,,ii #aae? ,,congress #a/ ,session ,s4 #fic ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,m>* #bb1 #bjag,ms4 ,baldw9 7= h]self & ,mrs4 ,capito7 introduc$ ! foll[+ bill2 :i* 0 read twice & ref]r$ to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ,a ,,bill ,to am5d ! ,public ,heal? ,s]vice ,act to increase ! numb] ( p]man5t faculty 9 palliative c>e at accr$it$ allopa?ic & o/eopa?ic m$ical s*ools1 nurs+ s*ools1 social "w s*ools1 & o!r programs1 includ+ physician assi/ant education programs1 to promote education & rese>* 9 palliative c>e & hospice1 & to support ! developm5t ( faculty c>e]s 9 academic palliative m$ic9e4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,palliative ,c>e & ,hospice ,education & ,tra9+ ,act4 #b4 ,f9d+s ,congress makes ! foll[+ f9d+s3 7#a7 ,palliative c>e is int]discipl9>y1 pati5t- & family-c5t]$ heal? c>e = p ) s]i\s illnesses4 ,?is type ( c>e is focus$ on provid+ pati5ts ) relief f ! symptoms1 pa91 & /ress ( a s]i\s illness1 :atev] ! diagnosis4 ,! goal ( palliative c>e is to relieve suff]+ & improve quality ( life = bo? pati5ts & _! families4 ,palliative c>e is provid$ by a team ( doctors1 nurses1 social work]s1 physician assi/ants1 *apla9s1 & o!r speciali/s :o "w ) a pati5t's o!r heal? c>e provid]s to provide an extra lay] ( support1 includ+ assi/ance ) difficult m$ical decisionmak+ & coord9ation ( c>e among speciali/s4 ,palliative c>e is appropriate at any age & at any /age 9 a s]i\s illness1 & c be provid$ toge!r ) curative treatm5t4 ,palliative c>e is n dep5d5t on a life-limit+ prognosis & may actually help an individual recov] f illness by reliev+ symptoms1 su* z pa91 anxiety1 or loss ( appetite1 :ile und]go+ sometimes difficult m$ical treatm5ts or proc$ures1 su* z surg]y or *emo!rapy4 7#b7 ,hospice is palliative c>e = pati5ts 9 _! la/ ye> ( life4 ,consid]$ ! model = quality compassionate c>e = individuals fac+ a life-limit+ illness1 hospice provides exp]t m$ical c>e1 pa9 managem5t1 & emotional & spiritual support expressly tailor$ to ! pati5t's ne$s & wi%es4 ,9 mo/ cases1 c>e is provid$ 9 ! pati5t's home b may also be provid$ 9 free/&+ hospice c5t]s1 hospitals1 nurs+ homes1 & o!r long-t]m c>e facilities4 ,9 #bjad1 an e/imat$ #a1fjj1jjj to #a1gjj1jjj pati5ts receiv$ s]vices f hospice1 includ+ non-,m$ic>e b5efici>ies4 ,ne>ly #dh p]c5t ( all ,m$ic>e dec$5ts 9 #bjad receiv$ c>e f a hospice program4 ,hospice is a cov]$ b5efit "u ! ,m$ic>e program4 ,!re 7 #d1jbe ,m$ic>e-c]tifi$ hospices s]v+ m ?an #a1cjj1jjj ,m$ic>e b5efici>ies 9 #bjad4 7#c7 ,despite a high int5sity ( m$ical treatm5t1 _m s]i\sly ill pati5ts exp]i5ce tr\bl+ symptoms1 unmet psy*ological & p]sonal c>e ne$s1 & high c>egiv] burd54 ,num]\s /udies h %[n t add+ palliative c>e c improve pa9 & symptom control1 quality ( life1 & family satisfaction ) c>e4 7#d7 ,heal? c>e provid]s ne$ bett] education ab\t pa9 managem5t & palliative c>e4 ,/ud5ts graduat+ f m$ical1 nurs+ & o!r heal? pr(essional s*ools today h v little1 if any1 tra9+ 9 ! core precepts ( pa9 & symptom managem5t1 advance c>e plann+1 communication skills1 & c>e coord9ation = pati5ts ) s]i\s or life-?reat5+ illness4 ,ev5 = speciali/s1 tra9+ is lack+4 ,= example1 ! ,accr$itation ,c\ncil = ,graduate ,m$ical ,education requires oncology fell[%ip programs to integrate compet5ce 9 palliative c>e into _! curriculum & ! ,am]ican ,society ( ,cl9ical ,oncology has recomm5d$ ! integration ( palliative c>e s]vices into /&>d oncology practice at ! "t a p]son is diagnos$ ) meta/atic or advanc$ canc]4 ,yet a #bjae national survey f\nd t hematology_/oncology fell[s 7 inadequately prep>$ to provide palliative c>e to _! pati5ts4 ,less ?an half _h a rotation 9 palliative c>e & #be p]c5t ( fell[s report$ no explicit tea*+ on key skills su* z assess+ prognosis1 conduct+ a family meet+ to discuss treatm5t options1 & ref]ral to palliative c>e4 7#e7 ,! ,am]ican ,bo>d ( ,m$ical ,specialties & ! ,accr$itation ,c\ncil = ,graduate ,m$ical ,education provid$ =mal subspecialty /atus = hospice & palliative m$ic9e 9 #bjjf1 & ! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices recogniz$ hospice & palliative m$ic9e z a m$ical subspecialty 9 ,octob] ( #bjjh4 7#f7 ,z ( ,febru>y #bjag1 !re 7 a total ( #abg hospice & palliative m$ic9e tra9+ programs accr$it$ by ! ,accr$itation ,c\ncil = ,graduate ,m$ical ,education4 ,= ! #bjaf-bjag academic ye>1 ^! programs 7 tra9+ #cbg physicians 9 hospice & palliative m$ic9e4 ,"s programs include an additional track 9 p$iatrics1 g]iatrics1 rese>*1 or public heal?4 ,few] ?an a doz5 ( ^! ,,acgme-accr$it$ tra9+ programs focus solely on p$iatric palliative m$ic9e ?\gh data %[ an increas+ preval5ce ( *ildr5 ) complex *ronic conditions :o c\ld b5efit f su* specializ$ c>e4 7#g7 ,!re is a l>ge gap betwe5 ! numb] ( heal?c>e pr(essionals ) palliative c>e tra9+ & ! numb] requir$ to meet ! ne$s ( ! gr[+ population ( individuals ) s]i\s or life-?reat5+ illness4 ,9 #bjae1 #ge p]c5t ( ,unit$ ,/ates hospitals ) #ej or m b$s _h a palliative c>e program ?\gh n all ^! programs h 9 place ! int]discipl9>y team necess>y to provide compreh5sive1 high-quality palliative c>e4 ,hospital data report$ to ! ,national ,palliative ,c>e ,regi/ry %[ t 9 #bjae only #dd p]c5t ( programs met national /aff+ /&>ds set by ! ,jo9t ,commission1 ev5 :5 includ+ unfund$ positions4 ,among ! #ef p]c5t ( programs )\t complete int]discipl9>y teams1 #cj p]c5t h no physician1 #aj p]c5t h no advanc$ practice regi/]$ nurse or ,,rn1 #ed p]c5t h no social work]1 & #gj p]c5t h no *apla94 ,look+ at j physician speciali/s1 #bjag projections by ! ,george ,wa%+ton ,univ]sity ,heal? ,work=ce ,in/itute %[ t curr5t tra9+ capacity = hospice & palliative m$ic9e is n suffici5t to provide hospital-bas$ c>e & keep pace ) gr[? 9 ! population ( adults ov] #fe ye>s old4 ,! %ortages are exac]bat$ :5 consid]+ ! curr5t rapid expansion ( community-bas$ palliative c>e1 su* z 9 outpati5t & home-bas$ sett+s4 ,a sep>ate survey ( physicians 9 ! field f\nd t1 if ! rate ( ^? ent]+ & leav+ hospice & palliative m$ic9e ma9ta9s1 !re w be no m ?an #a p]c5t absolute gr[? 9 ?is physician work=ce 9 #bj ye>s1 dur+ :i* "t ! numb] ( p]sons eligible = palliative c>e w gr[ by ov] #bj p]c5t4 ,! /udy's au?ors project ?is w result 9 a ratio ( "o palliative m$ic9e physician = e #bf1jjj s]i\sly ill pati5ts by #bjcj4 7#h7 ,accord+ to ! ,national ,academy ( ,m$ic9e1 !re is a ne$ = bett] und]/&+ ( ! role ( palliative c>e among bo? ! public & pr(essionals across ! cont9uum ( c>e s t hospice & palliative c>e c a*ieve _! full pot5tial = pati5ts & _! families4 #c4 ,palliative c>e & hospice education & tra9+ 7a7 ,9 g5]al ,"p ,d ( title ,,vii ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bid et seq47 is am5d$ by ins]t+ aft] section #gei ! foll[+3 #gei;,a4 ,palliative c>e & hospice education & tra9+ 7a7 ,palliative c>e & hospice education c5t]s 7#a7 ,9 g5]al ,! ,secret>y %all aw>d grants or contracts "u ?is section to entities describ$ 9 p>agraph 7#a71 7#c71 or 7#d7 ( section #gii;,b1 & section #hja7b71 = ! e/abli%m5t or op]ation ( ,palliative ,c>e & ,hospice ,education ,c5t]s t meet ! requirem5ts ( p>agraph 7#b74 7#b7 ,requirem5ts ,a ,palliative ,c>e & ,hospice ,education ,c5t] meets ! requirem5ts ( ?is p>agraph if su* ,c5t]-- 7,a7 improves ! tra9+ ( heal? pr(essionals 9 palliative c>e1 includ+ resid5cies1 tra9ee%ips1 or fell[%ips2 7,b7 develops & dissem9ates curricula relat+ to ! palliative treatm5t ( ! complex heal? problems ( individuals ) s]i\s or life-?reat5+ illnesses2 7,c7 supports ! tra9+ & retra9+ ( faculty to provide in/ruction 9 palliative c>e2 7,d7 supports cont9u+ education ( heal? pr(essionals :o provide palliative c>e to pati5ts ) s]i\s or life-?reat5+ illness2 7,e7 provides /ud5ts 7includ+ resid5ts1 tra9ees1 & fell[s7 ) cl9ical tra9+ 9 palliative c>e 9 long-t]m c>e facilities1 home c>e1 hospices1 *ronic & acute disease hospitals1 & ambulatory c>e c5t]s2 7,f7 e/abli%es tra9ee%ips = individuals :o are prep>+ = advanc$ education nurs+ degrees1 social "w degrees1 or advanc$ degrees 9 physician assi/ant /udies1 ) a focus 9 palliative c>e 9 long-t]m c>e facilities1 home c>e1 hospices1 *ronic & acute disease hospitals1 & ambulatory c>e c5t]s2 & 7,g7 does n duplicate ! activities ( exi/+ education c5t]s fund$ "u ?is section or "u section #gec or #hfe4 7#c7 ,expansion ( exi/+ c5t]s ,no?+ 9 ?is section %all be con/ru$ to-- 7,a7 prev5t ! ,secret>y f provid+ grants to exp& exi/+ education c5t]s1 includ+ g]iatric education c5t]s e/abli%$ "u section #gec or #hfe1 to provide = education & tra9+ focus$ specifically on palliative c>e1 includ+ = non-g]iatric populations2 or 7,b7 limit ! numb] ( education c5t]s t may be fund$ 9 a community4 7b7 ,palliative m$ic9e physician tra9+ 7#a7 ,9 g5]al ,! ,secret>y may make grants to1 & ent] into contracts )1 s*ools ( m$ic9e1 s*ools ( o/eopa?ic m$ic9e1 tea*+ hospitals1 & graduate m$ical education programs1 = ! purpose ( provid+ support = projects t fund ! tra9+ ( physicians 7includ+ resid5ts1 tra9ees1 & fell[s7 :o plan to tea* palliative m$ic9e4 7#b7 ,requirem5ts ,ea* project = :i* a grant or contract is made "u ?is subsection %all-- 7,a7 be /aff$ by full-"t tea*+ physicians :o h exp]i5ce or tra9+ 9 palliative m$ic9e2 7,b7 be bas$ 9 a hospice & palliative m$ic9e fell[%ip program accr$it$ by ! ,accr$itation ,c\ncil = ,graduate ,m$ical ,education2 7,c7 provide tra9+ 9 palliative m$ic9e ?r\gh a v>iety ( s]vice rotations1 su* z consultation s]vices1 acute c>e s]vices1 ext5d$ c>e facilities1 ambulatory c>e & compreh5sive evaluation units1 hospice1 home heal?1 & community c>e programs2 7,d7 develop specific p]=mance-bas$ measures to evaluate ! compet5cy ( tra9ees2 & 7,e7 provide tra9+ 9 palliative m$ic9e ?r\gh "o or bo? ( ! tra9+ options describ$ 9 subp>agraphs 7,a7 & 7,b7 ( p>agraph 7#c74 7#c7 ,tra9+ options ,! tra9+ options ref]r$ to 9 subp>agraph 7,e7 ( p>agraph 7#b7 are z foll[s3 7,a7 #a-ye> retra9+ programs 9 hospice & palliative m$ic9e = physicians :o are faculty at s*ools ( m$ic9e & o/eopa?ic m$ic9e1 or o!rs det]m9$ appropriate by ! ,secret>y4 7,b7 #a- or #b-ye> tra9+ programs t are design$ to provide tra9+ 9 hospice & palliative m$ic9e = physicians :o h complet$ graduate m$ical education programs 9 any m$ical specialty lead+ to bo>d eligibility 9 hospice & palliative m$ic9e pursuant to ! ,am]ican ,bo>d ( ,m$ical ,specialties4 7#d7 ,def9itions ,= purposes ( ?is subsection ! t]m graduate m$ical education means a program sponsor$ by a s*ool ( m$ic9e1 a s*ool ( o/eopa?ic m$ic9e1 a hospital1 or a public or private in/itution t-- 7,a7 (f]s po/graduate m$ical tra9+ 9 ! specialties & subspecialties ( m$ic9e2 & 7,b7 has be5 accr$it$ by ! ,accr$itation ,c\ncil = ,graduate ,m$ical ,education or ! ,am]ican ,o/eopa?ic ,association ?r\gh its ,committee on ,po/doctoral ,tra9+4 7c7 ,palliative m$ic9e & hospice academic c>e] aw>ds 7#a7 ,e/abli%m5t ( program ,! ,secret>y %all e/abli% a program to provide aw>ds1 to be kn[n z ! ,palliative ,m$ic9e & ,hospice ,academic ,c>e] ,aw>ds1 to eligible individuals to promote ! c>e] developm5t ( su* individuals z academic hospice & palliative c>e physicians4 7#b7 ,eligible individuals ,to be eligible to receive an aw>d "u p>agraph 7#a71 an individual %all-- 7,a7 be bo>d c]tifi$ or bo>d eligible 9 hospice & palliative m$ic9e2 & 7,b7 h a junior 7non-t5ur$7 faculty appo9tm5t at an accr$it$ 7z det]m9$ by ! ,secret>y7 s*ool ( m$ic9e or o/eopa?ic m$ic9e4 7#c7 ,limitations ,no aw>d "u p>agraph 7#a7 may be made to an eligible individual unless ! individual-- 7,a7 has submitt$ to ! ,secret>y an application1 at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require1 & ! ,secret>y has approv$ su* application2 7,b7 provides1 9 su* =m & mann] z ! ,secret>y may require1 assurances t ! individual w meet ! s]vice requirem5t describ$ 9 p>agraph 7#f72 & 7,c7 provides1 9 su* =m & mann] z ! ,secret>y may require1 assurances t ! individual has a full-"t faculty appo9tm5t 9 a heal? pr(essions in/itution & docum5t$ commitm5t f su* in/itution to sp5d a majority ( ! total fund$ "t ( su* individual on tea*+ & develop+ skills 9 int]discipl9>y education 9 palliative c>e4 7#d7 ,ma9t5ance ( ef=t ,an eligible individual :o receives an aw>d "u p>agraph 7#a7 %all provide assurances to ! ,secret>y t funds provid$ to ! eligible individual "u ?is subsection w be us$ only to supplem5t1 n to supplant1 ! am\nt ( ,f$]al1 ,/ate1 & local funds o!rwise exp5d$ by ! eligible individual4 7#e7 ,am\nt & t]m 7,a7 ,am\nt ,! am\nt ( an aw>d "u ?is subsection %all be equal to ! aw>d am\nt provid$ = "u section #gec7;c77#e77;,a7 = ! fiscal ye> involv$4 7,b7 ,t]m ,! t]m ( an aw>d made "u ?is subsection %all n exce$ #e ye>s4 7,c7 ,paym5t to in/itution ,! ,secret>y %all make paym5ts = aw>ds "u ?is subsection to in/itutions1 includ+ s*ools ( m$ic9e & o/eopa?ic m$ic9e4 7#f7 ,s]vice requirem5t ,an individual :o receives an aw>d "u ?is subsection %all provide tra9+ 9 palliative c>e & hospice1 includ+ ! tra9+ ( int]discipl9>y teams ( heal? c>e pr(essionals4 ,! provision ( su* tra9+ %all con/itute a majority ( ! total fund$ obligations ( su* individual "u ! aw>d4 7d7 ,palliative c>e work=ce developm5t 7#a7 ,9 g5]al ,! ,secret>y %all aw>d grants or contracts "u ?is subsection to entities t op]ate a ,palliative ,c>e & ,hospice ,education ,c5t] pursuant to subsection 