,,ii  #aac? ,,congress  #a/ ,session    
,s4 #dbd  ,,9 ,,! ,,s5ate ,,( ,,!       
,,unit$ ,,/ates  ,febru>y #bh1 #bjac    
,mr4 ,br[n 7= himself1 ,mr4 ,wick]1 ,mr4
 ,blum5?al1 ,mr4 ,blunt1 ,ms4 ,coll9s1  
,mr4 ,portman1 & ,mr4 ,:iteh\se7        
introduc$ ! foll[+ bill2 :i* 0 read     
twice & ref]r$ to ! ,committee on       
,heal?1 ,education1 ,labor1 & ,p5sions  
,a ,,bill  ,to am5d title ,,iv ( !      
,public ,heal? ,s]vice ,act to provide =
 a ,national ,p$iatric ,rese>* ,network1
 includ+ ) respect to p$iatric r>e      
diseases or conditions4  #a4 ,%ort title
 ,?is ,act may be cit$ z ! ,national    
,p$iatric ,rese>* ,network ,act ( #bjac4
  #b4 ,national ,p$iatric ,rese>*       
,network ,section #dji;,d ( ! ,public   
,heal? ,s]vice ,act 7#db ,u4,s4,c4      
#bhd;h2 relat+ to ! ,p$iatric ,rese>*   
,initiative7 is am5d$--  7#a7 by        
r$esignat+ subsection 7d7 z subsection  
7f72 &  7#b7 by ins]t+ aft] subsection  
7c7 ! foll[+3  7d7 ,national ,p$iatric  
,rese>* ,network  7#a7 ,network ,9 c>ry+

 out ! ,initiative1 ! ,director ( ,,nih1
 9 consultation ) ! ,director ( !       
,eunice ,k5n$y ,%riv] ,national         
,in/itute ( ,*ild ,heal? & ,human       
,developm5t & 9 collaboration ) o!r     
appropriate national rese>* in/itutes & 
national c5t]s t c>ry out activities    
involv+ p$iatric rese>*1 may provide = !
 e/abli%m5t ( a ,national ,p$iatric     
,rese>* ,network consi/+ ( ! p$iatric   
rese>* consortia receiv+ aw>ds "u       
p>agraph 7#b74  7#b7 ,p$iatric rese>*   
consortia  7,a7 ,9 g5]al ,! ,director ( 
,,nih may aw>d fund+1 includ+ ?r\gh     
grants1 contracts or o!r me*anisms1 to  
public or private nonpr(it entities--   
7i7 = e/abli%+ or /r5g!n+ p$iatric      
rese>* consortia2 &  7ii7 = provid+     
support = su* consortia1 includ+ )      
respect to--  7,i7 basic1 cl9ical1      
behavioral1 or translational rese>* to  
meet unmet p$iatric rese>* ne$s2 &      
7,,ii7 tra9+ rese>*]s 9 p$iatric rese>* 
te*niques 9 ord] to address unmet       
p$iatric rese>* ne$s4  7,b7 ,rese>* ,!  

,director ( ,,nih may ensure t--  7i7   
ea* consortium receiv+ an aw>d "u       
subp>agraph 7,a7 conducts or supports at
 lea/ "o category ( rese>* describ$ 9   
subp>agraph 7,a77ii77,i7 & collectively 
su* consortia conduct or support all su*
 categories ( rese>*2 &  7ii7 "o or m   
su* consortia provide tra9+ describ$ 9  
subp>agraph 7,a77ii77,,ii74  7,c7 ,numb]
 ( consortia ,! ,director ( ,,nih may   
make aw>ds "u ?is p>agraph = n m ?an #h 
p$iatric rese>* consortia1 ) a m9imum ( 
"o p$iatric rese>* consortium t         
prioritizes collaboration ) in/itutions 
s]v+ rural areas4  7,d7 ,organization ( 
consortium ,ea* consortium receiv+ an   
aw>d "u subp>agraph 7,a7 %all--  7i7 be 
=m$ f a collaboration ( coop]at+        
in/itutions2  7ii7 be coord9at$ by a    
lead in/itution2 &  7iii7 meet su*      
requirem5ts z may be prescrib$ by !     
,director ( ,,nih4  7,e7 ,supplem5t1 n  
supplant ,any support receiv$ by a      
consortium "u subp>agraph 7,a7 %all be  
us$ to supplem5t1 & n supplant1 o!r     

public or private support = activities  
au?oriz$ to be support$ "u ?is p>agraph4
  7,f7 ,duration ( consortium support   
,support ( a consortium "u subp>agraph  
7,a7 may be = a p]iod ( n to exce$ #e   
ye>s4 ,su* p]iod may be ext5d$ at !     
discretion ( ! ,director ( ,,nih4  7#c7 
,coord9ation ( consortia activities ,!  
,director ( ,,nih %all--  7,a7 z        
appropriate1 provide = ! coord9ation (  
activities 7includ+ ! ex*ange (         
in=mation & regul> communication7 among 
! consortia e/abli%$ pursuant to        
p>agraph 7#b72 &  7,b7 z appropriate1   
require ! p]iodic prep>ation &          
submission to ! ,director ( reports on !
 activities ( ea* su* consortium4  7e7  
,rese>* on p$iatric r>e diseases or     
conditions  7#a7 ,9 g5]al ,9 mak+ aw>ds 
"u subsection 7d77#b7 = p$iatric rese>* 
consortia1 ! ,director ( ,,nih may      
ensure t an appropriate numb] ( su*     
aw>ds are aw>d$ to su* consortia t agree
 to--  7,a7 focus prim>ily on p$iatric  
r>e diseases or conditions 7includ+ any 

su* diseases or conditions t are g5etic 
disord]s or are relat$ to bir? defects72
 &  7,b7 conduct or coord9ate "o or m   
multisite cl9ical trials ( !rapies =1 or
 approa*es to1 ! prev5tion1 diagnosis1  
or treatm5t ( "o or m p$iatric r>e      
diseases or conditions4  4