,,ic #aaeth ,,congress #ast ,session ,s4 #feb ,,in ,,the ,,house ,,of ,,representatives ,september #g1 #bjag,referred to the ,committee on ,energy and ,commerce ,,an ,,act ,to amend the ,public ,health ,service ,act to reauthorize a program for early detection1 diagnosis1 and treatment regarding deaf and hard-of-hearing newborns1 infants1 and young children4 #a4 ,short title ,this ,act may be cited as the ,early ,hearing ,detection and ,intervention ,act of #bjag4 #b4 ,reauthorization of program for early detection1 diagnosis1 and treatment regarding deaf and hard-of-hearing newborns1 infants1 and young children 7a7 ,section heading ,the section heading of section #cii,m of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;g-#a7 is amended to read as follows3 #cii,m4 ,early ,detection1 ,diagnosis1 and ,treatment ,regarding ,deaf and ,hard-of-,hearing ,newborns1 ,infants1 and ,young ,children 4 7b7 ,statewide systems ,section #cii,m7a7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;g-#a7;a77 is amended-- 7#a7 in the subsection heading1 by striking ,newborn and ,infant and inserting ,newborn1 ,infant1 and ,young ,child2 7#b7 in the matter preceding paragraph 7#a7-- 7,a7 by striking newborn and infant and inserting newborn1 infant1 and young child2 and 7,b7 by striking providers1 and inserting providers 7including1 as appropriate1 education and training of family members712 7#c7 in paragraph 7#a7-- 7,a7 in the first sentence-- 7i7 by striking newborns and infants and inserting newborns1 infants1 and young children 7referred to in this section as children72 and 7ii7 by striking and medical and all that follows through the period and inserting medical1 and communication 7or language acquisition7 interventions 7including family support71 for children identified as deaf or hard-of-hearing1 consistent with the following32 7,b7 in the second sentence-- 7i7 by striking ,early and inserting the following3 7,a7 ,early 2 7ii7 by striking and delivery of and inserting 1 and delivery of12 7iii7 by striking by schools and all that follows through programs mandated and inserting by organizations such as schools and agencies 7including community1 consumer1 and family-based agencies71 in health care settings 7including medical homes for children71 and in programs mandated2 and 7iv7 by striking hard of hearing and all that follows through the period and inserting hard-of-hearing children42 and 7,c7 by striking the last sentence and inserting the following3 7,b7 ,information provided to families should be accurate1 comprehensive1 up-to-date1 and evidence-based1 as appropriate1 to allow families to make important decisions for their children in a timely manner1 including decisions with respect to the full range of assistive hearing technologies and communications modalities1 as appropriate4 7,c7 ,programs and systems under this paragraph shall offer mechanisms that foster family-to-family and deaf and hard-of-hearing consumer-to-family supports4 2 7#d7 in paragraph 7#b71 by striking ,to collect and all that follows through the period and inserting ,to continue to provide technical support to ,states1 through one or more technical resource centers1 to assist in further developing and enhancing ,state early hearing detection and intervention programs42 and 7#e7 by striking paragraph 7#c7 and inserting the following3 7#c7 ,to identify or develop efficient models 7educational and medical7 to ensure that children who are identified as deaf or hard-of-hearing through screening receive follow-up by qualified early intervention providers or qualified health care providers 7including those at medical homes for children71 and referrals1 as appropriate1 including to early intervention services under part ,c of the ,individuals with ,disabilities ,education ,act4 ,state agencies shall be encouraged to effectively increase the rate of such follow-up and referral4 4 7c7 ,technical assistance1 data management1 and applied research ,section #cii,m7b77#a7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;g-#a7;b77#a77 is amended-- 