7a77#a74 7#b7 ,application ,to be eligible = an aw>d "u p>agraph 7#a71 an entity describ$ 9 su* p>agraph %all submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require4 7#c7 ,use ( funds ,am\nts aw>d$ "u a grant or contract "u p>agraph 7#a7 %all be us$ to c>ry out ! fell[%ip program describ$ 9 p>agraph 7#d74 7#d7 ,fell[%ip program 7,a7 ,9 g5]al ,pursuant to p>agraph 7#c71 a ,palliative ,c>e & ,hospice ,education ,c5t] t receives an aw>d "u ?is subsection %all use su* funds to (f] %ort-t]m int5sive c\rses 7ref]r$ to 9 ?is subsection z a fell[%ip7 t focus on palliative c>e t provide supplem5tal tra9+ = faculty memb]s 9 m$ical s*ools & o!r heal? pr(essions s*ools ) programs 9 psy*ology1 ph>macy1 nurs+1 social "w1 physician assi/ant education1 *apla9cy1 or o!r heal? discipl9es1 z approv$ by ! ,secret>y4 ,su* a fell[%ip %all be op5 to curr5t faculty1 & appropriately cr$5tial$ volunte] faculty & practition]s1 :o d n h =mal tra9+ 9 palliative c>e1 to upgrade _! k & cl9ical skills = ! c>e ( individuals ) s]i\s or life-?reat5+ illness & to enhance _! int]discipl9>y & int]pr(essional tea*+ skills4 7,b7 ,location ,a fell[%ip "u ?is p>agraph %all be (f]$ ei!r at ! ,palliative ,c>e & ,hospice ,education ,c5t] t is sponsor+ ! c\rse1 9 collaboration ) o!r ,palliative ,c>e & ,hospice ,education ,c5t]s1 or at m$ical s*ools1 s*ools ( nurs+1 s*ools ( ph>macy1 s*ools ( social "w1 s*ools ( *apla9cy or pa/oral c>e education1 graduate programs 9 psy*ology1 physician assi/ant education programs1 or o!r heal? pr(essions s*ools approv$ by ! ,secret>y ) :i* ! ,c5t]s are affiliat$4 7,c7 ,cont9u+ education cr$it ,p>ticipation 9 a fell[%ip "u ?is p>agraph %all be accept$ ) respect to comply+ ) cont9u+ heal? pr(ession education requirem5ts4 ,z a condition ( su* acceptance1 ! recipi5t %all subsequ5tly provide a m9imum ( #ah h\rs ( volunt>y in/ruction 9 palliative c>e cont5t 7t has be5 approv$ by a palliative c>e & hospice education c5t]7 to /ud5ts or tra9ees 9 heal?-relat$ educational1 home1 hospice1 or long-t]m c>e sett+s4 7#e7 ,t>gets ,a ,palliative ,c>e & ,hospice ,education ,c5t] t receives an aw>d "u ?is subsection %all meet t>gets approv$ by ! ,secret>y = provid+ palliative c>e tra9+ to a c]ta9 numb] ( faculty or practition]s dur+ ! t]m ( ! aw>d1 z well z o!r p>amet]s e/abli%$ by ! ,secret>y4 7#f7 ,am\nt ( aw>d ,ea* aw>d "u ?is subsection %all be 9 ! am\nt ( #aej1jjj4 ,n m ?an #bd ,palliative ,c>e & ,hospice ,education ,c5t]s may receive an aw>d "u ?is subsection4 7#g7 ,ma9t5ance ( ef=t ,a ,palliative ,c>e & ,hospice ,education ,c5t] t receives an aw>d "u ?is subsection %all provide assurances to ! ,secret>y t funds provid$ to ! ,c5t] "u ! aw>d w be us$ only to supplem5t1 n to supplant1 ! am\nt ( ,f$]al1 ,/ate1 & local funds o!rwise exp5d$ by su* ,c5t]4 7e7 ,palliative c>e & hospice c>e] inc5tive aw>ds 7#a7 ,9 g5]al ,! ,secret>y %all aw>d grants or contracts "u ?is subsection to individuals describ$ 9 p>agraph 7#b7 to fo/] great] int]e/ among a v>iety ( heal? pr(essionals 9 ent]+ ! field ( palliative c>e4 7#b7 ,eligible individuals ,to be eligible to receive an aw>d "u p>agraph 7#a71 an individual %all-- 7,a7 be an advanc$ practice nurse1 a social work]1 physician assi/ant1 ph>maci/1 *apla91 or /ud5t ( psy*ology :o is pursu+ a doctorate1 ma/]s1 or o!r advanc$ degree ) a focus 9 palliative c>e or relat$ fields 9 an accr$it$ heal? pr(essions s*ool2 & 7,b7 submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require4 7#c7 ,conditions ( aw>d ,z a condition ( receiv+ an aw>d "u ?is subsection1 an individual %all agree t1 foll[+ completion ( ! aw>d p]iod1 ! individual w tea* or practice palliative c>e 9 heal?