,,ii #aae? ,,congress #b;d ,session ,s4 #ceba ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,septemb] #bg1 #bjah,mr4 ,casey 7= himself1 ,mr4 ,isakson1 & ,mr4 ,br[n7 introduc$ ! foll[+ bill2 :i* 0 read twice & ref]r$ to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ,a ,,bill ,to am5d ! ,public ,heal? ,s]vice ,act to improve ! heal? ( *ildr5 & help bett] und]/& & enhance aw>5ess ab\t unexpect$ sudd5 dea? 9 e>ly life4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,sc>lett's ,sun%9e on ,sudd5 ,unexpect$ ,dea? ,act4 #b4 ,am5dm5t to ! ,public ,heal? ,s]vice ,act ,title ,,iii ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bda et seq47 is am5d$ by add+ at ! end ! foll[+3 ,w ,sudd5 ,unexpect$ ,infant ,dea? & ,sudd5 ,unexpla9$ ,dea? 9 ,*ildhood #cii,,oo4 ,def9itions ,9 ?is "p3 7#a7 ,adm9i/rator ,! t]m ,adm9i/rator means ! ,adm9i/rator ( ! ,heal? ,res\rces & ,s]vices ,adm9i/ration4 7#b7 ,dea? sc5e inve/igator ,! t]m dea? sc5e inve/igator means an individual c]tifi$ or tra9$ z a dea? sc5e inve/igator by an accr$it$ pr(essional c]tification bo>d4 7#c7 ,director ,! t]m ,director means ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion4 7#d7 ,/ate ,! t]m ,/ate has ! mean+ giv5 to su* t]m 9 section #b1 except t su* t]m includes ,indian tribes & tribal organizations 7z su* t]ms are def9$ 9 section #d ( ! ,indian ,self-,det]m9ation & ,education ,assi/ance ,act74 7#e7 ,sudd5 unexpect$ infant dea?2 ,,suid ,! t]ms sudd5 unexpect$ infant dea? & ,,suid mean ! sudd5 dea? ( an infant "u #a ye> ( age t :5 fir/ discov]$ did n h an obvi\s cause4 ,su* t]ms include ^? dea?s t are lat] det]m9$ to be f expla9$ z well z unexpla9$ causes4 7#f7 ,sudd5 unexpla9$ dea? 9 *ildhood2 ,,sudc ,! t]ms sudd5 unexpla9$ dea? 9 *ildhood & ,,sudc mean ! sudd5 dea? ( a *ild :o is #a ye> ( age or old]1 :i* rema9s unexpla9$ aft] a ?or\gh case inve/igation t includes a review ( ! cl9ical hi/ory & circum/ances ( dea? & p]=mance ( a complete autopsy ) appropriate ancill>y te/+4 #cii,,oo-#a4 ,dea? sc5e inve/igation & autopsy 7a7 ,inve/igations 7#a7 ,report+ ,! ,secret>y1 act+ ?r\gh ! ,director1 9 consultation ) bo>d-c]tifi$ =5sic pa?ologi/s1 m$ical exam9]s1 coron]s1 p$iatric pa?ologi/s1 p$iatric c>diologi/s1 p$iatric neuropa?ologi/s & g5etici/s1 & o!r individuals & gr\ps z ! ,director det]m9es necess>y1 %all revise ! ,sudd5 ,unexpla9$ ,infant ,dea? ,inve/igation ,report+ ,=m ( ! ,c5t]s = ,disease ,control & ,prev5tion & ! ,*ild ,dea? ,review ,case ,report+ ,sy/em to include doll re-enactm5ts & sc5e inve/igation in=mation on dea?s ( *ildr5 y\ng] ?an #e4 7#b7 ,grants ,! ,secret>y1 act+ ?r\gh ! ,director1 %all aw>d grants to ,/ates to enable su* ,/ates to improve ! completion ( compreh5sive dea? sc5e inve/igations1 & reviews ( su* inve/igations1 = sudd5 unexpect$ infant dea? & sudd5 unexpla9$ dea? 9 *ildhood4 7#c7 ,application ,to be eligible to receive a grant "u p>agraph 7#a71 a ,/ate %all submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require4 7#d7 ,use ( funds 7,a7 ,9 g5]al ,a ,/ate %all use am\nts receiv$ "u a grant "u p>agraph 7#a7 to improve ! completion ( compreh5sive dea? sc5e inve/igations = sudd5 unexpect$ infant dea? & sudd5 unexpla9$ dea? 9 *ildhood1 includ+ ?r\gh ! aw>d+ ( subgrants to local jurisdictions to be us$ to implem5t /&>d dea? sc5e inve/igation protocols = sudd5 unexpect$ infant dea? & sudd5 unexpla9$ dea? 9 *ildhood & conduct compreh5sive1 /&>diz$ autopsies4 7,b7 ,protocols ,a /&>d