#aae? ,,congress  #a/ ,session  ,h4 ,r4 
#ica  ,,an ,,act  ,to require !         
,secret>y ( ,heal? & ,human ,s]vices to 
develop a volunt>y regi/ry to collect   
data on canc] incid5ce among            
firefight]s4  #a4 ,%ort title ,?is ,act 
may be cit$ z ! ,firefight] ,canc]      
,regi/ry ,act ( #bjag4  #b4             
,population-bas$ regi/ry = firefight]   
canc] incid5ce  7a7 ,9 g5]al ,!         
,secret>y ( ,heal? & ,human ,s]vices1   
act+ ?r\gh ! ,director ( ! ,c5t]s =     
,disease ,control & ,prev5tion1 %all    
develop & ma9ta91 directly or ?r\gh a   
grant or coop]ative agreem5t1 a volunt>y
 regi/ry ( firefight]s 7ref]r$ to 9 ?is 
section z ! ,firefight] ,regi/ry7 to    
collect relevant hi/ory & occupational  
in=mation ( su* firefight]s t c be l9k$ 
to available canc] regi/ry data collect$
 by exi/+ ,/ate canc] regi/ries4  7b7   
,use ( ,firefight] ,regi/ry ,!          
,firefight] ,regi/ry %all be us$ = !    
foll[+ purposes3 7#a7 ,to e/abli% &     
improve collection infra/ructure &      

activities relat$ to ! nationwide       
monitor+ ( ! incid5ce ( canc] among     
firefight]s4  7#b7 ,to collect1         
consolidate1 /ore1 & make publicly      
available epidemiological in=mation     
relat$ to canc] incid5ce & tr5ds among  
firefight]s4  7c7 ,relevant data  7#a7  
,9 g5]al ,9 c>ry+ out ! volunt>y data   
collection = purposes ( inclusion "u !  
,firefight] ,regi/ry1 ! ,secret>y %\ld  
seek to include ! foll[+ in=mation3     
7,a7 ,id5tifiable in=mation f a         
repres5tative sample size1 z det]m9$ by 
! ,secret>y "u subsection 7d77#b77;,a71 
( volunte]1 paid-on-call1 & c>e]        
firefight]s1 indep5d5t ( canc] /atus or 
diagnosis4  7,b7 ,) respect to          
individual risk factors & "w hi/ory (   
firefight]s1 available in=mation on--   
7i7 basic demographic in=mation1 includ+
 ! age ( ! firefight] involv$2  7ii7 a  
li/+ ( /atus ( ! firefight] z ei!r      
volunte]1 paid-on-call1 or c>e]         
firefight]2  7iii7 ! numb] ( ye>s on !  
job & a detail+ ( additional employm5t  

exp]i5ce t 0 ei!r p]=m$ concurr5tly     
alongside firefight+ s]vice1 be=e1 or   
anytime !reaft]2  7iv7 7,i7 a measure ( 
! numb] ( fire incid5ts att5d$ z well z 
! type ( fire incid5ts 7su* z resid5tial
 h\se fire or comm]cial fire72 or       
7,,ii7 9 ! case ( a firefight] = :om    
in=mation on su* numb] & type is n      
available1 an e/imate ( su* numb] & type
 bas$ on ! me?od develop$ "u subsection 
7d77#b72  7v7 a li/ ( additional risk   
factors1 includ+ smok+ or drug use1 z   
det]m9$ relevant by ! ,secret>y2 &  7vi7
 o!r physical exam9ation & m$ical hi/ory
 in=mation relevant to a canc] incid5ce 
/udy or g5]al heal? ( firefight]s n     
available 9 exi/+ canc] regi/ries4  7,c7
 ,any additional in=mation t is deem$   
necess>y by ! ,secret>y4  7#b7          
,diagnoses & treatm5t ,9 c>ry+ out !    
data collection = purposes ( inclusion  
"u ! ,firefight] ,regi/ry1 ) respect to 
diagnoses & treatm5t ( firefight]s      
diagnos$ ) canc]1 ! ,secret>y %all      
enable ! ,firefight] ,regi/ry to l9k to 

,/ate-bas$ canc] regi/ries1 = a purpose 
describ$ by clause 7vi7 or 7vii7 (      
section #cii;,b7c77#b77;,d7 ( ! ,public 
,heal? ,s]vice ,act 7#db ,u4,s4,c4      
#bhj;e7c77#b77;,d771 to obta9 in=mation 
on-- 7,a7 adm9i/rative in=mation1       
includ+ date ( diagnoses & s\rce (      
in=mation2 &  7,b7 pa?ological data     
*>act]iz+ ! canc]1 includ+ canc] site1  
/ate ( disease 7pursuant to ,/ag+       
,guide71 incid5ce1 & type ( treatm5t4   
7d7 ,me?ods  7#a7 ,9 g5]al ,= ! purposes
 describ$ 9 subsection 7b71 ! ,secret>y 
is au?oriz$ to incorporate que/ions into
 public heal? surveys1 que/ionnaires1 & 
o!r databases4  7#b7 ,requir$ /rategy ,!
 ,secret>y %all develop a /rategy1 work+
 9 consultation ) ! /akehold]s id5tifi$ 
9 subsection 7e71 to maximize           
p>ticipation 9 ! ,firefight] ,regi/ry   
e/abli%$ "u ?is ,act4 ,at m9imum1 !     
/rategy %all include ! foll[+3 7,a7     
,id5tifi$ m9imum p>ticipation t>gets =  
volunte]1 paid-on-call1 & c>e]          
firefight]s4  7,b7 ,a /rategy = increas+

