,in the ,senate of the ,united ,states1 
,may #aj1 #bjah4  ,amendment3  ,that the
 bill from the ,house of                
,representatives 7,h4,r4 #ica7 entitled 
,an ,act to require the ,secretary of   
,health and ,human ,services to develop 
a voluntary registry to collect data on 
cancer incidence among firefighters41 do
 pass with the following ,strike all    
after the enacting clause and insert the
 following3 #a4 ,short title ,this ,act 
may be cited as the ,firefighter ,cancer
 ,registry ,act of #bjah4  #b4          
,voluntary registry for firefighter     
cancer incidence  7a7 ,in general ,the  
,secretary of ,health and ,human        
,services 7referred to in this section  
as the ,secretary71 acting through the  
,director of the ,centers for ,disease  
,control and ,prevention and in         
coordination with other agencies as the 
,secretary determines appropriate1 shall
 develop and maintain1 directly or      
through a grant or cooperative          
agreement1 a voluntary registry of      

firefighters 7referred to in this       
section as the ,firefighter ,registry7  
to collect relevant health and          
occupational information of such        
firefighters for purposes of determining
 cancer incidence4  7b7 ,use of         
,firefighter ,registry ,the ,firefighter
 ,registry may be used for the following
 purposes3 7#a7 ,to improve data        
collection and data coordination        
activities related to the nationwide    
monitoring of the incidence of cancer   
among firefighters4  7#b7 ,to collect1  
consolidate1 and maintain1 consistent   
with subsection 7g71 epidemiological    
information and analyses related to     
cancer incidence and trends among       
firefighters  7c7 ,relevant data  7#a7  
,data collection ,in carrying out the   
voluntary data collection for purposes  
of inclusion under the ,firefighter     
,registry1 the ,secretary may collect   
the following3 7,a7 ,information1 as    
determined by the ,secretary under      
subsection 7d77#a71 of volunteer1       

paid-on-call1 and career firefighters1  
independent of cancer status or         
diagnosis4  7,b7 ,individual risk       
factors and occupational history of     
firefighters4  7,c7 ,information1 if    
available1 related to-- 7i7 basic       
demographic information1 including--    
7,i7 the age of the firefighter involved
 during the relevant dates of occupation
 as a firefighter2 and  7,,ii7 the age  
of cancer diagnosis2  7ii7 the status of
 the firefighter as either volunteer1   
paid-on-call1 or career firefighter2    
7iii7 the total number of years of      
occupation as a firefighter and a       
detailing of additional employment      
experience1 whether concurrent1 before1 
or anytime thereafter2  7iv7 7,i7 the   
approximate number of fire incidents    
attended1 including information related 
to the type of fire incidents and the   
role of the firefighter in responding to
 the incident2 or  7,,ii7 in the case of
 a firefighter for whom information on  
such number and type is unavailable1 an 

estimate of such number and type based  
on the method developed under subsection
 7d77#a77;,d72 and  7v7 other medical   
information and health history1         
including additional risk factors1 as   
appropriate1 and other information      
relevant to a cancer incidence study of 
firefighters4  7#b7 ,information on     
diagnoses and treatment ,in carrying out
 paragraph 7#a71 with respect to        
diagnoses and treatment of firefighters 
with cancer1 the ,secretary shall1 as   
appropriate1 enable the ,firefighter    
,registry to electronically connect to  
,state-based cancer registries1 for a   
purpose described by clause 7vi7 or     
7vii7 of section #cii;,b7c77#b77;,d7 of 
the ,public ,health ,service ,act 7#db  
,u4,s4,c4 #bhj;e7c77#b77;,d771 to       
obtain-- 7,a7 date of diagnoses and     
source of information2 and  7,b7        
pathological data characterizing the    
cancer1 including cancer site1 state of 
disease 7pursuant to ,staging ,guide71  
incidence1 and type of treatment4  7d7  

