,i #aac? ,,congress #b;d ,session ,h4 ,r4 #dfje ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,may #h1 #bjad ,mrs4 ,ellm]s 7= h]self & ,mr4 ,moran7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to am5d title ,,xix ( ! ,social ,security ,act to provide ,/ates an option to cov] a *ildr5's program ( all-inclusive coord9at$ c>e 7,chi,p,a,c,c7 "u ! ,m$icaid program4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,chi,p,a,c,c ,act ( #bjad4 #b4 ,optional m$icaid cov]age ( *ildr5's program ( all-inclusive coord9at$ c>e 7,chi,p,a,c,c7 7a7 ,9 g5]al ,section #aije7;a7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #acif;d7a77 is am5d$-- 7#a7 by /rik+ & at ! end ( p>agraph 7#bh72 7#b7 by r$esignat+ p>agraph 7#bi7 z p>agraph 7#cj72 & 7#c7 by ins]t+ aft] p>agraph 7#bh7 ! foll[+ new p>agraph3 7#bi7 s]vices furni%$ "u a *ildr5's program ( all-inclusive coord9at$ c>e 7,chi,p,a,c,c7 "u section #aidd2 & 4 7b7 ,*ildr5's program ( all-,inclusive coord9at$ c>e ,title ,,xix ( su* ,act is fur!r am5d$ by ins]t+ aft] section #aidc 7#db ,u4,s4,c4 #acifw-#c7 ! foll[+ new section3 #aidd4 ,*ildr5's program ( all-inclusive coord9at$ c>e 7a7 ,/ate option 7#a7 ,9 g5]al ,a ,/ate may elect to provide m$ical assi/ance "u ?is section to ,chi,p,a,c,c eligible individuals :o are eligible = m$ical assi/ance "u ! ,/ate plan "u ?is title & :o *oose to enroll 9 a *ildr5's program ( all-inclusive coord9at$ c>e4 ,9 ! case ( an individual :o *ooses to enroll 9 su* a program pursuant to su* an election-- 7,a7 ! individual %all receive b5efits "u ! ,/ate plan solely ?r\gh su* program2 & 7,b7 ! heal? c>e provid]s furni%+ s]vices "u su* program %all receive paym5t = provid+ su* s]vices 9 accordance ) ! t]ms ( su* program4 7#b7 ,num]ical & geographical limitations p]mitt$ ,a ,/ate may e/abli%-- 7,a7 a num]ical limit on ! numb] ( individuals :o may be enroll$ 9 ! ,/ate's ,chi,p,a,c,c2 & 7,b7 geographic limitations on ! s]vice areas = a ,chi,p,a,c,c4 7b7 ,chi,p,a,c,c & o!r t]ms def9$ ,9 ?is section3 7#a7 ,*ildr5's program ( all-inclusive coord9at$ c>e2 ,chi,p,a,c,c ,! t]ms *ildr5's program ( all-inclusive coord9at$ c>e & ,chi,p,a,c,c mean a program ( coord9at$ c>e = ,chi,p,a,c,c eligible *ildr5 t is e/abli%$ by a ,/ate "u ?is section & meets ! foll[+ requirem5ts3 7,a7 ,op]ation ,! program is adm9i/]$ by a s+le ,/ate ag5cy4 ,su* ag5cy may provide = ! op]ation ( ! program ?r\gh arrangem5ts betwe5 "o or m o!r entities1 su* z a ,chi,p,a,c,c coord9ator 7z def9$ 9 p>agraph 7#c77 & su* ag5cy4 7,b7 ,compreh5sive b5efits 7i7 ,9 g5]al ,! program provides compreh5sive heal? c>e items & s]vices to ,chi,p,a,c,c eligible individuals 7z def9$ 9 p>agraph 7#b77 9 accordance ) ?is section & regulations4 7ii7 ,scope & plan = s]vices ,su* items & s]vices %all-- 7,i7 include items & s]vices describ$ 9 subsection 7c77#a77;,a7 to ! ext5t su* items & s]vices are appropriate = ! individual2 & 7,,ii7 be provid$ consi/5t ) a compreh5sive c>e plan develop$ by an int]discipl9>y heal? pr(essional team 7z def9$ 9 p>agraph 7#d774 7iii7 ,qualifications ( provid]s ,su* items & s]vices are provid$ ?r\gh heal? c>e provid]s t-- 7,i7 meet su* c]tification or o!r quality requirem5ts z may be necess>y to p>ticipate 9 ! program ( m$ical assi/ance "u ?is title or 9 ! program "u title ,,xviii2 & 7,,ii7 ma9ta9 records on ,chi,p,a,c,c eligible individuals enroll$ 9 ! program & to :om ! provid] furni%es s]vices1 reflect+ bo? ! specific c>e & s]vices furni%$ by ! provid] & ! relation%ip ( ^? s]vices to ! compreh5sive plan ( c>e = t individual & to ! deliv]y ( o!r s]vices to ! individual ?r\gh ! program4 7#b7 ,chi,p,a,c,c eligible individual ,! t]m ,chi,p,a,c,c eligible individual means1 ) respect to a ,chi,p,a,c,c1 an individual-- 7,a7 :o1 at ! "t ( enrollm5t 9 ! ,chi,p,a,c,c1 is a *ild 7z def9$ "u ! ,/ate plan = ?is purpose7 & :o is n old] ?an su* age z ! ,/ate may specify2 7,b7 :o resides 9 ! s]vice area ( ! ,chi,p,a,c,c2 7,c7 :o is eligible = m$ical assi/ance "u ! ,/ate plan )\t reg>d to ?is section 7or1 b = enrollm5t 9 a ,chi,p,a,c,c w\ld1 bas$ on ! individual's illness or heal? condition or ! project$ co/ ( treatm5t requir$ = su* illness or condition1 become s eligible72 7,d7 :o suff]s f a s]i\s illness or heal? condition2 7,e7 = :om !re is a reasonable likelihood t ! individual's life w be ?reat5$ by su* illness or condition2 & 7,f7 ^: heal? /atus is expect$ to decl9e because ( su* illness or condition be=e atta9+ full adul?ood 7z def9$ "u ! ,/ate plan74 ,! ,secret>y may waive ! application ( subp>agraph 7,c7 ) respect to eligibility = m$ical assi/ance "u ! ,/ate plan )\t reg>d to ?is section 9 ! case ( individuals if ! ,/ate demon/rates to ! satisfaction ( ! ,secret>y t ! sum ( ! additional exp5ditures "u ?is title result+ f su* waiv] 9 a fiscal ye> w n exce$ ! aggregate sav+s 9 exp5ditures o!rwise result+ f ! implem5tation ( ?is section 9 ! fiscal ye>4 7#c7 ,chi,p,a,c,c coord9ator ,! t]m ,chi,p,a,c,c coord9ator means1 ) respect to a ,chi,p,a,c,c1 an entity 7:i* may be ! ,/ate adm9i/]+ ag5cy or ano!r entity "u an arrangem5t ) su* an ag5cy7 t directs1 sup]vises1 & assures ! coord9ation ( compreh5sive s]vices to ,chi,p,a,c,c eligible individuals enroll$ 9 ! ,chi,p,a,c,c consi/5t ) ! foll[+3 7,a7 ,! entity mu/ assure ! direct & cont9u\s involvem5t ( an int]discipl9>y heal? pr(essional team 9 manag+ & coord9at+ ! provision ( c>e & s]vices )9 ! coord9ator's responsibility to ea* su* enroll$ individual4 7,b7 ,! entity mu/ include on its /aff1 or o!rwise arrange = ! provision ( s]vices1 ?r\gh contracts or o!rwise1 ( ea* ( ! types ( ! heal? c>e pr(essionals & o!r s]vice provid]s requir$ to provide ! items & s]vices requir$ "u subsection 7c77#a77;,a74 7#d7 ,int]discipl9>y heal? pr(essional team ,! t]m int]discipl9>y heal? pr(essional team means1 ) respect to a ,chi,p,a,c,c1 a gr\p ( heal? pr(essionals t-- 7,a7 includes at lea/-- 7i7 "o physician 7z def9$ 9 section #ahfa7r772 7ii7 "o regi/]$ pr(essional nurse2 & 7iii7 "o social work]1 pa/oral c\nselor1 or o!r c\nselor2 7,b7 develops a compreh5sive plan ( c>e = ,chi,p,a,c,c eligible individuals enroll$ ) ! ,chi,p,a,c,c & furni%es1 or sup]vises ! provision (1 c>e & s]vices describ$ 9 subsection 7c77#a7 to an individual enroll$ 9 ! ,chi,p,a,c,c2 & 7,c7 ?r\gh direct action & communication ) heal? c>e provid]s furni%+ s]vices "u ! ,chi,p,a,c,c1 on behalf ( or "u ! direction or sup]vision ( a ,/ate adm9i/]+ ag5cy or a ,chi,p,a,c,c coord9ator1 coord9ates ! c>e & s]vices furni%$ to su* enrollees 9 a mann] t takes into acc\nt ! be/ int]e/s ( ea* su* enrollee & ! enrollee's family4 7#e7 ,/ate adm9i/]+ ag5cy ,! t]m ,/ate adm9i/]+ ag5cy means1 ) respect to ! op]ation ( a ,chi,p,a,c,c 9 a ,/ate1 ! ag5cy ( t ,/ate 7:i* may be ! s+le ag5cy responsible = adm9i/ration ( ! ,/ate plan "u ?is title 9 ! ,/ate7 responsible = ! implem5tation1 ei!r directly or ?r\gh arrangem5ts ) "o or m ,chi,p,a,c,c coord9ators1 ( ! ,chi,p,a,c,c "u ?is section 9 ! ,/ate4 7#f7 ,regulations ,except z o!rwise provid$1 ! t]m regulations ref]s to int]im f9al or f9al regulations promulgat$ "u subsection 7f74 7c7 ,scope ( b5efits2 b5efici>y safegu>ds 7#a7 ,9 g5]al ,"u a ,chi,p,a,c,c ( a ,/ate1 ! ,/ate adm9i/]+ ag5cy %all assure t-- 7,a7 an individual enroll$ 9 ! ,chi,p,a,c,c is cov]$ =1 at a m9imum-- 7i7 all items & s]vices t are cov]$ = any individual "u ?is title1 & all additional items & s]vices specifi$ 9 regulations1 b )\t any limitation or condition z to am\nt1 duration1 or scope2 7ii7 access to cov]$ items & s]vices1 z ne$$1 #bd h\rs p] day1 e day ( ! ye>2 & 7iii7 s]vices t include compreh5sive1 integrat$ palliative & curative s]vices1 expressive !rapy & c\nsel+1 & c\nsel+ & anticipatory b]eavem5t s]vices to imm$iate family memb]s ( ! ,chi,p,a,c,c eligible individual1 z "p ( ! s]vices to ! eligible individual2 7,b7 provision ( su* s]vices to su* individuals ?r\gh a compreh5sive & int]discipl9>y heal? & social s]vices deliv]y sy/em :i* integrates1 z appropriate to ! individual recipi5t ( s]vices1 acute & long-t]m c>e s]vices1 palliative1 respite & curative treatm5t1 c\nsel+ & support = family memb]s :o are c>etak]s or o!rwise relevant to appropriate c>e & treatm5t ( ! individual1 & su* o!r s]vices z may be furni%$ pursuant to regulations & ! provisions ( ! applicable ,/ate plan2 & 7,c7 ! ,chi,p,a,c,c is op]at$1 & ! s]vices to enroll$ individuals are furni%$1 9 a mann] t is consi/5t ) ,/&>ds ( ,c>e & ,practice ,guidel9es develop$ by ,*ildr5's ,hospice ,int]national = a ,program ( ,all-,inclusive ,c>e = ,*ildr5 7z 9 effect z ( ! date ( ! enactm5t ( ?is section or su* lat] date z ! ,secret>y may specify74 7#b7 ,quality assurance2 pati5t safegu>ds ,) respect to a ,chi,p,a,c,c1 ! ,/ate adm9i/]+ ag5cy %all assure all ( ! foll[+3 7,a7 ,! provision ( s]vices "u ! ,chi,p,a,c,c meets all applicable ,f$]al & ,/ate guidel9es = quality assurance4 7,b7 ,necess>y safegu>ds h be5 e/abli%$ to protect ! heal? & welf>e ( individuals enroll$ 9 ! ,chi,p,a,c,c "u ?is section4 7,c7 ,!re is a writt5 plan ( quality assurance1 & proc$ures implem5t+ su* plan1 9 accordance ) regulations4 7,d7 ,writt5 safegu>ds ( ! rights ( individuals enroll$ 9 ! ,chi,p,a,c,c1 includ+ a pati5t bill ( rights & proc$ures = grievances & appeals1 9 accordance ) regulations & ) o!r requirem5ts ( ?is title & ,f$]al & ,/ate law design$ = ! protection ( pati5ts4 7#c7 ,co/-%>+ waiv] ,a ,/ate adm9i/]+ ag5cy may1 9 ! case ( a ,chi,p,a,c,c eligible individual enroll$ 9 ! ,/ate's ,chi,p,a,c,c1 waive d$uctibles1 copaym5ts1 co9surance1 or o!r co/-%>+ t w\ld o!rwise apply "u ! ,/ate plan "u ?is title4 7d7 ,eligibility det]m9ations 7#a7 ,9 g5]al ,9 det]m9+ :e!r an individual is a ,chi,p,a,c,c eligible individual1 ! ,/ate adm9i/]+ ag5cy %all conduct an indep5d5t evaluation & assessm5t1 :i* %all include at lea/ ! foll[+3 7,a7 ,:]e appropriate1 consultation ) ! individual's family1 gu>dian1 or o!r responsible individual4 7,b7 ,consultation ) appropriate treat+ & consult+ heal? & support pr(essionals c>+ = ! individual4 7,c7 ,an exam9ation ( ! individual's relevant hi/ory1 m$ical records1 & c>e & support ne$s1 guid$ by be/ practices & rese>* on effective /rategies t result 9 improv$ heal? & quality ( life outcomes4 7#b7 ,c]tification ,^u completion ( ! evaluation & assessm5t describ$ 9 p>agraph 7#a71 an individual meet+ ! crit]ia ( a ,chi,p,a,c,c eligible individual %all be c]tifi$ z su*1 pursuant to proc$ures specifi$ 9 regulations & ! applicable ,/ate plan4 7#c7 ,cont9uation ( eligibility ,an individual :o is a ,chi,p,a,c,c eligible individual may be deem$ to cont9ue to be su* an individual not)/&+ a det]m9ation t ! individual no long] meets ! requirem5ts ( subp>agraphs 7,d71 7,e71 & 7,f7 ( subsection 7b77#b71 if1 9 accordance ) regulations1 x is reasonably =eseeable t1 if ! individual is n furni%$ s]vices "u ?is section1 ! sev]ity or impact ( ! individual's illness or condition w\ld increase to a degree t ! individual w\ld aga9 meet su* requirem5t be=e ! individual atta9s adul?ood or )9 ! succe$+ #ab-mon? p]iod4 7#d7 ,enrollm5t & dis5rollm5t 7,a7 ,volunt>y dis5rollm5t at any "t ,! enrollm5t & dis5rollm5t ( ,chi,p,a,c,c eligible individuals 9 a ,chi,p,a,c,c %all be pursuant to proc$ures specifi$ 9 regulations & ! ,/ate plan1 b %all p]mit an enrollee1 or an enrollee's gu>dian or o!r legal repres5tative1 act+ on behalf ( an enrollee1 to volunt>ily dis5roll = any reason at any "t4 7,b7 ,appeals 7i7 ,^u application ,if an individual is det]m9$ n to be a ,chi,p,a,c,c eligible individual ^u application1 !n ! ,/ate plan "u ?is title %all all[ = an appeal ( su* det]m9ation4 ,dur+ ! c\rse ( su* appeal1 ! individual %all n beg9 to receive b5efits ?r\gh ! ,chi,p,a,c,c unless & until ! appeal is resolv$ favorably = ! individual4 7ii7 ,subsequ5tly ,if an individual is det]m9$ n to be a ,chi,p,a,c,c eligible individual at any "t aft] enrollm5t 9 a ,chi,p,a,c,c1 or is o!rwise dis5roll$ f a ,chi,p,a,c,c1 !n ! ,/ate plan "u ?is title %all all[ = an appeal ( su* det]m9ation4 ,dur+ ! c\rse ( su* appeal1 ! individual %all cont9ue to be enroll$ 9 ! ,chi,p,a,c,c & to receive b5efits ?r\gh ! ,chi,p,a,c,c4 7#e7 ,con/ruction ,! fact t a ,chi,p,a,c,c eligible individual is enroll$ "u a ,chi,p,a,c,c %all n be con/ru$ z adv]sely affect+ ! eligibility ( ! individual's p>5ts or c>etak] relatives = m$ical assi/ance "u ?is title4 7e7 ,paym5ts to heal? c>e provid]s "u ,chi,p,a,c,c 7#a7 ,9 g5]al ,paym5ts to heal? c>e provid]s furni%+ items & s]vices "u a ,chi,p,a,c,c %all be paid on a capitat$ or fee-=-s]vice basis1 accord+ to regulations & z specifi$ 9 ! applicable ,/ate plan consi/5t ) ?is subsection4 7#b7 ,use ( integrat$1 budget-neutral f9anc+ ,paym5ts "u ?is subsection %all be made 9 am\nts t are design$1 accord+ to regulations1 to ensure t aggregate paym5ts "u ?is section = individuals enroll$ 9 a ,chi,p,a,c,c1 :e!r made on a capitat$ basis or fee-=-s]vice basis1 d n exce$ on av]age ! aggregate paym5ts t w\ld h be5 paid "u ! ,/ate plan = su* individuals if !y 7 n s enroll$1 tak+ into acc\nt ! comp>ative case mix ( ,chi,p,a,c,c enrollees & su* o!r factors z ! ,secret>y det]m9es to be appropriate4 7f7 ,regulations 7#a7 ,9 g5]al ,! ,secret>y %all issue su* regulations1 includ+ int]im f9al regulations1 z may be necess>y to c>ry out ?is section4 7#b7 ,cont9uation ( modifications or waiv]s op]ational requirem5ts ,if a ,/ate ag5cy adm9i/]+ a program ( all-inclusive coord9at$ c>e = s]i\sly ill *ildr5 approv$ pursuant to waiv] au?ority "u section #aaae or #aiae7;c7 has contractual or o!r op]at+ arrangem5ts relat+ to su* program :i* are n o!rwise recogniz$ 9 regulation & :i* 7 9 effect z ( ! date ( ! enactm5t ( ?is section1 ! ,secret>y %all p]mit ! ag5cy to cont9ue su* arrangem5ts s long z su* arrangem5ts are f\nd by ! ,secret>y to be reasonably consi/5t ) ! objectives ( a ,chi,p,a,c,c4 7#c7 ,con/ruction ,no?