#aac? ,,congress  #b;d ,session  ,h4 ,r4
 #ffi  ,,an ,,act  ,to am5d ! ,public   
,heal? ,s]vice ,act to improve ! heal? (
 *ildr5 & help bett] und]/& & enhance   
aw>5ess ab\t unexpect$ sudd5 dea? 9 e>ly
 life4  #a4 ,%ort title ,?is ,act may be
 cit$ z ! ,sudd5 ,unexpect$ ,dea? ,data 
,enhancem5t & ,aw>5ess ,act4  #b4       
,/illbir? & sudd5 dea?s 9 ! "y ,!       
,public ,heal? ,s]vice ,act is am5d$ by 
ins]t+ aft] section #cag,l ( su* ,act   
7#db ,u4,s4,c4 #bdg;b-#ac7 ! foll[+3    
#cag,l-#a4 ,/illbir? & sudd5 dea?s 9 !  
"y  7a7 ,/illbir? activities ,!         
,secret>y1 act+ ?r\gh ! ,director ( !   
,c5t]s = ,disease ,control & ,prev5tion1
 %all cont9ue to c>ry out activities ( !
 ,c5t]s relat+ to /illbir?1 includ+ !   
foll[+3  7#a7 ,surveillance  7,a7 ,9    
g5]al ,! ,secret>y %all provide =       
surveillance ef=ts to collect ?or\gh1   
complete1 & high-quality epidemiologic  
in=mation on /illbir?s1 includ+ ?r\gh ! 
utilization ( exi/+ surveillance sy/ems 
7includ+ ! ,national ,vital ,/ati/ics   

,sy/em 7,,nvss7 & o!r appropriately     
equipp$ bir? defects surveillance       
programs74  7,b7 ,/&>d protocol =       
surveillance ,! ,secret>y1 9            
consultation ) qualifi$ individuals &   
organizations det]m9$ appropriate by !  
,secret>y1 to include repres5tatives (  
heal? & advocacy organizations1 ,/ate & 
local gov]nm5ts1 public heal? (ficials1 
& heal? rese>*]s1 %all--  7i7 provide = 
! cont9u$ developm5t & dissem9ation ( a 
/&>d protocol = /illbir? data collection
 & surveillance2 &  7ii7 n less ?an e #e
 ye>s1 review &1 z appropriate1 update  
su* protocol4  7#b7 ,po/mortem data     
collection & evaluation ,! ,secret>y1 9 
consultation ) qualifi$ individuals &   
organizations det]m9$ appropriate by !  
,secret>y1 to include repres5tatives (  
heal? pr(essional organizations1 %all-- 
7,a7 ^u ! enactm5t ( ?is section1 & n   
less ?an e #e ye>s !reaft]1 review exi/+
 guidel9es = increas+ & improv+ !       
quality & complet5ess ( po/mortem       
/illbir? evaluation & relat$ data       

collection1 includ+ conduct+ & reimburs+
 autopsies1 plac5tal hi/opa?ology1 &    
cytog5etic te/+2 &  7,b7 develop        
/rategies = implem5t+ su* guidel9es &   
address+ any b>ri]s to implem5tation (  
su* guidel9es4  7b7 ,sudd5 unexpect$    
infant dea? activities ,! ,secret>y1    
act+ ?r\gh ! ,director ( ! ,c5t]s =     
,disease ,control & ,prev5tion1 %all    
cont9ue to c>ry out activities ( !      
,c5t]s relat+ to sudd5 unexpect$ infant 
dea? 7,,suid71 includ+ ! foll[+3  7#a7  
,surveillance  7,a7 ,9 g5]al ,!         
,secret>y %all provide = surveillance   
ef=ts to ga!r sociodemographic1 dea?    
sc5e inve/igation1 cl9ical hi/ory1 &    
autopsy in=mation on ,,suid cases ?r\gh 
! review ( exi/+ records on ,,suid1     
includ+ ?r\gh ! utilization ( exi/+     
surveillance sy/ems 7includ+ ! national 
*ild dea? review case report+ sy/em &   
,,suid case regi/ries74  7,b7 ,/&>d     
protocol = surveillance ,! ,secret>y1 9 
consultation ) qualifi$ individuals &   
organizations det]m9$ appropriate by !  