-relat$ educational1 home1 hospice1 or long-t]m c>e sett+s = a m9imum ( #e ye>s "u guidel9es e/abli%$ by ! ,secret>y4 7#d7 ,paym5t to in/itution ,! ,secret>y %all make paym5ts = aw>ds "u ?is subsection to in/itutions :i* include s*ools ( m$ic9e1 o/eopa?ic m$ic9e1 nurs+1 social "w1 psy*ology1 *apla9cy or pa/oral c>e education1 d5ti/ry1 & ph>macy1 or o!r alli$ heal? discipl9e 9 an accr$it$ heal? pr(essions s*ool or program 7su* z a physician assi/ant education program7 t is approv$ by ! ,secret>y4 7f7 ,au?orization ( appropriations ,!re are au?oriz$ to be appropriat$ to c>ry out ?is section1 #dd1ajj1jjj = ea* ( ! fiscal ye>s #bjah ?r\gh #bjbb4 4 7b7 ,effective date ,! am5dm5t made by ?is section %all be effective beg9n+ on ! date t is #ij days aft] ! date ( enactm5t ( ?is ,act4 #d4 ,hospice & palliative nurs+ 7a7 ,pref]5ce = grants or aw>ds = nurs+ work=ce developm5t projects ,section #hje ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bif;d7 is am5d$-- 7#a7 by /rik+ or help & ins]t+ help2 & 7#b7 by ins]t+ ! foll[+ be=e ! p]iod at ! end3 1 or = education & tra9+ 9 hospice & palliative nurs+4 7b7 ,advanc$ education nurs+ grants ,section #haa ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bif;j7 is am5d$-- 7#a7 9 subsection 7a7-- 7,a7 9 p>agraph 7#a71 by /rik+ & at ! end2 7,b7 by r$esignat+ p>agraph 7#b7 z p>agraph 7#c72 & 7,c7 by ins]t+ aft] p>agraph 7#a71 ! foll[+ new p>agraph3 7#b7 palliative c>e & hospice c>e] inc5tive aw>ds "u section #gei;,a7e72 & 2 & 7#b7 9 subsection 7g77#b71 by ins]t+ or = education & tra9+ 9 hospice & palliative nurs+ aft] section #ccb4 7c7 ,nurse education1 practice1 & quality grants ,section #hca ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bifp7 is am5d$-- 7#a7 9 subsection 7a7-- 7,a7 by /rik+ or at ! end ( p>agraph 7#a72 7,b7 by /rik+ ! p]iod at ! end ( p>agraph 7#b7 & ins]t+ 2 or2 & 7,c7 by add+ at ! end ! foll[+ new p>agraph3 7#c7 education & tra9+ 9 hospice & palliative nurs+4 2 & 7#b7 9 subsection 7b77#c71 by ins]t+ hospice & palliative nurs+1 aft] coord9at$ c>e14 7d7 ,nurse ret5tion grants ,section #hca;,a ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bifp-#a7 is am5d$-- 7#a7 9 subsection 7c77#b71 by ins]t+ 1 & to applicants ) programs t include initiatives to tra9 nurses 9 hospice & palliative nurs+ be=e ! p]iod2 & 7#b7 9 subsection 7d71 by ins]t+ 1 & to tra9 nurses 9 hospice & palliative nurs+ be=e ! p]iod4 7e7 ,additional palliative c>e & hospice education & tra9+ programs ,"p ,d ( title ,,viii ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bifp et seq47 is am5d$ by add+ at ! end ! foll[+3 #hcb4 ,palliative c>e & hospice education & tra9+ 7a7 ,program au?oriz$ ,! ,secret>y %all aw>d grants to eligible entities to develop & implem5t1 9 coord9ation ) programs "u section #gei;,a1 programs & initiatives to tra9 & educate individuals 9 provid+ palliative c>e 9 heal?