,firefighter registry coordination      
strategy  7#a7 ,required strategy ,the  
,secretary shall1 in consultation with  
the relevant stakeholders identified in 
subsection 7e71 including               
epidemiologists and pathologists1       
develop a strategy to coordinate data   
collection activities1 including within 
existing ,state registries1 for         
inclusion in the ,firefighter ,registry 
established under this ,act4 ,the       
strategy may include the following3 7,a7
 ,increasing awareness of the           
,firefighter ,registry and encouraging  
participation among volunteer1          
paid-on-call1 and career firefighters4  
7,b7 ,consideration of unique data      
collection needs that may arise to      
generate a statistically reliable       
representation of minority1 female1 and 
volunteer firefighters1 including       
methods1 as needed1 to encourage        
participation from such populations4    
7,c7 ,information on how the ,secretary 
will store data described in subsection 

7c77#a7 and provide electronic access to
 relevant health information described  
in subsection 7c77#b74  7,d7 ,working in
 consultation with the experts described
 in subsection 7e71 a reliable and      
standardized method for estimating the  
number of fire incidents attended by a  
firefighter as well as the type of fire 
incident so attended in the case such   
firefighter is unable to provide such   
information4  7#b7 ,report to ,congress 
,the ,secretary shall submit the        
strategy described in paragraph 7#a7 to 
the ,committee on ,energy and ,commerce 
of the ,house of ,representatives and   
the ,committee on ,health1 ,education1  
,labor1 and ,pensions of the ,senate not
 later than #cj days after the date of  
the completion of the strategy4  7#c7   
,guidance for inclusion and maintenance 
of data on firefighters ,the ,secretary 
shall develop1 in consultation with the 
stakeholders identified in subsection   
7e71 ,state health agencies1 ,state     
departments of homeland security1 and   

volunteer1 paid-on-call1 combination1   
and career firefighting agencies1 a     
strategy for inclusion of firefighters  
in the registry that are representative 
of the general population of            
firefighters1 that outlines the         
following3 7,a7 ,how new information    
about firefighters will be submitted to 
the ,firefighter ,registry for          
inclusion4  7,b7 ,how information about 
firefighters will be maintained and     
updated in the ,firefighter ,registry   
over time4  7,c7 ,a method for          
estimating the number of fire incidents 
attended by a firefighter as well as the
 type of fire incident so attended in   
the case such firefighter is unable to  
provide such information4  7,d7 ,further
 information1 as deemed necessary by the
 ,secretary4  7e7 ,consultation and     
report ,the ,secretary shall consult    
with non-,federal experts on the        
,firefighter ,registry established under
 this section1 and shall submit to the  
,committee on ,health1 ,education1      

,labor1 and ,pensions of the ,senate and
 the ,committee on ,energy and ,commerce
 of the ,house of ,representatives a    
report that includes1 as appropriate1   
information on goals achieved and       
improvements needed to strengthen the   
,firefighter ,registry4 ,such           
non-,federal experts shall include the  
following3 7#a7 ,public health experts  
with experience in developing and       
maintaining cancer registries4  7#b7    
,epidemiologists with experience in     
studying cancer incidence4  7#c7        
,clinicians with experience in          
diagnosing and treating cancer          
incidence4  7#d7 ,active and retired    
volunteer1 paid-on-call1 and career     
firefighters as well as relevant        
national fire and emergency response    
organizations4  7f7 ,research           
availability ,subject to subsection 7g71
 the ,secretary shall ensure that       
information and analysis in the         
,firefighter ,registry are available1 as
 appropriate1 to the public1 including  

researchers1 firefighters1 and national 
fire service organizations4  7g7        
,privacy ,in carrying out this ,act1 the
 ,secretary shall ensure that           
information in and analysis of the      
,firefighter ,registry are made         
available in a manner that1 at a        
minimum1 protects personal privacy to   
the extent required by applicable       
,federal and ,state privacy law4  7h7   
,authorization of funds ,to carry out   
this section1 there are authorized to be
 appropriated #b1ejj1jjj for each of the
 fiscal years #bjah through #bjbb4      
,secretary