,i #aac? ,,congress #b;d ,session ,h4 ,r4 #dbea ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,m>* #ad1 #bjad ,mr4 ,pascrell 7= himself & ,mr4 ,rooney7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce ,a ,,bill ,to direct ! ,secret>y ( ,heal? & ,human ,s]vices1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 to e/abli% a surveillance sy/em reg>d+ traumatic bra9 injury1 & = o!r purposes4 #a4 ,%ort title ,?is ,act may be cit$ z ! ,national ,traumatic ,bra9 ,injury ,rese>* & ,treatm5t ,improvem5t ,act ( #bjad4 #b4 ,f9d+s 7a7 ,f9d+s ,! ,congress f9ds z foll[s3 7#a7 ,/ate data & monitor+ sy/ems provide reliable data on injury causes & risk factors1 id5tify tr5ds 9 ! incid5ce ( traumatic bra9 injury1 enable ! developm5t ( cause-specific prev5tion /rategies focus$ on populations at greate/ risk1 & monitor ! effectiv5ess ( su* /rategies4 7#b7 ,s9ce #aiie1 :5 ! ,c5t]s = ,disease ,control & ,prev5tion publi%$ ,guidel9es = ,surveillance ( ,c5tral ,n]v\s ,sy/em ,injury1 additional causes ( traumatic bra9 injury h em]g$3 milit>y-relat$ traumatic bra9 injuries2 sports-relat$ concussions2 traffic injuries result+ f text+ :ile driv+2 & increas+ numb]s ( falls-relat$ traumatic bra9 injuries among old] adults4 7#c7 ,9 _! #bjac report1 ,sports-,relat$ ,concussions 9 ,y\?3 ,improv+ ! ,sci5ce1 ,*ang+ ! ,culture1 ! ,in/itute on ,m$ic9e & ! ,national ,rese>* ,c\ncil not$ t !re is curr5tly a lack ( data to accurately e/imate ! incid5ce ( sports-relat$ concussions across a v>iety ( sports & = y\? across ! p$iatric age spectrum4 ,! report recomm5d$ t ! ,c5t]s = ,disease ,control & ,prev5tion e/abli% & ov]see a national surveillance sy/em to accurately det]m9e ! incid5ce ( sports-relat$ concussions1 includ+ ^? 9 y\? ages #e to #ba1 tak+ into acc\nt ,f$]al ef=ts to collect in=mation on traumatic bra9 injury4 7#d7 ,traumatic bra9 injury is a sub/antial public heal? problem among old] p]sons4 ,z ! population ( old] p]sons cont9ues to gr[ 9 ! ,unit$ ,/ates1 ! ne$ to design & implem5t prov5 & co/-effective prev5tion measures t focus on ! lead+ causes ( traumatic bra9 injury becomes m urg5t4 7#e7 ,9 ord] to implem5t ?is ,act1 ! ,c5t]s = ,disease ,control & ,prev5tion ne$s to collaborate ) ,f$]al ag5cies report+ milit>y-relat$ traumatic bra9 injuries1 s*ool sy/ems report+ traumatic bra9 injuries1 ,m$icaid & o!r ,f$]al programs1 & ,/ate ag5cies4 #c4 ,e/abli%+ requirem5ts to improve ! rese>* & treatm5t ( traumatic bra9 injury 7a7 ,9 g5]al ,! ,secret>y1 act+ ?r\gh ! ,director ( ! ,c5t]s = ,disease ,control & ,prev5tion1 %all-- 7#a7 evaluate exi/+ surveillance & data collections sy/ems t track ! incid5ce & circum/ances ( traumatic bra9 injury1 includ+ concussion2 7#b7 n lat] ?an #i mon?s aft] ! date ( enactm5t ( ?is ,act1 submit a report to ! ,congress outl9+ ! f9d+s ( ! evaluation "u p>agraph 7#a72 & 7#c7 e/abli% a /ati/ically s\nd1 sci5tifically