,,ii  #aac? ,,congress  #a/ ,session    
,s4 #bed  ,,9 ,,! ,,s5ate ,,( ,,!       
,,unit$ ,,/ates  ,febru>y #g1 #bjac ,mr4
 ,m55dez 7= himself & ,mr4 ,laut5b]g7   
introduc$ ! foll[+ bill2 :i* 0 read     
twice & ref]r$ to ! ,committee on       
,heal?1 ,education1 ,labor1 & ,p5sions  
,a ,,bill  ,to am5d title ,,iii ( !     
,public ,heal? ,s]vice ,act to au?orize 
& support ! creation ( c>diomyopa?y     
education1 aw>5ess1 & risk assessm5t    
mat]ials & res\rces by ! ,secret>y (    
,heal? & ,human ,s]vices ?r\gh ! ,c5t]s 
= ,disease ,control & ,prev5tion & !    
dissem9ation ( su* mat]ials & res\rces  
by ,/ate educational ag5cies to id5tify 
m at-risk families4  #a4 ,%ort title    
,?is ,act may be cit$ z ! ,c>diomyopa?y 
,heal? ,education1 ,aw>5ess1 ,risk      
,assessm5t1 & ,tra9+ 9 ! ,s*ools        
7,,he>ts7 ,act ( #bjac4  #b4 ,mat]ials &
 res\rces to increase education &       
aw>5ess ( c>diomyopa?y among s*ool      
adm9i/rators1 educators1 & families ,"p 
,p ( title ,,iii ( ! ,public ,heal?     

,s]vice ,act 7#db ,u4,s4,c4 #bhj;g et   
seq47 is am5d$ by add+ at ! end ! foll[+
 new section3  #cii,v-#f4 ,mat]ials &   
res\rces to increase education & aw>5ess
 ( c>diomyopa?y among s*ool             
adm9i/rators1 educators1 & families  7a7
 ,mat]ials & res\rces ,n lat] ?an #ah   
mon?s aft] ! date ( ! enactm5t ( ?is    
section1 ! ,secret>y ( ,heal? & ,human  
,s]vices 79 ?is section ref]r$ to z !   
,secret>y71 9 conjunction ) ! ,director 
( ! ,c5t]s = ,disease ,control &        
,prev5tion 79 ?is section ref]r$ to z ! 
,director7 & 9 consultation ) national  
pati5t advocacy & heal? pr(essional     
organizations exp]t 9 all =ms (         
c>diomyopa?y1 %all develop public       
education & aw>5ess mat]ials & res\rces 
to be dissem9at$ to s*ool adm9i/rators1 
educators1 s*ool heal? pr(essionals1    
coa*es1 families1 & o!r appropriate     
individuals4 ,! mat]ials & res\rces %all
 include--  7#a7 backgr\nd in=mation to 
increase education & aw>5ess (          
c>diomyopa?y & o!r relat$ causes ( sudd5

 c>diac dea? among s*ool adm9i/rators1  
educators1 & families2  7#b7 a          
c>diomyopa?y risk assessm5t work%eet =  
use by p>5ts1 gu>dians1 or o!r c>egiv]s2
  7#c7 guidel9es reg>d+ ! placem5t (    
automat$ ext]nal defibrillators 9 s*ools
 & *ild c>e c5t]s2  7#d7 tra9+ in=mation
 on automat$ ext]nal defibrillators &   
c>diopulmon>y resuscitation2 &  7#e7    
recomm5dations = h[ s*ools & *ild c>e   
c5t]s c develop & implem5t a c>diac     
em]g5cy response plan4  7b7 ,developm5t 
( mat]ials & res\rces ,! ,secret>y1     
?r\gh ! ,director1 %all develop & update
 z necess>y & appropriate ! mat]ials &  
res\rces "u subsection 7a7 &1 9 support 
( su* ef=t1 ! ,secret>y is enc\rag$ to--
  7#a7 e/abli% an advisory panel compos$
 (--  7,a7 repres5tatives f multiple    
national pati5t advocacy organizations &
 m$ical pr(essionals exp]t 9 all =ms (  
c>diomyopa?y2  7,b7 a repres5tative f ! 
,c5t]s = ,disease ,control & ,prev5tion2
 &  7,c7 repres5tatives f o!r relevant  
,f$]al ag5cies2 &  7#b7 engage 9 a      

