,,ib ,union ,calendar ,no4 #daf #aacth ,,congress #b;d ,session ,h4 ,r4 #eid ,report ,no4 #aac-eef ,,in ,,the ,,house ,,of ,,representatives ,february #h1 #bjac ,mr4 ,burgess 7for himself and ,mr4 ,engel7 introduced the following bill2 which was referred to the ,committee on ,energy and ,commerce ,july #bd1 #bjad ,additional sponsors3 ,ms4 ,schwartz1 ,mr4 ,hall1 ,mr4 ,peterson1 ,ms4 ,matsui1 ,mrs4 ,carolyn ,b4 ,maloney of ,new ,york1 ,mr4 ,bishop of ,georgia1 ,mr4 ,andrews1 ,mr4 ,rush1 ,mr4 ,runyan1 ,mr4 ,graves of ,missouri1 ,mr4 ,poe of ,texas1 ,mr4 ,sessions1 ,mr4 ,king of ,new ,york1 ,ms4 ,shea-,porter1 ,mr4 ,owens1 ,mr4 ,welch1 ,mr4 ,bachus1 ,mrs4 ,lowey1 ,mr4 ,markey1 ,ms4 ,slaughter1 ,ms4 ,brownley of ,california1 ,mr4 ,holt1 ,mr4 ,ellison1 ,mr4 ,kilmer1 ,mr4 ,gene ,green of ,texas1 ,mr4 ,loebsack1 ,mr4 ,luetkemeyer1 ,mr4 ,tierney1 ,mr4 ,smith of ,washington1 ,mr4 ,sam ,johnson of ,texas1 ,mr4 ,wittman1 ,mr4 ,kind1 ,mr4 ,gerlach1 ,mr4 ,polis1 ,mr4 ,michaud1 ,mr4 ,perlmutter1 ,ms4 ,de,gette1 ,mr4 ,gardner1 ,mr4 ,lipinski1 ,mr4 ,coffman1 ,mr4 ,guthrie1 ,mr4 ,rigell1 ,mr4 ,young of ,alaska1 ,ms4 ,mc,collum1 ,mr4 ,renacci1 ,mr4 ,forbes1 ,mr4 ,himes1 ,mr4 ,higgins1 ,mr4 ,hudson1 ,mr4 ,o',rourke1 ,mr4 ,griffin of ,arkansas1 ,ms4 ,pingree of ,maine1 ,ms4 ,schakowsky1 ,mr4 ,rangel1 ,mr4 ,olson1 ,mr4 ,bishop of ,new ,york1 ,ms4 ,clarke of ,new ,york1 ,mr4 ,culberson1 ,mr4 ,van ,hollen1 ,mr4 ,huffman1 ,ms4 ,jackson ,lee1 ,mr4 ,posey1 ,mr4 ,fitzpatrick1 ,mr4 ,tonko1 ,mr4 ,cohen1 ,mr4 ,matheson1 ,mrs4 ,mc,carthy of ,new ,york1 ,mr4 ,enyart1 ,mr4 ,stivers1 ,mr4 ,duncan of ,tennessee1 ,ms4 ,lofgren1 ,ms4 ,lee of ,california1 ,mrs4 ,kirkpatrick1 ,mr4 ,israel1 ,mr4 ,crdenas1 ,mr4 ,larsen of ,washington1 ,mr4 ,meehan1 ,mr4 ,connolly1 ,mr4 ,keating1 ,mr4 ,sires1 ,mr4 ,lance1 ,ms4 ,clark of ,massachusetts1 ,mr4 ,doyle1 ,mr4 ,fincher1 ,mr4 ,wolf1 ,mr4 ,daines1 ,mr4 ,sensenbrenner1 ,mr4 ,carson of ,indiana1 ,mr4 ,pascrell1 ,mr4 ,kennedy1 ,mr4 ,moran1 ,mr4 ,lynch1 ,mr4 ,garcia1 ,ms4 ,frankel of ,florida1 ,mr4 ,nugent1 ,mr4 ,wilson of ,south ,carolina1 ,mr4 ,delaney1 ,mr4 ,smith of ,new ,jersey1 ,mr4 ,deutch1 ,mr4 ,rahall1 ,mr4 ,turner1 ,mr4 ,benishek1 ,mrs4 ,mc,morris ,rodgers1 ,mr4 ,grimm1 ,mr4 ,hastings of ,florida1 ,mr4 ,bishop of ,utah1 ,mr4 ,mc,govern1 ,mr4 ,chaffetz1 ,mr4 ,mica1 ,mr4 ,stewart1 ,mr4 ,miller of ,florida1 and ,mr4 ,latham ,july #bd1 #bjad ,reported with amendments1 committed to the ,committee of the ,whole ,house on the ,state of the ,union1 and ordered to be printed ,strike out all after the enacting clause and insert the part printed in italic ,for text of introduced bill1 see copy of bill as introduced on ,february #h1 #bjac ,a ,,bill ,to reauthorize and extend the ,paul ,d4 ,wellstone ,muscular ,dystrophy ,community ,assistance1 ,research1 and ,education ,amendments of #bjjh4 #a4 ,short title ,this ,act may be cited as the ,paul ,d4 ,wellstone ,muscular ,dystrophy ,community ,assistance1 ,research and ,education ,amendments of #bjad4 #b4 ,initiative through the ,director of the ,national ,institutes of ,health ,section #djd;,e of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhc;g7 is amended-- 7#a7 in subsection 7a77#a7-- 7,a7 by striking ,muscoskeletal and inserting ,musculoskeletal2 and 7,b7 by inserting ,becker1 congenital muscular dystrophy1 limb-girdle