,i #aad? ,,congress #a/ ,session ,h4 ,r4 #ciac ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,novemb] #c1 #bjae ,mr4 ,langev9 7= himself & ,mr4 ,h>p]7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to am5d title ,,xxix ( ! ,public ,heal? ,s]vice ,act to reau?orize ! program "u su* title relat+ to lifespan respite c>e4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,lifespan ,respite ,c>e ,reau?orization ,act ( #bjae4 #b4 ,f9d+s ,congress f9ds ! foll[+3 7#a7 ,!re are an e/imat$ #dc1jjj1jjj family c>egiv]s nationwide t provide c>e = lov$ ones ) *ronic1 disabl+ heal? conditions across ! lifespan4 7#b7 ,! economic value ( uncomp5sat$ family c>egiv+ to ! ,unit$ ,/ates economy 0 e/imat$ at #dgj1jjj1jjj1jjj 9 #bjac1 m ?an total ,m$icaid sp5d+ ( #ddi1jjj1jjj1jjj1 includ+ bo? ,f$]al & ,/ate contributions = m$ical & long-t]m c>e 9 ! same ye>4 7#c7 ,:ile c>+ = ! ag+ population rema9s a gr[+ conc]n1 m ?an half ( c>e recipi5ts are "u age #ge1 & almo/ "o-?ird are "u age #ej4 7#d7 ,respite provides tempor>y relief to c>egiv]s f ! ongo+ responsibility ( c>+ = individuals ( all ages ) special ne$s4 7#e7 ,respite c>e is "o ( ! mo/ commonly reque/$ c>egiv] support s]vices4 7#f7 ,respite has be5 %[n to provide family c>egiv]s ) ! relief necess>y to ma9ta9 _! own heal?1 balance "w & family1 bol/] family /ability1 keep m>riages intact1 & avoid or delay m co/ly nurs+ home or fo/] c>e placem5ts4 7#g7 ,delay+ nurs+ home1 in/itutional1 or fo/] c>e placem5t ( j "o individual = sev]al mon?s c save ,m$icaid1 *ild welf>e1 or o!r gov]nm5t programs t5s ( ?\s&s ( doll>s4 7#h7 ,! ,lifespan ,respite ,c>e ,act ( #bjjf 0 orig9ally enact$ to improve ! deliv]y & quality ( respite c>e s]vices available to families across all age & disability gr\ps by e/abli%+ coord9at$ lifespan respite sy/ems4 7#i7 ,?irty-?ree ,/ates & ! ,di/rict ( ,columbia h receiv$ grants "u ! ,lifespan ,respite ,c>e ,act ( #bjjf to improve ! availability & quality ( respite s]vices across ! lifespan4 7#aj7 ,= ! ,nation's w\nd$ s]vicememb]s & vet]ans ) traumatic bra9 injuries & o!r conditions1 respite sy/ems c\ld be an integral lifel9e = families 9 _! new roles z lifelong family c>egiv]s4 7#aa7 ,! ,dep>tm5t ( ,vet]ans ,affairs & ,congress h bo? ackn[l$g$ ! unique *all5ges fac+ c>egiv]s ( return+ s]vicememb]s & vet]ans1 z well z ! ne$ = increas$ c>egiv] s]vices4 7#ab7 ,! increas$ utilization (1 & co/s to1 long-t]m c>e sy/ems requires ! cont9u$ developm5t ( coord9at$ family support s]vices l lifespan respite c>e4 #c4 ,reau?orization ( lifespan respite c>e program 7a7 ,data collection & report+ ,section #bijd ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bij;ii-#c7 is am5d$ to read z foll[s3 #bijd4 ,data collection & report+ ,ea* eligible ,/ate ag5cy aw>d$ a grant or coop]ative agreem5t "u section #bijb %all collect1 ma9ta91 & report su* data & records at su* times1 9 su* =m1 & 9 su* mann] z ! ,secret>y may require to enable ! ,secret>y-- 7#a7 to monitor ,/ate adm9i/ration ( programs & activities fund$ pursuant to su* grant or coop]ative agreem5t2 & 7#b7 to evaluate1 & to comp>e effectiv5ess on a ,/ate-by-,/ate basis1 ( programs & activities fund$ pursuant to section #bijb4 4 7b7 ,fund+ ,section #bije ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #cjj;ii-#d7 is am5d$ by /rik+ to c>ry out ?is title & all t foll[s & ins]t+ to c>ry out ?is title #ae1jjj1jjj = ea* ( fiscal ye>s #bjaf ?r\gh #bjbj44