,i  #aae? ,,congress  #a/ ,session  ,h4 
,r4 #ica  ,,9 ,,! ,,h\se ,,(            
,,repres5tatives  ,febru>y #g1 #bjag,mr4
 ,coll9s ( ,new ,york 7= himself1 ,mr4  
,pascrell1 ,mr4 ,amodei1 ,mr4 ,b>letta1 
,mr4 ,b>r1 ,mr4 ,blum5au]1 ,ms4         
,bonamici1 ,mr4 ,bo/1 ,mrs4 ,brooks (   
,indiana1 ,ms4 ,br[nley ( ,cali=nia1    
,mrs4 ,bu/os1 ,mrs4 ,com/ock1 ,mr4      
,connolly1 ,mr4 ,de,fazio1 ,ms4         
,de,gette1 ,mr4 ,donovan1 ,mr4 ,ellison1
 ,mr4 ,engel1 ,ms4 ,e/y1 ,mr4 ,fo/]1    
,mr4 ,faso1 ,mr4 ,g>am5di1 ,mr4         
,grijalva1 ,mr4 ,heck1 ,mr4 ,joyce (    
,ohio1 ,ms4 ,kaptur1 ,mr4 ,katko1 ,mr4  
,kilm]1 ,mr4 ,k9d1 ,mr4 ,k+ ( ,new      
,york1 ,mr4 ,knight1 ,ms4 ,ku/] ( ,new  
,hamp%ire1 ,mr4 ,lev91 ,mr4 ,lip9ski1   
,mr4 ,lo,biondo1 ,mr4 ,loebsack1 ,mrs4  
,c>olyn ,b4 ,maloney ( ,new ,york1 ,ms4 
,mc,collum1 ,mr4 ,mc,govern1 ,mr4       
,meehan1 ,mr4 ,m\lton1 ,mr4 ,nadl]1 ,mr4
 ,nolan1 ,mr4 ,norcross1 ,ms4 ,norton1  
,mr4 ,payne1 ,mr4 ,p]lmutt]1 ,mr4       
,pet]son1 ,ms4 ,p+ree1 ,mr4 ,poliqu91   

,mr4 ,r5acci1 ,miss ,rice ( ,new ,york1 
,mr4 ,rog]s ( ,k5tucky1 ,mr4 ,ryan (    
,ohio1 ,mr4 ,s]rano1 ,ms4 ,%ea-,port]1  
,mr4 ,%u/]1 ,ms4 ,s9ema1 ,mr4 ,sires1   
,ms4 ,slaught]1 ,mr4 ,smi? ( ,new       
,j]sey1 ,mr4 ,swalwell ( ,cali=nia1 ,ms4
 ,t5ney1 ,mr4 ,tonko1 ,ms4 ,tsongas1    
,mr4 ,valadao1 ,mrs4 ,walorski1 ,mr4    
,walz1 ,ms4 ,wass]man ,s*ultz1 ,mrs4    
,watson ,coleman1 ,mr4 ,y>mu?1 ,mr4 ,"y 
( ,alaska1 ,mr4 ,zeld91 ,mr4 ,lance1    
,mr4 ,smi? ( ,wa%+ton1 ,mr4 ,sean       
,patrick ,maloney ( ,new ,york1 ,mr4    
,quigley1 ,mr4 ,got!im]1 & ,ms4         
,/efanik7 introduc$ ! foll[+ bill2 :i* 0
 ref]r$ to ! ,committee on ,en]gy &     
,comm]ce  ,a ,,bill  ,to require !      
,secret>y ( ,heal? & ,human ,s]vices to 
develop a volunt>y regi/ry to collect   
data on canc] incid5ce among            
firefight]s4  #a4 ,%ort title ,?is ,act 
may be cit$ z ! ,firefight] ,canc]      
,regi/ry ,act ( #bjag4  #b4 ,pati5t     
regi/ry = firefight] canc] incid5ce  7a7
 ,9 g5]al ,! ,secret>y ( ,heal? & ,human

 ,s]vices1 act+ ?r\gh ! ,director ( !   
,c5t]s = ,disease ,control & ,prev5tion1
 %all develop & ma9ta91 directly or     
?r\gh a grant or coop]ative agreem5t1 a 
volunt>y regi/ry ( firefight]s 7ref]r$  
to 9 ?is section z ! ,firefight]        
,regi/ry7 to collect relevant hi/ory &  
occupational in=mation ( su* firefight]s
 t c be l9k$ to available canc] regi/ry 
data collect$ by exi/+ ,/ate canc]      
regi/ries4  7b7 ,use ( ,firefight]      
,regi/ry ,! ,firefight] ,regi/ry %all be
 us$ = ! foll[+ purposes3 7#a7 ,to      
e/abli% & improve collection            
infra/ructure & activities relat$ to !  
nationwide monitor+ ( ! incid5ce ( canc]
 among firefight]s4  7#b7 ,to collect1  
consolidate1 /ore1 & make publicly      
available epidemiological in=mation     
relat$ to canc] incid5ce & tr5ds among  
firefight]s4  7c7 ,relevant data  7#a7  
,9 g5]al ,9 c>ry+ out ! volunt>y data   
collection = purposes ( inclusion "u !  
,firefight] ,regi/ry1 ! ,secret>y %\ld  
seek to include ! foll[+ in=mation3     

