,,ib ,union ,cal5d> ,no4 #daf #aac? ,,congress #b;d ,session ,h4 ,r4 #eid ,report ,no4 #aac-eef ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,febru>y #h1 #bjac ,mr4 ,burgess 7= himself & ,mr4 ,engel7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,july #bd1 #bjad ,additional sponsors3 ,ms4 ,s*w>tz1 ,mr4 ,hall1 ,mr4 ,pet]son1 ,ms4 ,matsui1 ,mrs4 ,c>olyn ,b4 ,maloney ( ,new ,york1 ,mr4 ,bi%op ( ,georgia1 ,mr4 ,&rews1 ,mr4 ,ru%1 ,mr4 ,runyan1 ,mr4 ,graves ( ,miss\ri1 ,mr4 ,poe ( ,texas1 ,mr4 ,sessions1 ,mr4 ,k+ ( ,new ,york1 ,ms4 ,%ea-,port]1 ,mr4 ,ow5s1 ,mr4 ,wel*1 ,mr4 ,ba*us1 ,mrs4 ,l[ey1 ,mr4 ,m>key1 ,ms4 ,slaught]1 ,ms4 ,br[nley ( ,cali=nia1 ,mr4 ,holt1 ,mr4 ,ellison1 ,mr4 ,kilm]1 ,mr4 ,g5e ,gre5 ( ,texas1 ,mr4 ,loebsack1 ,mr4 ,luetkemey]1 ,mr4 ,ti]ney1 ,mr4 ,smi? ( ,wa%+ton1 ,mr4 ,sam ,johnson ( ,texas1 ,mr4 ,wittman1 ,mr4 ,k9d1 ,mr4 ,g]la*1 ,mr4 ,polis1 ,mr4 ,mi*aud1 ,mr4 ,p]lmutt]1 ,ms4 ,de,gette1 ,mr4 ,g>dn]1 ,mr4 ,lip9ski1 ,mr4 ,c(fman1 ,mr4 ,gu?rie1 ,mr4 ,rigell1 ,mr4 ,"y ( ,alaska1 ,ms4 ,mc,collum1 ,mr4 ,r5acci1 ,mr4 ,=bes1 ,mr4 ,himes1 ,mr4 ,higg9s1 ,mr4 ,hudson1 ,mr4 ,o',r\rke1 ,mr4 ,griff9 ( ,arkansas1 ,ms4 ,p+ree ( ,ma9e1 ,ms4 ,s*ak[sky1 ,mr4 ,rangel1 ,mr4 ,olson1 ,mr4 ,bi%op ( ,new ,york1 ,ms4 ,cl>ke ( ,new ,york1 ,mr4 ,culb]son1 ,mr4 ,van ,holl51 ,mr4 ,huffman1 ,ms4 ,jackson ,lee1 ,mr4 ,posey1 ,mr4 ,fitzpatrick1 ,mr4 ,tonko1 ,mr4 ,coh51 ,mr4 ,ma!son1 ,mrs4 ,mc,carthy ( ,new ,york1 ,mr4 ,eny>t1 ,mr4 ,/iv]s1 ,mr4 ,duncan ( ,t5nessee1 ,ms4 ,l(gr51 ,ms4 ,lee ( ,cali=nia1 ,mrs4 ,kirkpatrick1 ,mr4 ,israel1 ,mr4 ,crd5as1 ,mr4 ,l>s5 ( ,wa%+ton1 ,mr4 ,meehan1 ,mr4 ,connolly1 ,mr4 ,keat+1 ,mr4 ,sires1 ,mr4 ,lance1 ,ms4 ,cl>k ( ,massa*usetts1 ,mr4 ,doyle1 ,mr4 ,f9*]1 ,mr4 ,wolf1 ,mr4 ,da9es1 ,mr4 ,s5s5br5n]1 ,mr4 ,c>son ( ,indiana1 ,mr4 ,pascrell1 ,mr4 ,k5n$y1 ,mr4 ,moran1 ,mr4 ,lyn*1 ,mr4 ,g>cia1 ,ms4 ,frankel ( ,florida1 ,mr4 ,nug5t1 ,mr4 ,wilson ( ,s\? ,c>ol9a1 ,mr4 ,delaney1 ,mr4 ,smi? ( ,new ,j]sey1 ,mr4 ,deut*1 ,mr4 ,rahall1 ,mr4 ,turn]1 ,mr4 ,b5i%ek1 ,mrs4 ,mc,morris ,rodg]s1 ,mr4 ,grimm1 ,mr4 ,ha/+s ( ,florida1 ,mr4 ,bi%op ( ,utah1 ,mr4 ,mc,govern1 ,mr4 ,*affetz1 ,mr4 ,mica1 ,mr4 ,/ew>t1 ,mr4 ,mill] ( ,florida1 & ,mr4 ,la?am ,july #bd1 #bjad ,report$ ) am5dm5ts1 committ$ to ! ,committee ( ! ,:ole ,h\se on ! ,/ate ( ! ,union1 & ord]$ to be pr9t$ ,/rike out all aft] ! enact+ clause & ins]t ! "p pr9t$ 9 italic ,= text ( introduc$ bill1 see copy ( bill z introduc$ on ,febru>y #h1 #bjac ,a ,,bill ,to reau?orize & ext5d ! ,paul ,d4 ,well/one ,muscul> ,dy/rophy ,community ,assi/ance1 ,rese>*1 & ,education ,am5dm5ts ( #bjjh4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,paul ,d4 ,well/one ,muscul> ,dy/rophy ,community ,assi/ance1 ,rese>* & ,education ,am5dm5ts ( #bjad4 #b4 ,initiative ?r\gh ! ,director ( ! ,national ,in/itutes ( ,heal? ,section #djd;,e ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bhc;g7 is am5d$-- 7#a7 9 subsection 7a77#a7-- 7,a7 by /rik+ ,muscoskeletal & ins]t+ ,musculoskeletal2 & 7,b7 by