,i #aae? ,,congress #a/ ,session ,h4 ,r4 #behi ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,may #bb1 #bjag,mr4 ,k9z+] 7= himself1 ,mr4 ,pascrell1 ,mr4 ,f>5?old1 ,mr4 ,tipton1 ,ms4 ,p+ree1 ,mr4 ,clay1 ,ms4 ,bonamici1 ,ms4 ,del,bene1 ,ms4 ,roybal-,all>d1 ,mrs4 ,napolitano1 ,mr4 ,cony]s1 ,mr4 ,mc,govern1 ,mr4 ,lip9ski1 ,ms4 ,cl>ke ( ,new ,york1 ,mr4 ,sessions1 ,mr4 ,h>p]1 ,mr4 ,k9d1 ,mr4 ,mc,kinley1 ,mr4 ,heck1 ,mr4 ,/ew>t1 ,mr4 ,y>mu?1 ,mr4 ,s*iff1 ,mr4 ,turn]1 ,mr4 ,k+ ( ,i[a1 ,mr4 ,ryan ( ,ohio1 ,mr4 ,rog]s ( ,k5tucky1 ,ms4 ,%ea-,port]1 ,mr4 ,takano1 ,mr4 ,g>am5di1 ,mr4 ,deut*1 ,mr4 ,?ompson ( ,mississippi1 ,mr4 ,rodney ,davis ( ,ill9ois1 ,mr4 ,lewis ( ,georgia1 ,ms4 ,de,lauro1 ,mr4 ,fo/]1 ,mr4 ,m\lton1 ,mr4 ,yod]1 ,mr4 ,delaney1 ,mr4 ,hill1 ,mr4 ,langev91 ,ms4 ,moore1 ,mr4 ,?omas ,j4 ,rooney ( ,florida1 ,mr4 ,david ,scott ( ,georgia1 ,mr4 ,flores1 ,mr4 ,"y ( ,alaska1 ,ms4 ,mc,collum1 ,mrs4 ,blackburn1 ,ms4 ,ros-,leht951 ,mr4 ,johnson ( ,georgia1 & ,ms4 ,slaught]7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,ways & ,means ,a ,,bill ,to waive ! #bd-mon? wait+ p]iod = ,m$ic>e eligibility = individuals disabl$ by ,hunt+ton's disease4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,hunt+ton's ,disease ,p>ity ,act ( #bjag4 #b4 ,f9d+s ,congress makes ! foll[+ f9d+s3 7#a7 ,hunt+ton's disease is a progressive deg5]ative neurological disease t causes total physical & m5tal det]ioration4 ,9 ! ,unit$ ,/ates1 approximately #cj1jjj individuals are affect$ by ,hunt+ton's disease1 along ) ano!r #bjj1jjj individuals :o are g5etically at risk4 ,!re is no effective treatm5t 9 t]ms ( halt+ or sl[+ ! progression ( ! disease4 7#b7 ,cl9ical indicators ( ,hunt+ton's disease include-- 7,a7 loss ( ability to control bodily movem5ts2 7,b7 loss ( ability to ?9k or act quickly1 inability to le>n new mat]ial1 & loss ( memory2 & 7,c7 behavioral or psy*ological problems1 includ+ p]sonality *anges1 irritability1 mood sw+s1 anxiety1 obsessive-compulsive behavior1 inability to conc5trate1 decreas$ motivation1 & sev]e depression4 7#c7 ,adult-onset ,hunt+ton's disease typically results 9 ! developm5t ( symptoms 9 individuals betwe5 #cj & #ej ye>s ( age4 ,late-onset ,hunt+ton's disease is *>act]iz$ by developm5t ( symptoms aft] #ej ye>s ( age & is usually associat$ ) a mild] c\rse ( ! disease4 ,juv5ile ,hunt+ton's disease affects individuals :o h yet to atta9 #ai ye>s ( age & progresses at a m rapid rate4 7#d7 ,because ( ! incapacitat+ nature ( ,hunt+ton's disease1 individuals liv+ ) ?is illness1 includ+ ^? 9 ! e>ly /ages ( ! disease1 are unable to reta9 employm5t4 ,z a result1 _m su* individuals rely solely on ,social ,security ,disability ,insurance4 7#e7 ,aft] qualify+ = ,social ,security ,disability ,insurance1 individuals ) ,hunt+ton's disease mu/ wait ano!r #bd mon?s be=e receiv+ b5efits "u ! ,m$ic>e program1 despite ! fact t su* individuals (t5 become incapacitat$ be=e rea*+ ! age-eligibility requirem5t "u ! ,m$ic>e program ( #fe ye>s ( age4 7#f7 ,9 #bjjj1 ! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices waiv$ ! #bd-mon? wait+ p]iod requirem5t = p disabl$ by amyotrophic lat]al scl]osis 7,,als71 a deg5]ative neurological condition t is simil> to ,hunt+ton's disease4 7#g7 ,9 light ( ! significant cognitive1 behavioral1 & physical incapacitation fac$ by individuals ) ?is disease1 !re is an urg5t ne$ = ! removal ( ! #bd-mon? wait+ p]iod = cov]age "u ! ,m$ic>e program = su* individuals1 simil> to ! exi/+ exemption = individuals :o h be5 diagnos$ ) ,,als4 #c4 ,waiv] ( #bd-mon? wait+ p]iod = cov]age "u m$ic>e program = individuals diagnos$ ) ,hunt+ton's disease 7a7 ,9 g5]al ,section #bbf7;h7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #dbf7;h77 is am5d$1 9 ! matt] prec$+ p>agraph 7#a71 by ins]t+ or ,hunt+ton's disease 7,,hd7 aft] amyotrophic lat]al scl]osis 7,,als74 7b7 ,effective date ,! am5dm5t made by subsection 7a7 %all apply to b5efits "u title ,,xviii ( ! ,social ,security ,act ) respect to items & s]vices furni%$ 9 mon?s beg9n+ aft] ! date ( ! enactm5t ( ?is ,act4