7,a7 ,id5tifiable in=mation f a         
repres5tative sample size1 z det]m9$ by 
! ,secret>y "u subsection 7d77#b77;,a71 
( volunte]1 paid-on-call1 & c>e]        
firefight]s1 indep5d5t ( canc] /atus or 
diagnosis4  7,b7 ,) respect to          
individual risk factors & "w hi/ory (   
firefight]s1 available in=mation on--   
7i7 basic demographic in=mation1 includ+
 ! age ( ! firefight] involv$2  7ii7 a  
li/+ ( /atus ( ! firefight] z ei!r      
volunte]1 paid-on-call1 or c>e]         
firefight]2  7iii7 ! numb] ( ye>s on !  
job & a detail+ ( additional employm5t  
exp]i5ce t 0 ei!r p]=m$ concurr5tly     
alongside firefight+ s]vice1 be=e1 or   
anytime !reaft]2  7iv7  7,i7 a measure (
 ! numb] ( fire incid5ts att5d$ z well z
 ! type ( fire incid5ts 7su* z          
resid5tial h\se fire or comm]cial fire72
 or  7,,ii7 9 ! case ( a firefight] :o  
is unable to provide in=mation on su*   
numb] & type1 an e/imate ( su* numb] &  
type bas$ on ! me?od develop$ "u        
subsection 7d77#b72  7v7 a li/ (        

additional risk factors1 includ+ smok+  
or drug use1 z det]m9$ relevant by !    
,secret>y2 &  7vi7 o!r physical         
exam9ation & m$ical hi/ory in=mation    
relevant to a canc] incid5ce /udy or    
g5]al heal? ( firefight]s n available 9 
exi/+ canc] regi/ries4  7,c7 ,any       
additional in=mation t is deem$ necess>y
 by ! ,secret>y4  7#b7 ,diagnoses &     
treatm5t ,9 c>ry+ out ! data collection 
= purposes ( inclusion "u ! ,firefight] 
,regi/ry1 ) respect to diagnoses &      
treatm5t ( firefight]s diagnos$ ) canc]1
 ! ,secret>y %all enable ! ,firefight]  
,regi/ry to l9k to ,/ate-bas$ canc]     
regi/ries1 = a purpose describ$ by      
clause 7vi7 or 7vii7 ( section          
#cii;,b7c77#b77;,d7 ( ! ,public ,heal?  
,s]vice ,act 7#db ,u4,s4,c4             
#bhj;e7c77#b77;,d771 to obta9 in=mation 
on--  7,a7 adm9i/rative in=mation1      
includ+ date ( diagnoses & s\rce (      
in=mation2 &  7,b7 pa?ological data     
*>act]iz+ ! canc]1 includ+ canc] site1  
/ate ( disease 7pursuant to ,/ag+       

,guide71 incid5ce1 & type ( treatm5t4   
7d7 ,me?ods  7#a7 ,9 g5]al ,= ! purposes
 describ$ 9 subsection 7b71 ! ,secret>y 
is au?oriz$ to incorporate que/ions into
 public heal? surveys1 que/ionnaires1 & 
o!r databases4  7#b7 ,requir$ /rategy ,!
 ,secret>y %all develop a /rategy1 work+
 9 consultation ) ! /akehold]s id5tifi$ 
9 subsection 7e71 to maximize           
p>ticipation 9 ! ,firefight] ,regi/ry   
e/abli%$ "u ?is ,act4 ,at m9imum1 !     
/rategy %all include ! foll[+3  7,a7    
,id5tifi$ m9imum p>ticipation t>gets =  
volunte]1 paid-on-call1 & c>e]          
firefight]s4  7,b7 ,a /rategy = increas+
 aw>5ess ( ! ,firefight] ,regi/ry &     
maximiz+ p>ticipation among volunte]1   
paid-on-call1 & c>e] firefight]s to meet
 m9imum p>ticipation t>gets4  7,c7      
,additional /eps t may be requir$ to    
ensure ! equitable repres5tation ( gr\ps
 id5tifi$ 9 p>agraph 7#e74  7,d7        
,in=mation on h[ ! ,secret>y w /ore data
 describ$ 9 subsection 7c77#a7 & provide
 l9ks to relevant heal? in=mation       

