,,ib ,union ,calendar ,no4 #ahb #aadth ,,congress #ast ,session ,h4 ,r4 #acdd ,report ,no4 #aad-bda ,,in ,,the ,,house ,,of ,,representatives ,march #aj1 #bjae ,mr4 ,guthrie 7for himself and ,mrs4 ,capps7 introduced the following bill2 which was referred to the ,committee on ,energy and ,commerce ,september #h1 #bjae ,additional sponsors3 ,mr4 ,pierluisi1 ,mr4 ,mc,kinley1 ,mrs4 ,blackburn1 ,mr4 ,cummings1 ,mr4 ,roe of ,tennessee1 ,mr4 ,harris1 ,mr4 ,loebsack1 ,mr4 ,rigell1 ,mr4 ,johnson of ,ohio1 ,mr4 ,thompson of ,california1 ,mr4 ,stivers1 ,mrs4 ,beatty1 ,mr4 ,david ,scott of ,georgia1 ,mr4 ,rush1 ,ms4 ,schakowsky1 ,mr4 ,bilirakis1 ,mr4 ,burgess1 ,mr4 ,ryan of ,ohio1 ,mr4 ,olson1 ,mr4 ,pascrell1 ,mrs4 ,napolitano1 ,mrs4 ,ellmers of ,north ,carolina1 ,mr4 ,ben ,ray ,lujn of ,new ,mexico1 ,mr4 ,smith of ,nebraska1 ,mr4 ,smith of ,washington1 ,mr4 ,rangel1 and ,ms4 ,sinema ,september #h1 #bjae ,reported with an amendment1 committed to the ,committee of the ,whole ,house on the ,state of the ,union1 and ordered to be printed ,strike out all after the enacting clause and insert the part printed in italic ,for text of introduced bill1 see copy of bill as introduced on ,march #aj1 #bjae ,a ,,bill ,to amend the ,public ,health ,service ,act to reauthorize a program for early detection1 diagnosis1 and treatment regarding deaf and hard-of-hearing newborns1 infants1 and young children4 #a4 ,short title ,this ,act may cited as the ,early ,hearing ,detection and ,intervention ,act of #bjae4 #b4 ,findings ,the ,congress finds as follows3 7#a7 ,deaf and hard-of-hearing newborns1 infants1 toddlers1 and young children require access to specialized early intervention providers and programs in order to help them meet their linguistic and cognitive potential4 7#b7 ,families of deaf and hard-of-hearing newborns1 infants1 toddlers1 and young children benefit from comprehensive early intervention programs that assist them in supporting their child's development in all domains4 7#c7 ,best practices principles for early intervention for deaf and hard-of-hearing newborns1 infants1 toddlers1 and young children have been identified in a range of areas including listening and spoken language and visual and signed language acquisition1 family-to-family support1 support from individuals who are deaf or hard-of-hearing1 progress monitoring1 and others4 7#d7 ,effective hearing screening and early intervention programs must be in place to identify hearing levels in deaf and hard-of-hearing newborns1 infants1 toddlers1 and young children so that they may access appropriate early intervention programs in a timely manner4 #c4 ,reauthorization of program for early detection1 diagnosis1 and treatment regarding deaf and hard-of-hearing newborns1 infants1 and young children ,section #cii,m of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;g-#a7 is amended to read as follows3 #cii,m4 ,early ,detection1 ,diagnosis1 and ,treatment ,regarding ,deaf and ,hard-of-,hearing ,newborns1 ,infants1 and ,young ,children 7a7 ,health ,resources and ,services ,administration ,the ,secretary1 acting through the ,administrator of the ,health ,resources and ,services ,administration1 shall make awards of grants or cooperative agreements to develop statewide newborn1 infant1 and young childhood hearing screening1 diagnosis1 evaluation1 and intervention programs and systems1 and to assist in the recruitment1 retention1 education1 and training of qualified personnel and health care providers for the following purposes3 7#a7 ,to develop and monitor the efficacy of statewide programs and systems for hearing screening of newborns1 infants1 and young children1 prompt evaluation and diagnosis of children referred from screening programs1 and appropriate educational1 audiological1 and medical interventions for children confirmed to be deaf or hard-of-hearing1 consistent with the following3 7,a7 ,early intervention includes referral to and delivery of information and services by organizations such as schools and agencies 7including community1 consumer1 and parent-based agencies71 pediatric medical homes1 and other programs mandated by part ,c of the ,individuals with ,disabilities ,education ,act1 which offer programs specifically designed to meet the unique language and communication needs of deaf and hard-of-hearing newborns1 infants1 and young children4 7,b7 ,information provided to parents must be accurate1 comprehensive1 and1 where appropriate1 evidence-based1 allowing families to make important decisions for their child in a timely way1 including decisions relating to all possible assistive hearing technologies 7such as hearing aids1 cochlear implants1 and osseointegrated devices7 and communication options 7such as visual and sign language1 listening and spoken language1 or both74 7,c7 ,programs and systems under this paragraph shall offer mechanisms that foster family-to-family and deaf and hard-of-hearing consumer-to-family supports4 7#b7 ,to develop efficient