,i  #aaeth ,,congress  #b;d ,session    
,h4 ,r4 #ffdf  ,,in ,,the ,,house ,,of  
,,representatives  ,july #ca1 #bjah,miss
 ,rice of ,new ,york introduced the     
following bill2 which was referred to   
the ,committee on ,education and the    
,workforce  ,a ,,bill  ,to amend the    
,older ,americans ,act of #aife to      
authorize services to be provided to    
individuals with ,alzheimer's disease or
 a related disorder with neurological   
and organic brain dysfunction who have  
not attained #fj years of age4  #a4     
,short title ,this ,act may be cited as 
the ,younger-,onset ,alzheimer's        
,disease ,parity ,act4  #b4 ,findings   
,congress finds the following3  7#a7    
,when ,alzheimer's disease occurs in    
someone under the age of #fe1 it is     
known as younger-onset 7or early-onset7 
,alzheimer's disease4  7#b7 ,about #e   
percent of ,americans with ,alzheimer's 
disease1 or approximately #bej1jjj      
people1 are living with younger-onset   
,alzheimer's disease4  7#c7 ,individuals

 with younger-onset ,alzheimer's disease
 primarily show symptoms of the disease 
beginning in their #ejs1 but some show  
signs of the disease as early as their  
#cjs or #djs4  7#d7 ,for most           
individuals with younger-onset          
,alzheimer's disease1 the symptoms will 
closely mirror those of other forms of  
,alzheimer's disease4  7#e7 ,those with 
younger-onset ,alzheimer's disease may  
have difficulty obtaining an accurate   
diagnosis because health care providers 
don't generally look for ,alzheimer's   
disease in younger people4 ,symptoms are
 often incorrectly attributed to stress1
 or there may be conflicting diagnoses  
from different health care              
professionals4  7#f7 ,those with        
younger-onset ,alzheimer's disease may  
worry about work1 retirement1 and       
financial issues4 ,their condition may  
lead them to voluntarily quit their job1
 or their employers may fire them before
 a diagnosis4 ,this premature loss of   
work does not trigger the employment    

disability accommodations that a        
diagnosed individual would receive4     
7#g7 ,those with younger-onset          
,alzheimer's disease will suffer from   
higher levels of stigma because         
,alzheimer's disease is more often      
associated with older adults4 ,this     
often adversely impacts family1         
personal1 and professional              
relationships4  7#h7 ,those with        
younger-onset ,alzheimer's disease are  
often supporting young children who are 
living in the home4 ,many times these   
children also serve as caregivers4  7#i7
 ,those with younger-onset ,alzheimer's 
disease may have a working spouse who   
has to decide between continuing to work
 to support the household or leaving the
 working world to be the primary        
caregiver of their loved one living with
 ,alzheimer's disease4  7#aj7 ,the      
,older ,americans ,act of #aife1 enacted
 in #aife1 authorizes the provision of  
essential services to ,americans age #fj
 or over1 with particular attention     

given to those individuals with low     
incomes or disabilities4  7#aa7         
,services provided under the ,act       
include ,alzheimer's disease education1 
meal delivery1 family caregiver support1
 and supportive services such as home   
care1 adult day care1 and               
transportation4  7#ab7 ,these services  
are particularly helpful for those with 
a degenerative disease such as          
,alzheimer's disease in which sufferers 
ultimately require assistance with basic
 daily tasks4  7#ac7 ,these services    
also provide vital assistance1 support1 
and respite to family caregivers and    
help to maintain the independence of the
 individual living with younger-onset   
,alzheimer's disease4  7#ad7 ,the ,older
 ,americans ,act #aife uniquely         
authorizes services that can assist     
individuals with younger-onset          
,alzheimer's disease and their families4
  #c4 ,parity for individuals with      
younger-onset ,alzheimer's disease      
,section #ajb7dj7 of the ,older         

,americans ,act of #aife 7#db ,u4,s4,c4 
#cjjb7dj77 is amended by inserting      
before the period at the end the        
following3  and includes an individual  
with ,alzheimer's disease or a related  
disorder with neurological and organic  
brain dysfunction who has not attained  
#fj years of age 4