,,iv #aac? ,,congress #b;d ,session ,h4 ,,res4 #eac ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,m>* #aa1 #bjad ,mr4 ,rupp]sb]g] submitt$ ! foll[+ resolution2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,,resolution ,support+ ! goals & ideals ( ! week ( ,may #c1 #bjad1 ?r\gh ,may #aj1 #bjad1 z ,national ,o/eog5esis ,imp]fecta ,aw>5ess ,week to celebrate ! progress made1 & recognize ! "w yet to be done t[>d educat+ our communities1 promot+ rese>* programs & rais+ vital res\rces = doctors1 nurses1 & heal?c>e provid]s & ev]yone t\*$ by ! ,o/eog5esis ,imp]fecta community4 ,:]eas ,o/eog5esis ,imp]fecta 7,,oi71 also kn[n z brittle bone disease is a g5etic disord] *>act]iz$ by fragile bones t break easily2 ,:]eas ! numb] ( p 9 ! ,unit$ ,/ates affect$ ) ,,oi is e/imat$ to be #be1jjj to #ej1jjj2 ,:]eas a p]son ) mild ,,oi may exp]i5ce a few fractures :ile ^? ) ! sev]e =ms may h hundr$s 9 a lifetime2 ,:]eas ,,oi occurs ) equal frequ5cy among males & females & among all racial & e?nic gr\ps2 ,:]eas at ?is "t1 !re is no cure2 ,:]eas x is ?\ght t ,,oi causes _m o!r s]i\s *ronic m$ical conditions su* z muscle weakness1 jo9t laxity1 fragile sk91 he>+ loss1 brittle tee?1 fatigue1 easy ble$+ & bruis+1 scoliosis1 pulmon>y disease1 & c>diovascul> disease2 ,:]eas exp]i5c$ m$ical c>e = ,,oi is limit$2 ,:]eas a p]son is born ) ?is disord] & is affect$ ?r\gh\t 8 or h] lifetime2 ,:]eas despite ! *all5ges ( manag+ ,,oi1 mo/ adults & *ildr5 :o h ,,oi lead productive & successful lives2 & ,:]eas ,may #c1 #bjad1 ?r\gh ,may #aj1 #bjad1 has be5 designat$ by ! ,o/eog5esis ,imp]fecta ,f\ndation z ,national ,o/eog5esis ,imp]fecta ,aw>5ess ,week3 ,n[1 !re=e1 be x ,t ! ,h\se ( ,repres5tatives-- 7#a7 supports-- 7,a7 ! goals & ideals ( ,national ,o/eog5esis ,imp]fecta ,aw>5ess ,week2 7,b7 ef=ts to educate ! p 9 ! ,unit$ ,/ates ab\t ,o/eog5esis ,imp]fecta2 7,c7 ef=ts to promote rese>*2 & 7,d7 ef=ts 9 rais+ vital res\rces = doctors1 nurses1 & heal? c>e provid]s2 7#b7 recognizes ! critical importance ( ^! goals & ef=ts z "p ( wellness /rategies2 & 7#c7 calls on ! p ( ! ,unit$ ,/ates to obs]ve ,national ,o/eog5esis ,imp]fecta ,aw>5ess ,week ) appropriate programs & activities4