,9 ! ,s5ate ( ! ,unit$ ,/ates1 ,may #aj1 #bjah4 ,am5dm5t3 ,t ! bill f ! ,h\se ( ,repres5tatives 7,h4,r4 #ica7 entitl$ ,an ,act to require ! ,secret>y ( ,heal? & ,human ,s]vices to develop a volunt>y regi/ry to collect data on canc] incid5ce among firefight]s41 d pass ) ! foll[+ ,/rike all aft] ! enact+ clause & ins]t ! foll[+3 #a4 ,%ort title ,?is ,act may be cit$ z ! ,firefight] ,canc] ,regi/ry ,act ( #bjah4 #b4 ,volunt>y regi/ry = firefight] canc] incid5ce 7a7 ,9 g5]al ,! ,secret>y ( ,heal? & ,human ,s]vices 7ref]r$ to 9 ?is section z ! ,secret>y71 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion & 9 coord9ation ) o!r ag5cies z ! ,secret>y det]m9es appropriate1 %all develop & ma9ta91 directly or ?r\gh a grant or coop]ative agreem5t1 a volunt>y regi/ry ( firefight]s 7ref]r$ to 9 ?is section z ! ,firefight] ,regi/ry7 to collect relevant heal? & occupational in=mation ( su* firefight]s = purposes ( det]m9+ canc] incid5ce4 7b7 ,use ( ,firefight] ,regi/ry ,! ,firefight] ,regi/ry may be us$ = ! foll[+ purposes3 7#a7 ,to improve data collection & data coord9ation activities relat$ to ! nationwide monitor+ ( ! incid5ce ( canc] among firefight]s4 7#b7 ,to collect1 consolidate1 & ma9ta91 consi/5t ) subsection 7g71 epidemiological in=mation & analyses relat$ to canc] incid5ce & tr5ds among firefight]s 7c7 ,relevant data 7#a7 ,data collection ,9 c>ry+ out ! volunt>y data collection = purposes ( inclusion "u ! ,firefight] ,regi/ry1 ! ,secret>y may collect ! foll[+3 7,a7 ,in=mation1 z det]m9$ by ! ,secret>y "u subsection 7d77#a71 ( volunte]1 paid-on-call1 & c>e] firefight]s1 indep5d5t ( canc] /atus or diagnosis4 7,b7 ,individual risk factors & occupational hi/ory ( firefight]s4 7,c7 ,in=mation1 if available1 relat$ to-- 7i7 basic demographic in=mation1 includ+-- 7,i7 ! age ( ! firefight] involv$ dur+ ! relevant dates ( occupation z a firefight]2 & 7,,ii7 ! age ( canc] diagnosis2 7ii7 ! /atus ( ! firefight] z ei!r volunte]1 paid-on-call1 or c>e] firefight]2 7iii7 ! total numb] ( ye>s ( occupation z a firefight] & a detail+ ( additional employm5t exp]i5ce1 :e!r concurr5t1 be=e1 or anytime !reaft]2 7iv7 7,i7 ! approximate numb] ( fire incid5ts att5d$1 includ+ in=mation relat$ to ! type ( fire incid5ts & ! role ( ! firefight] 9 respond+ to ! incid5t2 or 7,,ii7 9 ! case ( a firefight] = :om in=mation on su* numb] & type is unavailable1 an e/imate ( su* numb] & type bas$ on ! me?od develop$ "u subsection 7d77#a77;,d72 & 7v7 o!r m$ical in=mation & heal? hi/ory1 includ+ additional risk factors1 z appropriate1 & o!r in=mation relevant to a canc] incid5ce /udy ( firefight]s4 7#b7 ,in=mation on diagnoses & treatm5t ,9 c>ry+ out p>agraph 7#a71 ) respect to diagnoses & treatm5t ( firefight]s ) canc]1 ! ,secret>y %all1 z appropriate1 enable ! ,firefight] ,regi/ry to electronically connect to ,/ate-bas$ canc] regi/ries1 = a purpose describ$ by clause 7vi7 or 7vii7 ( section #cii;,b7c77#b77;,d7 ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhj;e7c77#b77;,d771 to obta9-- 7,a7 date ( diagnoses & s\rce ( in=mation2 & 7,b7 pa?ological data *>act]iz+ ! canc]1 includ+ canc] site1 /ate ( disease 7pursuant to ,/ag+ ,guide71 incid5ce1 & type ( treatm5t4 7d7 ,firefight] regi/ry coord9ation /rategy 7#a7 ,requir$ /rategy ,! ,secret>y %all1 9 consultation ) ! relevant /akehold]s id5tifi$ 9 subsection 7e71 includ+ epidemiologi/s & pa?ologi/s1 