,secret>y1 to include repres5tatives (  
heal? & advocacy organizations1 ,/ate & 
local gov]nm5ts1 & public heal?         
(ficials1 %all--  7i7 provide = !       
cont9u$ developm5t & dissem9ation ( a   
/&>d protocol = ,,suid data report+ &   
surveillance2 &  7ii7 n less ?an e #e   
ye>s1 review &1 z appropriate1 update   
su* protocol4  7,c7 ,goals = enhanc+    
surveillance ,9 c>ry+ out activities "u 
?is subsection1 ! ,secret>y %all seek to
 accompli% ! foll[+ goals3  7i7         
,collect+ ?or\gh1 complete1 &           
high-quality dea? sc5e inve/igation     
data1 cl9ical hi/ory1 & autopsy f9d+s4  
7ii7 ,collect+ /&>diz$ in=mation ab\t ! 
environm5tal & m$ical circum/ances (    
dea? 7includ+ ! sleep environm5t &      
quality ( ! dea? sc5e inve/igation74    
7iii7 ,support+ multidiscipl9>y infant  
dea? reviews1 su* z ^? p]=m$ by *ild    
dea? review committees1 to collect &    
review ! in=mation & classify &         
*>act]ize ,,suid us+ a /&>diz$          
classification sy/em4  7iv7 ,facilitat+ 

! %>+ ( in=mation to improve ! public   
report+ ( surveillance & vital /ati/ics 
describ+ ! epidemiology ( ,,suid4  7#b7 
,/&>d protocol = dea? sc5e inve/igation 
7,a7 ,9 ,g5]al ,! ,secret>y1 9          
consultation ) =5sic pa?ologi/s1 m$ical 
exam9]s1 coron]s1 m$icolegal dea? sc5e  
inve/igators1 law en=cem5t p]sonnel1    
em]g5cy m$ical te*nicians & p>am$ics1   
public heal? ag5cies1 & o!r individuals 
& organizations det]m9$ appropriate by !
 ,secret>y1 %all--  7i7 provide = !     
cont9u$ dissem9ation ( a /&>d dea? sc5e 
inve/igation protocol2 &  7ii7 n less   
?an e #e ye>s1 review &1 z appropriate1 
update su* protocol4  7,b7 ,cont5t (    
,dea? ,sc5e ,protocol ,! protocol       
dissem9at$ "u subp>agraph 7,a7 %all     
include in=mation on--  7i7 ! curr5t &  
pa/ m$ical hi/ory ( ! infant2  7ii7     
family m$ical hi/ory2  7iii7 !          
circum/ances surr\nd+ ! dea?1 includ+   
any suspici\s circum/ances2  7iv7 !     
sleep position & sleep environm5t ( !   
infant2 &  7v7 any accid5tal or         

environm5tal factors associat$ ) dea?4  
7#c7 ,guidel9es = a /&>d autopsy        
protocol ,! ,secret>y1 9 consultation ) 
! ,attorney ,g5]al ( ! ,unit$ ,/ates1   
=5sic pa?ologi/s1 m$ical exam9]s1       
coron]s1 p$iatric pa?ologi/s1 p$iatric  
c>diologi/s1 p$iatric neuropa?ologi/s1  
g5etici/s1 infecti\s disease speciali/s1
 & o!r individuals & organizations      
det]m9$ appropriate by ! ,secret>y1     
%all--  7,a7 develop guidel9es = a /&>d 
autopsy protocol = ,,suid2 &  7,b7 n    
less ?an e #e ye>s1 review &1 z         
appropriate1 update su* guidel9es4  7#d7
 ,tra9+ ,! ,secret>y1 9 consultation ) !
 ,attorney ,g5]al ( ! ,unit$ ,/ates1    
may--  7,a7 conduct or support--  7i7   
tra9+ activities = m$ical exam9]s1      
coron]s1 m$icolegal dea? sc5e           
inve/igators1 law en=cem5t p]sonnel1 &  
em]g5cy m$ical te*nicians or p>am$ics   
conc]n+ dea? sc5e inve/igations =       
,,suid1 includ+ ! use ( /&>d dea? sc5e  
inve/igation protocols dissem9at$ "u    
p>agraph 7#b72 &  7ii7 tra9+ activities 

= m$ical exam9]s1 coron]s1 & =5sic      
pa?ologi/s conc]n+ /&>d autopsy         
protocols = ,,suid develop$ "u p>agraph 
7#c72 &  7,b7 make recomm5dations to    
heal? pr(essional organizations reg>d+ !
 integration ( protocols dissem9at$ or  
develop$ "u ?is subsection1 & tra9+     
conduct$ or support$ "u ?is p>agraph1   
into exi/+ tra9+ & cont9u+ education    
programs4  7c7 ,sudd5 unexpla9$ dea? 9  
*ildhood activities ,! ,secret>y1 act+  
?r\gh ! ,director ( ! ,c5t]s = ,disease 
,control & ,prev5tion1 %all cont9ue to  
c>ry out activities ( ! ,c5t]s relat+ to
 sudd5 unexpect$ dea? 9 *ildhood        
7,,sudc71 includ+ ! foll[+3  7#a7       
,surveillance ,! ,secret>y1 9           
consultation ) ! ,director ( ! ,national
 ,in/itutes ( ,heal?1 %all provide =    
surveillance ef=ts to ga!r              
sociodemographic1 dea? sc5e             
inve/igation1 cl9ical hi/ory1 & autopsy 
in=mation on ,,sudc cases ?r\gh ! review
 ( exi/+ records on ,,sudc1 includ+     
?r\gh ! utilization ( exi/+ surveillance

