,,ii #aad? ,,congress #b;d ,session ,s4 #ccfa ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,septemb] #bj1 #bjaf,mr4 ,casey 7= himself & ,mr4 ,k+7 introduc$ ! foll[+ bill2 :i* 0 read twice & ref]r$ to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ,a ,,bill ,to am5d ! ,public ,heal? ,s]vice ,act to e/abli% an int]ag5cy coord9at+ committee on pulmon>y hyp]t5sion1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,pulmon>y ,hyp]t5sion ,rese>* & ,diagnosis ,act ( #bjaf4 #b4 ,int]ag5cy pulmon>y hyp]t5sion coord9at+ committee e/abli%$ ,"p ,p ( title ,,iii ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhj;g et seq47 is am5d$ by add+ at ! end ! foll[+ new section3 #cii,v-#g4 ,int]ag5cy ,pulmon>y ,hyp]t5sion ,coord9at+ ,committee 7a7 ,committee e/abli%$ ,! ,secret>y %all e/abli% a committee1 to be kn[n z ! ,int]ag5cy ,pulmon>y ,hyp]t5sion ,coord9at+ ,committee 79 ?is section ref]r$ to z ! ,committee71 to coord9ate all ef=ts )9 ! ,dep>tm5t ( ,heal? & ,human ,s]vices conc]n+ pulmon>y hyp]t5sion4 7b7 ,responsibilities ,! ,committee %all-- 7#a7 develop & annually update a summ>y ( ! advances made 9 rese>* on1 & treatm5t & diagnosis (1 pulmon>y hyp]t5sion2 7#b7 develop & annually update a summ>y ( ! advances made 9 access to c>e = individuals ) a diagnosis ( pulmon>y hyp]t5sion2 7#c7 monitor pulmon>y hyp]t5sion rese>*1 s]vices1 & support activities across ! ,f$]al ,gov]nm5t1 includ+ coord9ation ( ,f$]al activities & programs ) respect to pulmon>y hyp]t5sion2 7#d7 develop & annually update a compreh5sive /rategic plan "u subsection 7c7 to improve heal? outcomes = individuals ) a diagnosis ( pulmon>y hyp]t5sion2 & 7#e7 develop & annually update ! progress made 9 implem5t+ su* compreh5sive /rategic plan4 7c7 ,/rategy ,n lat] ?an "o ye> aft] ! date ( ! enactm5t ( ! ,pulmon>y ,hyp]t5sion ,rese>* & ,diagnosis ,act ( #bjaf & annually !reaft]1 ! ,committee %all submit to ,congress & ! ,secret>y a /rategy to improve heal? outcomes = individuals ) a diagnosis ( pulmon>y hyp]t5sion4 ,su* /rategy %all include ! foll[+3 7#a7 ,recomm5dations to advance rese>* on pulmon>y hyp]t5sion4 7#b7 ,recomm5dations to improve ! transplantation crit]ia & process conc]n+ lung & he>t-lung transplants = individuals ) a diagnosis ( pulmon>y hyp]t5sion4 7#c7 ,recomm5dations to improve public aw>5ess & recognition ( pulmon>y hyp]t5sion4 7#d7 ,recomm5dations to improve heal? c>e deliv]y = individuals ) a diagnosis ( pulmon>y hyp]t5sion4 7#e7 ,recomm5dations to improve ! e>ly & accurate diagnosis ( pulmon>y hyp]t5sion4 7#f7 ,recomm5dations to sy/ematically advance ! full spectrum ( biom$ical rese>* on pulmon>y hyp]t5sion4 7d7 ,memb]%ip 7#a7 ,9 g5]al ,! ,committee %all be compos$ (-- 7,a7 ! ,director ( ! ,ag5cy = ,heal?c>e ,rese>* & ,quality2 7,b7 ! ,assi/ant ,secret>y ( ! ,adm9i/ration = ,*ildr5 & ,families2 7,c7 ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion2 7,d7 ! ,adm9i/rator ( ! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices2 7,e7 ! ,secret>y ( ,def5se2 7,f7 ! ,commission] ( ,food & ,drugs2 7,g7 ! ,adm9i/rator ( ! ,heal? ,res\rces & ,s]vices ,adm9i/ration2 7,h7 ! ,director ( ! ,national ,in/itutes ( ,heal?2 & 7,i7 ! non-,f$]al memb]s appo9t$ "u p>agraph 7#b74 7#b7 ,non-,f$]al memb]s ,n few] ?an #f memb]s ( ! ,committee or "o-?ird ( ! total memb]%ip ( ! ,committee1 :i*ev] is great]1 %all be compos$ ( non-,f$]al memb]s to be appo9t$ by ! ,secret>y1 ( :i*-- 7,a7 at lea/ #b %all be individuals ) a diagnosis ( pulmon>y hyp]t5sion2 7,b7 at lea/ #a %all be ! p>5t or gu>dian ( an individual ) a diagnosis ( pulmon>y hyp]t5sion2 7,c7 at lea/ #a %all be a repres5tative ( a ph>maceutical company t manufactures a drug or device = detect+1 prev5t+1 or treat+ pulmon>y hyp]t5sion2 & 7,d7 at lea/ #a %all be a repres5tative ( a lead+ rese>*1 advocacy1 or support organization prim>ily s]v+ individuals ) a diagnosis ( pulmon>y hyp]t5sion4 7e7 ,meet+s ,! ,committee %all meet n few] ?an #b times ea* ye>4 ,all meet+s %all be op5 to ! public4 7f7 ,t]m9ation date ,! ,committee %all t]m9ate on ! date t is #e ye>s aft] ! date ( ! enactm5t ( ! ,pulmon>y ,hyp]t5sion ,rese>* & ,diagnosis ,act ( #bjaf4 4 #c4 ,report to ,congress 7a7 ,report requir$ ,n lat] ?an #b ye>s aft] ! date ( ! enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices1 9 coord9ation ) ! ,int]ag5cy ,pulmon>y ,hyp]t5sion ,coord9at+ ,committee1 %all prep>e & submit to ! ,committee on ,heal?1 ,education1 ,labor1 & ,p5sions ( ! ,s5ate & ! ,committee on ,en]gy & ,comm]ce ( ! ,h\se ( ,repres5tatives a progress report on activities relat$ to improv+ heal? outcomes = individuals ) a diagnosis ( pulmon>y hyp]t5sion4 7b7 ,cont5ts ( report ,! report submitt$ "u subsection 7a7 %all conta9-- 7#a7 in=mation on ! incid5ce ( pulmon>y hyp]t5sion includ+ su* incid5ce s9ce ! date ( ! enactm5t ( ?is ,act2 7#b7 in=mation on ! preval5ce ( pulmon>y hyp]t5sion 9 *ildr5 & adults2 7#c7 in=mation on ! av]age "t betwe5 ! initial scre5+ & ! accurate diagnosis ( pulmon>y hyp]t5sion2 7#d7 in=mation on ! av]age /age ( pulmon>y hyp]t5sion :5 appropriate int]v5tion beg9s2 7#e7 in=mation on ! effectiv5ess & outcomes ( int]v5tions = individuals ) a diagnosis ( pulmon>y hyp]t5sion1 includ+-- 7,a7 mortality rate2 & 7,b7 ! frequ5cy ( dra/ic treatm5t options su* z lung & he>t-lung transplants2 7#f7 in=mation on new developm5ts 9 rese>* activities2 7#g7 in=mation on innovative treatm5t options & diagno/ic tools2 & 7#h7 in=mation on s]vices & supports available to individuals ) a diagnosis ( pulmon>y hyp]t5sion4 7c7 ,publication ,! ,secret>y ( ,heal? & ,human ,s]vices %all make ! report submitt$ "u subsection 7a7 available on ! public ,int]net ,web site ( ! ,dep>tm5t ( ,heal? & ,human ,s]vices4