,,ib  ,union ,cal5d> ,no4 #ahb  #aad?   
,,congress  #a/ ,session  ,h4 ,r4 #acdd 
,report ,no4 #aad-bda  ,,9 ,,! ,,h\se   
,,( ,,repres5tatives  ,m>* #aj1 #bjae   
,mr4 ,gu?rie 7= himself & ,mrs4 ,capps7 
introduc$ ! foll[+ bill2 :i* 0 ref]r$ to
 ! ,committee on ,en]gy & ,comm]ce      
,septemb] #h1 #bjae ,additional         
sponsors3 ,mr4 ,pi]luisi1 ,mr4          
,mc,kinley1 ,mrs4 ,blackburn1 ,mr4      
,cumm+s1 ,mr4 ,roe ( ,t5nessee1 ,mr4    
,h>ris1 ,mr4 ,loebsack1 ,mr4 ,rigell1   
,mr4 ,johnson ( ,ohio1 ,mr4 ,?ompson (  
,cali=nia1 ,mr4 ,/iv]s1 ,mrs4 ,beatty1  
,mr4 ,david ,scott ( ,georgia1 ,mr4     
,ru%1 ,ms4 ,s*ak[sky1 ,mr4 ,bilirakis1  
,mr4 ,burgess1 ,mr4 ,ryan ( ,ohio1 ,mr4 
,olson1 ,mr4 ,pascrell1 ,mrs4           
,napolitano1 ,mrs4 ,ellm]s ( ,nor?      
,c>ol9a1 ,mr4 ,b5 ,ray ,lujn ( ,new     
,mexico1 ,mr4 ,smi? ( ,nebraska1 ,mr4   
,smi? ( ,wa%+ton1 ,mr4 ,rangel1 & ,ms4  
,s9ema  ,septemb] #h1 #bjae ,report$ )  
an am5dm5t1 committ$ to ! ,committee ( !
 ,:ole ,h\se on ! ,/ate ( ! ,union1 &   

ord]$ to be pr9t$ ,/rike out all aft] ! 
enact+ clause & ins]t ! "p pr9t$ 9      
italic ,= text ( introduc$ bill1 see    
copy ( bill z introduc$ on ,m>* #aj1    
#bjae  ,a ,,bill  ,to am5d ! ,public    
,heal? ,s]vice ,act to reau?orize a     
program = e>ly detection1 diagnosis1 &  
treatm5t reg>d+ deaf & h>d-(-he>+       
newborns1 infants1 & "y *ildr54  #a4    
,%ort title ,?is ,act may cit$ z ! ,e>ly
 ,he>+ ,detection & ,int]v5tion ,act (  
#bjae4  #b4 ,f9d+s ,! ,congress f9ds z  
foll[s3  7#a7 ,deaf & h>d-(-he>+        
newborns1 infants1 toddl]s1 & "y *ildr5 
require access to specializ$ e>ly       
int]v5tion provid]s & programs 9 ord] to
 help !m meet _! l+ui/ic & cognitive    
pot5tial4  7#b7 ,families ( deaf &      
h>d-(-he>+ newborns1 infants1 toddl]s1 &
 "y *ildr5 b5efit f compreh5sive e>ly   
int]v5tion programs t assi/ !m 9        
support+ _! *ild's developm5t 9 all     
doma9s4  7#c7 ,be/ practices pr9ciples =
 e>ly int]v5tion = deaf & h>d-(-he>+    
newborns1 infants1 toddl]s1 & "y *ildr5 

