,,iv  #aae? ,,congress  #a/ ,session    
,h4 ,,res4 #dfd  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,july #bj1 #bjag,ms4  
,spei] 7= h]self1 ,mr4 ,s*iff1 & ,mr4   
,khanna7 submitt$ ! foll[+ resolution2  
:i* 0 ref]r$ to ! ,committee on ,en]gy &
 ,comm]ce  ,,resolution  ,designat+ !   
week ( ,july #ag ?r\gh ,july #ba1 #bjag1
 z ,national ,ectod]mal ,dysplasias     
,week & support+ ! goals & ideals (     
,national ,ectod]mal ,dysplasias ,week  
to raise aw>5ess & und]/&+ ( ectod]mal  
dysplasias4  ,:]eas ectod]mal dysplasias
 is a cong5ital disord] t causes defects
 to ! sk91 hair1 nails1 tee?1 & gl&s (  
an individual & c also cause h>m to o!r 
body p>ts ( an individual1 su* z ! eyes1
 e>s1 & ?roat2 ,:]eas ectod]mal         
dysplasias is a g5etic disord] t is     
pass$ f p>5t to *ild2 ,:]eas a *ild may 
be ! fir/ individual 9 a family to be   
affect$ by ectod]mal dysplasias & c !n  
pass ! condition on to ! next g5]ation2 
,:]eas ectod]mal dysplasias is a r>e    
disord] t affects few] ?an #bjj1jjj p 9 

! ,unit$ ,/ates2 ,:]eas symptoms (      
ectod]mal dysplasias 9 an individual c  
include-- 7#a7 ! inability to p]spire2  
7#b7 lack ( te>s 9 ! eyes2  7#c7 cleft  
lip & palate2  7#d7 sp>se saliva2  7#e7 
miss+ f+]s or toes2 &  7#f7 abs5ce or   
mal=mation ( "s or all tee?1 kn[n z     
anodontia & hypodontia1 respectively2   
,:]eas !re are m ?an #ahj diff]5t types 
( ectod]mal dysplasias & a specific     
diagnosis dep5ds on ! comb9ation (      
symptoms t an individual exp]i5ces2     
,:]eas !re is no cure = ectod]mal       
dysplasias2 ,:]eas ! treatm5t =         
ectod]mal dysplasias v>ies dep5d+ on !  
sev]ity ( ! disease1 :i* c range f mild 
symptoms to ext5sive heal? issues t     
require advanc$ c>e2 ,:]eas _m types (  
ectod]mal dysplasias affect ! tee? & !  
nature ( d5tal & oral symptoms-- 7#a7   
are specific to ea* syndrome2 &  7#b7 c 
include sev]e hypodontia & anodontia t  
require complex c>e2 ,:]eas an          
individual :o suff]s f ectod]mal        
dysplasias c expect to sp5d             

approximately #aej1jjj on d5tal c>e     
alone dur+ ! lifetime ( ! individual2   
,:]eas mo/ insurance companies provide  
cov]age = ! treatm5t ( a cong5ital      
disease or anomaly2 ,:]eas mo/ ,/ates   
require cov]age = any repair or         
re/oration ( body p>ts = a cong5ital    
disease l ectod]mal dysplasias2 ,:]eas  
cov]age = complex & m$ically necess>y   
d5tal proc$ures t are requir$ because ( 
ectod]mal dysplasias1 includ+ pro/hetic 
tee? & bone grafts1 is r\t9ely d5i$2    
,:]eas access to heal? insurance cov]age
 = m$ically necess>y d5tal s]vices      
relat+ to ectod]mal dysplasias v>ies    
across ! ,unit$ ,/ates2 ,:]eas gaps 9   
ectod]mal dysplasias cov]age h s]i\s    
consequ5ces = pati5ts & _! families &   
may lead to sev]e limits on prop] oral  
function & ! ability to eat or speak2   
,:]eas sci5ti/s across ! ,unit$ ,/ates  
are conduct+ rese>* projects & cl9ical  
trials & are hopeful t break?r\ghs 9    
ectod]mal dysplasias rese>* & treatm5t  
are =?com+2 & ,:]eas ! ,h\se (          

,repres5tatives is an in/itution t c    
raise aw>5ess ab\t ectod]mal dysplasias 
to ! g5]al public & ! m$ical community3 
,n[1 !re=e1 be x ,t ! ,h\se (           
,repres5tatives--  7#a7 expresses       
support = ! designation ( ,national     
,ectod]mal ,dysplasias ,week2  7#b7     
supports ! goals & ideals ( ,national   
,ectod]mal ,dysplasias ,week to raise   
aw>5ess & und]/&+ ( ectod]mal           
dysplasias2  7#c7 enc\rages ! p ( !     
,unit$ ,/ates to become m in=m$ ab\t--  
7,a7 ectod]mal dysplasias2 &  7,b7 !    
role ( compreh5sive treatm5t = all      
symptoms ( ectod]mal dysplasias1 includ+
 d5tal manife/ations1 9 improv+ quality 
( life2 &  7#d7 respectfully reque/s t !
 ,secret>y ( ! ,h\se ( ,repres5tatives  
transmit an enroll$ copy ( ?is          
resolution to ! ,national ,f\ndation =  
,ectod]mal ,dysplasias1 a nonpr(it      
organization d$icat$ to improv+ ! lives 
( individuals affect$ by ectod]mal      
dysplasias4