models 7both educational and medical7 to ensure that newborns1 infants1 and young children who are identified through hearing screening receive followup by qualified early intervention providers1 qualified health care providers1 or pediatric medical homes 7including by encouraging ,state agencies to adopt such models74 7#c7 ,to provide for a technical resource center in conjunction with the ,maternal and ,child ,health ,bureau of the ,health ,resources and ,services ,administration-- 7,a7 to provide technical support and education for ,states2 and 7,b7 to continue development and enhancement of ,state early hearing detection and intervention programs4 7b7 ,technical assistance1 data management1 and applied research 7#a7 ,centers for ,disease ,control and ,prevention ,the ,secretary1 acting through the ,director of the ,centers for ,disease ,control and ,prevention1 shall make awards of grants or cooperative agreements to ,state agencies or their designated entities for development1 maintenance1 and improvement of data tracking and surveillance systems on newborn1 infant1 and young childhood hearing screenings1 audiologic evaluations1 medical evaluations1 and intervention services2 to conduct applied research related to services and outcomes1 and provide technical assistance related to newborn1 infant1 and young childhood hearing screening1 evaluation1 and intervention programs1 and information systems2 to ensure high-quality monitoring of hearing screening1 evaluation1 and intervention programs and systems for newborns1 infants1 and young children2 and to coordinate developing standardized procedures for data management and assessing program and cost effectiveness4 ,the awards under the preceding sentence may be used-- 7,a7 to provide technical assistance on data collection and management2 7,b7 to study and report on the costs and effectiveness of newborn1 infant1 and young childhood hearing screening1 evaluation1 diagnosis1 intervention programs1 and systems2 7,c7 to collect data and report on newborn1 infant1 and young childhood hearing screening1 evaluation1 diagnosis1 and intervention programs and systems that can be used-- 7i7 for applied research1 program evaluation1 and policy development2 and 7ii7 to answer issues of importance to ,state and national policymakers2 7,d7 to identify the causes and risk factors for congenital hearing loss2 7,e7 to study the effectiveness of newborn1 infant1 and young childhood hearing screening1 audiologic evaluations1 medical evaluations1 and intervention programs and systems by assessing the health1 intellectual and social developmental1 cognitive1 and hearing status of these children at school age2 and 7,f7 to promote the integration1 linkage1 and interoperability of data regarding early hearing loss and multiple sources to increase information exchanges between clinical care and public health including the ability of ,states and territories to exchange and share data4 7#b7 ,national ,institutes of ,health ,the ,director of the ,national ,institutes of ,health1 acting through the ,director of the ,national ,institute on ,deafness and ,other ,communication ,disorders1 shall1 for purposes of this section1 continue a program of research and development related to early hearing detection and intervention1 including development of technologies and clinical studies of screening methods1 efficacy of interventions1 and related research4 7c7 ,coordination and collaboration 7#a7 ,in general ,in carrying out programs under this section1 the ,administrator of the ,health ,resources and ,services ,administration1 the ,director of the ,centers for ,disease ,control and ,prevention1 and the ,director of the ,national ,institutes of ,health shall collaborate and consult with-- 7,a7 other ,federal agencies2 7,b7 ,state and local agencies1 including those responsible for early intervention services pursuant to title ,,xix of the ,social ,security ,act 7#db ,u4,s4,c4 #acif et seq47 7,medicaid ,early and ,periodic ,screening1 ,diagnosis and ,treatment ,program72 title ,,xxi of the ,social ,security ,act 7#db ,u4,s4,c4 #acig;aa et seq47 7,state ,children's ,health ,insurance ,program72 title ,v of the ,social ,security ,act 7#db ,u4,s4,c4 #gja et seq47 7,maternal and ,child ,health ,block ,grant ,program72 and part ,c of the ,individuals with ,disabilities ,education ,act 7#bj ,u4,s4,c4 #adca et seq472 7,c7 consumer groups of and that serve individuals who are deaf and hard-of-hearing and their families2 7,d7 appropriate national medical and other health and education specialty organizations2 7,e7 persons who are deaf and hard-of-hearing and their families2 7,f7 other qualified professional personnel who are proficient in deaf or hard-of-hearing children's language and who possess the specialized knowledge1 skills1 and attributes needed to serve deaf and hard-of-hearing newborns1 infants1 toddlers1 children1 and their families2 7,g7 third-party payers and managed-care organizations2 