,i #aac? ,,congress #b;d ,session ,h4 ,r4 #dicj ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,june #bj1 #bjad ,mr4 ,b>ton 7= himself1 ,ms4 ,ca/or ( ,florida1 ,ms4 ,h]r]a ,beutl]1 ,mr4 ,g5e ,gre5 ( ,texas1 & ,ms4 ,e%oo7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to am5d titles ,,xix & ,,xxi ( ! ,social ,security ,act to provide ,/ates ) ! option ( provid+ s]vices to *ildr5 ) m$ically complex conditions "u ! ,m$icaid program & ,*ildr5's ,heal? ,insurance ,program ?r\gh a c>e coord9ation program focus$ on improv+ heal? outcomes = *ildr5 ) m$ically complex conditions & l[]+ co/s1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,advanc+ ,c>e = ,exceptional ,kids ,act ( #bjad or ! ,,ace ,kids ,act ( #bjad4 #b4 ,f9d+s ,congress f9ds ! foll[+3 7#a7 ,approximately #c1jjj1jjj *ildr5 9 ! ,unit$ ,/ates suff] f m$ically complex conditions & approximately #b1jjj1jjj ( su* *ildr5 are enroll$ 9 ,/ate plans "u ! ,m$icaid program "u title ,,xix ( ! ,social ,security ,act4 7#b7 ,su* *ildr5 acc\nt = an e/imat$ #f p]c5t ( ,m$icaid enrollees & approximately #dj p]c5t ( *ildr5's ,m$icaid sp5d+ is due to ! sev]ity ( ! illnesses ( su* *ildr54 7#c7 ,! creation ( nationally designat$ *ildr5's hospital networks focus$ ^u bett] coord9ation & integration ( c>e = su* p$iatric population w result 9 improv$ heal? outcomes & sav+s "u ! ,m$icaid program & ! ,*ildr5's ,heal? ,insurance ,program "u title ,,xxi ( ! ,social ,security ,act4 #c4 ,e/abli%m5t ( ,m$icaid & ,,*ip ,c>e ,coord9ation program = *ildr5 ) m$ically complex conditions z ,m$icaid ,/ate option 7a7 ,m$icaid ,title ,,xix ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acif et seq47 is am5d$-- 7#a7 9 section #aije7;a7 7#db ,u4,s4,c4 #acif;d7a77-- 7,a7 by /rik+ & at ! end ( p>agraph 7#bg72 7,b7 by r$esignat+ p>agraph 7#bi7 z p>agraph 7#cj72 & 7,c7 by ins]t+ aft] p>agraph 7#bh7 ! foll[+ new p>agraph3 7#bi7 items & s]vices furni%$ "u an ,,mccc program "u section #aidg to eligible *ildr5 enroll$ 9 an ,,mccc program "u su* section4 2 & 7#b7 by add+ at ! end ! foll[+ new section3 #aidg4 ,m$icaid ,*ildr5's ,c>e ,coord9ation programs = *ildr5 ) complex m$ical conditions 7a7 ,e/abli%m5t 7#a7 ,9 g5]al ,beg9n+ ,janu>y #a1 #bjae1 a ,/ate1 at its option z a ,/ate plan am5dm5t1 may elect to provide m$ical assi/ance = items & s]vices furni%$ to eligible *ildr5 enroll$ 9 an ,,mccc program t meets ! requirem5ts ( ?is section4 ,z a condition on an eligible *ild's receipt ( m$ical assi/ance "u ?is title1 ! ,/ate %all require1 "u su* an am5dm5t1 t ! eligible *ild be enroll$ 9 an ,,mccc program t meets ! requirem5ts ( ?is section4 7b7 ,,mccc program requirem5ts ,an ,,mccc program meets ! requirem5ts ( ?is section if ! ,,mccc program-- 7#a7 coord9ates1 integrates1 & provides = ! furni%+ ( ! full range ( ,,mccc program s]vices to eligible *ildr5 enroll$ 9 ! program2 7#b7 enrolls eligible *ildr5 9 accordance ) subsection 7c72 7#c7 is op]at+ "u a program agreem5t t meets ! requirem5ts ( subsection 7d72 & 7#d7 meets ! p$iatric network adequacy /&>ds develop$ "u subsection 7e74 7c7 ,eligibility det]m9ations2 assignm5t 7#a7 ,enrollm5t ,subject to ! assignm5t requirem5ts ( p>agraph 7#b71 ! enrollm5t & dis5rollm5t ( eligible *ildr5 9 an ,,mccc program %all be c>ri$ out 9 accordance ) regulations issu$ by ! ,secret>y & ! applicable program agreem5t4 7#b7 ,network assignm5t 7,a7 ,9 g5]al ,eligible *ildr5 %all be prospectively enroll$ 9 an ,,mccc program by initially assign+ su* eligible *ildr5 to a nationally designat$ *ildr5's hospital network = a p]iod ( n less ?an #ij days beg9n+ on ! date on :i* ! *ild is initially assign$ to su* hospital network4 7,b7 ,basis = initial assignm5t ,su* an assignm5t %all be bas$ ^u any ( ! foll[+ factors 7or a comb9ation !re(73 7i7 ,! preval5ce ( visits by ! *ild to a p$iatrician or o!r speciali/ :o is p>ticipat+ 9 ! nationally designat$ *ildr5's hospital network4 7ii7 ,! selection ( ! *ild's family4 7iii7 ,! location ( ! prim>y resid5ce ( ! *ild4 7iv7 ,! proximity ( ! *ild to regional ref]ral networks e/abli%$ by ! nationally designat$ *ildr5's hospital network4 7,c7 ,limitation on c]ta9 assignm5ts ,an assignm5t ( a *ild "u clause 7iii7 or 7iv7 ( subp>agraph 7,b7 may only be made 9 ! case ( a nationally designat$ *ildr5's hospital network t (f]s m$ical home access )9 #cj miles ( ! prim>y resid5ce ( ! *ild4 7,d7 ,reassignm5t ,foll[+ ! #ij-;day p]iod ref]r$ to 9 subp>agraph 7,a71 ! *ild may elect-- 7i7 to be assign$ to ! nationally designat$ *ildr5's hospital network ( _! *oice t has an ,,mccc program agreem5t 9 effect ) respect to an ,,mccc program 9 :i* ! *ild is eligible to enroll2 or 7ii7 to n p>ticipate 9 any ,,mccc program & receive c>e ?r\gh enrollm5t 9 ! ,/ate plan "u ?is title or ! ,/ate *ild heal? plan "u title ,,xxi4 7d7 ,program agreem5ts 7#a7 ,9 g5]al ,! ,secret>y1 9 close coop]ation ) ! ,/ate adm9i/]+ ag5cies elect+ to provide ! m$ical assi/ance describ$ 9 subsection 7a71 %all e/abli% proc$ures = ent]+ into1 ext5d+1 & t]m9at+ program agreem5ts "u ?is section4 7#b7 ,t]ms 7,a7 ,9 g5]al ,a program agreem5t ent]$ into "u ?is section by ! ,secret>y1 a ,/ate adm9i/]+ ag5cy1 & a nationally designat$ *ildr5's hospital network %all provide = ea* ( ! foll[+ t]ms3 7i7 ,! agreem5t %all designate ! s]vice area ( ! ,,mccc program t is ! subject ( ! agreem5t4 7ii7 ,! agreem5t %all be effective = a contract ye>1 b may be ext5d$ = additional contract ye>s 9 ! abs5ce ( a notice by a p>ty to t]m9ate1 & is subject to t]m9ation by ! ,secret>y & ! ,/ate adm9i/]+ ag5cy at any "t = cause 7z provid$ "u ! agreem5t74 7iii7 ,! agreem5t %all require t ! nationally designat$ *ildr5's hospital network submit c>e managem5t network & cov]age plans to ! ,secret>y t are c5t]$ ar\nd m$ical home models & t describe ! gov]nance ( ! network4 7iv7 ,! agreem5t %all require ! hospital network to meet all applicable requirem5ts impos$ by ,/ate & local laws4 7v7 ,! agreem5t %all require su* ,/ate1 9 ! case ( eligible *ildr5 :o are resid5ts ( ! ,/ate1 to make paym5ts to ! hospital network1 reg>dless ( :e!r ,,mccc program s]vices are furni%$ to