,,ii  #aae? ,,congress  #a/ ,session    
,s4 #feb  ,,9 ,,! ,,s5ate ,,( ,,!       
,,unit$ ,,/ates  ,m>* #ae1 #bjag,mr4    
,portman 7= himself & ,mr4 ,ka9e7       
introduc$ ! foll[+ bill2 :i* 0 read     
twice & ref]r$ to ! ,committee on       
,heal?1 ,education1 ,labor1 & ,p5sions  
,a ,,bill  ,to am5d ! ,public ,heal?    
,s]vice ,act to reau?orize a program =  
e>ly detection1 diagnosis1 & treatm5t   
reg>d+ deaf & h>d-(-he>+ newborns1      
infants1 & "y *ildr54  #a4 ,%ort title  
,?is ,act may be cit$ z ! ,e>ly ,he>+   
,detection & ,int]v5tion ,act ( #bjag4  
#b4 ,f9d+s ,congress f9ds z foll[s3     
7#a7 ,deaf & h>d-(-he>+ newborns1       
infants1 & "y *ildr5 require access to  
specializ$ e>ly int]v5tion provid]s &   
programs 9 ord] to help !m meet _!      
l+ui/ic & cognitive pot5tial4  7#b7     
,families ( deaf & h>d-(-he>+ newborns1 
infants1 & "y *ildr5 b5efit f           
compreh5sive e>ly int]v5tion programs t 
assi/ !m 9 support+ _! *ild's developm5t
 9 all doma9s4  7#c7 ,be/ practices     

pr9ciples = e>ly int]v5tion = deaf &    
h>d-(-he>+ newborns1 infants1 & "y      
*ildr5 h be5 id5tifi$ 9 a range ( areas 
includ+ li/5+ & spok5 language & visual 
& sign$ language acquisition1           
family-to-family support1 support f     
individuals :o are deaf or h>d-(-he>+1  
progress monitor+1 & o!rs4  7#d7        
,effective he>+ scre5+ & e>ly int]v5tion
 programs mu/ be 9 place to id5tify he>+
 levels 9 deaf & h>d-(-he>+ newborns1   
infants1 & "y *ildr5 s t !y may access  
appropriate e>ly int]v5tion programs 9 a
 timely mann]4  #c4 ,reau?orization (   
program = e>ly detection1 diagnosis1 &  
treatm5t reg>d+ deaf & h>d-(-he>+       
newborns1 infants1 & "y *ildr5 ,section 
#cii,m ( ! ,public ,heal? ,s]vice ,act  
7#db ,u4,s4,c4 #bhj;g-#a7 is am5d$ to   
read z foll[s3  #cii,m4 ,e>ly           
,detection1 ,diagnosis1 & ,treatm5t     
,reg>d+ ,deaf & ,h>d-(-,he>+ ,newborns1 
,infants1 & ,"y ,*ildr5  7a7 ,heal?     
,res\rces & ,s]vices ,adm9i/ration ,!   
,secret>y1 act+ ?r\gh ! ,adm9i/rator ( !

 ,heal? ,res\rces & ,s]vices            
,adm9i/ration1 %all make aw>ds ( grants 
or coop]ative agreem5ts to develop      
/atewide newborn1 infant1 & "y *ildhood 
he>+ scre5+1 diagnosis1 evaluation1 &   
int]v5tion programs & sy/ems1 & to assi/
 9 ! recruitm5t1 ret5tion1 education1 & 
tra9+ ( qualifi$ p]sonnel & heal? c>e   
provid]s 7includ+ education & tra9+ (   
family memb]s7 = ! foll[+ purposes3     
7#a7 ,to develop & monitor ! efficacy ( 
/atewide programs & sy/ems = he>+ scre5+
 ( newborns1 infants1 & "y *ildr51      
prompt evaluation & diagnosis (         
newborns1 infants1 & "y *ildr5 ref]r$ f 
scre5+ programs1 & appropriate          
educational1 audiological1 m$ical1 &    
communications 7or language acquisition7
 int]v5tions 7includ+ family support7 = 
newborns1 infants1 & "y *ildr5 id5tifi$ 
z deaf or h>d-(-he>+1 consi/5t ) !      
foll[+3  7,a7 ,e>ly int]v5tion includes 
ref]ral to1 & deliv]y (1 in=mation &    
s]vices by organizations su* z s*ools & 
ag5cies 7includ+ community1 consum]1 &  