describ$ 9 subsection 7c77#b74  7,e7    
,work+ 9 consultation ) ! exp]ts        
describ$ 9 subsection 7e71 a reliable & 
/&>diz$ me?od = e/imat+ ! numb] ( fire  
incid5ts att5d$ by a firefight] z well z
 ! type ( fire incid5t s att5d$ 9 ! case
 su* firefight] is unable to provide su*
 in=mation4  7#c7 ,report to ,congress  
,! ,secret>y %all submit ! /rategy      
describ$ 9 p>agraph 7#b7 to ! ,committee
 on ,en]gy & ,comm]ce ( ! ,h\se (       
,repres5tatives & ! ,committee on       
,heal?1 ,education1 ,labor1 & ,p5sions (
 ! ,s5ate n lat] ?an #cj days aft] !    
date ( ! completion ( ! /rategy4  7#d7  
,guidance = inclusion & ma9t5ance ( data
 on firefight]s ,! ,secret>y %all       
develop1 9 consultation ) ! /akehold]s  
id5tifi$ 9 subsection 7e71 & dissem9ate 
guidance to ,/ate heal? ag5cies1 ,/ate  
dep>tm5ts ( homel& security1 & volunte]1
 paid-on-call1 comb9ation1 & c>e]       
firefight+ ag5cies t outl9es ! foll[+3  
7,a7 ,h[ new in=mation ab\t firefight]s 
w be submitt$ to ! ,firefight] ,regi/ry 

= inclusion4  7,b7 ,h[ in=mation ab\t   
firefight]s w be ma9ta9$ & updat$ 9 !   
,firefight] ,regi/ry ov] "t4  7,c7 ,a   
me?od = e/imat+ ! numb] ( fire incid5ts 
att5d$ by a firefight] z well z ! type (
 fire incid5t s att5d$ 9 ! case su*     
firefight] is unable to provide su*     
in=mation4  7,d7 ,fur!r in=mation1 z    
deem$ necess>y by ! ,secret>y4  7#e7    
,ensur+ repres5tation ( und]repres5t$   
gr\ps 9 regi/ry ,9 c>ry+ out ?is        
section1 ! ,secret>y %all take su*      
measures z ! ,secret>y deems appropriate
 to enc\rage ! inclusion ( data on      
m9ority1 female1 & volunte] firefight]s 
9 ! ,firefight] ,regi/ry e/abli%$ "u ?is
 section4  7e7 ,consultation ,!         
,secret>y %all1 on a regul> basis1 seek 
fe$back reg>d+ ! utility ( ! ,firefight]
 ,regi/ry e/abli%$ "u ?is section & ways
 ! ,firefight] ,regi/ry c be improv$ f  
non-,f$]al exp]ts 9 ! foll[+ areas3     
7#a7 ,public heal? exp]ts ) exp]i5ce 9  
develop+ & ma9ta9+ canc] regi/ries4     
7#b7 ,epidemiologi/s ) exp]i5ce 9 /udy+ 

canc] incid5ce4  7#c7 ,cl9icians )      
exp]i5ce 9 diagnos+ & treat+ canc]      
incid5ce4  7#d7 ,active & retir$        
volunte]1 paid-on-call1 & c>e]          
firefight]s z well z relevant national  
fire & em]g5cy response organizations4  
7f7 ,rese>* availability ,! ,secret>y   
%all develop & make public a process =  
de-id5tify+ data f ! ,firefight]        
,regi/ry & mak+ su* data available )\t a
 fee = rese>* or o!r purposes4 ,su*     
process %all provide t su* data %all be 
made available = su* rese>* purposes    
only if !re is an agreem5t to make      
f9d+s1 j\rnal articles1 or o!r pr9t or  
web-bas$ publications d]iv$ f su* rese>*
 public or available to ! relevant      
/akehold]s id5tifi$ 9 subsection 7e74   
7g7 ,privacy ,9 c>ry+ out ?is ,act1 !   
,secret>y %all apply to ! ,firefight]   
,regi/ry develop$ "u subsection 7a7 data
 security provisions & privacy /&>ds t  
comply ) ! be/ practices ( ! ,c5t]s =   
,disease ,control & ,prev5tion & provide
 = data privacy & security /&>ds simil> 

to ^? 9 ! ,,hipaa privacy regulation1 z 
def9$ 9 section #aahj7;b77#c7 ( !       
,social ,security ,act 7#db ,u4,s4,c4   
#acbj;d-#i7;b77#c774  7h7 ,au?orization 
( funds ,to c>ry out ?is section1 !re   
are au?oriz$ to be appropriat$          
#b1ejj1jjj = ea* ( ! fiscal ye>s #bjah  
?r\gh #bjbb4