+ 9 ?is subsection %all be con/ru$ z prev5t+ ! ,secret>y f includ+ 9 regulations provisions to ensure ! heal? & safety ( individuals enroll$ 9 a ,chi,p,a,c,c "u ?is section t are 9 addition to ^? o!rwise provid$ "u ?is section4 7g7 ,applicability ( requirem5ts ,) respect to c>ry+ out a ,chi,p,a,c,c "u ?is section1 ! foll[+ requirem5ts ( ?is title 7& regulations relat+ to su* requirem5ts7 %all n apply3 7#a7 ,section #aijb7;a77#a71 relat+ to any requirem5t t ,chi,p,a,c,cs or ,chi,p,a,c,c s]vices be provid$ 9 all areas ( a ,/ate4 7#b7 ,section #aijb7;a77#aj71 ins(> z su* section relates to comp>ability ( s]vices among diff]5t population gr\ps4 7#c7 ,sections #aijb7;a77#bc7 & #aiae7;b77#d71 relat+ to fre$om ( *oice ( provid]s "u a ,chi,p,a,c,c4 7#d7 ,section #aijc7m77#b77;,a71 ins(> z x re/ricts a ,chi,p,a,c,c provid] f receiv+ prepaid capitation paym5ts4 7#e7 ,section #aije7o71 limit+ ! scope ( hospice c>e4 7#f7 ,su* o!r provisions ( ?is title t ! ,secret>y det]m9es are inapplicable to c>ry+ out a ,chi,p,a,c,c "u ?is section4 4 7c7 ,cont9u$ demon/ration project au?ority ,section #aidd ( ! ,social ,security ,act1 z add$ by subsection 7b71 %all n be con/ru$ z prev5t+ a ,/ate f develop+1 or ! ,secret>y ( ,heal? & ,human ,s]vices f approv+1 a project simil> to or relat$ to ,chi,p,a,c,cs 7z describ$ 9 su* section7 "u exi/+ au?orities1 includ+ demon/ration project & waiv] au?orities "u title ,,xix ( su* ,act or o!r provisions ( su* ,act4 7d7 ,o!r con=m+ am5dm5ts ,section #aije7r77#e7 ( su* ,act 7#db ,u4,s4,c4 #acif;d7r77#e77 is am5d$ by ins]t+ be=e ! p]iod at ! end ! foll[+3 1 o!r ?an items & s]vices t are only cov]$ z section #aidd ,chi,p,a,c,c b5efits4 7e7 ,timely issuance ( regulations2 effective date ,! ,secret>y ( ,heal? & ,human ,s]vices %all promulgate regulations to c>ry out ! am5dm5ts made by ?is section 9 a timely mann]1 s z to assure t x w be feasible = ,/ate ag5cies & entities to e/abli% & op]ate ,chi,p,a,c,cs = p]iods beg9n+ n lat] ?an #a ye> aft] ! date ( ! enactm5t ( ?is ,act4 7f7 ,funds = te*nical assi/ance ,! ,secret>y is au?oriz$ to exp5d funds appropriat$ to c>ry out title ,,xix ( ! ,social ,security ,act to make grants to1 or ent] into contracts )1 private entities or organizations t are qualifi$ to provide te*nical or o!r assi/ance 9 develop+ & e/abli%+ ,chi,p,a,c,cs )9 ! ,/ates1 except t-- 7#a7 su* funds may be exp5d$ solely = ! purposes ( implem5t+ ?is section2 & 7#b7 a private entity or organization 9 receipt ( su* funds mu/ h demon/rat$ exp]tise & a m9imum ( #e ye>s ( exp]i5ce 9 work+ ) or assi/+ 9 ! e/abli%m5t ( programs = compreh5sive c>e ( *ildr5 meet+ ! description ( ,chi,p,a,c,c eligible individuals "u section #aidd7;b7 ( ! ,social ,security ,act1 z add$ by subsection 7b74