and 7,h7 related commercial industries4 7#b7 ,policy development ,the ,administrator of the ,health ,resources and ,services ,administration1 the ,director of the ,centers for ,disease ,control and ,prevention1 and the ,director of the ,national ,institutes of ,health shall coordinate and collaborate on recommendations for policy development at the ,federal and ,state levels and with the private sector1 including consumer1 medical1 and other health and education professional-based organizations1 with respect to newborn1 infant1 and young childhood hearing screening1 evaluation1 diagnosis1 and intervention programs and systems4 7#c7 ,state early detection1 diagnosis1 and intervention programs and systems2 data collection ,the ,administrator of the ,health ,resources and ,services ,administration and the ,director of the ,centers for ,disease ,control and ,prevention shall coordinate and collaborate in assisting ,states-- 7,a7 to establish newborn1 infant1 and young childhood hearing screening1 evaluation1 diagnosis1 and intervention programs and systems under subsection 7a72 and 7,b7 to develop a data collection system under subsection 7b74 7d7 ,rule of construction2 religious accommodation ,nothing in this section shall be construed to preempt or prohibit any ,state law1 including ,state laws which do not require the screening for hearing loss of newborns1 infants1 or young children of parents who object to the screening on the grounds that such screening conflicts with the parents' religious beliefs4 7e7 ,definitions ,for purposes of this section3 7#a7 ,the term audiologic1 when used in connection with evaluation1 refers to procedures-- 7,a7 to assess the status of the auditory system2 7,b7 to establish the site of the auditory disorder1 the type and degree of hearing loss1 and the potential effects of hearing loss on communication2 and 7,c7 to identify appropriate treatment and referral options1 including-- 7i7 linkage to ,state coordinating agencies under part ,c of the ,individuals with ,disabilities ,education ,act 7#bj ,u4,s4,c4 #adca et seq47 or other appropriate agencies2 7ii7 medical evaluation2 7iii7 hearing aid_/sensory aid assessment2 7iv7 audiologic rehabilitation treatment2 and 7v7 referral to national and local consumer1 self-help1 parent1 and education organizations1 and other family-centered services4 7#b7 ,the term early intervention refers to-- 7,a7 providing appropriate services for the child who is deaf or hard of hearing1 including nonmedical services2 and 7,b7 ensuring the family of the child is-- 7i7 provided comprehensive1 consumer-oriented information about the full range of family support1 training1 information services1 and language and communication options2 and 7ii7 given the opportunity to consider and obtain the full range of such appropriate services1 educational and program placements1 and other options for their child from highly qualified providers4 7#c7 ,the term medical evaluation refers to key components performed by a physician1 including history1 examination1 and medical decisionmaking focused on symptomatic and related body systems for the purpose of diagnosing the etiology of hearing loss and related physical conditions1 and for identifying appropriate treatment and referral options4 7#d7 ,the term medical intervention refers to the process by which a physician provides medical diagnosis and direction for medical or surgical treatment options for hearing loss or related medical disorders4 7#e7 ,the term newborn1 infant1 and young childhood hearing screening refers to objective physiologic procedures to detect possible hearing loss and to identify newborns1 infants1 and young children who require further audiologic evaluations and medical evaluations4 7f7 ,authorization of appropriations 7#a7 ,statewide newborn1 infant1 and young childhood hearing screening1 evaluation and intervention programs and systems ,for the purpose of carrying out subsection 7a71 there is authorized to be appropriated to the ,health ,resources and ,services ,administration #ag1hjj1jjj for each of fiscal years #bjaf through #bjbj4 7#b7 ,technical assistance1 data management1 and applied research2 centers for disease control and prevention ,for the purpose of carrying out subsection 7b77#a71 there is authorized to be appropriated to the ,centers for ,disease ,control and ,prevention #aj1hjj1jjj for each of fiscal years #bjaf through #bjbj4 7#c7 ,technical assistance1 data management1 and applied research2 national institute on deafness and other communication disorders ,no additional funds are authorized to be appropriated for the purpose of carrying out subsection 7b77#b74 ,such subsection shall be carried out using funds which are otherwise authorized 7under section #djb;,a or other provisions of law7 to be appropriated for such purpose4 4 ,september #h1 #bjae ,reported with an amendment1 committed to the ,committee of the ,whole ,house on the ,state of the ,union1 and ordered to be printed