,i #aacth ,,congress #b;d ,session ,h4 ,r4 #ebah ,,in ,,the ,,house ,,of ,,representatives ,july #bh1 #bjad ,mr4 ,clay introduced the following bill2 which was referred to the ,committee on ,energy and ,commerce ,a ,,bill ,to amend the ,public ,health ,service ,act to establish a ,national ,organ and ,tissue ,donor ,registry ,resource ,center1 to authorize grants for ,state organ and tissue donor registries1 and for other purposes4 #a4 ,short title ,this ,act may be cited as the ,everson ,walls and ,ron ,springs ,gift for ,life ,act of #bjad4 #b4 ,national ,organ and ,tissue ,donor ,registry ,resource ,center ,part ,h of title ,,iii of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bgc et seq47 is amended by inserting after section #cga;,a the following3 #cga;,b4 ,national ,organ and ,tissue ,donor ,registry ,resource ,center 7a7 ,in general ,the ,secretary1 acting through the ,administrator of the ,health ,resources and ,services ,administration1 shall establish a ,national ,organ and ,tissue ,donor ,registry ,resource ,center 7referred to in this section as the ,center74 7b7 ,duties ,the ,center shall-- 7#a7 advance the development1 expansion1 and evaluation of ,state organ and tissue donor registries2 7#b7 facilitate timely access to and exchange of accurate donor information between ,state registries #g days each week on a #bd-;hour basis2 7#c7 ensure that ,state organ and tissue donor registries funded through section #cga;,c are in compliance with the requirements described in such section1 including the operating standards described in section #cga;,c7d72 7#d7 provide technical assistance to ,states for the establishment and operation of ,state organ and tissue registries2 and 7#e7 maintain a registry information clearinghouse1 including by maintaining a ,web site1 to collect1 synthesize1 and disseminate best practices information about organ and tissue donor registries4 7c7 ,authorization of appropriations ,there is authorized to be appropriated to carry out this section #e1jjj1jjj for each of fiscal years #bjae through #bjai4 4 #c4 ,grants for ,state organ and tissue donor registries ,part ,h of title ,,iii of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bgc et seq47 is amended by inserting after section #cga;,b1 as inserted by section #b1 the following3 #cga;,c4 ,grants for ,state organ and tissue donor registries 7a7 ,program authorized ,the ,secretary shall award grants or cooperative agreements to eligible entities to support the development1 enhancement1 expansion1 and evaluation of ,state organ and tissue donor registries4 7b7 ,definition ,in this section1 the term eligible entity means a ,state agency or a ,state contracted entity4 7c7 ,use of funds ,as a condition on the receipt of a grant or cooperative agreement under this section1 an eligible entity shall agree to use the grant or cooperative agreement-- 7#a7 to develop1 expand1 or maintain a ,state organ and tissue donor registry2 and 7#b7 to establish benchmarks for improvement in organ and tissue donation in the ,state4 7d7 ,operating standards ,as a condition on the receipt of a grant or cooperative agreement under this section for a ,state organ and tissue donor registry1 an eligible entity shall agree to maintain the registry in accordance with the following3 7#a7 ,the registry must allow a donor or any other person authorized by the donor to include in the registry a statement or symbol that the donor has made1 amended1 or revoked an anatomical gift4 7#b7 ,the registry must be accessible to any qualified organ procurement organization described in section #cga7;b7 to allow the organization to obtain relevant information on the registry to determine1 at or near the death of the donor or a prospective donor1 whether the donor or prospective donor has made1 amended1 or revoked an anatomical gift4 7#c7 ,the registry must be accessible as described in paragraphs 7#a7 and 7#b7 #g days each week on a #bd-;hour basis4 7#d7 ,the registry must ensure that personally identifiable information on the registry about a donor or prospective donor may not be used or disclosed without the express consent of the donor or prospective donor for any purpose other than to determine1 at or near the death of the donor or prospective donor1 whether the donor or prospective donor has made1 amended1 or revoked an anatomical gift4 7e7 ,application ,to seek a grant or cooperative agreement under this section1 an entity shall submit an application to the ,secretary at such time1 in such manner1 and containing such information as the ,secretary may reasonably require4 7f7 ,report ,as a condition on the receipt of a grant or cooperative agreement under this section1 not later than #ahj days after receipt of the grant or cooperative agreement1 and every #ahj days thereafter 7through the date of completion of the activities funded through the grant or cooperative agreement71 an eligible entity shall prepare and submit a report to the ,secretary that-- 7#a7 describes the manner in which such entity has used amounts received through the grant or cooperative agreement2 and 7#b7 assesses initiatives that may be replicated in other ,states4 7g7 ,authorization of appropriations ,there is authorized to be appropriated to carry out this section #aj1jjj1jjj for each of fiscal years #bjae through #bjai4 4 #d4 ,limitation on liability ,part ,h of title ,,iii of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bgc et seq47 is amended by inserting after section #cga;,c1 as inserted by section #c1 the following3 #cga;,d4 ,limitation on liability ,no person may be held civilly liable by reason of having harvested or taken an individual's organs or tissues without having obtained valid consent for the harvesting or taking1 if-- 7#a7 such person has verified that1 at the time of the harvesting or taking1 the individual is registered as a donor with a ,state organ and tissue donor registry2 and 7#b7 the harvesting or taking is within the scope of the consent given by such individual for purposes of such registration4 4 #e4 ,study on feasibility of establishing a living donor database ,section #cga;,a of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bgc;a7 is amended-- 7#a7 by striking ,the ,secretary may establish and inserting 7a7 ,in general4--,the ,secretary may establish2 and 7#b7 by adding at the end the following3 7b7 ,study ,not later than #a year after the date of the enactment of the ,everson ,walls and ,ron ,springs ,gift for ,life ,act of #bjad1 the ,comptroller ,general of the ,united ,states shall-- 7#a7 complete a study to determine the feasibility of establishing a living donor database for the purpose of tracking the short- and long-term health effects for such donors associated with living organ donation2 and 7#b7 submit a report to the ,congress on the results of such study4 4