,i  #aaf? ,,congress  #a/ ,session  ,h4 
,r4 #baee  ,,9 ,,! ,,h\se ,,(           
,,repres5tatives  ,april #i1 #bjai,mr4  
,ru% introduc$ ! foll[+ bill2 :i* 0     
ref]r$ to ! ,committee on ,en]gy &      
,comm]ce  ,a ,,bill  ,to provide = c]ta9
 requirem5ts ) respect to ! treatm5t (  
p]sonally id5tifiable in=mation by      
g5etic te/+ s]vices4  #a4 ,%ort title   
,?is ,act may be cit$ z ! ,g5etic       
,in=mation ,privacy ,act ( #bjai4  #b4  
,treatm5t ( p]sonally id5tifiable       
in=mation by g5etic te/+ s]vices  7a7   
,cons5t requir$  7#a7 ,express cons5t = 
disclosure  7,a7 ,9 g5]al ,a g5etic te/+
 s]vice may n disclose p]sonally        
id5tifiable in=mation ( a cu/om] to a   
?ird p>ty unless ! s]vice obta9s !      
express cons5t ( ! cu/om]4  7,b7        
,relation%ip to in=m$ cons5t requirem5t 
,9 ! case ( ! disclosure ( g5etic       
in=mation = m$ical rese>*1 p>agraph 7#b7
 applies in/ead ( subp>agraph 7,a74     
7#b7 ,in=m$ cons5t = use or disclosure (
 g5etic in=mation = m$ical rese>* ,a    

g5etic te/+ s]vice may n use g5etic     
in=mation ( a cu/om] = m$ical rese>*1 or
 disclose su* in=mation to a ?ird p>ty =
 m$ical rese>*1 unless ! s]vice--  7,a7 
obta9s ! in=m$ cons5t ( ! cu/om] 9      
accordance ) section #df4aaf ( title    
#de1 ,code ( ,f$]al ,regulations1 z 9   
effect on ! date ( ! enactm5t ( ?is     
,act2 &  7,b7 docum5ts ! cons5t ( !     
cu/om] 9 accordance ) section #df4aag ( 
title #de1 ,code ( ,f$]al ,regulations1 
z 9 effect on ! date ( ! enactm5t ( ?is 
,act4  7#c7 ,option reg>d+ g5etic       
in=mation ,9 seek+ ! cons5t ( a cu/om]  
"u p>agraph 7#a7 or 7#b7 = ! disclosure 
( p]sonally id5tifiable in=mation1 a    
g5etic te/+ s]vice %all give ! cu/om] ! 
option ( provid+ cons5t = ! disclosure (
 ! g5etic in=mation ( ! cu/om] :ile     
)hold+ cons5t = ! disclosure ( any o!r  
p]sonally id5tifiable in=mation ( !     
cu/om]4  7#d7 ,prohibition on condition+
 s]vice on cons5t ,a g5etic te/+ s]vice 
may n condition ! provision ( s]vice to 
a cu/om] on obta9+ ! cons5t ( ! cu/om]  

requir$ by p>agraph 7#a7 or 7#b71 except
 to ! ext5t t disclosure ( p]sonally    
id5tifiable in=mation is necess>y to    
provide ! s]vice4  7b7 ,notification    
7#a7 ,new cu/om]s ,9 ! case ( an        
agreem5t = s]vice ent]$ into betwe5 a   
g5etic te/+ s]vice & a cu/om] on or aft]
 ! effective date describ$ 9 section #f1
 ! g5etic te/+ s]vice %all notify !     
cu/om] ( ! rights ( ! cu/om] "u         
subsection 7a7--  7,a7 at ! "t :5 !     
agreem5t is ent]$ into2  7,b7 us+ ! same
 me?od ( communication by :i* ! agreem5t
 is ent]$ into2 &  7,c7 9 a mann] t is--
 7i7 cle> & conspicu\s2 &  7ii7 sep>ate 
f any privacy policy1 data use policy1  
or o!r simil> docum5t4  7#b7 ,exi/+     
cu/om]s  7,a7 ,9 g5]al ,9 ! case ( an   
agreem5t = s]vice ent]$ into betwe5 a   
g5etic te/+ s]vice & a cu/om] be=e !    
effective date describ$ 9 section #f1 ! 
g5etic te/+ s]vice %all notify ! cu/om] 
( ! rights ( ! cu/om] "u subsection     
7a7--  7i7 n lat] ?an ! date t is #a ye>
 aft] su* effective date2  7ii7 us+ !   