su* eligible *ildr5 9 ano!r ,/ate4 7vi7 ,! agreem5t %all require t ! /&>ds & measures develop$ "u subsection 7e7 be appli$ to ! hospital network1 includ+ measures requir+1 ) respect to network adequacy /&>ds1 t ! hospital network e/abli% su* provid] networks = prim>y1 second>y1 & t]ti>y c>e z are necess>y to ensure ! adequate furni%+ ( ,,mccc program s]vices to eligible *ildr5 enroll$ 9 ! ,,mccc program t is ! subject ( ! agreem5t4 7vii7 ,! agreem5t %all require ! hospital network to comply ) ! data collection & recordkeep+ requirem5ts ( subp>agraph 7,c74 7viii7 ,! agreem5t %all require ! hospital network to accept z paym5t any paym5t made us+ ! risk-bas$ me?odology develop$ "u subsection 7g74 7ix7 ,! agreem5t %all conta9 su* additional t]ms & conditions z ! p>ties may agree to1 s long z su* t]ms & conditions are consi/5t ) ?is section4 7,b7 ,s]vice area ov]lap ,9 designat+ a s]vice area "u subp>agraph 7,a77i71 ! ,secret>y 79 consultation ) ! relevant ,/ate adm9i/]+ ag5cy7 %all consid] ! impacts ( designat+ an area t is already cov]$ "u ano!r program agreem5t1 = purposes ( avoid+ ! unnecess>y duplication ( s]vices & ! impairm5t ( ! f9ancial & s]vice viability ( ano!r ,,mccc program4 7,c7 ,data & recordkeep+ requirem5ts ,! data collection & recordkeep+ requirem5ts "u ?is subp>agraph1 ) respect to a nationally designat$ *ildr5's hospital network1 are z foll[s3 7i7 ,! hospital network %all collect claims data on claims submitt$ ) respect to eligible *ildr5 :o are furni%$ ,,mccc program s]vices "u an ,,mccc program4 ,su* data %all be report$ 9 a /&>diz$ =mat & made available to ! public = purposes ( e/abli%+ a national database on su* claims4 7ii7 ,! hospital network %all ma9ta91 & provide ! ,secret>y & ! ,/ate adm9i/]+ ag5cy access to1 ! records relat+ to ! ,,mccc program op]at$ by ! hospital network1 includ+ p]t95t f9ancial1 m$ical1 & p]sonnel records4 7iii7 ,! hospital network %all submit to ! ,secret>y & ! ,/ate adm9i/]+ ag5cy su* reports z ! ,secret>y f9ds 79 consultation ) ! ,/ate adm9i/]+ ag5cy7 necess>y to monitor ! op]ation1 co/1 & effectiv5ess ( ! ,,mccc program op]at$ by ! hospital network4 7#c7 ,t]m9ation ( agreem5ts ,! ,secret>y %all issue regulations e/abli%+ ! circum/ances "u :i*-- 7,a7 ! ,secret>y or a ,/ate adm9i/]+ ag5cy may t]m9ate an ,,mccc program agreem5t = cause2 & 7,b7 a nationally designat$ *ildr5's hospital network may t]m9ate su* an agreem5t aft] appropriate notice to ! ,secret>y1 ! ,/ate adm9i/]+ ag5cy1 & enrollees4 7e7 ,quality assurance 7#a7 ,developm5t ( /&>ds & measures ,! ,secret>y %all1 9 consultation ) nationally designat$ *ildr5's hospital networks & national p$iatric policy organizations 7su* z ! ,*ildr5's ,hospital ,association & ! ,am]ican ,academy ( ,p$iatrics7-- 7,a7 e/abli% a national set ( quality assurance & improvem5t protocols & proc$ures to apply "u ,,mccc programs2 7,b7 develop p$iatric quality measures2 7,c7 develop p$iatric network adequacy /&>ds = access by eligible *ildr5 to ,,mccc program s]vices2 & 7,d7 develop crit]ia = national p$iatric-focus$ c>e coord9ation = eligible *ildr54 7#b7 ,use ( pqmp measures ,9 c>ry+ out subp>agraph 7,a71 ! ,secret>y %all apply1 to ! ext5t applicable1 *ild heal? quality measures & measures = c5t]s ( excell5ce = *ildr5 ) complex ne$s develop$ "u ?is title1 title ,,xxi1 & section #aaci;,a & take into acc\nt ,,h$is quality measures z requir$ "u section #aheb7;e77#c7 & o!r quality measures4 7f7 ,/&>d ,m$icaid data set 7#a7 ,9 g5]al ,! ,secret>y1 ! ,/ates1 & ! nationally designat$ *ildr5's hospital networks %all collaborate to obta9 consi/5t & v]ifiable ,m$icaid ,analytic ,extract data or a comp>able data set & %all e/abli% data-%>+ agreem5ts to fur!r support collaborative plann+ & c>e coord9ation = m$ically complex *ildr54 7#b7 ,claims analysis ,! ,secret>y %all-- 7,a7 p]=m claims analysis on ! data set develop$ "u p>agraph 7#a7 to det]m9e ! utilization ( items & s]vices furni%$ "u an ,,mccc program to eligible *ildr52 & 7,b7 submit to ,congress & make publicly available on ! ,int]net site ( ! ,c5t]s = ,m$ic>e & ,m$icaid s]vices1 a report on su* claims 9 a /&>diz$ =mat = purposes ( build+ a national database4 7#c7 ,paym5t = report+ inc5tives ,! ,secret>y may provide = pay-=-report+ inc5tives dur+ ! fir/ two ye>s ( any ,,mccc program agreem5t ent]$ into "u ?is section to ensure p>ticipation & analysis ( consi/5t data "u ?is p>agraph to enable ! developm5t ( an appropriate risk-bas$ paym5t me?odology "u subsection 7g74 7g7 ,paym5ts to nationally designat$ *ildr5's hospital networks 7#a7 ,9 g5]al ,! ,/ate plan %all provide = paym5t to nationally designat$ *ildr5's hospital networks pursuant to ! t]ms ( an ,,mccc program agreem5t us+ a risk-bas$ paym5t me?odology 7or me?odologies7 e/abli%$ by ! ,secret>y 9 accordance ) ?is subsection4 7#b7 ,transition f fee-=-s]vice to risk-bas$ paym5t model 7,a7 ,9 g5]al ,paym5t to nationally designat$ *ildr5's hospital networks "u ?is subsection %all be bas$ initially on a fee-=-s]vice paym5t model & %all gradually transition1 ov] a #e-ye> p]iod1 to an equitable1 risk-bas$ paym5t model us+ a me?odology develop$ "u p>agraph 7#c74 ,= ! fir/ two ye>s ( su* p]iod1 a nationally designat$ *ildr5's hospital network may receive1 9 addition to any fee-=-s]vice paym5ts made to su* hospital network1 p] capita c>e coord9ation paym5ts ) respect to exp5ditures = items & s]vices furni%$ to eligible *ildr5 enroll$ 9 ! ,,mccc program op]at$ by ! hospital network ?r\gh m$ical home programs & o!r c>e coord9ation activities = :i* an all-inclusive paym5t model is m suitable ?an fee-=-s]vice reimbursem5t4 7,b7 ,data analysis dur+ initial p]iod ,dur+ ! fir/ two ye>s ( ! implem5tation ( an ,,mccc program1 ! ,secret>y %all analyze data collect$ "u subsection 7f7 = purposes ( develop+ a risk-bas$ paym5t me?odology t w\ld be implem5t$ beg9n+ ) ! ?ird ye> ( implem5tation ( ! ,,mccc program4 7#c7 ,developm5t ( risk-bas$ paym5t me?odology ,! ,secret>y %all develop paym5t me?odologies "u ?is subsection 9 coord9ation ) ! ,m$icaid & ,,*ip ,paym5t & ,access ,commission & ! p$iatric heal? c>e