,i #aacth ,,congress #ast ,session ,h4 ,r4 #efe ,,in ,,the ,,house ,,of ,,representatives ,february #f1 #bjac ,mr4 ,pallone introduced the following bill2 which was referred to the ,committee on ,energy and ,commerce ,a ,,bill ,to amend title ,,iii of the ,public ,health ,service ,act to authorize and support the creation of cardiomyopathy education1 awareness1 and risk assessment materials and resources by the ,secretary of ,health and ,human ,services through the ,centers for ,disease ,control and ,prevention and the dissemination of such materials and resources by ,state educational agencies to identify more at-risk families4 #a4 ,short title ,this ,act may be cited as the ,cardiomyopathy ,health ,education1 ,awareness1 ,risk ,assessment1 and ,training in the ,schools 7,,hearts7 ,act of #bjac4 #b4 ,materials and resources to increase education and awareness of cardiomyopathy among school administrators1 educators1 and families ,part ,p of title ,,iii of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhj;g et seq47 is amended by adding at the end the following new section3 #cii,v-#f4 ,materials and resources to increase education and awareness of cardiomyopathy among school administrators1 educators1 and families 7a7 ,materials and resources ,not later than #ah months after the date of the enactment of this section1 the ,secretary of ,health and ,human ,services 7in this section referred to as the ,secretary71 in conjunction with the ,director of the ,centers for ,disease ,control and ,prevention 7in this section referred to as the ,director7 and in consultation with national patient advocacy and health professional organizations expert in all forms of cardiomyopathy1 shall develop public education and awareness materials and resources to be disseminated to school administrators1 educators1 school health professionals1 coaches1 families1 and other appropriate individuals4 ,the materials and resources shall include-- 7#a7 background information to increase education and awareness of cardiomyopathy among school administrators1 educators1 and families2 7#b7 a cardiomyopathy risk assessment worksheet for use by parents1 guardians1 or other caregivers2 7#c7 guidelines regarding the placement of automated external defibrillators in schools and child care centers2 7#d7 training information on automated external defibrillators and cardiopulmonary resuscitation2 and 7#e7 recommendations for how schools and child care centers can develop and implement a cardiac emergency response plan4 7b7 ,development of materials and resources ,the ,secretary1 through the ,director1 shall develop and update as necessary and appropriate the materials and resources under subsection 7a7 and1 in support of such effort1 the ,secretary is encouraged to-- 7#a7 establish an advisory panel composed of-- 7,a7 representatives from multiple national patient advocacy organizations and medical professionals expert in all forms of cardiomyopathy2 7,b7 a representative from the ,centers for ,disease ,control and ,prevention2 and 7,c7 representatives from other relevant ,federal agencies2 and 7#b7 engage in a memorandum of understanding or cooperative agreement with a national nonprofit advocacy organization expert in all forms of cardiomyopathy4 7c7 ,dissemination of materials and resources ,not later than #cj months after the date of the enactment of this section1 the ,secretary1 through the ,director1 shall disseminate the materials and resources under subsection 7a7 in accordance with the following3 7#a7 ,distribution by ,state education agencies ,the ,secretary shall make available such materials and resources to ,state educational agencies to distribute-- 7,a7 to school administrators1 educators1 school health professionals1 coaches and parents1 guardians1 or other caregivers1 the cardiomyopathy education and awareness materials and resources under subsection 7a72 7,b7 to parents1 guardians1 or other caregivers1 the cardiomyopathy risk assessment worksheet described in subsection 7a77#b72 and 7,c7 to school administrators and school health professionals1 the-- 7i7 guidelines described in subsection 7a77#c72 7ii7 training information described in subsection 7a77#d72 and 7iii7 recommendations described in subsection 7a77#e74 7#b7 ,dissemination to health departments and professionals ,the ,secretary shall make available such materials and resources to ,state and local health departments1 pediatricians1 hospitals1 and other health professionals1 such as nurses and first responders4 7#c7 ,posting on website 7,a7 ,,cdc 7i7 ,in general ,the ,secretary1 through the ,director1 shall post the materials and resources developed under subsection 7a7 on the public ,internet website of the ,centers for ,disease ,control and ,prevention4 7ii7 ,additional information ,the ,director is encouraged to maintain on such public ,internet website such additional information regarding cardiomyopathy as deemed appropriate by the ,director4 7,b7 ,state education agencies ,state educational agencies are encouraged to create public ,internet webpages dedicated to cardiomyopathy and post the materials and resources developed under subsection 7a7 on such webpages4 7d7 ,report to ,congress ,not later than #a year after the date of the enactment of this ,act1 and annually thereafter1 the ,secretary shall submit to ,congress a report identifying the steps taken to increase public education and awareness of cardiomyopathy as outlined under this section4 7e7 ,definitions ,for purposes of this section3 7#a7 ,cardiomyopathy ,the term cardiomyopathy means a rare heart condition1 which is a disease of the heart muscle 7myocardium7-- 7,a7 the symptoms of which may vary from case to case1 including-- 7i7 in some cases1 the presentation of no symptoms 7asymptomatic72 and 7ii7 in many cases1 the symptoms of a progressive condition that may result in an impaired ability of the heart to pump blood1 fatigue1 irregular heart-beats 7arrhythmia71 and1 potentially1 sudden cardiac death or heart failure2 and 7,b7 the recognized types of which include dilated1 hypertrophic1 restrictive1 arrhythmogenic right ventricular dysplasia1 and left ventricular noncompaction4 7#b7 ,school administrators ,the term school administrator means a principal1 director1 manager1 or other supervisor or leader within an elementary school or secondary school 7as such terms are defined under section #iaja of the ,elementary and ,secondary ,education ,act of #aife 7#bj ,u4,s4,c4 #ghja771 ,state-based early education program1 or child care center4 7#c7 ,schools ,the term school means an early education program1 child care center1 or elementary school or secondary school 7as such terms are so defined74 7#d7 ,national nonprofit advocacy organizations expert in all forms of cardiomyopathy ,the term national nonprofit advocacy organizations expert in all forms of cardiomyopathy means organizations that provide support services to families or fund research1 and work to increase public awareness and education regarding all types of cardiomyopathy4 7f7 ,authorization of appropriations ,to carry out this section1 there are authorized to be appropriated #a1jjj1jjj for fiscal year #bjad1 #gej1jjj for fiscal year #bjae1 and #ejj1jjj for each of fiscal years #bjaf through #bjah4 4