,i #aad? ,,congress #b;d ,session ,h4 ,r4 #ecdd ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,may #bf1 #bjaf ,mr4 ,c>twright 7= himself1 ,mr4 ,grijalva1 ,mr4 ,honda1 ,ms4 ,eddie ,b]nice ,johnson ( ,texas1 ,mr4 ,polis1 ,mr4 ,rangel1 ,mr4 ,"y ( ,alaska1 ,mr4 ,m>9o1 & ,mr4 ,posey7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to cl>ify t pilot programs t honor & rew>d organ donation are n preempt$ by ,f$]al crim9al law & t (f]+ & accept+ su* b5efits 9 accordance ) a pilot program are n crim9al acts4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,organ ,donation ,cl>ification ,act ( #bjaf4 #b4 ,f9d+s ,congress f9ds ! foll[+3 7#a7 ,z ( ,janu>y #bjaf1 #aba1jjj p await an organ transplant1 ) #ajj1jjj ( ^? p wait+ = a kidney1 & av]age wait times are approa*+ five ye>s = a kidney1 ) twice z _m p be+ add$ to wait+ li/s z gett+ a transplant4 7#b7 ,liv+ donor kidney transplants peak$ 9 #bjjf & h decl9$ s9ce due to a sc>city ( liv+ donors4 7#c7 ,( ! r\ghly two million ,am]icans :o die annually1 only #aj1ejj to #ac1hjj1 repres5t+ less ?an "o p]c5t ( all dea?s ea* ye>1 possess major organs heal?y en\gh = transplant+4 7#d7 ,on av]age1 #bb p a day di$ :ile wait+ = an organ1 ) ! majority ( ^? p wait+ on a kidney4 7#e7 ,9 #bjac ne>ly #c1jjj p 7 p]man5tly remov$ f kidney wait+ li/s & #b1jjj f liv]1 he>t1 & lungs wait+ li/s because !y became p]man5tly too sick to receive a transplant4 7#f7 #ij ( dialysis pati5ts are n employ$ because dialysis requires multiple treatm5ts p] week :i* la/ sev]al h\rs & leave pati5ts dra9$1 ?us creat+ a huge f9ancial burd5 on ! pati5ts1 _! families1 & ! gov]nm5t :i* is n includ$ 9 ! co/ e/imates above4 7#g7 ,a pati5t receiv+ a kidney transplant on av]age has an additional #aj-ae ye>s ( life at a mu* m enjoyable & productive level z comp>$ ) rema9+ on dialysis1 :ile receiv+ a kidney f a liv+ donor provid+ #d-h ye>s ( additional life z comp>$ to receiv+ a kidney f a deceas$ donor4 7#h7 ,z m$ical advances ext5d p's lives z !y wait = an organ transplant1 wait+ li/s w get long] & ! co/s = individuals & ! ,f$]al ,gov]nm5t w increase significantly4 7#i7 ,r\ghly sev5 p]c5t ( ! ,m$ic>e budget goes to ! ,end ,/age ,r5al ,disease ,program1 ) dialysis co/+ ,m$ic>e ov] #hg1jjj p] pati5t p] ye>1 z ,f$]al law dictates t ,m$ic>e w cov] dialysis = ev]yone :o has made m9imal ,social ,security tax paym5ts4 7#aj7 ,a kidney transplant pays = itself 9 less ?an two ye>s1 ) ea* transplant sav+ an av]age ( ov] #gde1jjj 9 m$ical co/s ov] a #aj-ye> p]iod1 #ge p]c5t ( :i* is sav+s to ! taxpay]s4 7#aa7 ,exp]ts project t if ! supply ( transplant kidneys c\ld be increas$ to meet ! dem&1 taxpay]s w\ld save m ?an #e1ejj1jjj1jjj p] ye> 9 m$ical co/s4 7#ab7 ,! ,_w ,heal? ,organization e/imates t #aj p]c5t ( all transplants take place on ! int]national black m>ket1 ! la/ *oice = desp]ate pati5ts fac+ an alt]native ( dea?1 h[ev] recipi5ts (t5 face infect$ kidneys & h poor heal? outcomes & donors are (t5 victimiz$4 7#ac7 ,pres5t policy on dome/ic donation1 :i* is n evid5ce bas$ & has nev] be5 subject to /udies or pilots to det]m9e effectiv5ess 9 increas+ ! availability ( donat$ organs & ! effectiv5ess ( safegu>ds t prev5t co]cion or exploitation1 precludes all b altrui/ic donation1 prohibit+ any =m ( inc5tive or b5efit = donors4 7#ad7 ,exp]ts are arriv+ at a cons5sus t trials are necess>y to f9d new me?ods ( promot+ additional organ donation :i* w save lives & r$uce organ traffick+4 #c4 ,cl>ification ( c]ta9 provisions ( ! ,national ,organ ,transplant ,act 7a7 ,relation to o!r laws 7#a7 ,gov]nm5ts enc\rag+ organ donation ,section #cja ( ! ,national ,organ ,transplant ,act 7#db ,u4,s4,c4 #bgd;e7 %all n-- 7,a7 apply to actions tak5 by ! ,gov]nm5t ( ! ,unit$ ,/ates or any ,/ate1 t]ritory1 tribe1 or local gov]nm5t ( ! ,unit$ ,/ates to c>ry out a cov]$ pilot program2 or 7,b7 prohibit acceptance ( any nonca% b5efits provid$ by ! pilot program "u subp>agraph 7,a74 7#b7 ,no prohibition on o!r b5efits programs ,no?+ 9 ?is section %all be con/ru$ to prohibit actions1 o!r ?an actions describ$ 9 ?is section1 tak5 by any ,/ate1 t]ritory1 tribe1 or unit ( local gov]nm5t 9 ! ,unit$ ,/ates to provide b5efits = organ donation1 includ+ pursuant to section #cja ( ! ,national ,organ ,transplant ,act 7#db ,u4,s4,c4 #bgd;e74 7#c7 ,cl>ification ( mean+ ( b5efit ,= purposes ( ! ,national ,organ ,transplant ,act1 valuable consid]ation does n include ! foll[+3 7,a7 ,reimbursem5t = travel1 lodg+1 food dur+ travel1 & o!r exp5ses relat$ to donation4 7,b7 ,provision ( or reimbursem5t = dep5d5t c>e ne$s relat$ to donation4 7,c7 ,reimbursem5t = lo/ wages relat$ to donation4 7,d7 ,m$ical exp5ses relat$ to donation & all relat$ foll[ up c>e includ+ prev5tative foll[ up c>e & m$ication4 7,e7 ,pap]work or legal co/s relat$ to donation4 7,f7 ,any insurance policy aga9/ ! risk ( dea? or disability z a result ( donat+ an organ or ! long]-t]m heal? effects ( hav+ donat$ an organ4 7b7 ,def9ition ,9 ?is section3 7#a7 ,! t]m organ means ! human kidney1 liv]1 he>t1 lung1 pancreas1 bone m>r[ obta9$ by aspirate1 cornea1 eye1 bone & o!r musculoskeletal tissue1 sk91 & he>t valves & o!r c>dio & vascul> tissue4 7#b7 ,! t]m cov]$ pilot program means a pilot program approv$ by ! ,secret>y ( ,heal? & ,human ,s]vices1 subject to an e?ical review bo>d process1 ) a t]m ( n m ?an #e fiscal ye>s1 = ! purpose ( measur+ ! effect ( remov+ dis9c5tives or provid+ a nonca% b5efit t may increase ! organ pool4 ,di/ributions ( organs f deceas$ donors "u ! pilot program %all be conduct$ only ?r\gh ! ,organ ,procurem5t & ,transplantation ,network at a transplant c5t] approv$ by ! ,unit$ ,network = ,organ ,%>+ or any o!r entity designat$ by ! ,secret>y ( ,heal? & ,human ,s]vices4