provid] community t-- 7,a7 take into acc\nt ! data analyz$ "u p>agraph 7#b77;,b72 7,b7 are actu>ially s\nd1 z det]m9$ by ! ,secret>y & ! relevant ,/ate adm9i/]+ ag5cy1 9 coord9ation ) ,national ,association ( ,insurance ,commission]s1 us+ an actu>ial me?odology t is adopt$ us+ hi/oric p$iatric claims data2 7,c7 include-- 7i7 a risk adju/m5t me?od1 re-insurance sy/em1 & risk-corridor proc$ure to acc\nt = v>iations 9 acuity ( ! eligible *ildr5 enroll$ 9 ,,mccc programs2 & 7ii7 a %>$-sav+s compon5t2 & 7,d7 may provide = an model = mak+ paym5ts o!r ?an paym5ts made on a p]-memb]1 p]-mon? basis4 7h7 ,waiv]s ( requirem5ts ,) respect to c>ry+ out an ,,mccc program "u ?is section1 ! foll[+ provisions ( law %all n apply3 7#a7 ,section #aijb7;a77#a71 relat+ to /atewid5ess4 7#b7 ,section #aijb7;a77#aj71 ins(> z su* section relates to comp>ability ( s]vices among diff]5t population gr\ps4 7#c7 ,sections #aijb7;a77#bc7 & #aiae7;b77#d71 relat+ to fre$om ( *oice ( provid]s4 7#d7 ,section #aijc7m77#b77;,a71 ins(> z su* section w\ld prohibit a nationally designat$ *ildr5's hospital network f receiv+ c]ta9 paym5ts4 7#e7 ,su* o!r provisions ( ?is title1 title ,,xviii1 sections #aabh;,a & #aabh;,b1 & any provisions ( ! ,f$]al antitru/ laws z ! ,secret>y det]m9es are inapplicable or ! waiv] ( :i* are necess>y = purposes ( c>ry+ out an ,,mccc program "u ?is section4 7i7 ,preemption ( ,/ate law ,a ,/ate may n impose any requirem5t on ! nationally qualifi$ *ildr5's hospital network's op]ation ( an ,,mccc program "u a program agreem5t t meets ! requirem5ts ( ?is section t is inconsi/5t ) or w\ld o!rwise imp$e ! satisfaction by su* hospital network ( ! requirem5ts ( ?is section 7includ+ ! requirem5ts ( su* program agreem5t74 7j7 ,def9itions ,9 ?is section3 7#a7 ,eligible *ild ,! t]m eligible *ild means1 ) respect to an ,,mccc program1 an individual :o is "u ! age ( #ah & :o-- 7,a7 is eligible = m$ical assi/ance "u ! ,/ate plan "u ?is title or *ild heal? assi/ance "u ! ,/ate *ild heal? plan "u title ,,xxi2 & 7,b7 has1 or is at a height5$ risk ( develop+1 a *ronic1 physical1 developm5tal1 behavioral1 or emotional condition t-- 7i7 affects two or m body sy/ems2 7ii7 requires int5sive c>e coord9ation to avoid excessive hospitalizations or em]g5cy dep>tm5t visits2 or 7iii7 meets ! crit]ia = m$ical complexity us+ risk adju/m5t me?odologies 7su* z ,cl9ical ,risk ,gr\ps7 agre$ ^u by ! ,secret>y 9 coord9ation ) a national panel ( p$iatric exp]ts4 7#b7 ,,mccc program ,! t]m ,,mccc program means a ,m$icaid coord9at$ c>e program t provides eligible *ildr5 ) ,,mccc program s]vices ?r\gh a nationally designat$ *ildr5's hospital network 9 accordance ) a program agreem5t t meets ! requirem5ts ( subsection 7d74 7#c7 ,,mccc program s]vices ,! t]m ,,mccc program s]vices means ! full range ( items & s]vices = :i* m$ical assi/ance is available "u a ,/ate plan = *ildr51 includ+ p$iatric c>e managem5t s]vices & p$iatric-focus$ c>e coord9ation & heal? promotion1 z specifi$ 9 ! program agreem5t4 7#d7 ,qualifi$ *ildr5's hospital ,! t]m qualifi$ *ildr5's hospital means a *ildr5's hospital t-- 7,a7 qualifies to receive paym5t "u section #cdj;,e ( ! ,public ,heal? ,s]vice ,act 7relat+ to *ildr5's hospitals t op]ate graduate m$ical education programs72 or 7,b7 meets #c or m ( ! foll[+ crit]ia3 7i7 ,m9imum p$iatric dis*>ges ,! hospital has at lea/ #e1jjj annual p$iatric dis*>ges 7includ+ neonates1 b exclud+ ob/etrics & normal newborns7 = ! mo/ rec5t co/ report+ p]iod = :i* data are available4 7ii7 ,m9imum numb] ( b$s ,! hospital has #ajj lic5s$ p$iatric b$s1 n includ+ b$s 9 neonatal int5sive c>e units b includ+ b$s 9 p$iatric int5sive c>e units & o!r acute c>e b$s4 7iii7 ,access to p$iatric em]g5cy s]vices ,! hospital has access 7?r\gh own]%ip or o!rwise7 to p$iatric em]g5cy s]vices4 7iv7 ,m$icaid reliant ,at lea/ #cj p]c5t ( ! p$iatric dis*>ges or inpati5t days 7exclud+ obs]vation days7 9 ! hospital = ! mo/ rec5t co/ report+ p]iod = :i* data are available 7 *ildr5 eligible = m$ical assi/ance "u ?is title or = *ildr5's heal? assi/ance "u title ,,xxi4 7v7 ,affiliation ) accr$it$ p$iatric resid5cy tra9+ program ,! hospital sponsors or is affiliat$ ) a p$iatric resid5cy program t is accr$it$ by ! ,accr$itation ,c\ncil = ,graduate ,m$ical ,education4 7vi7 ,p$iatric m$ical home programs ,! hospital has e/abli%$ & implem5t$ demon/rable p$iatric m$ical home programs d$icat$ to m$ically complex *ildr54 7#e7 ,nationally designat$ *ildr5's hospital network ,! t]m nationally designat$ *ildr5's hospital network means a network ( hospitals & heal? c>e provid]s-- 7,a7 an*or$ by a qualifi$ *ildr5's hospital or hospitals ) pr9cipal gov]nance responsibility ov] ! hospital network2 7,b7 9 :i* ! full complem5t ( heal? c>e provid]s ne$$ to provide ! be/ c>e = *ildr5 9 ! network p>ticipate2 & 7,c7 t repres5ts ! int]e/s ( physicians1 o!r heal? c>e provid]s1 p>5ts ( m$ically complex *ildr51 & o!r relatives ( su* *ildr54 7#f7 ,program agreem5t ,! t]m program agreem5t means1 ) respect to a nationally designat$ *ildr5's hospital network1 an agreem5t1 betwe5 ! hospital network1 ! ,secret>y1 & a ,/ate adm9i/]+ ag5cy = ! op]ation ( an ,,mccc program by ! hospital network 9 ! ,/ate t meets ! requirem5ts ( ?is section4 7#g7 ,/ate adm9i/]+ ag5cy ,! t]m ,/ate adm9i/]+ ag5cy means1 ) respect to ! op]ation ( an ,,mccc program 9 a ,/ate1 ! ag5cy ( t ,/ate 7:i* may be ! s+le ag5cy responsible = adm9i/ration ( ! ,/ate plan "u ?is title 9 ! ,/ate7 responsible = adm9i/]+ program agreem5ts "u ?is section4 4 7b7 ,application "u ,,*ip ,section #bajg7;e77#a7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acig;gg7e77#a77 is am5d$ by add+ at ! end ! foll[+ new subp>agraph3 7,p7 ,section #aidg 7relat+ to ,m$icaid *ildr5's c>e coord9ation programs = *ildr5 ) complex m$ical conditions74 4 7c7 ,regulations ,n lat] ?an #abj days aft] ! date ( ! enactm5t ( ?is ,act1 ! ,secret>y ( ,heal? & ,human ,s]vices %all make rules on ! record1 aft] opportunity = an ag5cy he>+ to c>ry out ! am5dm5ts made by ?is section 9 accordance ) sections #eef & #eeg ( title #e1 ,unit$ ,/ates ,code4