memor&um ( und]/&+ or coop]ative        
agreem5t ) a national nonpr(it advocacy 
organization exp]t 9 all =ms (          
c>diomyopa?y4  7c7 ,dissem9ation (      
mat]ials & res\rces ,n lat] ?an #cj     
mon?s aft] ! date ( ! enactm5t ( ?is    
section1 ! ,secret>y1 ?r\gh ! ,director1
 %all dissem9ate ! mat]ials & res\rces  
"u subsection 7a7 9 accordance ) !      
foll[+3  7#a7 ,di/ribution by ,/ate     
education ag5cies ,! ,secret>y %all make
 available su* mat]ials & res\rces to   
,/ate educational ag5cies to di/ribute--
  7,a7 to s*ool adm9i/rators1 educators1
 s*ool heal? pr(essionals1 coa*es &     
p>5ts1 gu>dians1 or o!r c>egiv]s1 !     
c>diomyopa?y education & aw>5ess        
mat]ials & res\rces "u subsection 7a72  
7,b7 to p>5ts1 gu>dians1 or o!r         
c>egiv]s1 ! c>diomyopa?y risk assessm5t 
work%eet describ$ 9 subsection 7a77#b72 
&  7,c7 to s*ool adm9i/rators & s*ool   
heal? pr(essionals1 !--  7i7 guidel9es  
describ$ 9 subsection 7a77#c72  7ii7    
tra9+ in=mation describ$ 9 subsection   

7a77#d72 &  7iii7 recomm5dations        
describ$ 9 subsection 7a77#e74  7#b7    
,dissem9ation to heal? dep>tm5ts &      
pr(essionals ,! ,secret>y %all make     
available su* mat]ials & res\rces to    
,/ate & local heal? dep>tm5ts1          
p$iatricians1 hospitals1 & o!r heal?    
pr(essionals1 su* z nurses & fir/       
respond]s4  7#c7 ,po/+ on website  7,a7 
,,cdc  7i7 ,9 g5]al ,! ,secret>y1 ?r\gh 
! ,director1 %all po/ ! mat]ials &      
res\rces develop$ "u subsection 7a7 on !
 public ,int]net website ( ! ,c5t]s =   
,disease ,control & ,prev5tion4  7ii7   
,additional in=mation ,! ,director is   
enc\rag$ to ma9ta9 on su* public        
,int]net website su* additional         
in=mation reg>d+ c>diomyopa?y z deem$   
appropriate by ! ,director4  7,b7 ,/ate 
education ag5cies ,/ate educational     
ag5cies are enc\rag$ to create public   
,int]net webpages d$icat$ to            
c>diomyopa?y & po/ ! mat]ials & res\rces
 develop$ "u subsection 7a7 on su*      
webpages4  7d7 ,report to ,congress ,n  

lat] ?an #a ye> aft] ! date ( ! enactm5t
 ( ?is section1 & annually !reaft]1 !   
,secret>y %all submit to ,congress a    
report id5tify+ ! /eps tak5 to increase 
public education & aw>5ess (            
c>diomyopa?y z outl9$ "u ?is section4   
7e7 ,def9itions ,= purposes ( ?is       
section3  7#a7 ,c>diomyopa?y ,! t]m     
c>diomyopa?y means a r>e he>t condition1
 :i* is a disease ( ! he>t muscle       
7myoc>dium7--  7,a7 ! symptoms ( :i* may
 v>y f case to case1 includ+--  7i7 9 "s
 cases1 ! pres5tation ( no symptoms     
7asymptomatic72  7ii7 9 _m cases1 !     
symptoms ( a progressive condition t may
 result 9 an impair$ ability ( ! he>t to
 pump blood1 fatigue1 irregul>          
he>t-beats 7arrhy?mia71 &1 pot5tially1  
sudd5 c>diac dea? or he>t failure2 &    
7,b7 ! recogniz$ types ( :i* include    
dilat$1 hyp]trophic1 re/rictive1        
arrhy?mog5ic "r v5tricul> dysplasia1 &  
left v5tricul> noncompaction4  7#b7     
,s*ool adm9i/rators ,! t]m s*ool        
adm9i/rator means a pr9cipal1 director1 

manag]1 or o!r sup]visor or lead] )9 an 
elem5t>y s*ool or second>y s*ool 7z su* 
t]ms are def9$ "u section #iaja ( !     
,elem5t>y & ,second>y ,education ,act ( 
#aife 7#bj ,u4,s4,c4 #ghja771 ,/ate-bas$
 e>ly education program1 or *ild c>e    
c5t]4  7#c7 ,s*ools ,! t]m s*ool means  
an e>ly education program1 *ild c>e     
c5t]1 or elem5t>y s*ool or second>y     
s*ool 7z su* t]ms are s def9$74  7#d7   
,national nonpr(it advocacy             
organizations exp]t 9 all =ms (         
c>diomyopa?y ,! t]m national nonpr(it   
advocacy organizations exp]t 9 all =ms (
 c>diomyopa?y means organizations t     
provide support s]vices to families or  
fund rese>*1 & "w to increase public    
aw>5ess & education reg>d+ all types (  
c>diomyopa?y4  7f7 ,au?orization (      
appropriations ,to c>ry out ?is section1
 !re are au?oriz$ to be appropriat$     
#a1jjj1jjj = fiscal ye> #bjad1 #gej1jjj 
= fiscal ye> #bjae1 & #ejj1jjj = ea* (  
fiscal ye>s #bjaf ?r\gh #bjah4  4