develop a /rategy to coord9ate data collection activities1 includ+ )9 exi/+ ,/ate regi/ries1 = inclusion 9 ! ,firefight] ,regi/ry e/abli%$ "u ?is ,act4 ,! /rategy may include ! foll[+3 7,a7 ,increas+ aw>5ess ( ! ,firefight] ,regi/ry & enc\rag+ p>ticipation among volunte]1 paid-on-call1 & c>e] firefight]s4 7,b7 ,consid]ation ( unique data collection ne$s t may arise to g5]ate a /ati/ically reliable repres5tation ( m9ority1 female1 & volunte] firefight]s1 includ+ me?ods1 z ne$$1 to enc\rage p>ticipation f su* populations4 7,c7 ,in=mation on h[ ! ,secret>y w /ore data describ$ 9 subsection 7c77#a7 & provide electronic access to relevant heal? in=mation describ$ 9 subsection 7c77#b74 7,d7 ,work+ 9 consultation ) ! exp]ts describ$ 9 subsection 7e71 a reliable & /&>diz$ me?od = e/imat+ ! numb] ( fire incid5ts att5d$ by a firefight] z well z ! type ( fire incid5t s att5d$ 9 ! case su* firefight] is unable to provide su* in=mation4 7#b7 ,report to ,congress ,! ,secret>y %all submit ! /rategy describ$ 9 p>agraph 7#a7 to ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives & ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate n lat] ?an #cj days aft] ! date ( ! completion ( ! /rategy4 7#c7 ,guidance = inclusion & ma9t5ance ( data on firefight]s ,! ,secret>y %all develop1 9 consultation ) ! /akehold]s id5tifi$ 9 subsection 7e71 ,/ate heal? ag5cies1 ,/ate dep>tm5ts ( homel& security1 & volunte]1 paid-on-call1 comb9ation1 & c>e] firefight+ ag5cies1 a /rategy = inclusion ( firefight]s 9 ! regi/ry t are repres5tative ( ! g5]al population ( firefight]s1 t outl9es ! foll[+3 7,a7 ,h[ new in=mation ab\t firefight]s w be submitt$ to ! ,firefight] ,regi/ry = inclusion4 7,b7 ,h[ in=mation ab\t firefight]s w be ma9ta9$ & updat$ 9 ! ,firefight] ,regi/ry ov] "t4 7,c7 ,a me?od = e/imat+ ! numb] ( fire incid5ts att5d$ by a firefight] z well z ! type ( fire incid5t s att5d$ 9 ! case su* firefight] is unable to provide su* in=mation4 7,d7 ,fur!r in=mation1 z deem$ necess>y by ! ,secret>y4 7e7 ,consultation & report ,! ,secret>y %all consult ) non-,f$]al exp]ts on ! ,firefight] ,regi/ry e/abli%$ "u ?is section1 & %all submit to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate & ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives a report t includes1 z appropriate1 in=mation on goals a*iev$ & improvem5ts ne$$ to /r5g!n ! ,firefight] ,regi/ry4 ,su* non-,f$]al exp]ts %all include ! foll[+3 7#a7 ,public heal? exp]ts ) exp]i5ce 9 develop+ & ma9ta9+ canc] regi/ries4 7#b7 ,epidemiologi/s ) exp]i5ce 9 /udy+ canc] incid5ce4 7#c7 ,cl9icians ) exp]i5ce 9 diagnos+ & treat+ canc] incid5ce4 7#d7 ,active & retir$ volunte]1 paid-on-call1 & c>e] firefight]s z well z relevant national fire & em]g5cy response organizations4 7f7 ,rese>* availability ,subject to subsection 7g71 ! ,secret>y %all ensure t in=mation & analysis 9 ! ,firefight] ,regi/ry are available1 z appropriate1 to ! public1 includ+ rese>*]s1 firefight]s1 & national fire s]vice organizations4 7g7 ,privacy ,9 c>ry+ out ?is ,act1 ! ,secret>y %all ensure t in=mation 9 & analysis ( ! ,firefight] ,regi/ry are made available 9 a mann] t1 at a m9imum1 protects p]sonal privacy to ! ext5t requir$ by applicable ,f$]al & ,/ate privacy law4 7h7 ,au?orization ( funds ,to c>ry out ?is section1 !re are au?oriz$ to be appropriat$ #b1ejj1jjj = ea* ( ! fiscal ye>s #bjah ?r\gh #bjbb4 ,secret>y