7#a7 in the first sentence-- 7,a7 by striking ,the ,secretary and inserting the following3 7,a7 ,in general ,the ,secretary 2 7,b7 by striking to complement an intramural program and and inserting the following3 8or designated entities of ,states-- 7i7 to develop1 maintain1 and improve data collection systems related to newborn1 infant1 and young child hearing screening1 evaluation 7including audiologic1 medical1 and language acquisition evaluations71 diagnosis1 and intervention services2 2 7,c7 by striking to conduct and inserting the following3 7ii7 to conduct 2 and 7,d7 by striking newborn and all that follows through the period and inserting the following3 8newborn1 infant1 and young child hearing screening1 evaluation1 and intervention programs and outcomes2 7iii7 to ensure quality monitoring of hearing screening1 evaluation1 and intervention programs and systems for newborns1 infants1 and young children2 and 7iv7 to support newborn1 infant1 and young child hearing screening1 evaluation1 and intervention programs1 and information systems4 2 7#b7 in the second sentence-- 7,a7 by striking the matter that precedes subparagraph 7,a7 and all that follows through subparagraph 7,c7 and inserting the following3 7,b7 ,use of awards ,the awards made under subparagraph 7,a7 may be used-- 7i7 to provide technical assistance on data collection and management1 including to coordinate and develop standardized procedures for data management2 7ii7 to assess and report on the cost and program effectiveness of newborn1 infant1 and young child hearing screening1 evaluation1 and intervention programs and systems2 7iii7 to collect data and report on newborn1 infant1 and young child hearing screening1 evaluation1 diagnosis1 and intervention programs and systems for applied research1 program evaluation1 and policy improvement2 2 7,b7 by redesignating subparagraphs 7,d71 7,e71 and 7,f7 as clauses 7iv71 7v71 and 7vi71 respectively1 and aligning the margins of those clauses with the margins of clause 7i7 of subparagraph 7,b7 7as inserted by subparagraph 7,a7 of this paragraph72 7,c7 in clause 7v7 7as redesignated by subparagraph 7,b7 of this paragraph7-- 7i7 by striking newborn and infant and inserting newborn1 infant1 and young child2 and 7ii7 by striking language status and inserting hearing status2 and 7,d7 in clause 7vi7 7as redesignated by subparagraph 7,b7 of this paragraph7-- 7i7 by striking sharing and inserting integration and interoperability2 and 7ii7 by striking with ,state-based and all that follows through the period and inserting across multiple sources to increase the flow of information between clinical care and public health settings1 including the ability of ,states and territories to exchange and share data44 7d7 ,coordination and collaboration ,section #cii,m7c7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;g-#a7;c77 is amended-- 7#a7 in paragraph 7#a7-- 7,a7 by striking consult with and inserting consult with--2 7,b7 by striking other ,federal and inserting the following3 7,a7 other ,federal 2 7,c7 by striking ,state and local agencies1 including those and inserting the following3 7,b7 ,state and local agencies1 including agencies 2 7,d7 by striking consumer groups of and that serve and inserting the following3 7,c7 consumer groups of1 and that serve1 2 7,e7 by striking appropriate national and inserting the following3 7,d7 appropriate national 2 7,f7 by striking persons who are deaf and and inserting the following3 7,e7 individuals who are deaf or 2 7,g7 by striking other qualified and inserting the following3 7,f7 other qualified 2 7,h7 by striking newborns1 infants1 toddlers1 children1 and inserting children12 7,i7 by striking third-party and inserting the following3 7,g7 third-party 2 and 7,j7 by striking related commercial and inserting the following3 7,h7 related commercial 2 and 7#b7 in paragraph 7#c7-- 7,a7 by striking ,states to establish newborn and infant and inserting the following3 8,states-- 7,a7 to establish newborn1 infant1 and young child 2 7,b7 by inserting a semicolon after subsection 