,,iv  #aacth ,,congress  #b;d ,session  
,h4 ,,res4 #eac  ,,in ,,the ,,house ,,of
 ,,representatives  ,march #aa1 #bjad   
,mr4 ,ruppersberger submitted the       
following resolution2 which was referred
 to the ,committee on ,energy and       
,commerce  ,,resolution  ,supporting the
 goals and ideals of the week of ,may   
#c1 #bjad1 through ,may #aj1 #bjad1 as  
,national ,osteogenesis ,imperfecta     
,awareness ,week to celebrate the       
progress made1 and recognize the work   
yet to be done toward educating our     
communities1 promoting research programs
 and raising vital resources for        
doctors1 nurses1 and healthcare         
providers and everyone touched by the   
,osteogenesis ,imperfecta community4    
,whereas ,osteogenesis ,imperfecta      
7,,oi71 also known as brittle bone      
disease is a genetic disorder           
characterized by fragile bones that     
break easily2 ,whereas the number of    
people in the ,united ,states affected  
with ,,oi is estimated to be #be1jjj to 

#ej1jjj2 ,whereas a person with mild    
,,oi may experience a few fractures     
while those with the severe forms may   
have hundreds in a lifetime2 ,whereas   
,,oi occurs with equal frequency among  
males and females and among all racial  
and ethnic groups2 ,whereas at this     
time1 there is no cure2 ,whereas it is  
thought that ,,oi causes many other     
serious chronic medical conditions such 
as muscle weakness1 joint laxity1       
fragile skin1 hearing loss1 brittle     
teeth1 fatigue1 easy bleeding and       
bruising1 scoliosis1 pulmonary disease1 
and cardiovascular disease2 ,whereas    
experienced medical care for ,,oi is    
limited2 ,whereas a person is born with 
this disorder and is affected throughout
 his or her lifetime2 ,whereas despite  
the challenges of managing ,,oi1 most   
adults and children who have ,,oi lead  
productive and successful lives2 and    
,whereas ,may #c1 #bjad1 through ,may   
#aj1 #bjad1 has been designated by the  
,osteogenesis ,imperfecta ,foundation as

 ,national ,osteogenesis ,imperfecta    
,awareness ,week3 ,now1 therefore1 be it
  ,that the ,house of ,representatives--
  7#a7 supports--  7,a7 the goals and   
ideals of ,national ,osteogenesis       
,imperfecta ,awareness ,week2  7,b7     
efforts to educate the people in the    
,united ,states about ,osteogenesis     
,imperfecta2  7,c7 efforts to promote   
research2 and  7,d7 efforts in raising  
vital resources for doctors1 nurses1 and
 health care providers2  7#b7 recognizes
 the critical importance of these goals 
and efforts as part of wellness         
strategies2 and  7#c7 calls on the      
people of the ,united ,states to observe
 ,national ,osteogenesis ,imperfecta    
,awareness ,week with appropriate       
programs and activities4