h be5 id5tifi$ 9 a range ( areas includ+
 li/5+ & spok5 language & visual & sign$
 language acquisition1 family-to-family 
support1 support f individuals :o are   
deaf or h>d-(-he>+1 progress monitor+1 &
 o!rs4  7#d7 ,effective he>+ scre5+ &   
e>ly int]v5tion programs mu/ be 9 place 
to id5tify he>+ levels 9 deaf &         
h>d-(-he>+ newborns1 infants1 toddl]s1 &
 "y *ildr5 s t !y may access appropriate
 e>ly int]v5tion programs 9 a timely    
mann]4  #c4 ,reau?orization ( program = 
e>ly detection1 diagnosis1 & treatm5t   
reg>d+ deaf & h>d-(-he>+ newborns1      
infants1 & "y *ildr5 ,section #cii,m ( !
 ,public ,heal? ,s]vice ,act 7#db       
,u4,s4,c4 #bhj;g-#a7 is am5d$ to read z 
foll[s3  #cii,m4 ,e>ly ,detection1      
,diagnosis1 & ,treatm5t ,reg>d+ ,deaf & 
,h>d-(-,he>+ ,newborns1 ,infants1 & ,"y 
,*ildr5  7a7 ,heal? ,res\rces & ,s]vices
 ,adm9i/ration ,! ,secret>y1 act+ ?r\gh 
! ,adm9i/rator ( ! ,heal? ,res\rces &   
,s]vices ,adm9i/ration1 %all make aw>ds 
( grants or coop]ative agreem5ts to     

develop /atewide newborn1 infant1 & "y  
*ildhood he>+ scre5+1 diagnosis1        
evaluation1 & int]v5tion programs &     
sy/ems1 & to assi/ 9 ! recruitm5t1      
ret5tion1 education1 & tra9+ ( qualifi$ 
p]sonnel & heal? c>e provid]s = ! foll[+
 purposes3  7#a7 ,to develop & monitor !
 efficacy ( /atewide programs & sy/ems =
 he>+ scre5+ ( newborns1 infants1 & "y  
*ildr51 prompt evaluation & diagnosis ( 
*ildr5 ref]r$ f scre5+ programs1 &      
appropriate educational1 audiological1 &
 m$ical int]v5tions = *ildr5 confirm$ to
 be deaf or h>d-(-he>+1 consi/5t ) !    
foll[+3 7,a7 ,e>ly int]v5tion includes  
ref]ral to & deliv]y ( in=mation &      
s]vices by organizations su* z s*ools & 
ag5cies 7includ+ community1 consum]1 &  
p>5t-bas$ ag5cies71 p$iatric m$ical     
homes1 & o!r programs m&at$ by "p ,c ( !
 ,individuals ) ,disabilities ,education
 ,act1 :i* (f] programs specifically    
design$ to meet ! unique language &     
communication ne$s ( deaf & h>d-(-he>+  
newborns1 infants1 & "y *ildr54  7,b7   

,in=mation provid$ to p>5ts mu/ be      
accurate1 compreh5sive1 &1 :]e          
appropriate1 evid5ce-bas$1 all[+        
families to make important decisions =  
_! *ild 9 a timely way1 includ+         
decisions relat+ to all possible        
assi/ive he>+ te*nologies 7su* z he>+   
aids1 co*le> implants1 & osseo9tegrat$  
devices7 & communication options 7su* z 
visual & sign language1 li/5+ & spok5   
language1 or bo?74  7,c7 ,programs &    
sy/ems "u ?is p>agraph %all (f]         
me*anisms t fo/] family-to-family & deaf
 & h>d-(-he>+ consum]-to-family         
supports4  7#b7 ,to develop effici5t    
models 7bo? educational & m$ical7 to    
ensure t newborns1 infants1 & "y *ildr5 
:o are id5tifi$ ?r\gh he>+ scre5+       
receive foll[up by qualifi$ e>ly        
int]v5tion provid]s1 qualifi$ heal? c>e 
provid]s1 or p$iatric m$ical homes      
7includ+ by enc\rag+ ,/ate ag5cies to   
adopt su* models74  7#c7 ,to provide = a
 te*nical res\rce c5t] 9 conjunction ) !
 ,mat]nal & ,*ild ,heal? ,bureau ( !    