family-bas$ ag5cies71 m$ical homes =    
*ildr51 & o!r programs "u "p ,c ( !     
,individuals ) ,disabilities ,education 
,act1 :i* (f] programs specifically     
design$ to meet ! unique language &     
communication ne$s ( deaf & h>d-(-he>+  
newborns1 infants1 & "y *ildr54  7,b7   
,in=mation provid$ to p>5ts %all be     
accurate1 compreh5sive1 &1 :]e          
appropriate1 evid5ce-bas$1 all[+        
families to make important decisions =  
_! *ildr5 9 a timely way1 includ+       
decisions relat+ to all possible        
assi/ive he>+ te*nologies 7su* z he>+   
aids1 co*le> implants1 & osseo9tegrat$  
devices7 & communication modalities 7su*
 z oral & visual communications &       
language acquisition s]vices &          
programs74  7,c7 ,programs & sy/ems "u  
?is p>agraph %all (f] me*anisms t fo/]  
family-to-family & deaf & h>d-(-he>+    
consum]-to-family supports4  7#b7 ,to   
cont9ue to provide te*nical support to  
,/ates1 ?r\gh "o or m te*nical res\rce  
c5t]s1 to assi/ 9 fur!r develop+ &      

enhanc+ ,/ate e>ly he>+ detection &     
int]v5tion programs4  7#c7 ,to id5tify  
or develop effici5t models 7educational 
& m$ical7 to ensure t newborns1 infants1
 & "y *ildr5 :o are id5tifi$ ?r\gh      
scre5+ z deaf or h>d ( he>+ receive1 z  
appropriate1 foll[-up by qualifi$ e>ly  
int]v5tion provid]s1 qualifi$ heal? c>e 
provid]s1 or m$ical homes = *ildr5 &    
ref]rals to e>ly int]v5tion s]vices "u  
"p ,c ( ! ,individuals ) ,disabilities  
,education ,act4 ,/ate ag5cies %all be  
enc\rag$ to effectively increase ! rate 
( su* foll[-up & ref]ral4  7b7 ,te*nical
 assi/ance1 data managem5t1 & appli$    
rese>*  7#a7 ,c5t]s = ,disease ,control 
& ,prev5tion  7,a7 ,9 g5]al ,!          
,secret>y1 act+ ?r\gh ! ,director ( !   
,c5t]s = ,disease ,control & ,prev5tion1
 %all make aw>ds ( grants or coop]ative 
agreem5ts to provide te*nical assi/ance 
to ,/ate ag5cies or designat$ entities (
 ,/ates--  7i7 = ! developm5t1          
ma9t5ance1 & improvem5t ( data track+ & 
surveillance sy/ems on newborn1 infant1 

& "y *ildhood he>+ scre5+1 audiologic   
evaluations1 m$ical evaluations1        
language-acquisition evaluations1 &     
int]v5tion s]vices2  7ii7 to conduct    
appli$ rese>* relat$ to s]vices &       
outcomes2  7iii7 to provide te*nical    
assi/ance relat$ to newborn1 infant1 &  
"y *ildhood he>+ scre5+1 evaluation1 &  
int]v5tion programs1 & in=mation sy/ems2
  7iv7 to ensure high-quality monitor+ (
 he>+ scre5+1 evaluation1 & int]v5tion  
programs & sy/ems = newborns1 infants1 &
 "y *ildr52 &  7v7 to coord9ate develop+
 /&>diz$ proc$ures = data managem5t &   
assess+ program & co/ effectiv5ess4     
7,b7 ,use ( aw>ds ,! aw>ds "u           
subp>agraph 7,a7 may be us$-- 7i7 to    
provide te*nical assi/ance on data      
collection & managem5t2  7ii7 to /udy & 
report on ! co/s & effectiv5ess (       
newborn1 infant1 & "y *ildhood he>+     
scre5+1 evaluation1 diagnosis1          
int]v5tion programs1 & sy/ems 9 ord] to 
address issues ( importance to ,/ate &  
national policy mak]s2  7iii7 to collect

 data & report on newborn1 infant1 & "y 
*ildhood he>+ scre5+1 evaluation1       
diagnosis1 & int]v5tion programs &      
sy/ems t c be us$ = appli$ rese>*1      
program evaluation1 & policy developm5t2
  7iv7 to id5tify ! causes & risk       
factors = cong5ital he>+ loss2  7v7 to  
/udy ! effectiv5ess ( newborn1 infant1 &
 "y *ildhood he>+ scre5+1 audiologic    
evaluations1 m$ical evaluations1 &      
int]v5tion programs & sy/ems by assess+ 
! heal?1 intellectual & social          
developm5tal1 cognitive1 & he>+ /atus ( 
*ildr5 at s*ool age2 &  7vi7 to promote 
! integration1 l9kage1 & int]op]ability 
( data reg>d+ e>ly he>+ loss & multiple 
s\rces to increase in=mation ex*anges   
betwe5 cl9ical c>e & public heal?1      
includ+ ! ability ( ,/ates & t]ritories 
to ex*ange & %>e data4  7#b7 ,national  
,in/itutes ( ,heal? ,! ,director ( !    
,national ,in/itutes ( ,heal?1 act+     
?r\gh ! ,director ( ! ,national         
,in/itute on ,deafness & ,o!r           
,communication ,disord]s1 %all1 =       

