,,ii  ,cal5d> ,no4 #ebi #aac? ,,congress
  #b;d ,session  ,h4 ,r4 #eid  ,,9 ,,!  
,,s5ate ,,( ,,! ,,unit$ ,,/ates  ,july  
#bi1 #bjad,receiv$  ,augu/ #a1          
#bjad,read twice & plac$ on ! cal5d>    
,,an ,,act  ,to am5d ! ,public ,heal?   
,s]vice ,act relat+ to ,f$]al rese>* on 
muscul> dy/rophy1 & = o!r purposes4  #a4
 ,%ort title ,?is ,act may be cit$ z !  
,paul ,d4 ,well/one ,muscul> ,dy/rophy  
,community ,assi/ance1 ,rese>* &        
,education ,am5dm5ts ( #bjad4  #b4      
,initiative ?r\gh ! ,director ( !       
,national ,in/itutes ( ,heal? ,section  
#djd;,e ( ! ,public ,heal? ,s]vice ,act 
7#db ,u4,s4,c4 #bhc;g7 is am5d$--  7#a7 
9 subsection 7a77#a7--  7,a7 by /rik+   
,muscoskeletal & ins]t+                 
,musculoskeletal2 &  7,b7 by ins]t+     
,beck]1 cong5ital muscul> dy/rophy1     
limb-girdle muscul> dy/rophy1 aft]      
,du*5ne12  7#b7 9 subsection 7b7--  7,a7
 9 p>agraph 7#b7--  7i7 by /rik+        
g5etics1 at ! second place x appe>s2 &  
7ii7 by ins]t+ c>diac & pulmon>y        

function1 & aft] imag+12 &  7,b7 9      
p>agraph 7#c71 by ins]t+ & %>+ ( data   
aft] regul> communication2  7#c7 9      
subsection 7d7--  7,a7 9 p>agraph 7#b7--
  7i7 9 ! matt] prec$+ subp>agraph 7,a71
 by /rik+ #ae & ins]t+ #ah2 &  7ii7 9   
subp>agraph 7,a7--  7,i7 by /rik+ & !   
,food & ,drug ,adm9i/ration & ins]t+ 1 !
 ,food & ,drug ,adm9i/ration1 & !       
,adm9i/ration = ,community ,liv+2       
7,,ii7 by ins]t+ & adults aft] *ildr52 &
  7,,iii7 by /rik+ su* z ! ,dep>tm5t (  
,education & ins]t+ includ+ ! ,dep>tm5t 
( ,education & ! ,social ,security      
,adm9i/ration2 &  7,b7 9 p>agraph       
7#d77;,b71 by ins]t+ 1 b %all meet no   
few] ?an two times p] cal5d> ye> be=e ! 
p]iod2 &  7#d7 9 subsection 7e7--  7,a7 
9 p>agraph 7#a7--  7i7 9 ! matt] prec$+ 
subp>agraph 7,a71 by /rik+ ?r\gh !      
national rese>* in/itutes & ins]t+ ?r\gh
 ! ag5cies repres5t$ on ! ,coord9at+    
,committee pursuant to subsection       
7d77#b77;,a72 &  7ii7 9 subp>agraph     
7,a7--  7,i7 by ins]t+ public s]vices1  

be=e & rehabilitative issues2 &  7,,ii7 
by ins]t+ 1 /udies to demon/rate !      
co/-effectiv5ess ( provid+ indep5d5t    
liv+ res\rces & support to pati5ts )    
v>i\s =ms ( muscul> dy/rophy1 & /udies  
to det]m9e optimal cl9ical c>e          
int]v5tions = adults ) v>i\s =ms (      
muscul> dy/rophy aft] includ+ /udies ( !
 impact ( su* diseases 9 rural &        
und]s]v$ communities2 &  7,b7 9 p>agraph
 7#b77;,d71 by ins]t+ aft] includ+ new  
biological ag5ts ! foll[+3 & new cl9ical
 int]v5tions to improve ! heal? ( ^? )  
muscul> dy/rophy4  #c4 ,surveillance &  
rese>* reg>d+ muscul> dy/rophy ,! second
 s5t5ce ( section #cag,q7b7 ( ! ,public 
,heal? ,s]vice ,act 7#db ,u4,s4,c4      
#bdg;b-#ah7;b77 is am5d$ by ins]t+ be=e 
! p]iod ! foll[+3 &1 to ! ext5t         
possible1 ensure t data be repres5tative
 ( all affect$ populations & %>$ 9 a    
timely mann]4  #d4 ,in=mation &         
education ,section #e7;c7 ( ! ,muscul>  
,dy/rophy ,community ,assi/ance1 ,rese>*
 & ,education ,am5dm5ts ( #bjja 7#db    

,u4,s4,c4 #bdg;b-#ai7;c77 is am5d$--    
7#a7 9 p>agraph 7#b7--  7,a7 by ins]t+ =
 p$iatric & adult pati5ts1 includ+ acute
 c>e consid]ations1 aft] issuance ( c>e 
consid]ations2  7,b7 by ins]t+ v>i\s    
be=e o!r =ms ( muscul> dy/rophy2 &  7,c7
 by /rik+ & at ! end2  7#b7 by          
r$esignat+ p>agraph 7#c7 z p>agraph     
7#d72  7#c7 by ins]t+ aft] p>agraph 7#b7
 ! foll[+3  7#c7 9 develop+ & updat+ c>e
 consid]ations "u p>agraph 7#b71        
incorporate /rategies specifically      
respond+ to ! f9d+s ( ! national        
transitions survey ( m9ority1 "y adult1 
& adult communities ( muscul> dy/rophy  
pati5ts2 &  2 &  7#d7 9 p>agraph 7#d71 z
 r$esignat$1 by ins]t+ v>i\s be=e o!r   
=ms ( muscul> dy/rophy4  ,pass$ ! ,h\se 
( ,repres5tatives ,july #bh1 #bjad4,k>5 
,l4 ,haas1,cl]k  ,augu/ #a1 #bjad,read  
twice & plac$ on ! cal5d>