prim>y me?od ( communication ( ! g5etic 
te/+ s]vice ) ! cu/om]2 &  7iii7 9 a    
mann] t is-- 7,i7 cle> & conspicu\s2 &  
7,,ii7 sep>ate f any privacy policy1    
data use policy1 or o!r simil> docum5t4 
7,b7 ,inability to contact ,a g5etic    
te/+ s]vice may n be consid]$ to be 9   
violation ( subp>agraph 7,a7 by reason (
 be+ unable to contact a cu/om]1 if !   
s]vice s5ds ! notification requir$ by   
su* subp>agraph--  7i7 if ! prim>y me?od
 ( communication ( ! s]vice ) ! cu/om]  
is 9 writ+1 to ! la/ kn[n home mail+    
address ( ! cu/om] 9 ! records ( !      
s]vice2 &  7ii7 if ! prim>y me?od (     
communication ( ! s]vice ) ! cu/om] is  
email or o!r electronic means1 to ! la/ 
kn[n email address1 or us+ ! la/ kn[n   
o!r electronic contact in=mation1 z !   
case may be1 ( ! cu/om] 9 ! records ( ! 
s]vice4  7#c7 ,website notification ,9  
addition to ! notifications requir$ by  
p>agraphs 7#a7 & 7#b71 a g5etic te/+    
s]vice %all provide cle> & conspicu\s   
notification ( ! rights ( cu/om]s "u    

subsection 7a7 on ! int]net website ( ! 
s]vice 7if ! s]vice ma9ta9s su* a       
website74 ,su* notification %all be     
sep>ate f any privacy policy1 data use  
policy1 or o!r simil> docum5t4  7#d7    
,cont5ts ,! ,commission %all include 9 !
 regulations promulgat$ "u subsection   
7d7 requirem5ts = ! cont5ts ( !         
notifications requir$ by ?is subsection4
  7c7 ,in=mation security requirem5ts ,!
 ,commission %all promulgate regulations
 t require a g5etic te/+ s]vice to      
implem5t policies & proc$ures to secure 
! p]sonally id5tifiable in=mation (     
cu/om]s ( ! s]vice aga9/ unau?oriz$     
access4  7d7 ,regulations  7#a7 ,9 g5]al
 ,n lat] ?an #a ye> aft] ! date ( !     
enactm5t ( ?is ,act1 ! ,commission %all 
promulgate1 "u section #eec ( title #e1 
,unit$ ,/ates ,code--  7,a7 regulations 
to implem5t subsections 7a7 & 7b72 &    
7,b7 ! regulations requir$ by subsection
 7c74  7#b7 ,consid]ations ,9 promulgat+
 regulations "u p>agraph 7#a71 !        
,commission %all take into              

consid]ation-- 7,a7 ! size (1 & !       
nature1 scope1 & complexity ( !         
activities engag$ 9 by1 diff]5t types or
 categories ( g5etic te/+ s]vices2  7,b7
 ! co/ ( implem5t+ ! requirem5ts (      
subsections 7a7 & 7b7 & su* regulations2
 &  7,c7 9 ! case ( ! regulations       
requir$ by subsection 7c71 ! curr5t /ate
 ( ! art 9 adm9i/rative1 te*nical1 &    
physical safegu>ds to secure in=mation  
aga9/ unau?oriz$ access4  #c4 ,en=cem5t 
7a7 ,en=cem5t by ,f$]al ,trade          
,commission  7#a7 ,unfair or deceptive  
acts or practices ,a violation ( section
 #b or a regulation promulgat$ "u su*   
section %all be treat$ z an unfair or   
deceptive act or practice 9 violation ( 
a regulation "u section #ah7;a77#a77;,b7
 ( ! ,f$]al ,trade ,commission ,act 7#ae
 ,u4,s4,c4 #eg;a7a77#a77;,b77 reg>d+    
unfair or deceptive acts or practices4  
7#b7 ,p[]s ( ,commission ,! ,commission 
%all en=ce section #b & ! regulations   
promulgat$ "u su* section 9 ! same      
mann]1 by ! same means1 & ) ! same      

jurisdiction1 p[]s1 & duties z ?\gh all 
applicable t]ms & provisions ( ! ,f$]al 
,trade ,commission ,act 7#ae ,u4,s4,c4  
#da et seq47 7 incorporat$ into & made a
 "p ( ?is ,act4 ,any p]son :o violates  
su* section or su* a regulation %all be 
subject to ! p5alties & entitl$ to !    
privileges & immunities provid$ 9 !     
,f$]al ,trade ,commission ,act4  7b7    
,en=cem5t by ,/ate attorneys g5]al  7#a7
 ,civil action ,9 any case 9 :i* !      
attorney g5]al ( a ,/ate1 or an (ficial 
or ag5cy ( a ,/ate1 has reason to       
believe t an int]e/ ( ! resid5ts ( t    
,/ate has be5 or is ?reat5$ or adv]sely 
affect$ by any p]son :o violates section
 #b or a regulation promulgat$ "u su*   
section1 ! attorney g5]al1 (ficial1 or  
ag5cy ( ! ,/ate1 z p>5s patriae1 may br+
 a civil action on behalf ( ! resid5ts (
 ! ,/ate 9 a di/rict c\rt ( ! ,unit$    
,/ates ( appropriate jurisdiction--     
7,a7 to enjo9 fur!r violation ( su*     
section or su* regulation by ! def5dant2
  7,b7 to compel compliance ) su*       