muscular dystrophy1 after ,duchenne12 7#b7 in subsection 7b7-- 7,a7 in paragraph 7#b7-- 7i7 by striking genetics1 at the second place it appears2 and 7ii7 by inserting cardiac and pulmonary function1 and after imaging12 and 7,b7 in paragraph 7#c71 by inserting and sharing of data after regular communication2 7#c7 in subsection 7d7-- 7,a7 in paragraph 7#b7-- 7i7 in the matter preceding subparagraph 7,a71 by striking #ae and inserting #ah2 and 7ii7 in subparagraph 7,a7-- 7,i7 by striking and the ,food and ,drug ,administration and inserting 1 the ,food and ,drug ,administration1 and the ,administration for ,community ,living2 7,,ii7 by inserting and adults after children2 and 7,,iii7 by striking such as the ,department of ,education and inserting including the ,department of ,education and the ,social ,security ,administration2 and 7,b7 in paragraph 7#d77;,b71 by inserting 1 but shall meet no fewer than two times per calendar year before the period2 and 7#d7 in subsection 7e7-- 7,a7 in paragraph 7#a7-- 7i7 in the matter preceding subparagraph 7,a71 by striking through the national research institutes and inserting through the agencies represented on the ,coordinating ,committee pursuant to subsection 7d77#b77;,a72 and 7ii7 in subparagraph 7,a7-- 7,i7 by inserting public services1 before and rehabilitative issues2 and 7,,ii7 by inserting 1 studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy1 and studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy after including studies of the impact of such diseases in rural and underserved communities2 and 7,b7 in paragraph 7#b77;,d71 by inserting after including new biological agents the following3 and new clinical interventions to improve the health of those with muscular dystrophy4 #c4 ,surveillance and research regarding muscular dystrophy ,the second sentence of section #cag,q7b7 of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bdg;b-#ah7;b77 is amended by inserting before the period the following3 and1 to the extent possible1 ensure that data be representative of all affected populations and shared in a timely manner4 #d4 ,information and education ,section #e7;c7 of the ,muscular ,dystrophy ,community ,assistance1 ,research and ,education ,amendments of #bjja 7#db ,u4,s4,c4 #bdg;b-#ai7;c77 is amended-- 7#a7 in paragraph 7#b7-- 7,a7 by inserting for pediatric and adult patients1 including acute care considerations1 after issuance of care considerations2 7,b7 by inserting various before other forms of muscular dystrophy2 and 7,c7 by striking and at the end2 7#b7 by redesignating paragraph 7#c7 as paragraph 7#d72 7#c7 by inserting after paragraph 7#b7 the following3 7#c7 in developing and updating care considerations under paragraph 7#b71 incorporate strategies specifically responding to the findings of the national transitions survey of minority1 young adult1 and adult communities of muscular dystrophy patients2 and 2 and 7#d7 in paragraph 7#d71 as redesignated1 by inserting various before other forms of muscular dystrophy4 ,amend the title so as to read3 ,a bill to amend the ,public ,health ,service ,act relating to ,federal research on muscular dystrophy1 and other purposes44 ,july #bd1 #bjad ,reported with amendments1 committed to the ,committee of the ,whole ,house on the ,state of the ,union1 and ordered to be printed