purposes ( ?is section1 cont9ue a       
program ( rese>* & developm5t on !      
efficacy ( new scre5+ te*niques &       
te*nology1 includ+ cl9ical /udies (     
scre5+ me?ods1 /udies on efficacy (     
int]v5tion1 & relat$ rese>*4  7c7       
,coord9ation & collaboration  7#a7 ,9   
g5]al ,9 c>ry+ out programs "u ?is      
section1 ! ,adm9i/rator ( ! ,heal?      
,res\rces & ,s]vices ,adm9i/ration1 !   
,director ( ! ,c5t]s = ,disease ,control
 & ,prev5tion1 & ! ,director ( !        
,national ,in/itutes ( ,heal? %all      
collaborate & consult )--  7,a7 o!r     
,f$]al ag5cies2  7,b7 ,/ate & local     
ag5cies1 includ+ ag5cies responsible =  
e>ly int]v5tion s]vices pursuant to     
title ,,xix ( ! ,social ,security ,act  
7,m$icaid ,e>ly & ,p]iodic ,scre5+1     
,diagnosis & ,treatm5t ,program71 title 
,,xxi ( ! ,social ,security ,act 7,/ate 
,*ildr5's ,heal? ,insurance ,program71  
title ,v ( ! ,social ,security ,act     
7,mat]nal & ,*ild ,heal? ,block ,grant  
,program71 & "p ,c ( ! ,individuals )   

,disabilities ,education ,act2  7,c7    
consum] gr\ps (1 & t s]ve1 individuals  
:o are deaf & h>d-(-he>+ & _! families2 
7,d7 appropriate national m$ical & o!r  
heal? & education specialty             
organizations2  7,e7 individuals :o are 
deaf or h>d-(-he>+ & _! families2  7,f7 
o!r qualifi$ pr(essional p]sonnel :o are
 pr(ici5t 9 deaf or h>d-(-he>+ *ildr5's 
language & :o possess ! specializ$ k1   
skills1 & attributes ne$$ to s]ve deaf &
 h>d-(-he>+ newborns1 infants1 "y       
*ildr51 & _! families2  7,g7 ?ird-p>ty  
pay]s & manag$-c>e organizations2 &     
7,h7 relat$ comm]cial indu/ries4  7#b7  
,policy developm5t ,! ,adm9i/rator ( !  
,heal? ,res\rces & ,s]vices             
,adm9i/ration1 ! ,director ( ! ,c5t]s = 
,disease ,control & ,prev5tion1 & !     
,director ( ! ,national ,in/itutes (    
,heal? %all coord9ate & collaborate on  
recomm5dations = policy developm5t at ! 
,f$]al & ,/ate levels & ) ! private     
sector1 includ+ consum]1 m$ical1 & o!r  
heal? & education pr(essional-bas$      

organizations1 ) respect to newborn &   
infant he>+ scre5+1 evaluation1         
diagnosis1 & int]v5tion programs &      
sy/ems4  7#c7 ,/ate e>ly detection1     
diagnosis1 & int]v5tion programs &      
sy/ems2 data collection ,! ,adm9i/rator 
( ! ,heal? ,res\rces & ,s]vices         
,adm9i/ration & ! ,director ( ! ,c5t]s =
 ,disease ,control & ,prev5tion %all    
coord9ate & collaborate 9 assi/+        
,/ates--  7,a7 to e/abli% newborn1      
infant1 & "y *ildhood he>+ scre5+1      
evaluation1 diagnosis1 & int]v5tion     
programs & sy/ems "u subsection 7a72 &  
7,b7 to develop a data collection sy/em 
"u subsection 7b74  7d7 ,rule (         
con/ruction2 religi\s accommodation     
,no?+ 9 ?is section %all be con/ru$ to  
preempt or prohibit any ,/ate law1      
includ+ ,/ate laws t d n require !      
scre5+ = he>+ loss ( newborns1 infants1 
or "y *ildr5 ( any p>5t t objects to !  
scre5+ on ! gr\nds t su* scre5+         
conflicts ) ! p>5t's religi\s beliefs4  
7e7 ,def9itions ,= purposes ( ?is       

