#aaf? ,,congress  #b;d ,session  ,h4 ,r4
 #aiff  ,,an ,,act  ,to direct !        
,comptroll] ,g5]al ( ! ,unit$ ,/ates to 
complete a /udy on b>ri]s to            
p>ticipation 9 f$]ally fund$ canc]      
cl9ical trials by populations t h be5   
traditionally und]repres5t$ 9 su*       
trials4  #a4 ,%ort title ,?is ,act may  
be cit$ z ! ,h5rietta ,lacks ,enhanc+   
,canc] ,rese>* ,act ( #bjai4  #b4 ,f9d+s
 ,congress f9ds z foll[s3  7#a7 ,only a 
small p]c5t ( pati5ts p>ticipate 9 canc]
 cl9ical trials1 ev5 ?\gh mo/ express an
 int]e/ 9 cl9ical rese>*4 ,!re are      
sev]al ob/acles t re/rict individuals f 
p>ticipat+ includ+ lack ( available     
local trials1 re/rictive eligibility    
crit]ia1 transportation to trial sites1 
tak+ "t (f f "w1 & pot5tially increas$  
m$ical & nonm$ical co/s4 ,ultimately1   
ab\t #a 9 #e canc] cl9ical trials fail  
because ( lack ( pati5t enrollm5t4  7#b7
 ,gr\ps t are g5]ally und]repres5t$ 9   
cl9ical trials include racial & e?nic   
m9orities & old]1 rural1 & l[]-income   

individuals4  7#c7 ,h5rietta ,lacks1 an 
,african-,am]ican woman1 0 diagnos$ )   
c]vical canc] at ! age ( #ca1 & despite 
receiv+ pa9ful radium treatm5ts1 pass$  
away on ,octob] #d1 #aiea4  7#d7 ,m$ical
 rese>*]s took samples ( ,h5rietta      
,lacks' tumor dur+ h] treatm5t & !      
,he,la cell l9e f h] tumor prov$        
rem>kably resili5t4  7#e7 ,he,la cells 7
 ! fir/ immortal l9e ( human cells4     
,h5rietta ,lacks' cells 7 unique1 gr[+  
by ! millions1 comm]cializ$ & di/ribut$ 
worldwide to rese>*]s1 result+ 9        
advances 9 m$ic9e4  7#f7 ,h5rietta      
,lacks' prolific cells cont9ue to gr[ & 
contribute to rem>kable advances 9      
m$ic9e1 includ+ ! developm5t ( ! polio  
vacc9e1 z well z drugs = treat+ !       
effects ( canc]1 ,,hiv_/,,aids1         
hemophilia1 leukemia1 & ,p>k9son's      
disease4 ,^! cells h be5 us$ 9 rese>* t 
has contribut$ to our und]/&+ ( !       
effects ( radiation & z]o gravity on    
human cells4 ,^! immortal cells h in=m$ 
rese>* on *romosomal conditions1 canc]1 

g5e mapp+1 & precision m$ic9e4  7#g7    
,h5rietta ,lacks & h] immortal cells h  
made a significant contribution to      
global heal?1 sci5tific rese>*1 quality 
( life1 & pati5t rights4  7#h7 ,= m ?an 
#bj ye>s1 ! advances made possible by   
,h5rietta ,lacks' cells 7 )\t h] or h]  
family's cons5t1 & ! rev5ues !y g5]at$ 7
 n kn[n to or %>$ ) h] family4  7#i7    
,h5rietta ,lacks & h] family's exp]i5ce 
is fundam5tal to mod]n & future bioe?ics
 policies & in=m$ cons5t laws t b5efit  
pati5ts nationwide by build+ pati5t     
tru/2 promot+ e?ical rese>* t b5efits   
all individuals1 includ+ traditionally  
und]repres5t$ populations2 & protect+   
rese>* p>ticipants4  #c4 ,,gao /udy on  
b>ri]s to p>ticipation 9 f$]ally fund$  
canc] cl9ical trials by populations t h 
be5 traditionally und]repres5t$ 9 su*   
trials  7a7 ,9 g5]al ,n lat] ?an #b ye>s
 aft] ! date ( enactm5t ( ?is ,act1 !   
,comptroll] ,g5]al ( ! ,unit$ ,/ates    
%all--  7#a7 complete a /udy t-- 7,a7   
reviews :at actions ,f$]al ag5cies h    

tak5 to help to address b>ri]s to       
p>ticipation 9 f$]ally fund$ canc]      
cl9ical trials by populations t h be5   
traditionally und]repres5t$ 9 su*       
trials1 & id5tifies *all5ges1 if any1 9 
implem5t+ su* actions2 &  7,b7 id5tifies
 additional actions t c be tak5 by      
,f$]al ag5cies to address b>ri]s to     
p>ticipation 9 f$]ally fund$ canc]      
cl9ical trials by populations t h be5   
traditionally und]repres5t$ 9 su*       
trials2 &  7#b7 submit a report to !    
,congress on ! results ( su* /udy1      
includ+ recomm5dations on pot5tial      
*anges 9 practices & policies to improve
 p>ticipation 9 su* trials by su*       
populations4  7b7 ,inclusion ( cl9ical  
trials ,! /udy "u subsection 7a77#a7    
%all include review ( canc] cl9ical     
trials t are l>gely fund$ by ,f$]al     
ag5cies4  ,pass$ ! ,h\se (              
,repres5tatives ,decemb] #i1            
#bjbj4;,cl]k4