,,iii  #aac? ,,congress  #a/ ,session   
,s4 ,,res4 #aeb  ,,9 ,,! ,,s5ate ,,( ,,!
 ,,unit$ ,,/ates  ,may #bb1 #bjac ,mr4  
,c[an submitt$ ! foll[+ resolution2 :i* 
0 ref]r$ to ! ,committee on ,heal?1     
,education1 ,labor1 & ,p5sions          
,,resolution  ,designat+ ,novemb] #bh1  
#bjac1 z ,national ,holopros5cephaly    
,aw>5ess ,day to increase aw>5ess &     
education ( ! disord]4  ,:]eas          
,holopros5cephaly 7commonly kn[n z      
,,hpe7 is a bir? defect ( ! bra9 9 :i* !
 pros5cephalon 7also kn[n z ! embryonic 
=ebra97 does n suffici5tly develop into 
#b hemisph]es result+ 9 a s+le-lob$ bra9
 /ructure & sev]e skull & facial        
defects2 ,:]eas 9 mo/ cases ( ,,hpe1 !  
mal=mations are s sev]e t babies die    
be=e bir?2 ,:]eas 9 less sev]e cases (  
,,hpe1 babies are born ) normal or      
ne>-normal bra9 developm5t & facial     
de=mities t may affect ! eyes1 nose1 &  
upp] lip2 ,:]eas ! #c classifications ( 
,,hpe t v>y 9 sev]ity & impairm5t to    
cognitive abilities are ,alob> 79 :i* ! 

bra9 has n divid$ at all71 ,semilob> 79 
:i* ! hemisph]es ( ! bra9 h some:at     
divid$71 & ,lob> 79 :i* !re is          
consid]able evid5ce ( sep>ate bra9      
hemisph]es72 ,:]eas ,,hpe affects       
approximatley #a out ( e #bej           
pregnancies dur+ e>ly embryo developm5t1
 ) _m ( ^? pregnancies end+ 9           
misc>riage2 ,:]eas ,,hpe affects #a 9   
#aj1jjj-bj1jjj live bir?s2 ,:]eas !     
prognosis = a *ild diagnos$ ) ,,hpe     
dep5ds on ! sev]ity ( ! bra9 & facial   
mal=mations & associat$ cl9ical         
complications1 ) ! mo/ sev]ely affect$  
*ildr5 liv+ sev]al mon?s or ye>s & !    
lea/ affect$ *ildr5 liv+ a normal life  
span2 ,:]eas !re is no /&>d c\rse (     
treatm5t = ,,hpe because treatm5t mu/ be
 individualiz$ to ! unique degree (     
mal=mations ( ea* *ild2 ,:]eas ! ,f$]al 
,gov]nm5t1 act+ ?r\gh ! ,national       
,in/itutes ( ,heal? & ! ,national       
,in/itute ( ,neurological ,disord]s &   
,/rokes1 supports & conducts a wide     
range ( rese>* on normal bra9 developm5t

 & rec5t rese>* has id5tifi$ specific   
g5es t cause ,,hpe2 & ,:]eas ,novemb]   
#bh1 #bjac1 w\ld be an appropriate day  
to designate z ,national                
,holopros5cephaly ,aw>5ess ,day3 ,n[1   
!re=e1 be x  ,t ! ,s5ate--  7#a7        
supports ! designation ( ,novemb] #bh1  
#bjac1 z ,national ,holopros5cephaly    
,aw>5ess ,day2  7#b7 urges ,f$]al       
ag5cies--  7,a7 to cont9ue support+     
rese>* to bett] und]/& ! causes ( ,,hpe2
  7,b7 to provide bett] c\nsel+ to      
families ) ! g5etic =ms ( ,,hpe2 &  7,c7
 to develop new ways to treat1 &        
pot5tially prev5t1 ,,hpe2 &  7#c7 calls 
on ! p ( ! ,unit$ ,/ates1 int]e/$ gr\ps1
 & affect$ p]sons--  7,a7 to promote    
aw>5ess ( ,,hpe2  7,b7 to take an active
 role 9 ! fight to end ! deva/at+       
effects ( ,,hpe2 &  7,c7 to obs]ve      
,national ,holopros5cephaly ,aw>5ess    
,day ) appropriate c]emonies &          
activities4