,i #aac? ,,congress #b;d ,session ,h4 ,r4 #dhhh ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,june #ah1 #bjad ,ms4 ,cl>k ( ,massa*usetts 7= h]self & ,mr4 ,/iv]s7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to provide = ! id5tification & dissem9ation ( be/ practices = m$ical pr(essionals & o!r heal? c>e provid]s relative to neonatal ab/95ce syndrome1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,coord9at$ ,recov]y ,initiative = ,babies ,act ( #bjad or ! ,,crib ,act ( #bjad4 #b4 ,id5tification1 treatm5t1 & surveillance ( neonatal ab/95ce syndrome 7a7 ,/udy ,! ,secret>y ( ,heal? & ,human ,s]vices 79 ?is ,act ref]r$ to z ! ,secret>y7 %all conduct a /udy to id5tify-- 7#a7 ! mo/ effective & b5eficial me?ods t are curr5tly available to id5tify ! ne$ = treat+ & be/ treatm5t me?ods =1 infants diagnos$ ) neonatal ab/95ce syndrome2 7#b7 b>ri]s1 includ+ associat$ co/s & limitations or disp>ities 9 ! availability or scope ( heal? insurance cov]age1 t may h9d] ! cl9ical use ( be/ practices by m$ical pr(essionals & o!r heal? c>e provid]s = ! id5tification & treatm5t ( neonatal ab/95ce syndrome2 7#c7 circum/ances1 su* z populations ) unique ne$s & heal? c>e sett+s ) limit$ res\rces1 t may require p>ticul>iz$ be/ practices = m$ical pr(essionals & o!r heal? c>e provid]s = ! id5tification & treatm5t ( neonatal ab/95ce syndrome2 7#d7 exi/+ surveillance measures )9 ! ,dep>tm5t ( ,heal? & ,human ,s]vices 79 ?is ,act ref]r$ to z ! ,dep>tm5t7 & 9 ,/ate heal? ag5cies relat+ to neonatal ab/95ce syndrome2 & 7#e7 areas 9 :i* in=mation on neonatal ab/95ce syndrome & its surr\nd+ circum/ances is insuffici5t1 incomplete1 or requires fur!r /udy or analysis4 7b7 ,advisory panel 7#a7 ,e/abli%m5t ,! ,secret>y %all conv5e an advisory panel 79 ?is section ref]r$ to z ! ,panel7 to id5tify & compile ! be/ practices "u subsection 7c74 ,! ,secret>y %all reconv5e ! ,panel = su* purpose :5ev] ! ,secret>y1 ) ! advice ( ! ,panel1 det]m9es updates are ne$$ to ! li/ ( be/ practices "u subsection 7e71 b no less ?an e #b ye>s4 7#b7 ,memb]s ,! ,panel %all be compos$ ( #ai memb]s1 all ( :om %all be m$ical pr(essionals or heal? c>e provid]s ) exp]tise 9 neonatal ab/95ce syndrome4 ,memb]s %all repres5t ! broad range ( su* pr(essionals & provid]s necess>y to id5tify & compile ! be/ practices = id5tification & treatm5t ( neonatal ab/95ce syndrome1 includ+ repres5tatives (-- 7,a7 ,! ,am]ican ,academy ( ,family ,physicians4 7,b7 ,! ,am]ican ,academy ( ,p$iatrics4 7,c7 ,! ,am]ican ,academy ( ,physician ,assi/ants4 7,d7 ,! ,am]ican ,college ( ,nurse-,midwives4 7,e7 ,! ,am]ican ,college ( ,ob/etricians & ,gynecologi/s4 7,f7 ,! ,am]ican ,hospital ,association4 7,g7 ,! ,am]ican ,m$ical ,association4 7,h7 ,! ,am]ican ,nurses ,association4 7,i7 ,! ,am]ican ,ph>maci/s ,association4 7,j7 ,! ,am]ican ,public ,heal? ,association4 7,k7 ,! ,am]ican ,society = ,addiction ,m$ic9e4 7,l7 ,! ,am]ican ,society ( ,ane/hesiologi/s4 7,m7 ,! ,association ( ,/ate & ,t]ritorial ,heal? ,pr(essionals4 7,n7 ,! ,association ( ,wom5's ,heal?1 ,ob/etric1 & ,neonatal ,nurses4 7,o7 ,! ,*ildr5's ,hospital ,association4 7,p7 ,! ,national ,association ( ,m$icaid ,directors4 7,q7 ,! ,national ,association ( ,nurse ,practition]s 9 ,wom5's ,heal?4 7,r7 ,! ,national ,association ( ,p$iatric ,nurse ,practition]s4 7,s7 ,! ,national ,association ( ,social ,work]s4 7#c7 ,adm9i/rative support ,! ,secret>y %all provide appropriate adm9i/rative support1 includ+ te*nical assi/ance1 to ! ,panel4 7c7 ,be/ practices2 plan2 report ,n lat] ?an #ab mon?s aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y %all-- 7#a7 7,a7 id5tify & compile ! be/ practices = m$ical pr(essionals & o!r heal? c>e provid]s = id5tify+ & treat+ neonatal ab/95ce syndrome2 & 7,b7 id5tify any gaps 9 be/ practices = m$ical pr(essionals & o!r heal? c>e provid]s t may require additional rese>* or analysis2 7#b7 develop & implem5t a plan = ! coord9ation &1 if necess>y1 expansion & enhancem5t ( public heal? surveillance ( neonatal ab/95ce syndrome t-- 7,a7 id5tifies ! data necess>y = a public heal? response to neonatal ab/95ce syndrome2 7,b7 id5tifies any gaps 9 curr5t surveillance or coord9ation t results 9 ! lack ( collection ( su* data1 includ+ a lack ( timel9ess or /&>dization ( data report+2 7,c7 makes recomm5dations & provides assi/ance to ! ,/ates to implem5t effective measures to collect su* necess>y data by ,/ate heal? ag5cies2 & 7,d7 designates an appropriate ag5cy 9 ! ,dep>tm5t to coord9ate su* data2 & 7#c7 n lat] ?an #ah mon?s aft] ! date ( enactm5t ( ?is ,act1 submit to ! ,congress a report conta9+ ! ,secret>y's f9d+s & id5tify+ issues t-- 7,a7 relate to neonatal ab/95ce syndrome1 includ+ its causes1 id5tification1 treatm5t1 preval5ce1 & effects2 & 7,b7 public heal? issues relat$ to neonatal ab/95ce syndrome t w\ld b5efit f fur!r /udy4 7d7 ,dissem9ation ( be/ practices ,! ,secret>y-- 7#a7 %all dissem9ate ! be/ practices id5tifi$ & compil$ "u subsection 7c71 includ+ any updates "u subsection 7e71 directly or ?r\gh arrangem5ts ) nonpr(it organizations1 gov]nm5t ag5cies1 or ! m$ia2 7#b7 %all po/ su* be/ practices on ! public ,int]net site ( ! ,dep>tm5t2 & 7#c7 may include 9 su* dissem9ation any supplem5tal in=mation :i* ! ,secret>y det]m9es to be relevant & appropriate1 9 consultation ) ! ,panel4 7e7 ,updates to be/ practices ,! ,secret>y %all p]iodically1 b no less (t5 ?an e #b ye>s1 review ! be/ practices id5tifi$ "u subsection 7c7 to ensure t su* be/ practices are up-to-date & reflect ! views ( ! m$ical community1 includ+ organizations li/$ 9 subsection 7b77#b74 7f7 ,appropriate ag5cy ,9 designat+ an appropriate ag5cy )9 ! ,dep>tm5t "u subsection 7c71 ! ,secret>y %all consid]1 among o!r factors1 ag5cy res\rces1 purpose1 exp]tise1 & capability to conduct public heal? programs & rese>*4