-relat$ educational1 hospice1 home1 or long-t]m c>e sett+s4 7b7 ,use ( funds ,an eligible entity t receives a grant "u subsection 7a7 %all use funds "u su* grant to-- 7#a7 provide tra9+ to individuals :o w provide palliative c>e 9 heal?-relat$ educational1 home1 hospice1 or long-t]m c>e sett+s2 7#b7 develop & dissem9ate curricula relat+ to palliative c>e 9 heal?-relat$ educational1 home1 hospice1 or long-t]m c>e sett+s2 7#c7 tra9 faculty memb]s 9 palliative c>e 9 heal?-relat$ educational1 home1 hospice1 or long-t]m c>e sett+s2 or 7#d7 provide cont9u+ education to individuals :o provide palliative c>e 9 heal?-relat$ educational1 home1 hospice1 or long-t]m c>e sett+s4 7c7 ,application ,an eligible entity desir+ a grant "u subsection 7a7 %all submit an application to ! ,secret>y at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may reasonably require4 7d7 ,eligible entity ,= purposes ( ?is section1 ! t]m eligible entity %all include a s*ool ( nurs+1 a heal? c>e facility1 a program lead+ to c]tification z a c]tifi$ nurse assi/ant1 a p>tn]%ip ( su* a s*ool & facility1 or a p>tn]%ip ( su* a program & facility4 7e7 ,au?orization ( appropriations ,!re are au?oriz$ to be appropriat$ to c>ry out ?is section #e1jjj1jjj = ea* ( fiscal ye>s #bjah ?r\gh #bjbb4 4 #e4 ,national palliative c>e education & aw>5ess campaign ,"p ,a ( title ,,ix ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bii et seq47 is am5d$ by add+ at ! end ! foll[+ new section3 #ijd4 ,national palliative c>e education & aw>5ess campaign 7a7 ,9 g5]al ,"u ! au?ority "u section #ijb7;a7 to dissem9ate in=mation on heal? c>e & on sy/ems = ! deliv]y ( su* c>e1 ! ,director %all provide = ! plann+ & implem5tation ( a national education & aw>5ess campaign to in=m pati5ts1 families1 & heal? pr(essionals ab\t ! b5efits ( palliative c>e ?r\gh\t ! cont9uum ( c>e = pati5ts ) s]i\s or life-?reat5+ illness4 7b7 ,in=mation dissem9at$ 7#a7 ,m&atory in=mation ,! campaign "u subsection 7a7 %all include dissem9ation ( ! foll[+3 7,a7 ,palliative c>e ,in=mation1 res\rces1 & communication mat]ials ab\t palliative c>e z an ess5tial "p ( ! cont9uum ( quality c>e = pati5ts & families fac+ s]i\s or life-?reat5+ illness 7includ+ canc]2 he>t1 kidney1 liv]1 lung1 & infecti\s diseases2 z well z neurodeg5]ative disease su* z dem5tia1 ,p>k9son's disease1 or amyotrophic lat]al scl]osis74 7,b7 ,palliative c>e s]vices ,specific in=mation reg>d+ ! s]vices provid$ to pati5ts by pr(essionals tra9$ 9 hospice & palliative c>e1 includ+ pa9 & symptom managem5t1 support = %>$ decisionmak+1 c>e coord9ation1 psy*osocial c>e1 & spiritual c>e1 expla9+ t su* s]vices may be provid$ />t+ at ! po9t ( diagnosis & alongside curative treatm5t & are int5d$ to-- 7i7 provide pati5t-c5t]$ & family-c5t]$ support ?r\gh\t ! cont9uum ( c>e = s]i\s & life-?reat5+ illness2 7ii7 anticipate1 prev5t1 & treat physical1 emotional1 social1 & spiritual suff]+2 7iii7 optimize quality ( life2 & 7iv7 facilitate & support ! goals & values ( pati5ts & families4 7,c7 ,palliative c>e pr(essionals ,specific mat]ials t expla9 ! role ( pr(essionals tra9$ 9 hospice & palliative c>e 9 provid+ team-bas$ c>e 7includ+ pa9 & symptom managem5t1 support = %>$ decisionmak+1 c>e coord9ation1 psy*osocial c>e1 & spiritual c>e7 = pati5ts & families ?r\gh\t ! cont9uum ( c>e = s]i\s or life-?reat5+ illness4 7,d7 ,rese>* ,evid5ce-bas$ rese>* demon/rat+ ! b5efits ( pati5t access to palliative c>e ?r\gh\t ! cont9uum ( c>e = s]i\s or life-?reat5+ illness4 7,e7 ,population-specific mat]ials ,mat]ials %all be develop$ t t>get specific populations1 includ+ pati5ts ) s]i\s or life-?reat5+ illness :o are among m$ically und]s]v$ populations 7z def9$ 9 section #ccj7;b77#c77 & families ( su* pati5ts or heal? pr(essionals s]v+ m$ically und]s]v$ populations4 ,su* populations %all include p$iatric pati5ts1 "y adult & adolesc5t pati5ts1 racial & e?nic m9ority populations1 & o!r priority populations specifi$ by ! ,director4 7#b7 ,o!r in=mation ,9 addition to ! in=mation describ$ 9 p>agraph 7#a71 su* campaign may include dissem9ation ( su* o!r in=mation z ! ,director det]m9es to be relevant4 7#c7 ,in=mation =mat ,! in=mation & mat]ials requir$ to be dissem9at$ "u p>agraph 7#a7 & any in=mation dissem9at$ "u p>agraph 7#b7 %all be pres5t$ 9 a v>iety ( =mats 7su* z po/$ onl9e1 9 pr9t1 & ?r\gh public s]vice ann\ncem5ts74 7#d7 ,requir$ publication ,! in=mation & mat]ials requir$ to be dissem9at$ "u p>agraph 7#a7 & any in=mation dissem9at$ "u p>agraph 7#b7 %all be po/$ on ! ,int]net websites ( relevant ,f$]al ag5cies & ,dep>tm5ts1 includ+ ! ,ag5cy = ,heal?c>e ,rese>* & ,quality1 ! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices1 ! ,adm9i/ration on ,ag+1 ! ,c5t]s = ,disease ,control & ,prev5tion1 & ! ,dep>tm5t ( ,vet]ans ,affairs4 7c7 ,consultation ,! ,director %all consult ) appropriate pr(essional societies1 hospice & palliative c>e /akehold]s1 & relevant pati5t advocate organizations ) respect to palliative c>e1 psy*osocial c>e1 & complex *ronic illness ) respect to ! foll[+3 7#a7 ,! plann+ & implem5tation ( ! national palliative c>e education & aw>5ess campaign "u ?is section4 7#b7 ,! developm5t ( in=mation to be dissem9at$ "u ?is section4 7#c7 ,a def9ition ( ! t]m s]i\s or life-?reat5+ illness = purposes ( ?is section4 4 #f4 ,cl>ification ,none ( ! funds made available "u ?is ,act 7or an am5dm5t made by ?is ,act7 may be us$ to provide1 promote1 or provide tra9+ ) reg>d to any item or s]vice = :i* ,f$]al fund+ is unavailable "u section #c ( ,public ,law #aje-ab 7#db ,u4,s4,c4 #addjb74 #g4 ,enhanc+ ,,nih rese>* 9 palliative c>e 7a7 ,9 g5]al ,"p ,b ( title ,,iv ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhd et seq47 is am5d$ by add+ at ! end ! foll[+ new section3 #dji,k4 ,enhanc+ rese>* 9 palliative c>e 7a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,director ( ! ,national ,in/itutes ( ,heal?1 %all develop & implem5t a /rategy to be appli$ across ! in/itutes & c5t]s ( ! ,national ,in/itutes ( ,heal? to exp& national rese>* programs 9 palliative c>e4 7b7 ,rese>* programs ,! ,director ( ! ,national ,in/itutes ( ,heal? %all exp& & int5sify rese>* programs 9 palliative c>e to address ! quality ( c>e & quality ( life = ! rapidly gr[+ population ( pati5ts 9 ! ,unit$ ,/ates ) s]i\s or life-?reat5+ illnesses1 includ+ canc]2 he>t1 kidney1 liv]1 lung1 & infecti\s diseases2 z well z neurodeg5]ative disease su* z dem5tia1 ,p>k9son's disease1 or amyotrophic lat]al scl]osis4 4 7b7 ,exp&+ trans-,,nih rese>* report+ ,to include palliative c>e rese>* ,section #djb;,a7c77#b77;,b7 ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhb;a7c77#b77;,b77 is am5d$ by ins]t+ &1 beg9n+ ,janu>y #a1 #bjah1 = conduct+ or support+ rese>* ) respect to palliative c>e aft] or national c5t]s4