,heal? ,res\rces & ,s]vices             
,adm9i/ration--  7,a7 to provide        
te*nical support & education = ,/ates2 &
  7,b7 to cont9ue developm5t &          
enhancem5t ( ,/ate e>ly he>+ detection &
 int]v5tion programs4  7b7 ,te*nical    
assi/ance1 data managem5t1 & appli$     
rese>*  7#a7 ,c5t]s = ,disease ,control 
& ,prev5tion ,! ,secret>y1 act+ ?r\gh ! 
,director ( ! ,c5t]s = ,disease ,control
 & ,prev5tion1 %all make aw>ds ( grants 
or coop]ative agreem5ts to ,/ate ag5cies
 or _! designat$ entities = developm5t1 
ma9t5ance1 & improvem5t ( data track+ & 
surveillance sy/ems on newborn1 infant1 
& "y *ildhood he>+ scre5+s1 audiologic  
evaluations1 m$ical evaluations1 &      
int]v5tion s]vices2 to conduct appli$   
rese>* relat$ to s]vices & outcomes1 &  
provide te*nical assi/ance relat$ to    
newborn1 infant1 & "y *ildhood he>+     
scre5+1 evaluation1 & int]v5tion        
programs1 & in=mation sy/ems2 to ensure 
high-quality monitor+ ( he>+ scre5+1    
evaluation1 & int]v5tion programs &     

sy/ems = newborns1 infants1 & "y *ildr52
 & to coord9ate develop+ /&>diz$        
proc$ures = data managem5t & assess+    
program & co/ effectiv5ess4 ,! aw>ds "u 
! prec$+ s5t5ce may be us$-- 7,a7 to    
provide te*nical assi/ance on data      
collection & managem5t2  7,b7 to /udy & 
report on ! co/s & effectiv5ess (       
newborn1 infant1 & "y *ildhood he>+     
scre5+1 evaluation1 diagnosis1          
int]v5tion programs1 & sy/ems2  7,c7 to 
collect data & report on newborn1       
infant1 & "y *ildhood he>+ scre5+1      
evaluation1 diagnosis1 & int]v5tion     
programs & sy/ems t c be us$--  7i7 =   
appli$ rese>*1 program evaluation1 &    
policy developm5t2 &  7ii7 to answ]     
issues ( importance to ,/ate & national 
policymak]s2  7,d7 to id5tify ! causes &
 risk factors = cong5ital he>+ loss2    
7,e7 to /udy ! effectiv5ess ( newborn1  
infant1 & "y *ildhood he>+ scre5+1      
audiologic evaluations1 m$ical          
evaluations1 & int]v5tion programs &    
sy/ems by assess+ ! heal?1 intellectual 

& social developm5tal1 cognitive1 & he>+
 /atus ( ^! *ildr5 at s*ool age2 &  7,f7
 to promote ! integration1 l9kage1 &    
int]op]ability ( data reg>d+ e>ly he>+  
loss & multiple s\rces to increase      
in=mation ex*anges betwe5 cl9ical c>e & 
public heal? includ+ ! ability ( ,/ates 
& t]ritories to ex*ange & %>e data4     
7#b7 ,national ,in/itutes ( ,heal? ,!   
,director ( ! ,national ,in/itutes (    
,heal?1 act+ ?r\gh ! ,director ( !      
,national ,in/itute on ,deafness & ,o!r 
,communication ,disord]s1 %all1 =       
purposes ( ?is section1 cont9ue a       
program ( rese>* & developm5t relat$ to 
e>ly he>+ detection & int]v5tion1       
includ+ developm5t ( te*nologies &      
cl9ical /udies ( scre5+ me?ods1 efficacy
 ( int]v5tions1 & relat$ rese>*4  7c7   
,coord9ation & collaboration  7#a7 ,9   
g5]al ,9 c>ry+ out programs "u ?is      
section1 ! ,adm9i/rator ( ! ,heal?      
,res\rces & ,s]vices ,adm9i/ration1 !   
,director ( ! ,c5t]s = ,disease ,control
 & ,prev5tion1 & ! ,director ( !        

