,,iv  #aad? ,,congress  #a/ ,session    
,h4 ,,res4 #bif  ,,9 ,,! ,,h\se ,,(     
,,repres5tatives  ,june #c1 #bjae ,ms4  
,lee 7= h]self1 ,mr4 ,burgess1 ,mr4     
,danny ,k4 ,davis ( ,ill9ois1 ,mr4      
,rangel1 ,mr4 ,ru%1 ,mr4 ,?ompson (     
,cali=nia1 ,mr4 ,al ,gre5 ( ,texas1     
,mrs4 ,d+ell1 & ,mr4 ,cony]s7 submitt$ !
 foll[+ resolution2 :i* 0 ref]r$ to !   
,committee on ,en]gy & ,comm]ce         
,,resolution  ,call+ = ,sickle ,cell    
,trait rese>*4  ,:]eas ,sickle ,cell    
,disease is ! mo/ common inh]it$ blood  
disord] 9 ! ,unit$ ,/ates1 affect+      
approximately #ajj1jjj p 9 ! ,unit$     
,/ates2 ,:]eas m ?an #c1jjj1jjj p 9 !   
,unit$ ,/ates h ! ,sickle ,cell ,trait &
 _m are unaw>e ( _! /atus2 ,:]eas       
,african-,am]icans 7#a 9 #ab7 &         
,hispanic ,am]icans 7#a 9 #ajj7 are mo/ 
at risk = c>ry+ ! ,sickle ,cell ,trait1 
& ! trait has be5 f\nd 9 p]sons (       
,greek1 ,italian1 ,ea/ ,indian1 ,saudi  
,arabian1 ,asian1 ,syrian1 ,turki%1     
,cypriot1 ,sicilian1 & ,caucasian orig92

 ,:]eas individuals :o h ,sickle ,cell  
,trait h a #ej-p]c5t *ance ( pass+ on ! 
abnormal sickle cell g5e to future      
(fspr+ & #be-p]c5t *ance ( hav+ future  
*ildr5 ) ,sickle ,cell ,disease if bo?  
p>5ts h ! trait2 ,:]eas individuals )   
,sickle ,cell ,trait h ! same life      
expectancy z ! g5]al population1 b are  
at risk = c]ta9 conditions includ+1     
blood 9 ! ur9e1 kidney canc]1           
complications ) trauma to ! eye1 tissue 
dea? 9 ! sple5 at high altitudes1 or may
 h a false positive ,a#a;,c te/2 ,:]eas 
accord+ to a #bjjg /udy 9 ! ,am]ican    
,j\rnal ( ,m$ical ,g5etics1 all ,/ates h
 be5 requir$ to scre5 = ,sickle ,cell   
,disease_/,trait s9ce #bjjf1 h[ev]1 mo/ 
,/ates lack a protocol = dissem9at+     
results ( trait /atus1 ) p>5ts be+      
notifi$ only #cg p]c5t ( ! "t2 ,:]eas   
communication ( a scre5+ result consi/5t
 ) ,sickle ,cell ,trait %\ld always be  
accompani$ by appropriate c\nsel+ on !  
implications1 provid$ by an individual )
 adequate tra9+ & und]/&+ ( ! in=mation2

 ,:]eas ! limit$ rese>* on !            
communication ( ,sickle ,cell ,trait te/
 results to pati5ts demon/rates t !re is
 a high preval5ce ( mislead+ in=mation  
be+ communicat$ dur+ c\nsel+ sessions = 
,sickle ,cell ,trait foll[+ newborn     
scre5+ by cl9icians2 ,:]eas no /udies h 
exam9$ :e!r in=mation on ,sickle ,cell  
,trait te/ results are be+ accurately   
transmitt$ to an individual1 :e!r by a  
family memb] or heal?c>e provid]1 prior 
to a p]son's reproductive ye>s2 & ,:]eas
 ,congress recognizes ! importance (    
ensur+ t p 9 ! ,unit$ ,/ates c make     
in=m$ decisions z a result ( aw>5ess (  
_! ,sickle ,cell ,trait /atus3 ,n[1     
!re=e1 be x  ,t ! ,h\se (               
,repres5tatives-- 7#a7 recognizes !     
ongo+ *all5ges 9 address+ heal? outcomes
 among p ) ,sickle ,cell ,trait &       
,sickle ,cell ,disease2  7#b7 enc\rages 
! m$ical community1 9 coord9ation ) !   
,/ate & ,f$]al ,gov]nm5t1 to "w to      
ensure t all individuals are made aw>e (
 _! ,,sct /atus by develop+ a common    

/rategy = dissem9ation ( scre5+ results1
 education1 & c\nsel+ to p>5ts &        
families 9 collaboration ) all #ej      
,/ates' newborn scre5+ programs2  7#c7  
calls on ! ,unit$ ,/ates ,dep>tm5t (    
,heal? & ,human ,s]vices1 9             
collaboration ) exp]ts1 to develop a    
public aw>5ess campaign reg>d+ !        
importance ( kn[+ "o's ,sickle ,cell    
,trait /atus = all racial & e?nic gr\ps 
9 ! ,unit$ ,/ates2  7#d7 calls on !     
,unit$ ,/ates ,dep>tm5t ( ,heal? &      
,human ,s]vices to exp& access = scre5+ 
& appropriate c\nsel+ = c>ri]s ( ,sickle
 ,cell ,trait2 &  7#e7 commits to ensur+
 support = rese>* t exp&s our und]/&+ ( 
! heal? outcomes & o!r implications (   
,sickle ,cell ,trait & ! heal? outcomes 
associat$ ) ,sickle ,cell ,disease4