section3 7#a7 ,! t]m audiologic1 :5 us$ 
9 connection ) evaluation1 means        
proc$ures--  7,a7 to assess ! /atus ( ! 
auditory sy/em2  7,b7 to e/abli% ! site 
( ! auditory disord]1 ! type & degree ( 
he>+ loss1 & ! pot5tial effects ( he>+  
loss on communication2 &  7,c7 to       
id5tify appropriate treatm5t & ref]ral  
options1 includ+-- 7i7 l9kage to ,/ate  
ag5cies coord9at+ ! programs "u "p ,c ( 
! ,individuals ) ,disabilities          
,education ,act or o!r appropriate      
ag5cies2  7ii7 m$ical evaluation2  7iii7
 he>+ aid or s5sory aid assessm5t2  7iv7
 audiologic rehabilitation treatm5t2 &  
7v7 ref]ral to national & local consum]1
 self-help1 family1 & education         
organizations1 & o!r family-c5t]$       
s]vices4  7#b7 ,! t]m e>ly int]v5tion   
means-- 7,a7 provid+ appropriate s]vices
 = ! *ild :o is deaf or h>d ( he>+1     
includ+ nonm$ical s]vices2 &  7,b7      
ensur+ ! family ( ! *ild is-- 7i7       
provid$ compreh5sive1 consum]-ori5t$    
in=mation ab\t ! full range ( family    

support1 tra9+1 in=mation s]vices1 &    
language acquisition 9 oral & visual    
modalities2 &  7ii7 giv5 ! opportunity  
to consid] & obta9 ! full range ( su*   
appropriate s]vices1 educational &      
program placem5ts1 & o!r options = !    
*ild f highly qualifi$ provid]s4  7#c7  
,! t]m m$ical evaluation means key      
compon5ts p]=m$ by a physician1 includ+ 
hi/ory1 exam9ation1 & m$ical            
decisionmak+ focus$ on symptomatic &    
relat$ body sy/ems = ! purpose (        
diagnos+ ! etiology ( he>+ loss & relat$
 physical conditions1 & = id5tify+      
appropriate treatm5t & ref]ral options4 
7#d7 ,! t]m m$ical int]v5tion means !   
process by :i* a physician provides     
m$ical diagnosis & direction = m$ical or
 surgical treatm5t options = he>+ loss  
or o!r m$ical disord]s associat$ ) he>+ 
loss4  7#e7 ,! t]m newborn1 infant1 & "y
 *ildhood he>+ scre5+ means objective   
physiologic proc$ures to detect possible
 he>+ loss & to id5tify newborns1       
infants1 & "y *ildr5 up to #c ye>s ( age

 :o require fur!r audiologic evaluations
 & m$ical evaluations4  7f7             
,au?orization ( appropriations  7#a7    
,/atewide newborn1 infant1 & "y *ildhood
 he>+ scre5+1 evaluation & int]v5tion   
programs & sy/ems ,= ! purpose ( c>ry+  
out subsection 7a71 !re are au?oriz$ to 
be appropriat$ to ! ,heal? ,res\rces &  
,s]vices ,adm9i/ration #ag1hah1jjj =    
fiscal ye> #bjah1 #ah1agc1hjj = fiscal  
ye> #bjai1 #ah1fbh1ade = fiscal ye>     
#bjbj1 #ai1jef1eib = fiscal ye> #bjba1 &
 #ai1ebb1geh = fiscal ye> #bjbb4  7#b7  
,te*nical assi/ance1 data managem5t1 &  
appli$ rese>*2 c5t]s = disease control &
 prev5tion ,= ! purpose ( c>ry+ out     
subsection 7b77#a71 !re are au?oriz$ to 
be appropriat$ to ! ,c5t]s = ,disease   
,control & ,prev5tion #aj1hjj1jjj =     
fiscal ye> #bjah1 #aa1jbf1hjj = fiscal  
ye> #bjai1 #aa1cjb1dgj = fiscal ye>     
#bjbj1 #aa1efb1dbg = fiscal ye> #bjba1 &
 #aa1hea1dhh = fiscal ye> #bjbb4  7#c7  
,te*nical ,assi/ance1 ,data ,managem5t1 
& ,appli$ ,rese>*2 ,national ,in/itute  

on ,deafness & ,o!r ,communication      
,disord]s ,= ! purpose ( c>ry+ out      
subsection 7b77#b71 !re are au?oriz$ to 
be appropriat$ to ! ,national ,in/itute 
on ,deafness & ,o!r ,communication      
,disord]s1 #bb1djj1jjj = fiscal ye>     
#bjah1 #bb1hgj1djj = fiscal ye> #bjai1  
#bc1ddb1afj = fiscal ye> #bjbj1         
#bc1iha1cbi = fiscal ye> #bjba1 &       
#bd1ehj1hfb = fiscal ye> #bjbb4  4