,,ii  #aad? ,,congress  #a/ ,session    
,s4 #hdi  ,,9 ,,! ,,s5ate ,,( ,,!       
,,unit$ ,,/ates  ,m>* #bd1 #bjae,mr4    
,isakson 7= himself1 ,mr4 ,murphy1 ,mr4 
,vitt]1 ,mr4 ,casey1 & ,mr4 ,wick]7     
introduc$ ! foll[+ bill2 :i* 0 read     
twice & ref]r$ to ! ,committee on       
,heal?1 ,education1 ,labor1 & ,p5sions  
,a ,,bill  ,to am5d ! ,public ,heal?    
,s]vice ,act to provide = sy/ematic data
 collection & analysis & epidemiological
 rese>* reg>d+ ,multiple ,scl]osis      
7,,ms71 ,p>k9son's disease1 & o!r       
neurological diseases4  #a4 ,%ort title 
,?is ,act may be cit$ z ! ,advanc+      
,rese>* = ,neurological ,diseases ,act (
 #bjae4  #b4 ,national neurological     
diseases surveillance sy/em ,"p ,p (    
title ,,iii ( ! ,public ,heal? ,s]vice  
,act 7#db ,u4,s4,c4 #bhj;g et seq47 is  
am5d$ by add+ at ! end ! foll[+3        
#cii,v-#f ,surveillance ( neurological  
diseases  7a7 ,9 g5]al ,! ,secret>y1    
act+ ?r\gh ! ,director ( ! ,c5t]s =     
,disease ,control & ,prev5tion1 %all--  

7#a7 enhance & exp& infra/ructure &     
activities to track ! epidemiology (    
neurological diseases1 includ+ multiple 
scl]osis & ,p>k9son's disease2 &  7#b7  
incorporate in=mation obta9$ ?r\gh su*  
activities into a /ati/ically s\nd1     
sci5tifically cr$ible1 integrat$        
surveillance sy/em1 to be kn[n z !      
,national ,neurological ,diseases       
,surveillance ,sy/em4  7b7 ,rese>* ,!   
,secret>y %all ensure t ! ,national     
,neurological ,diseases ,surveillance   
,sy/em is design$ 9 a mann] t           
facilitates fur!r rese>* on neurological
 diseases4  7c7 ,cont5t ,9 c>ry+ out    
subsection 7a71 ! ,secret>y-- 7#a7 %all 
provide = ! collection & /orage (       
in=mation on ! incid5ce & preval5ce (   
neurological diseases 9 ! ,unit$ ,/ates2
  7#b7 to ! ext5t practicable1 %all     
provide = ! collection & /orage ( o!r   
available in=mation on neurological     
diseases1 su* z in=mation conc]n+--     
7,a7 demographics & o!r in=mation       
associat$ or possibly associat$ )       

neurological diseases1 su* z age1 race1 
e?nicity1 sex1 geographic location1 &   
family hi/ory2  7,b7 risk factors       
associat$ or possibly associat$ )       
neurological diseases1 includ+ g5etic & 
environm5tal risk factors2 &  7,c7      
diagnosis & progression m>k]s2  7#c7 may
 provide = ! collection & /orage (      
in=mation relevant to analysis on       
neurological diseases1 su* z in=mation  
conc]n+--  7,a7 ! epidemiology ( !      
diseases2  7,b7 ! natural hi/ory ( !    
diseases2  7,c7 ! prev5tion ( !         
diseases2  7,d7 ! detection1 managem5t1 
& treatm5t approa*es = ! diseases2 &    
7,e7 ! developm5t ( outcomes measures2 &
  7#d7 may address issues id5tifi$ dur+ 
! consultation process "u subsection    
7d74  7d7 ,consultation ,9 c>ry+ out ?is
 section1 ! ,secret>y %all consult )    
individuals ) appropriate exp]tise1     
includ+--  7#a7 epidemiologi/s )        
exp]i5ce 9 disease surveillance or      
regi/ries2  7#b7 repres5tatives (       
national volunt>y heal? associations t--

  7,a7 focus on neurological diseases1  
includ+ multiple scl]osis & ,p>k9son's  
disease2 &  7,b7 h demon/rat$ exp]i5ce 9
 rese>*1 c>e1 or pati5t s]vices2  7#c7  
heal? in=mation te*nology exp]ts or o!r 
in=mation managem5t speciali/s2  7#d7   
cl9icians ) exp]tise 9 neurological     
diseases2 &  7#e7 rese>* sci5ti/s )     
exp]i5ce conduct+ translational rese>*  
or utiliz+ surveillance sy/ems =        
sci5tific rese>* purposes4  7e7 ,grants 
,! ,secret>y may aw>d grants to1 or ent]
 into contracts or coop]ative agreem5ts 
)1 public or private nonpr(it entities  
to c>ry out activities "u ?is section4  
7f7 ,coord9ation ) o!r ,f$]al ag5cies   
,subject to subsection 7h71 ! ,secret>y 
%all make in=mation & analysis 9 !      
,national ,neurological ,diseases       
,surveillance ,sy/em available1 z       
appropriate1 to ,f$]al dep>tm5ts &      
ag5cies1 su* z ! ,national ,in/itutes ( 
,heal?1 ! ,food & ,drug ,adm9i/ration1 !
 ,c5t]s = ,m$ic>e  ,m$icaid ,s]vices1 ! 
,ag5cy = ,heal?c>e ,rese>* & ,quality1 !

 ,dep>tm5t ( ,vet]ans ,affairs1 & !     
,dep>tm5t ( ,def5se4  7g7 ,public access
 ,subject to subsection 7h71 ! ,secret>y
 %all make in=mation & analysis 9 !     
,national ,neurological ,diseases       
,surveillance ,sy/em available1 z       
appropriate1 to ! public1 includ+       
rese>*]s4  7h7 ,privacy ,! ,secret>y    
%all ensure t privacy & security        
protections applicable to ! ,national   
,neurological ,diseases ,surveillance   
,sy/em are at lea/ z /r+5t z ! privacy &
 security protections "u ,,hipaa privacy
 & security law 7z def9$ 9 section      
#cjji7;a77#b774  7i7 ,report ,n lat] ?an
 #d ye>s aft] ! date ( ! enactm5t ( ?is 
section1 ! ,secret>y %all submit a      
report to ! ,congress conc]n+ !         
implem5tation ( ?is section4 ,su* report
 %all include in=mation on--  7#a7 !    
developm5t & ma9t5ance ( ! ,national    
,neurological ,diseases ,surveillance   
,sy/em2  7#b7 ! type ( in=mation        
collect$ & /or$ 9 ! ,sy/em2  7#c7 ! use 
& availability ( su* in=mation1 includ+ 

guidel9es = su* use2 &  7#d7 ! use &    
coord9ation ( databases t collect or    
ma9ta9 in=mation on neurological        
diseases4  7j7 ,def9ition ,9 ?is        
section1 ! t]m national volunt>y heal?  
association means a national nonpr(it   
organization ) *apt]s1 o!r affiliat$    
organizations1 or networks 9 ,/ates     
?r\gh\t ! ,unit$ ,/ates4  7k7           
,au?orization ( appropriations ,to c>ry 
out ?is section1 !re is au?oriz$ to be  
appropriat$ #e1jjj1jjj = ea* ( fiscal   
ye>s #bjae ?r\gh #bjai4  4