ins]t+ ,beck]1 cong5ital muscul> dy/rophy1 limb-girdle muscul> dy/rophy1 aft] ,du*5ne12 7#b7 9 subsection 7b7-- 7,a7 9 p>agraph 7#b7-- 7i7 by /rik+ g5etics1 at ! second place x appe>s2 & 7ii7 by ins]t+ c>diac & pulmon>y function1 & aft] imag+12 & 7,b7 9 p>agraph 7#c71 by ins]t+ & %>+ ( data aft] regul> communication2 7#c7 9 subsection 7d7-- 7,a7 9 p>agraph 7#b7-- 7i7 9 ! matt] prec$+ subp>agraph 7,a71 by /rik+ #ae & ins]t+ #ah2 & 7ii7 9 subp>agraph 7,a7-- 7,i7 by /rik+ & ! ,food & ,drug ,adm9i/ration & ins]t+ 1 ! ,food & ,drug ,adm9i/ration1 & ! ,adm9i/ration = ,community ,liv+2 7,,ii7 by ins]t+ & adults aft] *ildr52 & 7,,iii7 by /rik+ su* z ! ,dep>tm5t ( ,education & ins]t+ includ+ ! ,dep>tm5t ( ,education & ! ,social ,security ,adm9i/ration2 & 7,b7 9 p>agraph 7#d77;,b71 by ins]t+ 1 b %all meet no few] ?an two times p] cal5d> ye> be=e ! p]iod2 & 7#d7 9 subsection 7e7-- 7,a7 9 p>agraph 7#a7-- 7i7 9 ! matt] prec$+ subp>agraph 7,a71 by /rik+ ?r\gh ! national rese>* in/itutes & ins]t+ ?r\gh ! ag5cies repres5t$ on ! ,coord9at+ ,committee pursuant to subsection 7d77#b77;,a72 & 7ii7 9 subp>agraph 7,a7-- 7,i7 by ins]t+ public s]vices1 be=e & rehabilitative issues2 & 7,,ii7 by ins]t+ 1 /udies to demon/rate ! co/-effectiv5ess ( provid+ indep5d5t liv+ res\rces & support to pati5ts ) v>i\s =ms ( muscul> dy/rophy1 & /udies to det]m9e optimal cl9ical c>e int]v5tions = adults ) v>i\s =ms ( muscul> dy/rophy aft] includ+ /udies ( ! impact ( su* diseases 9 rural & und]s]v$ communities2 & 7,b7 9 p>agraph 7#b77;,d71 by ins]t+ aft] includ+ new biological ag5ts ! foll[+3 & new cl9ical int]v5tions to improve ! heal? ( ^? ) muscul> dy/rophy4 #c4 ,surveillance & rese>* reg>d+ muscul> dy/rophy ,! second s5t5ce ( section #cag,q7b7 ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #bdg;b-#ah7;b77 is am5d$ by ins]t+ be=e ! p]iod ! foll[+3 &1 to ! ext5t possible1 ensure t data be repres5tative ( all affect$ populations & %>$ 9 a timely mann]4 #d4 ,in=mation & education ,section #e7;c7 ( ! ,muscul> ,dy/rophy ,community ,assi/ance1 ,rese>* & ,education ,am5dm5ts ( #bjja 7#db ,u4,s4,c4 #bdg;b-#ai7;c77 is am5d$-- 7#a7 9 p>agraph 7#b7-- 7,a7 by ins]t+ = p$iatric & adult pati5ts1 includ+ acute c>e consid]ations1 aft] issuance ( c>e consid]ations2 7,b7 by ins]t+ v>i\s be=e o!r =ms ( muscul> dy/rophy2 & 7,c7 by /rik+ & at ! end2 7#b7 by r$esignat+ p>agraph 7#c7 z p>agraph 7#d72 7#c7 by ins]t+ aft] p>agraph 7#b7 ! foll[+3 7#c7 9 develop+ & updat+ c>e consid]ations "u p>agraph 7#b71 incorporate /rategies specifically respond+ to ! f9d+s ( ! national transitions survey ( m9ority1 "y adult1 & adult communities ( muscul> dy/rophy pati5ts2 & 2 & 7#d7 9 p>agraph 7#d71 z r$esignat$1 by ins]t+ v>i\s be=e o!r =ms ( muscul> dy/rophy4 ,am5d ! title s z to read3 ,a bill to am5d ! ,public ,heal? ,s]vice ,act relat+ to ,f$]al rese>* on muscul> dy/rophy1 & o!r purposes44 ,july #bd1 #bjad ,report$ ) am5dm5ts1 committ$ to ! ,committee ( ! ,:ole ,h\se on ! ,/ate ( ! ,union1 & ord]$ to be pr9t$