,i  #aad? ,,congress  #a/ ,session  ,h4 
,r4 #cdda  ,,9 ,,! ,,h\se ,,(           
,,repres5tatives  ,augu/ #d1 #bjae ,ms4 
,h]r]a ,beutl] 7= h]self & ,ms4         
,roybal-,all>d7 introduc$ ! foll[+ bill2
 :i* 0 ref]r$ to ! ,committee on ,en]gy 
& ,comm]ce  ,a ,,bill  ,to am5d !       
,public ,heal? ,s]vice ,act to e/abli%  
education programs = pati5ts & heal? c>e
 provid]s reg>d+ cell-free ,,dna pr5atal
 scre5+1 & = o!r purposes4  #a4 ,%ort   
title ,?is ,act may be cit$ z !         
,accurate ,education = ,pr5atal ,scre5+s
 ,act4  #b4 ,cell-,free ,,dna ,pr5atal  
,scre5+ ,education ,programs ,"p ,b (   
title ,,iii ( ! ,public ,heal? ,s]vice  
,act is am5d$ by ins]t+1 aft] section   
#cag,t 7#db ,u4,s4,c4 #bdg;b-#bb71 !    
foll[+3  #cag,u4 ,cell-,free ,,dna      
,pr5atal ,scre5+ ,education ,programs   
7a7 ,education programs ,) respect to   
cell-free ,,dna pr5atal scre5+1 !       
,secret>y1 act+ ?r\gh ! ,director ( !   
,c5t]s = ,disease ,control & ,prev5tion1
 %all develop1 implem5t1 & ma9ta9 two   

programs1 "o = pati5ts & "o = heal? c>e 
provid]s1 to educate pati5ts & heal? c>e
 provid]s reg>d+ matt]s includ+--  7#a7 
! purposes & def9itions ( su* scre5+s2  
7#b7 ! reasons = pati5ts & heal? c>e    
provid]s to consid] su* scre5+s2  7#c7 !
 conditions su* scre5+s may detect1     
includ+ accurate & up-to-date in=mation 
ab\t su* conditions' cl9ical features1  
prognoses1 & treatm5ts accord+ to       
relevant national disability            
organizations & m$ical pr(essional      
societies2  7#d7 ! risks & b5efits (1 & 
alt]natives to1 ! v>i\s me?ods (        
adm9i/]+ su* scre5+s & pr5atal diagno/ic
 te/+s1 includ+ ! option to =ego su*    
scre5+s & te/+s1 z p] guidel9es e/abli%$
 by m$ical pr(essional societies2  7#e7 
! possible results ( su* scre5+s2  7#f7 
! accuracy ( ! results ( su* scre5+s1   
includ+ positive pr$ictive value1       
negative pr$ictive value1 specificity1  
s5sitivity1 ! inability ( su* scre5+s to
 reliably diagnose *romosomal           
abnormalities1 & ! fact t su* scre5+s   

may yield false-positive &              
false-negative results2  7#g7 ! ne$ =   
diagno/ic te/+1 & c\nsel+ by a g5etics  
pr(essional1 = pati5ts ^: scre5+s yield 
positive1 abnormal1 or indet]m9ate      
results2 &  7#h7 ! ne$ = communication (
 scre5+ results to pati5ts & appropriate
 foll[ up p] guidel9es e/abli%$ by      
m$ical pr(essional societies4  7b7      
,mat]ials ,ea* program develop$ "u ?is  
section %all include ! provision (      
mat]ials t-- 7#a7 conta9 in=mation t is 
pe]-review$1 balanc$1 accurate1 &       
up-to-date2  7#b7 enable ! respective   
t>get audi5ce to und]/& ! available     
options ) reg>ds to cell-free ,,dna     
pr5atal scre5+s1 o!r pr5atal scre5+s1 & 
diagno/ic te/s2  7#c7 promote ! in=m$   
cons5t1 & enhance ! decision-mak+       
processes (1 ! respective t>get audi5ce 
be=e & aft] su* scre5+s2  7#d7 conta9   
in=mation t appropriately addresses !   
div]sity ( ! pati5t population1 includ+ 
pati5ts pr(ici5t 9 languages o!r ?an    
,engli%2 &  7#e7 conta9 contact         

in=mation = relevant s]vices & support  
organizations = pati5ts4  7c7 ,assessm5t
 ,9 develop+1 implem5t+1 & ma9ta9+      
programs & mat]ials "u ?is section1 !   
,secret>y1 act+ ?r\gh ! ,director ( !   
,c5t]s = ,disease ,control & ,prev5tion1
 %all--  7#a7 consult ) relevant m$ical 
pr(essional1 disability support1 pati5t 
advocacy1 p>5ts1 & g5etics pr(essionals 
organizations2  7#b7 consult ) companies
 & laboratories t p]=m cell-free ,,dna  
pr5atal scre5+s or develop ! te*nologies
 = su* scre5+s2  7#c7 assess & evaluate 
exi/+ education activities & mat]ials = 
heal? c>e provid]s & pati5ts relat$ to  
su* scre5+s2 &  7#d7 take ! results (   
su* consultations1 assessm5t1 &         
evaluation into acc\nt 9 develop+       
educational programs & mat]ials "u ?is  
section4  7d7 ,annual report ,n lat] ?an
 #af mon?s aft] ! date ( enactm5t ( ?is 
section & annually !reaft]1 ! ,secret>y 
%all submit a progress report to !      
,congress ) respect to--  7#a7 !        
developm5t & implem5tation ( ! education

 programs e/abli%$ "u ?is section2  7#b7
 ! accessibility ( ea* program to its   
respective t>get audi5ce2  7#c7 !       
adoption ( ea* program by its respective
 t>get audi5ce2 &  7#d7 ! ,secret>y's   
ef=ts to ensure heal? c>e provid]s &    
pati5ts receive ! mat]ials creat$       
pursuant to ?is section4  7e7 ,deadl9e  
,! ,secret>y %all develop & implem5t !  
education programs requir$ by section   
#cag,u ( ! ,public ,heal? ,s]vice ,act  
7z add$ by subsection 7a77 n lat] ?an #a
 ye> aft] ! date ( enactm5t ( ?is ,act  
4