section or su* regulation2 or  7,c7 to  
obta9 civil p5alties 9 ! same am\nt z ! 
civil p5alties t may be obta9$ by !     
,commission "u section #e7m7 ( ! ,f$]al 
,trade ,commission ,act 7#ae ,u4,s4,c4  
#de7m774  7#b7 ,int]v5tion by ,,ftc     
7,a7 ,notice & int]v5tion ,! ,/ate %all 
provide prior writt5 notice ( any action
 "u p>agraph 7#a7 to ! ,commission &    
provide ! ,commission ) a copy ( its    
compla9t1 except 9 any case 9 :i* su*   
prior notice is n feasible1 9 :i* case !
 ,/ate %all s]ve su* notice imm$iately  
^u in/itut+ su* action4 ,! ,commission  
%all h ! "r--  7i7 to int]v5e 9 !       
action2  7ii7 ^u s int]v5+1 to be he>d  
on all matt]s aris+ !re92 &  7iii7 to   
file petitions = appeal4  7,b7          
,limitation on /ate action :ile ,f$]al  
action is p5d+ ,if ! ,commission has    
in/itut$ a civil action = violation (   
section #b or a regulation promulgat$ "u
 su* section1 no ,/ate attorney g5]al1  
or (ficial or ag5cy ( a ,/ate1 may br+  
an action "u p>agraph 7#a7 dur+ ! p5d5cy

 ( ! action ( ! ,commission aga9/ any   
def5dant nam$ 9 ! compla9t ( !          
,commission = any violation ( su*       
section or su* regulation alleg$ 9 !    
compla9t4  7#c7 ,rule ( con/ruction ,=  
purposes ( br++ any civil action "u     
p>agraph 7#a71 no?+ 9 ?is ,act or !     
regulations promulgat$ "u ?is ,act %all 
be con/ru$ to prev5t an attorney g5]al (
 a ,/ate f ex]cis+ ! p[]s conf]r$ on !  
attorney g5]al by ! laws ( t ,/ate to-- 
7,a7 conduct inve/igations2  7,b7       
adm9i/] oa?s or affirmations2 or  7,c7  
compel ! att5dance ( witnesses or !     
production ( docum5t>y & o!r evid5ce4   
#d4 ,effect on o!r laws  7a7 ,preemption
 ( c]ta9 ,/ate laws relat+ to g5etic    
te/+ ,?is ,act & ! regulations          
promulgat$ "u ?is ,act sup]s$e any      
provision ( a /atute1 regulation1 or    
rule ( a ,/ate or political subdivision 
( a ,/ate1 ) respect to an entity to !  
ext5t ?is ,act & ! regulations          
promulgat$ "u ?is ,act apply to su*     
entity1 t expressly provides =          

requirem5ts relat+ to treatm5t ( p]sonal
 in=mation by s]vices provid+ g5etic    
te/+ t are simil> to any requirem5ts    
conta9$ 9 section #b or a regulation    
promulgat$ "u su* section4  7b7         
,pres]vation ( c]ta9 ,/ate laws ,?is    
,act & ! regulations promulgat$ "u ?is  
,act may n be con/ru$ to preempt !      
applicability (--  7#a7 ,/ate trespass1 
contract1 or tort law2 or  7#b7 o!r     
,/ate laws to ! ext5t t ^? laws relate  
to acts ( fraud4  7c7 ,additional       
preemption  7#a7 ,9 g5]al ,no p]son o!r 
?an ! attorney g5]al ( a ,/ate1 or ano!r
 (ficial or ag5cy ( a ,/ate1 may br+ a  
civil action "u ! laws ( any ,/ate if   
su* action is premis$ 9 :ole or 9 "p ^u 
! def5dant violat+ any provision ( ?is  
,act or a regulation promulgat$ "u ?is  
,act4  7#b7 ,pres]vation ( consum]      
protection laws ,?is subsection may n be
 con/ru$ to limit ! en=cem5t ( any ,/ate
 consum] protection law by an attorney  
g5]al ( a ,/ate1 or ano!r (ficial or    
ag5cy ( a ,/ate4  7d7 ,pres]vation (    