,national ,in/itutes ( ,heal? %all      
collaborate & consult )-- 7,a7 o!r      
,f$]al ag5cies2  7,b7 ,/ate & local     
ag5cies1 includ+ ^? responsible = e>ly  
int]v5tion s]vices pursuant to title    
,,xix ( ! ,social ,security ,act 7#db   
,u4,s4,c4 #acif et seq47 7,m$icaid ,e>ly
 & ,p]iodic ,scre5+1 ,diagnosis &       
,treatm5t ,program72 title ,,xxi ( !    
,social ,security ,act 7#db ,u4,s4,c4   
#acig;aa et seq47 7,/ate ,*ildr5's      
,heal? ,insurance ,program72 title ,v ( 
! ,social ,security ,act 7#db ,u4,s4,c4 
#gja et seq47 7,mat]nal & ,*ild ,heal?  
,block ,grant ,program72 & "p ,c ( !    
,individuals ) ,disabilities ,education 
,act 7#bj ,u4,s4,c4 #adca et seq472     
7,c7 consum] gr\ps ( & t s]ve           
individuals :o are deaf & h>d-(-he>+ &  
_! families2  7,d7 appropriate national 
m$ical & o!r heal? & education specialty
 organizations2  7,e7 p]sons :o are deaf
 & h>d-(-he>+ & _! families2  7,f7 o!r  
qualifi$ pr(essional p]sonnel :o are    
pr(ici5t 9 deaf or h>d-(-he>+ *ildr5's  

language & :o possess ! specializ$ k1   
skills1 & attributes ne$$ to s]ve deaf &
 h>d-(-he>+ newborns1 infants1 toddl]s1 
*ildr51 & _! families2  7,g7 ?ird-p>ty  
pay]s & manag$-c>e organizations2 &     
7,h7 relat$ comm]cial indu/ries4  7#b7  
,policy developm5t ,! ,adm9i/rator ( !  
,heal? ,res\rces & ,s]vices             
,adm9i/ration1 ! ,director ( ! ,c5t]s = 
,disease ,control & ,prev5tion1 & !     
,director ( ! ,national ,in/itutes (    
,heal? %all coord9ate & collaborate on  
recomm5dations = policy developm5t at ! 
,f$]al & ,/ate levels & ) ! private     
sector1 includ+ consum]1 m$ical1 & o!r  
heal? & education pr(essional-bas$      
organizations1 ) respect to newborn1    
infant1 & "y *ildhood he>+ scre5+1      
evaluation1 diagnosis1 & int]v5tion     
programs & sy/ems4  7#c7 ,/ate e>ly     
detection1 diagnosis1 & int]v5tion      
programs & sy/ems2 data collection ,!   
,adm9i/rator ( ! ,heal? ,res\rces &     
,s]vices ,adm9i/ration & ! ,director ( !
 ,c5t]s = ,disease ,control & ,prev5tion

 %all coord9ate & collaborate 9 assi/+  
,/ates-- 7,a7 to e/abli% newborn1       
infant1 & "y *ildhood he>+ scre5+1      
evaluation1 diagnosis1 & int]v5tion     
programs & sy/ems "u subsection 7a72 &  
7,b7 to develop a data collection sy/em 
"u subsection 7b74  7d7 ,rule (         
con/ruction2 religi\s accommodation     
,no?+ 9 ?is section %all be con/ru$ to  
preempt or prohibit any ,/ate law1      
includ+ ,/ate laws :i* d n require !    
scre5+ = he>+ loss ( newborns1 infants1 
or "y *ildr5 ( p>5ts :o object to !     
scre5+ on ! gr\nds t su* scre5+         
conflicts ) ! p>5ts' religi\s beliefs4  
7e7 ,def9itions ,= purposes ( ?is       
section3 7#a7 ,! t]m audiologic1 :5 us$ 
9 connection ) evaluation1 ref]s to     
proc$ures--  7,a7 to assess ! /atus ( ! 
auditory sy/em2  7,b7 to e/abli% ! site 
( ! auditory disord]1 ! type & degree ( 
he>+ loss1 & ! pot5tial effects ( he>+  
loss on communication2 &  7,c7 to       
id5tify appropriate treatm5t & ref]ral  
options1 includ+-- 7i7 l9kage to ,/ate  

