,,ii #aacth ,,congress #b;d ,session ,s4 #bgdf ,,in ,,the ,,senate ,,of ,,the ,,united ,,states ,july #ca1 #bjad ,mr4 ,brown 7for himself and ,ms4 ,ayotte7 introduced the following bill2 which was read twice and referred to the ,committee on ,health1 ,education1 ,labor1 and ,pensions ,a ,,bill ,to amend the ,public ,health ,service ,act to improve the health of children and help better understand and enhance awareness about unexpected sudden death in early life4 #a4 ,short title ,this ,act may be cited as the ,sudden ,unexpected ,death ,data ,enhancement and ,awareness ,act4 #b4 ,stillbirth and sudden deaths in the young ,the ,public ,health ,service ,act is amended by inserting after section #cag,l of such ,act 7#db ,u4,s4,c4 #bdg;b-#ac7 the following3 #cag,l-#a4 ,stillbirth and sudden deaths in the young 7a7 ,stillbirth activities ,the ,secretary1 acting through the ,director of the ,centers for ,disease ,control and ,prevention1 shall continue to carry out activities of the ,centers relating to stillbirth1 including the following3 7#a7 ,surveillance 7,a7 ,in general ,the ,secretary shall provide for surveillance efforts to collect thorough1 complete1 and high-quality epidemiologic information on stillbirths1 including through the utilization of existing surveillance systems 7including the ,national ,vital ,statistics ,system 7,,nvss7 and other appropriately equipped birth defects surveillance programs74 7,b7 ,standard protocol for surveillance ,the ,secretary1 in consultation with qualified individuals and organizations determined appropriate by the ,secretary1 to include representatives of health and advocacy organizations1 ,state and local governments1 public health officials1 and health researchers1 shall-- 7i7 provide for the continued development and dissemination of a standard protocol for stillbirth data collection and surveillance2 and 7ii7 not less than every #e years1 review and1 as appropriate1 update such protocol4 7#b7 ,postmortem data collection and evaluation ,the ,secretary1 in consultation with qualified individuals and organizations determined appropriate by the ,secretary1 to include representatives of health professional organizations1 shall-- 7,a7 upon the enactment of this section1 and not less than every #e years thereafter1 review existing guidelines for increasing and improving the quality and completeness of postmortem stillbirth evaluation and related data collection1 including conducting and reimbursing autopsies1 placental histopathology1 and cytogenetic testing2 and 7,b7 develop strategies for implementing such guidelines and addressing any barriers to implementation of such guidelines4 7b7 ,sudden unexpected infant death activities ,the ,secretary1 acting through the ,director of the ,centers for ,disease ,control and ,prevention1 shall continue to carry out activities of the ,centers relating to sudden unexpected infant death 7,,suid71 including the following3 7#a7 ,surveillance 7,a7 ,in general ,the ,secretary shall provide for surveillance efforts to gather sociodemographic1 death scene investigation1 clinical history1 and autopsy information on ,,suid cases through the review of existing records on ,,suid1 including through the utilization of existing surveillance systems 7including the national child death review case reporting system and ,,suid case registries74 7,b7 ,standard protocol for surveillance ,the ,secretary1 in consultation with qualified individuals and organizations determined appropriate by the ,secretary1 to include representatives of health and advocacy organizations1 ,state and local governments1 and public health officials1 shall-- 7i7 provide for the continued development and dissemination of a standard protocol for ,,suid data reporting and surveillance2 and 7ii7 not less than every #e years1 review and1 as appropriate1 update such protocol4 7,c7 ,goals for enhancing surveillance ,in carrying out activities under this subsection1 the ,secretary shall seek to accomplish the following goals3 7i7 ,collecting thorough1 complete1 and high-quality death scene investigation data1 clinical history1 and autopsy findings4 7ii7 ,collecting standardized information about the environmental and medical circumstances of death 7including the sleep environment and quality of the death scene investigation74 7iii7 ,supporting multidisciplinary infant death reviews1 such as those performed by child death review committees1 to collect and review the information and classify and characterize ,,suid using a standardized classification system4 7iv7 ,facilitating the sharing of information to improve the public reporting of surveillance and vital statistics describing the epidemiology of ,,suid4 7#b7 ,standard protocol for death scene investigation 7,a7 ,in ,general ,the ,secretary1 in consultation with forensic pathologists1 medical examiners1 coroners1 medicolegal death scene investigators1 law enforcement personnel1 emergency medical technicians and paramedics1 public health agencies1 and other individuals and organizations determined appropriate by the ,secretary1 shall-- 7i7 provide for the continued dissemination of a standard death scene investigation protocol2 and 7ii7 not less than every #e years1 review and1 as appropriate1 update such protocol4 7,b7 ,content of ,death ,scene ,protocol ,the protocol disseminated