,,iii  #aae? ,,congress  #b;d ,session  
,s4 ,,res4 #gje  ,,9 ,,! ,,s5ate ,,( ,,!
 ,,unit$ ,,/ates  ,novemb] #bf1         
#bjah,mr4 ,isakson 7= himself & ,ms4    
,baldw97 submitt$ ! foll[+ resolution2  
:i* 0 consid]$ & agre$ to  ,,resolution 
,designat+ ,decemb] #c1 #bjah1 z        
,national ,ph5ylketonuria ,aw>5ess ,day4
  ,:]eas ph5ylketonuria 79 ?is preamble 
ref]r$ to z ,,pku7 is a r>e1 inh]it$    
metabolic disord] t is *>act]iz$ by !   
inability ( ! body to process ! ess5tial
 am9o acid ph5ylalan9e & :i* causes     
intellectual disability & o!r           
neurological problems1 su* z memory loss
 & mood disord]s1 :5 treatm5t is n />t$ 
)9 ! fir/ few weeks ( life2 ,:]eas ,,pku
 is also ref]r$ to z ,ph5ylalan9e       
,hydroxylase ,defici5cy2 ,:]eas newborn 
scre5+ = ,,pku 0 initiat$ 9 ! ,unit$    
,/ates 9 #aifc & 0 recomm5d$ = inclusion
 9 ,/ate newborn scre5+ programs "u !   
,newborn ,scre5+ ,saves ,lives ,act (   
#bjjg 7,public ,law #aaj-bjd72 ,:]eas   
approximately #a out ( e #ae1jjj infants

 9 ! ,unit$ ,/ates is born ) ,,pku2     
,:]eas ,,pku is treat$ ) m$ical food2   
,:]eas ! #bjab ,ph5ylketonuria          
,sci5tific ,review ,conf]5ce affirm$ !  
recomm5dation ( lifelong diet>y treatm5t
 = ,,pku made by ! ,national ,in/itutes 
( ,heal? ,cons5sus ,developm5t ,conf]5ce
 ,/atem5t #bjjj2 ,:]eas1 9 #bjad1 !     
,am]ican ,college ( ,m$ical ,g5etics &  
,g5omics & ,g5etic ,metabolic           
,dieticians ,int]national publi%$ m$ical
 & diet>y guidel9es on ! optimal        
treatm5t ( ,,pku2 ,:]eas m$ical foods   
are m$ically necess>y = *ildr5 & adults 
liv+ ) ,,pku2 ,:]eas adults ) ,,pku :o  
discont9ue treatm5t are at risk = s]i\s 
m$ical issues1 su* z depression1 impulse
 control disord]1 phobias1 tremors1 &   
p>eses2 ,:]eas wom5 ) ,,pku mu/ ma9ta9  
/rict metabolic control be=e & dur+     
pregnancy to prev5t fetal damage2 ,:]eas
 *ildr5 born f untreat$ mo!rs ) ,,pku   
may h a condition kn[n z mat]nal        
ph5ylketonuria syndrome1 :i* c cause    
small bra9s1 intellectual disabilities1 

bir? defects ( ! he>t1 & l[ bir?        
weights2 ,:]eas1 al?\gh !re is no cure =
 ,,pku1 treatm5t involv+ m$ical foods1  
m$ications1 & re/riction ( ph5ylalan9e  
intake c prev5t progressive1 irrev]sible
 bra9 damage2 ,:]eas access to heal?    
insurance cov]age = m$ical food v>ies   
across ! ,unit$ ,/ates & ! long-t]m co/s
 associat$ ) c>+ = untreat$ *ildr5 &    
adults ) ,,pku f> exce$ ! co/ ( provid+ 
m$ical food treatm5t2 ,:]eas gaps 9     
m$ical foods cov]age has a detrim5tal   
impact on individuals ) ,,pku1 _!       
families1 & society2 ,:]eas sci5ti/s &  
rese>*]s are hopeful t break?r\ghs 9    
,,pku rese>* w be =?com+2 ,:]eas        
rese>*]s across ! ,unit$ ,/ates are     
conduct+ important rese>* projects      
involv+ ,,pku2 & ,:]eas ! ,s5ate is an  
in/itution t c raise aw>5ess ( ,,pku    
among ! g5]al public & ! m$ical         
community3 ,n[1 !re=e1 be x  ,t !       
,s5ate-- 7#a7 designates ,decemb] #c1   
#bjah1 z ,national ,ph5ylketonuria      
,aw>5ess ,day2  7#b7 enc\rages all p 9 !

 ,unit$ ,/ates to become m in=m$ ab\t   
ph5ylketonuria & ! role ( m$ical foods 9
 treat+ ph5ylketonuria2 &  7#c7         
respectfully reque/s t ! ,secret>y ( !  
,s5ate transmit an enroll$ copy ( ?is   
resolution to ! ,national ,,pku         
,alliance1 a nonpr(it organization      
d$icat$ to improv+ ! lives ( individuals
 ) ph5ylketonuria4