,,ftc au?ority ,no?+ 9 ?is ,act may be  
con/ru$ 9 any way to limit ! au?ority ( 
! ,commission "u any o!r provision (    
law4  #e4 ,def9itions ,9 ?is ,act3 7#a7 
,commission ,! t]m ,commission means !  
,f$]al ,trade ,commission4  7#b7 ,g5etic
 in=mation ,! t]m g5etic in=mation--    
7,a7 has ! mean+ giv5 su* t]m 9 section 
#bja ( ! ,g5etic ,in=mation             
,nondiscrim9ation ,act ( #bjjh 7#db     
,u4,s4,c4 #bjjj;ff72 &  7,b7 includes a 
physical sample1 su* z fluid or tissue1 
obta9$ f a cu/om] = purposes ( p]=m+ a  
g5etic te/4  7#c7 ,g5etic te/ ,! t]m    
g5etic te/ has ! mean+ giv5 su* t]m 9   
section #bja ( ! ,g5etic ,in=mation     
,nondiscrim9ation ,act ( #bjjh 7#db     
,u4,s4,c4 #bjjj;ff74  7#d7 ,g5etic te/+ 
s]vice ,! t]m g5etic te/+ s]vice means  
any entity t-- 7,a7 (f]s g5etic te/s    
directly to consum]s2 or  7,b7 analyzes 
g5etic in=mation obta9$ f a g5etic te/  
(f]$ directly to consum]s1 except to !  
ext5t t ! analysis is p]=m$ by a m$ical 
pr(essional = diagnosis or treatm5t ( a 

m$ical condition4  7#e7 ,m$ical rese>*  
,! t]m m$ical rese>* means ! conduct (  
inve/igations1 exp]im5ts1 & /udies to   
discov]1 develop1 or v]ify k relat+ to !
 causes1 diagnosis1 treatm5t1 prev5tion1
 or control ( physical or m5tal diseases
 & impairm5ts ( humans4  7#f7 ,p]sonally
 id5tifiable in=mation  7,a7 ,def9ition 
,! t]m p]sonally id5tifiable in=mation  
means any ( ! foll[+ ( an individual3   
7i7 ,"n4  7ii7 ,address4  7iii7 ,social 
,security numb]4  7iv7 ,phone numb]4    
7v7 ,onl9e id5tifi]1 su* z an email     
address or us] ,,id4  7vi7 ,g5etic      
in=mation4  7vii7 ,in=mation1 o!r ?an   
g5etic in=mation1 t--  7,i7 relates to !
 pa/1 pres5t1 or future physical or     
m5tal heal? or condition ( ! individual2
 &  7,,ii7 ei!r-- 7aa7 id5tifies !      
individual2 or  7bb7 !re is a reasonable
 basis to believe c be us$ to id5tify ! 
individual4  7,b7 ,modifi$ def9ition by 
rulemak+ ,! ,commission may1 by         
regulation promulgat$ "u section #eec ( 
title #e1 ,unit$ ,/ates ,code1 modify ! 

def9ition ( p]sonally id5tifiable       
in=mation "u subp>agraph 7,a7 to ! ext5t
 t su* modification is necess>y to      
accommodate *anges 9 te*nology or       
practices1 w n unreasonably imp$e       
int]/ate comm]ce1 & w accompli% !       
purposes ( ?is ,act4  7#g7 ,/ate ,! t]m 
,/ate means ea* ,/ate ( ! ,unit$ ,/ates1
 ! ,di/rict ( ,columbia1 ea*            
commonweal?1 t]ritory1 or possession ( !
 ,unit$ ,/ates1 & ea* f$]ally recogniz$ 
,indian ,tribe4  7#h7 ,?ird p>ty ,! t]m 
?ird p>ty means1 ) respect to a g5etic  
te/+ s]vice1 an entity 7includ+ an      
entity t controls1 is controll$ by1 or  
is "u common control ) ! s]vice7 t holds
 itself out to ! public z sep>ate f !   
s]vice su* t a cu/om] ( ! s]vice act+   
reasonably "u ! circum/ances w\ld n     
expect ! entity to be relat$ to ! s]vice
 or to h access to p]sonally id5tifiable
 in=mation t ! cu/om] provides to !     
s]vice4  #f4 ,effective date ,except =  
subsections 7c7 & 7d7 ( section #b1     
section #e7f77;,b71 ?is section1 &      

section #g1 ?is ,act & ! regulations    
requir$ by subsections 7c7 & 7d7 (      
section #b %all apply beg9n+ on ! date t
 is #cj days aft] ! date on :i* !       
,commission promulgates su* regulations4
  #g4 ,au?orization ( appropriations    
,!re is au?oriz$ to be appropriat$ to ! 
,commission #e1jjj1jjj = ea* ( ! fiscal 
ye>s #bjbj ?r\gh #bjbi to c>ry out ?is  
,act4