under subparagraph 7,a7 shall include information on-- 7i7 the current and past medical history of the infant2 7ii7 family medical history2 7iii7 the circumstances surrounding the death1 including any suspicious circumstances2 7iv7 the sleep position and sleep environment of the infant2 and 7v7 any accidental or environmental factors associated with death4 7#c7 ,guidelines for a standard autopsy protocol ,the ,secretary1 in consultation with the ,attorney ,general of the ,united ,states1 forensic pathologists1 medical examiners1 coroners1 pediatric pathologists1 pediatric cardiologists1 pediatric neuropathologists1 geneticists1 infectious disease specialists1 and other individuals and organizations determined appropriate by the ,secretary1 shall-- 7,a7 develop guidelines for a standard autopsy protocol for ,,suid2 and 7,b7 not less than every #e years1 review and1 as appropriate1 update such guidelines4 7#d7 ,training ,the ,secretary1 in consultation with the ,attorney ,general of the ,united ,states1 may-- 7,a7 conduct or support-- 7i7 training activities for medical examiners1 coroners1 medicolegal death scene investigators1 law enforcement personnel1 and emergency medical technicians or paramedics concerning death scene investigations for ,,suid1 including the use of standard death scene investigation protocols disseminated under paragraph 7#b72 and 7ii7 training activities for medical examiners1 coroners1 and forensic pathologists concerning standard autopsy protocols for ,,suid developed under paragraph 7#c72 and 7,b7 make recommendations to health professional organizations regarding the integration of protocols disseminated or developed under this subsection1 and training conducted or supported under this paragraph1 into existing training and continuing education programs4 7c7 ,sudden unexplained death in childhood activities ,the ,secretary1 acting through the ,director of the ,centers for ,disease ,control and ,prevention1 shall continue to carry out activities of the ,centers relating to sudden unexpected death in childhood 7,,sudc71 including the following3 7#a7 ,surveillance ,the ,secretary1 in consultation with the ,director of the ,national ,institutes of ,health1 shall provide for surveillance efforts to gather sociodemographic1 death scene investigation1 clinical history1 and autopsy information on ,,sudc cases through the review of existing records on ,,sudc1 including through the utilization of existing surveillance systems 7including the ,sudden ,death in the ,young ,registry74 7#b7 ,guidelines for a standard autopsy protocol ,the ,secretary1 in consultation with the ,attorney ,general of the ,united ,states1 forensic pathologists1 medical examiners1 coroners1 pediatric pathologists1 pediatric cardiologists1 pediatric neuropathologists1 geneticists1 infectious disease specialists1 and other individuals and organizations determined appropriate by the ,secretary1 may-- 7,a7 develop guidelines for a standard autopsy protocol for ,,sudc2 and 7,b7 not less than every #e years1 review and1 as appropriate1 update such guidelines4 7#c7 ,review of applicability of programs and activities ,not later than #ah months after the date of enactment of this section1 the ,secretary1 acting through the ,director of the ,centers for ,disease ,control and ,prevention1 and in consultation with the ,director of the ,national ,institutes of ,health1 shall complete an evaluation of the possibility of carrying out or intensifying1 with respect to ,,sudc1 the types of programs and activities that are authorized to be carried out under subsection 7b7 with respect to ,,suid4 7d7 ,report to ,congress ,not later than #b years after the date of enactment of this ,act1 the ,secretary1 acting through the ,director of the ,centers for ,disease ,control and ,prevention1 shall submit to the ,congress a report on the implementation of this section4 ,such report shall include-- 7#a7 the results of the evaluation under subsection 7c77#c72 and 7#b7 a description of any activities that-- 7,a7 are being carried out by the ,centers for ,disease ,control and ,prevention in consultation with the ,national ,institutes of ,health relating to stillbirth1 ,,suid1 or ,,sudc2 and 7,b7 are in addition to the activities being carried out pursuant to this section4 7e7 ,definitions ,in this section3 7#a7 ,the term stillbirth means a spontaneous fetal death that-- 7,a7 occurs at #bj or more weeks gestation2 or 7,b7 if the age of the fetus is not known1 involves a fetus weighing #cej grams or more4 7#b7 ,the terms sudden unexpected infant death and ,,suid mean the death of an infant less than #a year of age-- 7,a7 which occurs suddenly and unexpectedly2 and 7,b7 whose cause-- 7i7 is not immediately obvious prior to investigation2 and 7ii7 is either explained upon investigation or remains unexplained4 7#c7 ,the terms sudden unexplained death in childhood and ,,sudc mean the sudden death of a child #a year of age or older which remains unexplained after a thorough case investigation that includes-- 7,a7 a review of the clinical history and circumstances of death2 and 7,b7 performance of a complete autopsy with appropriate ancillary testing4 7f7 ,funding ,this section shall not be construed to increase the amount of appropriations that are authorized to be appropriated for any fiscal year4 4