coord9at+ ag5cies "u "p ,c ( !          
,individuals ) ,disabilities ,education 
,act 7#bj ,u4,s4,c4 #adca et seq47 or   
o!r appropriate ag5cies2  7ii7 m$ical   
evaluation2  7iii7 he>+ aid_/s5sory aid 
assessm5t2  7iv7 audiologic             
rehabilitation treatm5t2 &  7v7 ref]ral 
to national & local consum]1 self-help1 
p>5t1 & education organizations1 & o!r  
family-c5t]$ s]vices4  7#b7 ,! t]m e>ly 
int]v5tion ref]s to-- 7,a7 provid+      
appropriate s]vices = ! *ild :o is deaf 
or h>d ( he>+1 includ+ nonm$ical        
s]vices2 &  7,b7 ensur+ ! family ( !    
*ild is-- 7i7 provid$ compreh5sive1     
consum]-ori5t$ in=mation ab\t ! full    
range ( family support1 tra9+1 in=mation
 s]vices1 & language & communication    
options2 &  7ii7 giv5 ! opportunity to  
consid] & obta9 ! full range ( su*      
appropriate s]vices1 educational &      
program placem5ts1 & o!r options = _!   
*ild f highly qualifi$ provid]s4  7#c7  
,! t]m m$ical evaluation ref]s to key   
compon5ts p]=m$ by a physician1 includ+ 

hi/ory1 exam9ation1 & m$ical            
decisionmak+ focus$ on symptomatic &    
relat$ body sy/ems = ! purpose (        
diagnos+ ! etiology ( he>+ loss & relat$
 physical conditions1 & = id5tify+      
appropriate treatm5t & ref]ral options4 
7#d7 ,! t]m m$ical int]v5tion ref]s to !
 process by :i* a physician provides    
m$ical diagnosis & direction = m$ical or
 surgical treatm5t options = he>+ loss  
or relat$ m$ical disord]s4  7#e7 ,! t]m 
newborn1 infant1 & "y *ildhood he>+     
scre5+ ref]s to objective physiologic   
proc$ures to detect possible he>+ loss &
 to id5tify newborns1 infants1 & "y     
*ildr5 :o require fur!r audiologic      
evaluations & m$ical evaluations4  7f7  
,au?orization ( appropriations  7#a7    
,/atewide newborn1 infant1 & "y *ildhood
 he>+ scre5+1 evaluation & int]v5tion   
programs & sy/ems ,= ! purpose ( c>ry+  
out subsection 7a71 !re is au?oriz$ to  
be appropriat$ to ! ,heal? ,res\rces &  
,s]vices ,adm9i/ration #ag1hjj1jjj = ea*
 ( fiscal ye>s #bjaf ?r\gh #bjbj4  7#b7 

,te*nical assi/ance1 data managem5t1 &  
appli$ rese>*2 c5t]s = disease control &
 prev5tion ,= ! purpose ( c>ry+ out     
subsection 7b77#a71 !re is au?oriz$ to  
be appropriat$ to ! ,c5t]s = ,disease   
,control & ,prev5tion #aj1hjj1jjj = ea* 
( fiscal ye>s #bjaf ?r\gh #bjbj4  7#c7  
,te*nical assi/ance1 data managem5t1 &  
appli$ rese>*2 national in/itute on     
deafness & o!r communication disord]s   
,no additional funds are au?oriz$ to be 
appropriat$ = ! purpose ( c>ry+ out     
subsection 7b77#b74 ,su* subsection %all
 be c>ri$ out us+ funds :i* are o!rwise 
au?oriz$ 7"u section #djb;,a or o!r     
provisions ( law7 to be appropriat$ =   
su* purpose4  4  ,septemb] #h1 #bjae    
,report$ ) an am5dm5t1 committ$ to !    
,committee ( ! ,:ole ,h\se on ! ,/ate ( 
! ,union1 & ord]$ to be pr9t$