 sy/ems 7includ+ ! ,sudd5 ,dea? 9 ! ,"y 
,regi/ry74  7#b7 ,guidel9es = a /&>d    
autopsy protocol ,! ,secret>y1 9        
consultation ) ! ,attorney ,g5]al ( !   
,unit$ ,/ates1 =5sic pa?ologi/s1 m$ical 
exam9]s1 coron]s1 p$iatric pa?ologi/s1  
p$iatric c>diologi/s1 p$iatric          
neuropa?ologi/s1 g5etici/s1 infecti\s   
disease speciali/s1 & o!r individuals & 
organizations det]m9$ appropriate by !  
,secret>y1 may--  7,a7 develop guidel9es
 = a /&>d autopsy protocol = ,,sudc2 &  
7,b7 n less ?an e #e ye>s1 review &1 z  
appropriate1 update su* guidel9es4  7#c7
 ,review ( applicability ( programs &   
activities ,n lat] ?an #ah mon?s aft] ! 
date ( enactm5t ( ?is section1 !        
,secret>y1 act+ ?r\gh ! ,director ( !   
,c5t]s = ,disease ,control & ,prev5tion1
 & 9 consultation ) ! ,director ( !     
,national ,in/itutes ( ,heal?1 %all     
complete an evaluation ( ! possibility (
 c>ry+ out or int5sify+1 ) respect to   
,,sudc1 ! types ( programs & activities 
t are au?oriz$ to be c>ri$ out "u       

subsection 7b7 ) respect to ,,suid4  7d7
 ,report to ,congress ,n lat] ?an #b    
ye>s aft] ! date ( enactm5t ( ?is ,act1 
! ,secret>y1 act+ ?r\gh ! ,director ( ! 
,c5t]s = ,disease ,control & ,prev5tion1
 %all submit to ! ,congress a report on 
! implem5tation ( ?is section4 ,su*     
report %all include--  7#a7 ! results ( 
! evaluation "u subsection 7c77#c72 &   
7#b7 a description ( any activities t-- 
7,a7 are be+ c>ri$ out by ! ,c5t]s =    
,disease ,control & ,prev5tion 9        
consultation ) ! ,national ,in/itutes ( 
,heal? relat+ to /illbir?1 ,,suid1 or   
,,sudc2 &  7,b7 are 9 addition to !     
activities be+ c>ri$ out pursuant to ?is
 section4  7e7 ,def9itions ,9 ?is       
section3  7#a7 ,! t]m /illbir? means a  
spontane\s fetal dea? t--  7,a7 occurs  
at #bj or m weeks ge/ation2 or  7,b7 if 
! age ( ! fetus is n kn[n1 involves a   
fetus weigh+ #cej grams or m4  7#b7 ,!  
t]ms sudd5 unexpect$ infant dea? &      
,,suid mean ! dea? ( an infant less ?an 
#a ye> ( age--  7,a7 :i* occurs sudd5ly 

& unexpect$ly2 &  7,b7 ^: cause--  7i7  
is n imm$iately obvi\s prior to         
inve/igation2 &  7ii7 is ei!r expla9$ ^u
 inve/igation or rema9s unexpla9$4  7#c7
 ,! t]ms sudd5 unexpla9$ dea? 9 *ildhood
 & ,,sudc mean ! sudd5 dea? ( a *ild #a 
ye> ( age or old] :i* rema9s unexpla9$  
aft] a ?or\gh case inve/igation t       
includes--  7,a7 a review ( ! cl9ical   
hi/ory & circum/ances ( dea?2 &  7,b7   
p]=mance ( a complete autopsy )         
appropriate ancill>y te/+4  7f7 ,fund+  
,no additional funds are au?oriz$ to be 
appropriat$ = ! purpose ( c>ry+ out ?is 
section1 & ?is section %all be c>ri$ out
 us+ am\nts o!rwise available = su*     
purpose4  4  ,pass$ ! ,h\se (           
,repres5tatives ,septemb] #i1           
#bjad4;,cl]k4