 aw>5ess ( ! ,firefight] ,regi/ry &     
maximiz+ p>ticipation among volunte]1   
paid-on-call1 & c>e] firefight]s to meet
 m9imum p>ticipation t>gets4  7,c7      
,additional /eps t may be requir$ to    
ensure ! equitable repres5tation ( gr\ps
 id5tifi$ 9 p>agraph 7#e74  7,d7        
,in=mation on h[ ! ,secret>y w /ore data
 describ$ 9 subsection 7c77#a7 & provide
 l9ks to relevant heal? in=mation       
describ$ 9 subsection 7c77#b74  7,e7    
,work+ 9 consultation ) ! exp]ts        
describ$ 9 subsection 7e71 a reliable & 
/&>diz$ me?od = e/imat+ ! numb] ( fire  
incid5ts att5d$ by a firefight] z well z
 ! type ( fire incid5t s att5d$ 9 ! case
 su* firefight] is unable to provide su*
 in=mation4  7#c7 ,report to ,congress  
,! ,secret>y %all submit ! /rategy      
describ$ 9 p>agraph 7#b7 to ! ,committee
 on ,en]gy & ,comm]ce ( ! ,h\se (       
,repres5tatives & ! ,committee on       
,heal?1 ,education1 ,labor1 & ,p5sions (
 ! ,s5ate n lat] ?an #cj days aft] !    
date ( ! completion ( ! /rategy4  7#d7  

,guidance = inclusion & ma9t5ance ( data
 on firefight]s ,! ,secret>y %all       
develop1 9 consultation ) ! /akehold]s  
id5tifi$ 9 subsection 7e71 ,/ate heal?  
ag5cies1 ,/ate dep>tm5ts ( homel&       
security1 & volunte]1 paid-on-call1     
comb9ation1 & c>e] firefight+ ag5cies1 a
 /rategy = inclusion ( firefight]s 9 !  
regi/ry t are repres5tative ( ! g5]al   
population ( firefight]s1 t outl9es !   
foll[+3  7,a7 ,h[ new in=mation ab\t    
firefight]s w be submitt$ to !          
,firefight] ,regi/ry = inclusion4  7,b7 
,h[ in=mation ab\t firefight]s w be     
ma9ta9$ & updat$ 9 ! ,firefight]        
,regi/ry ov] "t4  7,c7 ,a me?od =       
e/imat+ ! numb] ( fire incid5ts att5d$  
by a firefight] z well z ! type ( fire  
incid5t s att5d$ 9 ! case su* firefight]
 is unable to provide su* in=mation4    
7,d7 ,fur!r in=mation1 z deem$ necess>y 
by ! ,secret>y4  7#e7 ,ensur+           
repres5tation ( und]repres5t$ gr\ps 9   
regi/ry ,9 c>ry+ out ?is section1 !     
,secret>y %all take su* measures z !    

,secret>y deems appropriate to enc\rage 
! inclusion ( data on m9ority1 female1 &
 volunte] firefight]s 9 ! ,firefight]   
,regi/ry e/abli%$ "u ?is section4  7e7  
,consultation ,! ,secret>y %all1 on a   
regul> basis1 seek fe$back reg>d+ !     
utility ( ! ,firefight] ,regi/ry        
e/abli%$ "u ?is section & ways !        
,firefight] ,regi/ry c be improv$ f     
non-,f$]al exp]ts 9 ! foll[+ areas3     
7#a7 ,public heal? exp]ts ) exp]i5ce 9  
develop+ & ma9ta9+ canc] regi/ries4     
7#b7 ,epidemiologi/s ) exp]i5ce 9 /udy+ 
canc] incid5ce4  7#c7 ,cl9icians )      
exp]i5ce 9 diagnos+ & treat+ canc]      
incid5ce4  7#d7 ,active & retir$        
volunte]1 paid-on-call1 & c>e]          
firefight]s z well z relevant national  
fire & em]g5cy response organizations4  
7f7 ,rese>* availability ,! ,secret>y   
%all develop & make public a process =  
de-id5tify+ data f ! ,firefight]        
,regi/ry & mak+ su* data available )\t a
 fee = rese>* or o!r purposes4 ,su*     
process %all provide t su* data %all be 

made available = su* rese>* purposes    
only if !re is an agreem5t to make      
f9d+s1 j\rnal articles1 or o!r pr9t or  
web-bas$ publications d]iv$ f su* rese>*
 public or available to ! relevant      
/akehold]s id5tifi$ 9 subsection 7e74   
7g7 ,privacy ,9 c>ry+ out ?is ,act1 !   
,secret>y %all apply to ! ,firefight]   
,regi/ry develop$ "u subsection 7a7 data
 security provisions & privacy /&>ds t  
comply ) ! be/ practices ( ! ,c5t]s =   
,disease ,control & ,prev5tion & provide
 = data privacy & security /&>ds simil> 
to ^? 9 ! ,,hipaa privacy regulation1 z 
def9$ 9 section #aahj7;b77#c7 ( !       
,social ,security ,act 7#db ,u4,s4,c4   
#acbj;d-#i7;b77#c774  7h7 ,au?orization 
( funds ,to c>ry out ?is section1 !re   
are au?oriz$ to be appropriat$          
#b1jjj1jjj = ea* ( ! fiscal ye>s #bjah  
?r\gh #bjbb4  #c4 ,cut-,g ,compliance   
,subsection 7f7 ( section #cai;,d ( !   
,public ,heal? ,s]vice ,act 7#db        
,u4,s4,c4 #bdg;d-#d7 is am5d$ by /rik+  
?r\gh #bjah & ins]t+ ?r\gh #bjag1 &     

#abh1cjj1jjj = fiscal ye> #bjah4  ,pass$
 ! ,h\se ( ,repres5tatives ,septemb]    
#ab1 #bjag4;,cl]k4