cr$ible1 integrat$ surveillance sy/em reg>d+ traumatic bra9 injury1 to be kn[n z ! ,national ,traumatic ,bra9 ,injury ,surveillance ,sy/em4 7b7 ,rese>* ,! ,secret>y %all ensure t ! ,national ,traumatic ,bra9 ,injury ,surveillance ,sy/em is design$ 9 a mann] t facilitates fur!r rese>* on bra9 injury4 7c7 ,cont5t ,9 c>ry+ out subsection 7a71 ! ,secret>y-- 7#a7 %all provide = ! collection & /orage ( in=mation 7exclud+ p]sonally id5tifiable in=mation7 on ! incid5ce & preval5ce ( traumatic bra9 injury1 includ+ concussion1 9 ! ,unit$ ,/ates across ! lifespan2 7#b7 to ! ext5t practicable1 %all provide = ! collection & /orage ( o!r available in=mation 7exclud+ p]sonally id5tifiable in=mation7 on traumatic bra9 injury1 su* z in=mation conc]n+ demographics & o!r in=mation associat$ ) ! incid5ce ( a traumatic bra9 injury1 su* z-- 7,a7 age2 7,b7 race & e?nicity2 7,c7 sex2 7,d7 geographic location2 7,e7 hi/ory ( head injury 7includ+ injury type & ! approximate date ( injury72 7,f7 pre-exi/+ conditions1 su* z le>n+ disabilities & att5tion deficit hyp]activity disord]2 & 7,g7 co-occurr+ issues1 su* z sub/ance abuse or po/-traumatic /ress disord]2 7#c7 to ! ext5t practicable1 %all provide = ! collection & /orage ( in=mation relevant to analysis on traumatic bra9 injury1 su* z in=mation conc]n+-- 7,a7 impact location on ! body & nature ( ! impact2 7,b7 qualifications ( p]sonnel mak+ ! traumatic bra9 injury diagnosis2 7,c7 assessm5t tool us$ to make ! diagnosis2 7,d7 signs & symptoms consi/5t ) a head injury2 7,e7 sport or activity & ! level ( competition 7if a sports-relat$ activity72 7,f7 use ( protective equipm5t & impact monitor+ devices2 & 7,g7 sev]ity ( ! traumatic bra9 injury2 & 7#d7 may address issues id5tifi$ dur+ ! consultation process "u subsection 7d74 7d7 ,consultation ,9 c>ry+ out ?is section1 ! ,secret>y %all consult ) individuals ) appropriate exp]tise1 includ+-- 7#a7 epidemiologi/s ) exp]i5ce 9 disease surveillance or regi/ries2 7#b7 repres5tatives ( national heal? associations t-- 7,a7 focus on bra9 injury2 & 7,b7 h demon/rat$ exp]i5ce 9 rese>*1 c>e1 or pati5t s]vices2 7#c7 ,/ate public heal? ag5cies2 7#d7 heal? in=mation te*nology exp]ts or o!r in=mation managem5t speciali/s2 7#e7 cl9icians ) exp]tise 9 bra9 injury2 7#f7 rese>* sci5ti/s ) exp]i5ce conduct+ bra9 rese>* or utiliz+ surveillance sy/ems = sci5tific rese>* purposes2 7#g7 m$ical facilities ( ! ,dep>tm5t ( ,vet]ans ,affairs2 & 7#h7 behavioral heal? c5t]s4 7e7 ,grants ,! ,secret>y may aw>d grants to1 or ent] into contracts or coop]ative agreem5ts )1 public or private nonpr(it entities to c>ry out activities "u ?is section4 7f7 ,coord9ation ) o!r f$]al ag5cies ,subject to subsection 7h71 ! ,secret>y %all make in=mation & analysis 9 ! ,national ,traumatic ,bra9 ,injury ,surveillance ,sy/em available1 z appropriate1 to ,f$]al dep>tm5ts & ag5cies1 su* z ! ,national ,in/itutes ( ,heal?1 ! ,heal? ,res\rces & ,s]vices ,adm9i/ration1 ! ,food & ,drug ,adm9i/ration1 ! ,c5t]s = ,m$ic>e ,m$icaid ,s]vices1 ! ,ag5cy = ,heal?c>e ,rese>* & ,quality1 ! ,dep>tm5t ( ,education1 ! ,dep>tm5t ( ,vet]ans ,affairs1 & ! ,dep>tm5t ( ,def5se4 7g7 ,public access ,subject to subsection 7h71 ! ,secret>y %all make in=mation & analysis 9 ! ,national ,traumatic ,bra9 ,injury ,surveillance ,sy/em available1 z appropriate1 to ! public1 includ+ rese>*]s4 7h7 ,privacy ,! ,secret>y %all ensure t privacy & security protections applicable to ! ,national ,traumatic ,bra9 ,injury ,surveillance ,sy/em are at lea/ z /r+5t z ! privacy & security protections "u ,,hipaa privacy & security law1 includ+ nondisclosure ( p]sonally id5tifiable in=mation4 7i7 ,report ,n lat] ?an #b ye>s aft] ! date ( enactm5t ( ?is ,act1 ! ,secret>y %all submit a report to ! ,congress conc]n+ ! implem5tation ( ?is section4 ,su* report %all include in=mation on-- 7#a7 ! developm5t & ma9t5ance ( ! ,national ,traumatic ,bra9 ,injury ,surveillance ,sy/em2 7#b7 ! type ( in=mation collect$ & /or$ 9 ! ,sy/em2 7#c7 ! use & availability ( su* in=mation1 includ+ guidel9es = su* use2 & 7#d7 ! use & coord9ation ( databases t collect or ma9ta9 in=mation on traumatic bra9 injury4 7j7 ,def9ition ,9 ?is ,act3 7#a7 ,national heal? association ,! t]m national heal? association means a national nonpr(it organization ) *apt]s1 o!r affiliat$ organizations1 or networks 9 ,/ates ?r\gh\t ! ,unit$ ,/ates4 7#b7 ,,hipaa privacy & security law ,! t]m ,,hipaa privacy & security law has ! mean+ giv5 to t t]m 9 section #cjji ( ! ,public ,heal? ,s]vice ,act 7#db ,u4,s4,c4 #cjj;jj-#ai74 7#c7 ,p]sonally id5tifiable in=mation ,! t]m p]sonally id5tifiable in=mation means in=mation :i* c be us$ to di/+ui% or trace an individual's id5tity 7su* z _! "n1 social security numb]1 or biometric records7 ei!r alone or :5 comb9$ ) o!r p]sonal or id5tify+ in=mation :i* is l9k$ or l9kable to a specific individual 7su* z date ( bir?1 place ( bir?1 & "m's maid5 "n74 7#d7 ,secret>y ,! t]m ,secret>y means ! ,secret>y ( ,heal? & ,human ,s]vices4 7#e7 ,surveillance ,! t]m surveillance means ! ongo+1 sy/ematic collection1 analysis1 int]pretation1 & dissem9ation ( data 7o!r ?an p]sonally id5tifiable in=mation7 reg>d+ a heal?-relat$ ev5t = use 9 public heal? action to r$uce morbidity & mortality & to improve heal?4 7#f7 ,traumatic bra9 injury ,! t]m traumatic bra9 injury means an injury to ! head aris+ f blunt or p5etrat+ trauma or f accel]ation or decel]ation =ces associat$ ) "o or m ( ! foll[+3 decreas$ level ( consci\sness1 amnesia1 objective neurologic or neuropsy*ological abnormalities1 skull fractures1 diagnos$ intracranial lesions1 or head injury li/$ z a cause ( dea? 9 ! dea? c]tificate4 7k7 ,au?orization ( appropriations ,to c>ry out ?is ,act1 !re are au?oriz$ to be appropriat$ su* sums z may be necess>y4