dea? sc5e protocol implem5t$ "u subp>agraph 7,a7 %all include ! obta9+ ( in=mation on curr5t & pa/ m$ical hi/ory ( ! infant or *ild1 ! circum/ances surr\nd+ ! dea?1 includ+ any suspici\s circum/ances1 :e!r !re 7 any accid5tal or environm5tal factors associat$ ) ! dea?1 & 9 ! case ( a sleep-relat$ dea?1 ! sleep position & sleep environm5t4 7b7 ,autopsies 7#a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,director1 %all aw>d grants to ,/ates & local gov]nm5tal entities to enable su* ,/ates & entities to increase ! rate at :i* compreh5sive1 /&>diz$ autopsies are p]=m$ = sudd5 unexpect$ infant dea? & sudd5 unexpla9$ dea? 9 *ildhood4 7#b7 ,in=m$ cons5t ,grants aw>d$ "u ?is subsection may be us$ = /udies & demon/ration projects to increase ! rate ( cons5t among families ( deceas$ *ildr5 = ! inclusion ( g5etic or tissue samples collect$ dur+ autopsy 9 regi/ries e/abli%$ = ! purposes ( conduct+ rese>* into ,,suid & ,,sudc4 7#c7 ,application ,to be eligible to receive a grant "u p>agraph 7#a71 an eligible entity describ$ 9 su* p>agraph %all submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require4 7#d7 ,compreh5sive autopsy ,= purposes ( ?is subsection1 a compreh5sive autopsy1 :i* may include m9imally invasive te*niques1 %all include a full ext]nal & int]nal exam9ation1 includ+ microscopic exam9ation1 ( all major organs & tissues includ+ ! bra91 complete radiographs1 vitre\s fluid analysis1 photo docum5tation1 metabolic te/+1 toxicology scre5+1 &1 :5 indicat$1 select$ g5etic & microbiology analyses ( ! infant or *ild involv$4 7c7 ,/udy on g5etic analysis ,! ,director1 9 consultation ) m$ical exam9]s1 coron]s1 =5sic pa?ologi/s1 g5etici/s1 rese>*]s1 public heal? (ficials1 & o!r individuals & gr\ps z ! ,director det]m9es necess>y1 %all commission a /udy to det]m9e ! b5efits & appropriat5ess ( g5etic analysis = infant & e>ly *ildhood dea?s t rema9 unexpla9$ aft] a complete dea? sc5e inve/igation & compreh5sive1 /&>diz$ autopsy4 ,su* /udy %all include recomm5dations on develop+ a /&>d protocol = use 9 det]m9+ :5 to utilize g5etic analysis1 & /&>d protocols = ! collection & /orage ( specim5s suitable = g5etic analysis4 7d7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #h1jjj1jjj = ea* ( fiscal ye>s #bjah ?r\gh #bjbb4 #cii,,oo-#b4 ,tra9+ 7a7 ,grants ,! ,secret>y1 act+ ?r\gh ! ,director1 %all aw>d grants to eligible entities = ! provision ( tra9+ on dea? sc5e inve/igation specific = ,,suid & ,,sudc4 7b7 ,eligible entities ,to be eligible to receive a grant "u subsection 7a71 an entity %all-- 7#a7 be-- 7,a7 a ,/ate or local gov]nm5t entity2 or 7,b7 a nonpr(it private entity2 7#b7 submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require2 & 7#c7 make publi%+ tra9+ mat]ials develop$ us+ a grant aw>d$ "u subsection 7a7 available on an int]net website & at no *>ge to att5dees ( tra9+ "u subsection 7c77#a74 7c7 ,use ( funds ,an eligible entity %all use am\nts receiv$ "u a grant "u ?is section to-- 7#a7 provide tra9+ to m$ical exam9]s1 coron]s1 dea? sc5e inve/igators1 law en=cem5t p]sonnel1 ju/ices ( ! peace1 em]g5cy m$ical te*nicians1 p>am$ics1 or em]g5cy dep>tm5t p]sonnel conc]n+ dea? sc5e inve/igations = ,,suid & ,,sudc1 includ+ ! use ( /&>d dea? sc5e inve/igation protocols t include in=mation on ! curr5t & pa/ m$ical hi/ory ( ! infant or *ild1 ! circum/ances surr\nd+ ! dea? includ+ any suspici\s circum/ances1 ! sleep position & sleep environm5t ( ! infant or *ild1 & :e!r !re 7 any accid5tal