,,iv  #aae? ,,congress  #a/ ,session    
,h4 ,,res4 #eci  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,septemb] #bf1        
#bjag,ms4 ,lee 7= h]self1 ,mr4 ,burgess1
 ,ms4 ,norton1 ,ms4 ,wilson ( ,florida1 
,mrs4 ,watson ,coleman1 ,mr4 ,grijalva1 
,mr4 ,evans1 ,mr4 ,ha/+s1 ,ms4 ,jackson 
,lee1 ,mr4 ,ellison1 ,mr4 ,meeks1 & ,mr4
 ,payne7 submitt$ ! foll[+ resolution2  
:i* 0 ref]r$ to ! ,committee on ,en]gy &
 ,comm]ce  ,,resolution  ,call+ =       
sickle-cell trait rese>*1 surveillance1 
& public education & aw>5ess4  ,:]eas   
sickle-cell disease is ! mo/ common     
inh]it$ blood disord] 9 ! ,unit$ ,/ates1
 affect+ approximately #ajj1jjj p 9 !   
,unit$ ,/ates2 ,:]eas m ?an #c1jjj1jjj p
 9 ! ,unit$ ,/ates h ! sickle-cell      
trait1 & _m are unaw>e ( _! /atus2      
,:]eas 9 #bjaj1 ! total numb] ( babies  
born ) sickle-cell trait 0 e/imat$ to h 
exce$$ #fj1jjj1 & ! total ,unit$ ,/ates 
incid5ce e/imate 0 #ae4e cases p] #a1jjj
 bir?s2 ,:]eas ,african ,am]icans 7#a 9 
#ab7 & ,hispanic ,am]icans 7#a 9 #ajj7  

are mo/ at risk = c>ry+ ! sickle-cell   
trait1 & ! trait has be5 f\nd 9 p]sons (
 ,greek1 ,italian1 ,ea/ ,indian1 ,saudi 
,arabian1 ,asian1 ,syrian1 ,turki%1     
,cypriot1 ,sicilian1 & ,caucasian orig92
 ,:]eas individuals :o h sickle-cell    
trait h a #ej-p]c5t *ance ( pass+ on !  
abnormal sickle-cell g5e to future      
(fspr+ & #be-p]c5t *ance ( hav+ future  
*ildr5 ) sickle-cell disease if bo?     
p>5ts h ! trait2 ,:]eas sickle-cell     
disease c be id5tifi$ be=e bir? by te/+ 
a sample ( amniotic fluid or tissue f ! 
plac5ta2 ,:]eas individuals )           
sickle-cell trait h ! same life         
expectancy z ! g5]al population1 b are  
at risk = c]ta9 conditions1 includ+     
blood 9 ! ur9e1 kidney canc]1           
complications ) trauma to ! eye1 &      
tissue dea? 9 ! sple5 at high altitudes1
 or may h a false positive ,a#a;,c te/2 
,:]eas accord+ to a #bjjg /udy 9 !      
,am]ican ,j\rnal ( ,m$ical ,g5etics1 all
 ,/ates h be5 requir$ to scre5 =        
sickle-cell disease_/trait s9ce #bjjf2  

h[ev]1 mo/ ,/ates lack a protocol =     
dissem9at+ results ( trait /atus1 )     
p>5ts be+ notifi$ only #cg p]c5t ( ! "t2
 ,:]eas communication ( a scre5+ result 
consi/5t ) sickle-cell trait %\ld always
 be accompani$ by appropriate c\nsel+ on
 ! implications1 provid$ by an          
individual ) adequate tra9+ & und]/&+ ( 
! in=mation2 ,:]eas ! limit$ rese>* on !
 communication ( sickle-cell trait te/  
results to pati5ts demon/rates t !re is 
a high preval5ce ( mislead+ in=mation   
be+ communicat$ dur+ c\nsel+ sessions = 
sickle-cell trait foll[+ newborn scre5+ 
by cl9icians2 ,:]eas no /udies h exam9$ 
:e!r in=mation on sickle-cell trait te/ 
results is be+ accurately transmitt$ to 
an individual1 :e!r by a family memb] or
 heal?c>e provid]1 prior to a p]son's   
reproductive ye>s2 & ,:]eas ,congress   
recognizes ! importance ( ensur+ t p 9 !
 ,unit$ ,/ates c make in=m$ decisions z 
a result ( aw>5ess ( _! sickle-cell     
trait /atus3 ,n[1 !re=e1 be x  ,t !     
,h\se ( ,repres5tatives-- 7#a7          

recognizes ! ongo+ *all5ges 9 address+  
heal? outcomes among p ) sickle-cell    
trait & sickle-cell disease2  7#b7      
enc\rages ! m$ical community1 9         
coord9ation ) ! ,/ate & ,f$]al          
,gov]nm5t1 to "w to ensure t all        
individuals are made aw>e ( _!          
sickle-cell trait /atus by develop+ a   
common /rategy = dissem9ation ( scre5+  
results1 education1 & c\nsel+ to p>5ts &
 families 9 collaboration ) all #ej     
,/ates' newborn scre5+ programs2  7#c7  
calls on ! ,dep>tm5t ( ,heal? & ,human  
,s]vices1 9 collaboration ) exp]ts1 to  
develop a surveillance & public aw>5ess 
campaign reg>d+ ! importance ( kn[+ "o's
 sickle-cell trait /atus & to ga9 k on  
sickle-cell disease = all racial & e?nic
 gr\ps 9 ! ,unit$ ,/ates2  7#d7 calls on
 ! ,dep>tm5t ( ,heal? & ,human ,s]vices 
to exp& access = scre5+ & appropriate   
c\nsel+ = c>ri]s ( sickle-cell trait2 & 
7#e7 commits to ensur+ support = rese>* 
t exp&s our und]/&+ ( ! heal? outcomes &
 o!r implications ( sickle-cell trait & 

! heal? outcomes associat$ ) sickle-cell
 disease4