,,iv  #aae? ,,congress  #a/ ,session    
,h4 ,,con4 ,,res4 #eh  ,,9 ,,! ,,h\se   
,,( ,,repres5tatives  ,may #ai1         
#bjag,mr4 ,m>9o 7= himself & ,mr4       
,mc,govern7 submitt$ ! foll[+ concurr5t 
resolution2 :i* 0 ref]r$ to ! ,committee
 on ,en]gy & ,comm]ce  ,,concurr5t      
,,resolution  ,express+ support = a mon?
 to be kn[n z ,cy/ic ,fibrosis ,aw>5ess 
,mon?1 & = o!r purposes4  ,:]eas cy/ic  
fibrosis1 commonly ref]r$ to z ,,cf1 is 
a g5etic disease affect+ m ?an #cj1jjj  
*ildr5 & adults 9 ! ,unit$ ,/ates &     
ne>ly #ge1jjj *ildr5 & adults worldwide2
 ,:]eas a defective g5e causes ! body to
 produce an abnormally ?ick1 /icky mucus
 t clogs ! lungs1 & ^! secretions       
produce life-?reat5+ lung infections &  
ob/ruct ! pancreas1 prev5t+ dige/ive    
enzymes f rea*+ ! inte/9es to help break
 d[n & absorb food2 ,:]eas !re are      
approximately #ijj new cases ( ,,cf ea* 
ye> 9 ! ,unit$ ,/ates2 ,:]eas infant    
blood scre5+ to detect g5etic defects is
 ! mo/ reliable & lea/ co/ly me?od to   

id5tify individuals likely to h "o (    
#a1hjj diff]5t ,,cf mutations2 ,:]eas   
e>ly diagnosis ( ,,cf p]mits e>ly       
treatm5t & enhances quality ( life1     
longevity1 & treatm5t2 ,:]eas ,,cf      
impacts families z well z pati5ts       
because ( ! int5se daily disease        
managem5t protocols pati5ts mu/ endure2 
,:]eas !re are m ?an #abj _w-class      
treatm5t c5t]s ) highly tra9$ & d$icat$ 
provid]s 9 ! ,unit$ ,/ates t specialize 
9 deliv]+ high-quality1 coord9at$ c>e = 
,,cf pati5ts & _! families2 ,:]eas !    
numb] ( adults ) ,,cf has /eadily gr[n &
 ! m$ian age ( survival = a p]son ) ,,cf
 is n[ ne>ly #dj ye>s ( age 9 ! ,unit$  
,/ates2 ,:]eas innovative precision     
m$ic9es & treatm5ts h greatly improv$ & 
ext5d$ ! lives ( ,,cf pati5ts2 & ,:]eas 
,may w\ld be an appropriate mon? to     
e/abli% z ,cy/ic ,fibrosis ,aw>5ess     
,mon?3 ,n[1 !re=e1 be x ,t ! ,h\se (    
,repres5tatives--  7#a7 supports !      
designation ( ,cy/ic ,fibrosis ,aw>5ess 
,mon?2  7#b7 congratulates ! ,,cf       

community = _! unrel5t+ d$ication to    
pati5ts2  7#c7 recognizes t ! ,,cf c>e  
deliv]y sy/em c be a model = build+     
bett] c>e coord9ation 9 ! l>g] heal? c>e
 sy/em2  7#d7 ackn[l$ges ! trem5d\s     
inve/m5t & sci5tific a*ievem5ts t h     
significantly improv$ ,,cf pati5ts'     
lives2  7#e7 urges rese>*]s1 develop]s1 
pati5ts & provid]s to d ev]y?+ possible 
to f9d a cure = ?is deadly disease2 &   
7#f7 enc\rages ! p ( ! ,unit$ ,/ates to 
obs]ve ,cy/ic ,fibrosis ,aw>5ess ,mon? )
 appropriate c]emonies & activities t   
promote aw>5ess ( ! disease4