,,iii #aac? ,,congress #a/ ,session ,s4 ,,res4 #caj ,,9 ,,! ,,s5ate ,,( ,,! ,,unit$ ,,/ates ,novemb] #ba1 #bjac,mr4 ,isakson 7= himself & ,ms4 ,baldw97 submitt$ ! foll[+ resolution2 :i* 0 ref]r$ to ! ,committee on ! ,judici>y ,,resolution ,designat+ ,decemb] #c1 #bjac1 z ,national ,ph5ylketonuria ,aw>5ess ,day4 ,:]eas ph5ylketonuria is a r>e1 inh]it$ metabolic disord] t is *>act]iz$ by ! inability ( ! body to process ! ess5tial am9o acid ph5ylalan9e & causes m5tal ret>dation & o!r neurological problems1 su* z memory loss & mood disord]s1 :5 treatm5t is n />t$ )9 ! fir/ few weeks ( life2 ,:]eas newborn scre5+ = ph5ylketonuria 0 initiat$ 9 ! ,unit$ ,/ates 9 #aifc & recomm5d$ = inclusion 9 ,/ate newborn scre5+ programs "u ! ,newborn ,scre5+ ,saves ,lives ,act ( #bjjg 7,public ,law #aaj-bjd2 #abb ,/at4 #gje72 ,:]eas approximately #a out ( e #ae1jjj infants 9 ! ,unit$ ,/ates is born ) ph5ylketonuria2 ,:]eas ! ,ph5ylketonuria ,sci5tific ,review ,conf]5ce 9 #bjab affirm$ ! recomm5dation ( lifelong diet>y treatm5t = ph5ylketonuria made by ! ,national ,in/itutes ( ,heal? ,cons5sus ,developm5t ,conf]5ce ,/atem5t #bjjj2 ,:]eas wom5 ) ph5ylketonuria mu/ ma9ta9 /rict metabolic control be=e & dur+ pregnancy to prev5t fetal damage2 ,:]eas a *ild born f an untreat$ "m ) ph5ylketonuria may h a condition kn[n z mat]nal ph5ylketonuria syndrome1 :i* c cause a small bra91 an intellectual disability1 bir? defects ( ! he>t1 & a l[ bir? weight2 ,:]eas ph5ylketonuria is treat$ ) m$ical food2 ,:]eas al?\gh !re is no cure = ph5ylketonuria1 treatm5t involv+ m$ical food & re/rict+ ph5ylalan9e intake c prev5t progressive1 irrev]sible bra9 damage2 ,:]eas ma9ta9+ a /rict m$ical diet = ph5ylketonuria c be difficult to a*ieve1 & poor metabolic control c result 9 a significant decl9e 9 m5tal & behavioral p]=mance2 ,:]eas access to heal? insurance cov]age = m$ical food v>ies across ! ,unit$ ,/ates2 ,:]eas ! long-t]m co/s associat$ ) c>+ = untreat$ *ildr5 & adults exce$ ! co/ ( provid+ m$ical food treatm5t2 ,:]eas sci5ti/s & rese>*]s are hopeful t break?r\ghs 9 ph5ylketonuria rese>* w be =?com+2 ,:]eas rese>*]s across ! ,unit$ ,/ates are conduct+ important rese>* projects involv+ ph5ylketonuria2 & ,:]eas ! ,s5ate is an in/itution t c raise aw>5ess ( ph5ylketonuria among ! g5]al public & ! m$ical community3 ,n[1 !re=e1 be x ,t ! ,s5ate-- 7#a7 designates ,decemb] #c1 #bjac1 z ,national ,ph5ylketonuria ,aw>5ess ,day2 7#b7 enc\rages all p 9 ! ,unit$ ,/ates to become m in=m$ ab\t ph5ylketonuria2 & 7#c7 respectfully reque/s t ! ,secret>y ( ! ,s5ate transmit a copy ( ?is resolution to ! ,national ,,pku ,alliance1 a non-pr(it organization d$icat$ to improv+ ! lives ( individuals ) ph5ylketonuria4