or environm5tal factors associat$ ) ! dea?2 7#b7 provide tra9+ directly to individuals :o are responsible = conduct+ & review+ dea? sc5e inve/igations = sudd5 unexpect$ infant dea? & sudd5 unexpla9$ dea? 9 *ildhood2 7#c7 provide tra9+ to multidiscipl9>y teams1 includ+ teams t h a m$ical exam9] or coron]1 dea? sc5e inve/igator1 law en=cem5t repres5tative1 & an em]g5cy m$ical te*nician or p>am$ic2 7#d7 9 ! case ( national & ,/ate-bas$ grantees t are compris$ ( m$ical exam9]s1 coron]s1 dea? sc5e inve/igators1 law en=cem5t p]sonnel1 or em]g5cy m$ical te*nicians & p>am$ics1 integrate tra9+ "u ! grant on dea? sc5e inve/igation ( ,,suid & ,,sudc into pr(essional accr$itation & tra9+ programs2 or 7#e7 9 ! case ( ,/ate & local gov]nm5t entity grantees1 obta9 equipm5t1 includ+ sc5e inve/igation kits1 to aid 9 ! completion ( /&>d dea? sc5e inve/igation4 7d7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #b1jjj1jjj = ea* ( fiscal ye>s #bjah ?r\gh #bjbb4 #cii,,oo-#c4 ,infant & *ild dea? review 7a7 ,prev5tion 7#a7 ,core capacity grants ,! ,secret>y1 act+ ?r\gh ! ,adm9i/rator & 9 consultation ) ! ,associate ,commission] ( ! ,*ildr5's ,bureau ( ! ,adm9i/ration = ,*ildr5 & ,families1 %all aw>d grants to ,/ates to build & /r5g!n ,/ate capacity s z to review #ajj p]c5t ( all infant & *ild dea?s1 & to develop & implem5t prev5tion /rategies1 z appropriate4 7#b7 ,plann+ grants ,! ,secret>y1 act+ ?r\gh ! ,adm9i/rator1 %all aw>d plann+ grants to ,/ates t h no exi/+ infant or *ild dea? review program or ,/ates 9 :i* ! only infant & *ild dea? review programs are ,/ate-bas$1 = ! developm5t ( local infant & *ild dea? review programs & prev5tion /rategies4 7#c7 ,application ,to be eligible to receive a grant "u p>agraph 7#a7 or 7#b71 a ,/ate %all submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require4 7#d7 ,te*nical assi/ance ,! ,secret>y1 act+ ?r\gh ! ,adm9i/rator1 %all provide te*nical assi/ance to assi/ ,/ates-- 7,a7 9 develop+ ! capacity = compreh5sive infant & *ild dea? review programs1 includ+ ! developm5t ( be/ practices = ! implem5tation ( su* programs2 & 7,b7 9 ma9ta9+ ! ,national ,infant & ,*ild ,dea? ,case ,report+ ,sy/em4 7b7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #ae1jjj1jjj = ea* ( fiscal ye>s #bjah ?r\gh #bjbb4 #cii,,oo-#d4 ,enhanc+ ! ,national ,infant & ,*ild ,dea? ,case ,report+ ,sy/em 7a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,director & 9 consultation ) ! ,national ,infant & ,*ild ,dea? ,case ,report+ ,sy/em1 national heal? organizations1 & pr(essional societies ) exp]i5ce & exp]tise relat+ to r$uc+ ,,suid & ,,sudc1 %all ma9ta9 curr5t ef=ts ( ! ,national ,infant & ,*ild ,dea? ,case ,report+ ,sy/em s z to provide population-bas$ data on dea?s occurr+ = *ildr5 "u age #e1 9 ord] to facilitate ! und]/&+ ( ! root causes1 rates1 tr5ds1 & geographic v>iations ( ,,suid & ,,sudc ) respect to su* age gr\p4 7b7 ,compilation & availability ( data ,! ,secret>y %all compile ! data submitt$ "u ?is section & make su* data available to ! public 9 a timely mann] on an appropriate int]net website 9 a =mat t is useful to ! public & to o!r entities4 7c7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #a1jjj1jjj = ea* ( fiscal ye>s #bjah ?r\gh #bjbb4 #cii,,oo-#e4 ,grants to support infant safe sleep 7a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,adm9i/rator1 %all aw>d grants to national organizations1 community-bas$ organizations1 municipal public safety dep>tm5ts1 & nonpr(it organizations = ! provision ( evid5ce-bas$ approa*es = educational programs1 & outrea* activities focus$ on decreas+ ! risk factors t contribute to ,,suid4 7b7 ,application ,to be eligible to receive a grant "u subsection 7a71 an entity %all submit to ! ,secret>y an application at su* "t1 9 su* mann]1 & conta9+ su* in=mation z ! ,secret>y may require4 7c7 ,use ( funds ,am\nts receiv$ "u a grant aw>d$ "u subsection 7a7 may be us$ to-- 7#a7 provide outrea* & education s]vices directly to p>5ts & families1 :i*-- 7,a7 may include home visits1 #bd-;h\r hotl9es1 int]net-bas$ educational mat]ials1 mobile heal? te*nologies1 & social m>ket+ campaigns2 7,b7 %all apply curr5t safe sleep guidel9es publi%$ by a pr(essional p$iatric organization2 & 7,c7 may provide safe sleep-relat$ products to families at no co/ or at r$uc$ co/ t h publi%$1 pe]-review$ evid5ce to support saf] sleep environm5ts = infants ?r\gh age "o2 or 7#b7 build capacity 9 pr(essionals work+ ) families to support safe sleep4 7d7 ,safe-,sleep products ,any product relat$ to safe sleep = an infant t is provid$ "u subsection 7c77#a77;,c7 %all-- 7#a7 be a full-siz$ crib1 a non-full-siz$ crib1 or a play y>d2 7#b7 provide a flat surface2 7#c7 n include a supplem5tal mattress or s(t b$d+2 & 7#d7 be cov]$ by1 & be 9 compliance )1 a regulation or m&atory /&>d promulgat$ by ! ,consum] ,product ,safety ,commission4 7e7 ,pref]5ce ,9 aw>d+ grants "u subsection 7a71 ! ,secret>y %all give pref]5ce to applicants t h a prov5 hi/ory ( develop+ or deliv]+ int]v5tions = infants & families to support safe sleep1 include plans to report evid5ce ( program outcomes1 & c demon/rate exp]i5ce ?r\gh collaborations & p>tn]%ips = deliv]+ s]vices ?r\gh\t a ,/ate or region4 7f7 ,set-,aside ,n m ?an #e p]c5t ( ! am\nt ( funds appropriat$ to c>ry out ?is section may be us$ to conduct rese>* into ! behavioral risks t lead to unsafe sleep practices & ways to mitigate ^? risks4 7g7 ,au?orization ( appropriations ,to c>ry out ?is section1 !re is au?oriz$ to be appropriat$ #e1jjj1jjj = fiscal ye> #bjah & #g1jjj1jjj = ea* ( fiscal ye>s #bjai ?r\gh #bjbb4 4 #c4 ,s5se ( ,congress ,x is ! s5se ( ,congress t additional rese>* is ne$$ to improve ! und]/&+ ( ! epidemiology ( sudd5 unexpla9$ dea? 9 *ildhood4 #d4 ,report to ,congress ,n lat] ?an #a ye> aft] ! date ( enactm5t ( ?is ,act1 & annually !reaft]1 ! ,secret>y ( ,heal? & ,human ,s]vices1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion & 9 consultation ) ! ,director ( ! ,national ,in/itutes ( ,heal? & ! ,adm9i/rator ( ! ,heal? ,res\rces & ,s]vices ,adm9i/ration1 %all submit to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate & ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives a report t conta9s1 ) respect to ! prec$+ #a-ye> report+ p]iod-- 7#a7 in=mation reg>d+ ! absolute numb] & incid5ce ( bo? sudd5 unexpect$ infant dea? & sudd5 unexpla9$ dea? 9 *ildhood1 in=mation ab\t su* conditions by racial & e?nic gr\ps1 in=mation ab\t su* conditions by ,/ate1 aggregate in=mation obta9$ f dea? sc5e inve/igations & autopsies1 & recomm5dations = r$uc+ ! incid5ce ( sudd5 unexpect$ infant dea? & sudd5 unexpla9$ dea? 9 *ildhood2 7#b7 an assessm5t ( ! ext5t to :i* v>i\s approa*es ( prev5t+ sudd5 unexpect$ infant dea? h be5 effective2 7#c7 a description ( ! activities c>ri$ out "u "p ,w ( title ,,iii ( ! ,public ,heal? ,s]vice ,act 7z add$ by section #b72 & 7#d7 any recomm5dations ( ! ,secret>y reg>d+ su* "p ,w4