,i #aacth ,,congress #b;d ,session ,h4 ,r4 #dagj ,,in ,,the ,,house ,,of ,,representatives ,march #f1 #bjad ,mr4 ,fattah introduced the following bill2 which was referred to the ,committee on ,energy and ,commerce ,a ,,bill ,to provide for a ,youth ,mental ,health ,research ,network4 #a4 ,short title ,this ,act may be cited as the ,youth ,mental ,health ,research ,act4 #b4 ,findings ,congress finds the following3 7#a7 ,more than #ajj million ,americans currently have some sort of brain-related condition4 ,millions of ,americans1 many of whom are currently school children1 have some sort of developmental delay1 autism1 or learning disability4 7#b7 ,moreover1 many ,americans suffer from some form of psychotic disorder1 including schizophrenia and affective psychotic disorders4 7#c7 ,these brain disorders usually result in significant life-long disability1 and psychotic disorders in particular1 despite advances in treatment1 rank among the top causes of disability worldwide4 7#d7 ,neuroscience research has the potential to dramatically improve the quality of life for people facing brain disease and injury1 and to significantly improve our understanding of learning4 7#e7 ,because of the impact on the health and economy of the country1 the ,federal ,government has taken a special interest in promoting neuroscience and mental health research4 ,several ,federal agencies1 including the ,national ,science ,foundation1 ,national ,institutes of ,health 7,,nih71 ,veterans ,administration1 and ,department of ,defense oversee research on the brain and nervous system4 7#f7 ,in ,december #bjaa1 ,congress directed the ,office of ,science and ,technology ,policy to establish an ,interagency ,working ,group on ,neuroscience 7,,iwgn74 ,the ,,iwgn is currently convening representatives across the ,federal ,government to make recommendations about the future of neuroscience research4 7#g7 ,given the findings about the role of mental illness in multiple shootings across the ,nation1 including ,newton1 ,connecticut1 ,aurora1 ,colorado1 and other communities experiencing similar tragedies1 the ,federal ,government has an interest in pursuing research on the early detection1 intervention1 and prevention of psychosis4 7#h7 ,in line with this1 the ,federal ,government is looking for new ways of increasing the ,nation's knowledge of the underlying causes of psychosis4 7#i7 ,the ,united ,states commitment to furthering the early detection of mental illness in youth was seen in its participation in two public_/private research programs that studied the earliest stages of psychotic illness1 namely-- 7,a7 the ,north ,american ,prodrome ,longitudinal ,study 7,,napls72 and 7,b7 the ,recovery ,after an ,initial ,schizophrenia ,episode 7,,raise7 initiative4 #c4 ,youth ,mental ,health ,research ,network 7a7 ,youth ,mental ,health ,research ,network 7#a7 ,network ,the ,director of the ,national ,institutes of ,health may provide for the establishment of a ,youth ,mental ,health ,research ,network for the conduct or support of-- 7,a7 youth mental health research2 and 7,b7 youth mental health intervention services4 7#b7 ,collaboration by institutes and centers ,the ,director of ,,nih shall carry out this ,act acting-- 7,a7 through the ,director of the ,national ,institute of ,mental ,health2 and 7,b7 in collaboration with other appropriate national research institutes and national centers that carry out activities involving youth mental health research4 7#c7 ,mental health research 7,a7 ,in general ,in carrying out paragraph 7#a71 the ,director of ,,nih may award cooperative agreements1 grants1 and contracts to ,state1 local1 and tribal governments and private nonprofit entities for-- 7i7 conducting1 or entering into consortia with other entities to conduct-- 7,i7 basic1 clinical1 behavioral1 or translational research to meet unmet needs for youth mental health research2 or 7,,ii7 training for researchers in youth mental health research techniques2 7ii7 providing1 or partnering with non-research institutions or community-based groups with existing connections to youth to provide1 youth mental health intervention services2 and 7iii7 collaborating with the ,national ,institute of ,mental ,health to make use of1 and build on1 the scientific findings and clinical techniques of the ,institute's earlier programs1 studies1 and demonstration projects4 7,b7 ,research ,the ,director of ,,nih shall ensure that-- 7i7 each recipient of an award under subparagraph 7,a77i7 conducts or supports at least one category of research described in subparagraph 7,a77i77,i7 and collectively such recipients conduct or support all such categories of research2 and 7ii7 one or more such recipients provide training described in subparagraph 7,a77i77,,ii74 7,c7 ,number of award recipients ,the ,director of ,,nih may make awards under this paragraph for not more than #gj entities4 7,d7 ,supplement1 not supplant ,any support received by an entity under subparagraph 7,a7 shall be used to supplement1 and not supplant1 other public or private support for activities authorized to be supported under this paragraph4 7,e7 ,duration of support ,support of an entity under subparagraph 7,a7 may be for a period of not to exceed #e years4 ,such period may be extended by the ,director of ,,nih for additional periods of not more than #e years4 7#d7 ,coordination ,the ,director of ,,nih shall-- 7,a7 as appropriate1 provide for the coordination of activities 7including the exchange of information and regular communication7 among the recipients of awards under this subsection2 and 7,b7 require the periodic preparation and submission to the ,director of reports on the activities of each such recipient4 7b7 ,intervention services for1 and research on1 severe mental illness 7#a7 ,in general ,in making awards under subsection 7a77#c71 the ,director of ,,nih shall ensure that an appropriate number of such awards are awarded to entities that agree to-- 7,a7 focus primarily on the early detection and intervention of severe mental illness in young people2 7,b7 conduct or coordinate one or more multisite clinical trials of therapies for1 or approaches to1 the prevention1 diagnosis1 or treatment of early severe mental illness in a community setting2 7,c7 rapidly and efficiently disseminate scientific findings resulting from such trials2 and 7,d7 adhere to the guidelines1 protocols1 and practices used in the ,north ,american ,prodrome ,longitudinal ,study 7,,napls7 and the ,recovery ,after an ,initial ,schizophrenia ,episode 7,,raise7 initiative4 7#b7 ,data coordinating center 7,a7 ,establishment ,in connection with awards to entities described in paragraph 7#a71 the ,director of ,,nih shall establish a data coordinating center for the following purposes3 7i7 ,to distribute the scientific findings referred to in paragraph 7#a77;,c74 7ii7 ,to provide assistance in the design and conduct of collaborative research projects and the management1 analysis1 and storage of data associated with such projects4 7iii7 ,to organize and conduct multisite monitoring activities4 7iv7 ,to provide assistance to the ,centers for ,disease ,control and ,prevention in the establishment of patient registries4 7,b7 ,reporting ,the ,director of ,,nih shall-- 7i7 require the data coordinating center established under subparagraph 7,a7 to provide regular reports to the ,director of ,,nih on research conducted by entities described in paragraph 7#a71 including information on enrollment in clinical trials and the allocation of resources with respect to such research2 and 7ii7 as appropriate1 incorporate information reported under clause 7i7 into the ,director's biennial reports under section #djc of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bhc74 7c7 ,definitions ,in this ,act1 the terms ,director of ,,nih1 national center1 and national research institute have the meanings given to such terms in section #dja of the ,public ,health ,service ,act 7#db ,u4,s4,c4 #bha74 7d7 ,authorization of appropriations ,to carry out this ,act1 there is authorized to be appropriated #be1jjj1jjj for each of fiscal years #bjae through #bjai4