpect$ dea? 9 *ildhood t rema9s unexpla9$ aft] a ?or\gh case inve/igation4 7g7 ,au?orization ( appropriations ,= ! purpose ( c>ry+ out ?is section1 !re is au?oriz$ to be appropriat$ #cc1jjj1jjj = ea* ( fiscal ye>s #bjba ?r\gh #bjbd4 4 #c4 ,report to ,congress 7a7 ,9 g5]al ,n lat] ?an #b ye>s aft] ! date ( enactm5t ( ?is ,act1 & bi5nially !reaft]1 ! ,secret>y ( ,heal? & ,human ,s]vices %all submit to ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives & ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate a report t conta9s1 ) respect to ! report+ p]iod-- 7#a7 in=mation reg>d+ ! incid5ce & numb] ( sudd5 unexpect$ infant dea?s & sudd5 unexpect$ dea?s 9 *ildhood 7includ+ ! numb] ( su* infant & *ild dea?s t rema9 unexpla9$ aft] inve/igation71 includ+1 to ! ext5t practicable-- 7,a7 a summ>y ( su* in=mation by racial & e?nic gr\p1 & by ,/ate2 7,b7 aggregate in=mation obta9$ f dea? sc5e inve/igations & autopsies2 & 7,c7 recomm5dations = r$uc+ ! incid5ce ( sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood2 7#b7 an assessm5t ( ! ext5t to :i* v>i\s approa*es ( r$uc+ & prev5t+ sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood h be5 effective2 & 7#c7 a description ( ! activities c>ri$ out "u section #aaba ( ! ,public ,heal? ,s]vice ,act 7z add$ by section #b74 7b7 ,def9itions ,9 ?is section1 ! t]ms sudd5 unexpect$ infant dea? & sudd5 unexpect$ dea? 9 *ildhood h ! mean+s giv5 su* t]ms 9 section #aaba ( ! ,public ,heal? ,s]vice ,act 7z add$ by section #b74 ,septemb] #ba1 #bjbj,report$ ) an am5dm5t1 committ$ to ! ,committee ( ! ,:ole ,h\se on ! ,/ate ( ! ,union1 & ord]$ to be pr9t$