7a72 and 7,c7 by striking to develop and inserting the following3 7,b7 to develop 4 7e7 ,rule of construction2 religious accommodation ,section #cii,m7d7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;g-#a7;d77 is amended-- 7#a7 by striking which and inserting that2 7#b7 by striking newborn infants or young2 and 7#c7 by striking parents' and inserting parent's4 7f7 ,definitions ,section #cii,m7e7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;g-#a7;e77 is amended-- 7#a7 in paragraph 7#a7-- 7,a7 by striking 7#a7 and all that follows through to procedures and inserting the following3 7#a7 ,the term audiologic1 when used in connection with evaluation1 means procedures-- 2 7,b7 by striking to assess and inserting the following3 7,a7 to assess 2 7,c7 by striking to establish and inserting the following3 7,b7 to establish 2 7,d7 by striking auditory disorder2 and inserting auditory disorder12 7,e7 by striking to identify and inserting the following3 7,c7 to identify 2 7,f7 by striking options4 and all that follows through linkage and inserting the following3 8options1 including-- 7i7 linkage 2 7,g7 by striking appropriate agencies1 and all that follows through national and inserting the following3 8appropriate agencies2 7ii7 medical evaluation2 7iii7 assessment for the full range of assistive hearing technologies appropriate for newborns1 infants1 and young children2 7iv7 audiologic rehabilitation treatment2 and 7v7 referral to national 2 and 7,h7 by striking parent1 and education and inserting parent1 family1 and education2 7#b7 by striking paragraph 7#b72 7#c7 by redesignating paragraphs 7#c7 through 7#f7 as paragraphs 7#b7 through 7#e72 7#d7 in paragraph 7#b7 7as redesignated by paragraph 7#c7 of this subsection7-- 7,a7 by striking refers to providing and inserting the following3 8means-- 7,a7 providing 2 7,b7 by striking with hearing loss1 including nonmedical services1 and inserting who is deaf or hard-of-hearing1 including nonmedical services22 7,c7 by striking ensuring that families of the child are provided and inserting the following3 7,b7 ensuring that the family of the child is-- 7i7 provided 2 7,d7 by striking language and communication options and are given and inserting the following3 8language acquisition in oral and visual modalities2 and 7ii7 given 2 and 7,e7 by striking their child and inserting the child2 7#e7 in paragraph 7#c7 7as redesignated by paragraph 7#c7 of this subsection71 by striking 7#c7 and all that follows through decision making and inserting ,the term medical evaluation means key components performed by a physician including history1 examination1 and medical decisionmaking2 7#f7 in paragraph 7#d7 7as redesignated by paragraph 7#c7 of this subsection7-- 7,a7 by striking refers to and inserting means2 7,b7 by striking and_/or surgical and inserting or surgical2 and 7,c7 by striking of hearing and all that follows through disorder and inserting for hearing loss or other medical disorders2 and 7#g7 in paragraph 7#e7 7as redesignated by paragraph 7#c7 of this subsection7-- 7,a7 by striking 7#e7 and all that follows through refers to and inserting 7#e7 ,the term newborn1 infant1 and young child hearing screening means2 and 7,b7 by striking and infants and inserting 1 infants1 and young children under #c years of age4 7g7 ,authorization of appropriations ,section #cii,m7f7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;g-#a7;f77 is amended-- 7#a7 in paragraph 7#a71 by striking such sums and all that follows through the period and inserting #ag1hah1jjj for fiscal year #bjah1 #ah1agc1hjj for fiscal year #bjai1 #ah1fbh1ade for fiscal year #bjbj1 #ai1jef1eib for fiscal year #bjba1 and #ai1ebb1geh for fiscal year #bjbb42 and 7#b7 in paragraph 7#b71 by striking such sums and all that follows through the period and inserting #aj1hjj1jjj for fiscal year #bjah1 #aa1jbf1hjj for fiscal year #bjai1 #aa1cjb1dgj for fiscal year #bjbj1 #aa1efb1dbg for fiscal year #bjba1 and #aa1hea1dhh for fiscal year #bjbb44 ,passed the ,senate ,september #f1 #bjag4;,julie ,e4 ,adams1,secretary