,,ii  #aacth ,,congress  #ast ,session  
,s4 #abdg  ,,in ,,the ,,senate ,,of     
,,the ,,united ,,states  ,june #bg1     
#bjac ,mr4 ,reed introduced the         
following bill2 which was read twice and
 referred to the ,committee on ,health1 
,education1 ,labor1 and ,pensions  ,a   
,,bill  ,to improve and enhance research
 and programs on childhood cancer       
survivorship1 and for other purposes4   
#a4 ,short title ,this ,act may be cited
 as the ,pediatric1 ,adolescent1 and    
,young ,adult ,cancer ,survivorship     
,research and ,quality of ,life ,act of 
#bjac4  #b4 ,findings ,congress finds as
 follows3  7#a7 ,an estimated #ac1ejj   
children and adolescents under age #bj  
are diagnosed with cancer each year4    
7#b7 ,in #aifj1 only #d percent of      
children with cancer survived more than 
#e years1 but by #bjaa1 cure rates have 
increased to #gh percent for children   
and adolescents under age #bj4  7#c7 ,as
 of ,june #bjac1 there are more than    
#cfj1jjj childhood cancer survivors     

living in the ,united ,states4  7#d7 ,as
 many as #b_/c of childhood cancer      
survivors are likely to experience at   
least one late effect of treatment1 with
 as many as #a_/d experiencing a late   
effect that is serious or               
life-threatening4 ,the most common late 
effects of childhood cancer are         
neurocognitive1 psychological1          
cardiopulmonary1 endocrine1 and         
musculoskeletal effects and secondary   
malignancies4  7#e7 ,the late effects of
 cancer treatment may change as         
treatments evolve1 which means that the 
monitoring and treatment of cancer      
survivors may need to be modified on a  
routine basis4  7#f7 ,the ,institute of 
,medicine1 in its report on cancer      
survivorship entitled ,childhood ,cancer
 ,survivorship3 ,improving ,care and    
,quality of ,life1 states that an       
organized system of care and a method of
 care for pediatric cancer survivors is 
needed4  #c4 ,cancer survivorship       
programs  7a7 ,cancer survivorship      

programs ,subpart #a of part ,c of title
 ,,iv of the ,public ,health ,service   
,act 7#db ,u4,s4,c4 #bhe et seq47 is    
amended by adding at the end the        
following3  #dag;,h4 ,pilot programs to 
explore model systems of care for       
pediatric cancer survivors  7a7 ,in     
general ,the ,secretary may make grants 
to eligible entities to establish pilot 
programs to develop1 study1 or evaluate 
model systems for monitoring and caring 
for childhood cancer survivors4  7b7    
,eligible entities ,in this section1 the
 term eligible entity means--  7#a7 a   
medical school2  7#b7 a children's      
hospital2  7#c7 a cancer center2 or     
7#d7 any other entity with significant  
experience and expertise in treating    
survivors of childhood cancers4  7c7    
,use of funds ,the ,secretary may make a
 grant under this section to an eligible
 entity only if the entity agrees--     
7#a7 to use the grant to establish a    
pilot program to develop1 study1 or     
evaluate one or more model systems for  

monitoring and caring for cancer        
survivors2 and  7#b7 in developing1     
studying1 and evaluating such systems1  
to give special emphasis to--  7,a7 the 
design of protocols for different models
 of follow-up care1 monitoring1 and     
other survivorship programs 7including  
peer support and mentoring programs72   
7,b7 the development of various models  
for providing multidisciplinary care2   
7,c7 the dissemination of information   
and the provision of training to health 
care providers about how to provide     
linguistically and culturally competent 
follow-up care and monitoring to cancer 
survivors and their families2  7,d7 the 
development of support programs to      
improve the quality of life of cancer   
survivors2  7,e7 the design of systems  
for the effective transfer of treatment 
information and care summaries from     
cancer care providers to other health   
care providers 7including risk factors  
and a plan for recommended follow-up    
care72  7,f7 the dissemination of the   

information and programs described in   
subparagraphs 7,a7 through 7,e7 to other
 health care providers 7including       
primary care physicians and internists7 
to cancer survivors and their families1 
where appropriate2 and  7,g7 the        
development of initiatives that promote 
the coordination and effective          
transition of care between cancer care  
providers1 primary care physicians1 and 
mental health professionals4  7d7       
,authorization of appropriations ,there 
are authorized to be appropriated to    
carry out this section #ae1jjj1jjj for  
each of fiscal years #bjad through      
#bjah4  #dag;,h-#a4 ,workforce          
development collaborative on medical and
 psychosocial care for childhood cancer 
survivors  7a7 ,in general ,not later   
than #a year after the date of enactment
 of the ,pediatric1 ,adolescent1 and    
,young ,adult ,cancer ,survivorship     
,research and ,quality of ,life ,act of 
#bjac1 the ,secretary may convene a     
,workforce ,development ,collaborative  

on ,medical and ,psychosocial ,care for 
,pediatric ,cancer ,survivors 7referred 
to in this section as the               
,collaborative74 ,the ,collaborative    
shall be a cross-specialty1             
multidisciplinary group composed of     
educators1 consumer and family          
advocates1 and providers of psychosocial
 and biomedical health services4  7b7   
,goals and reports ,the ,collaborative  
shall submit to the ,secretary a report 
establishing a plan to meet the         
following objectives for medical and    
psychosocial care workforce development3
  7#a7 ,identifying1 refining1 and      
broadly disseminating to healthcare     
educators information about workforce   
competencies1 models1 and preservices   
curricula relevant to providing medical 
and psychosocial services to individuals
 with pediatric cancers4  7#b7 ,adapting
 curricula for continuing education of  
the existing workforce using efficient  
workplace-based learning approaches4    
7#c7 ,developing the skills of faculty  

and other trainers in teaching          
psychosocial health care using          
evidence-based teaching strategies4     
7#d7 ,strengthening the emphasis on     
psychosocial healthcare in educational  
accreditation standards and professional
 licensing and certification exams by   
recommending revisions to the relevant  
oversight organizations4  7#e7          
,evaluating the effectiveness of patient
 navigators in pediatric cancer         
survivorship care4  7#f7 ,evaluating the
 effectiveness of peer support programs 
in the psychosocial care of pediatric   
cancer patients and survivors4  7c7     
,authorization of appropriations ,there 
are authorized to be appropriated to    
carry out this section #e1jjj1jjj for   
each of fiscal years #bjad through      
#bjah4  4  7b7 ,technical amendment     
7#a7 ,in general ,section #c of the     
,hematological ,cancer ,research        
,investment and ,education ,act of #bjjb
 7,public ,law #ajg-agb2 #aaf ,stat4    
#eda7 is amended by striking section    

#dai;,c and inserting section #dag;,c4  
7#b7 ,effective date ,the amendment made
 by paragraph 7#a7 shall take effect as 
if included in section #c of the        
,hematological ,cancer ,research        
,investment and ,education ,act of #bjjb
 7,public ,law #ajg-agb2 #aaf ,stat4    
#eda74