,i  #aac? ,,congress  #a/ ,session  ,h4 
,r4 #cebe  ,,9 ,,! ,,h\se ,,(           
,,repres5tatives  ,novemb] #ah1 #bjac   
,mr4 ,smi? ( ,new ,j]sey introduc$ !    
foll[+ bill2 :i* 0 ref]r$ to !          
,committee on ,=eign ,affairs  ,a ,,bill
  ,to am5d ! ,=eign ,assi/ance ,act (   
#aifa to provide assi/ance = ! treatm5t 
( hydrocephalus 9 *ildr5 9 develop+     
c\ntries1 to tra9 surgeons & o!r m$ical 
practition]s 9 innovative me?ods to     
treat & cure hydrocephalus1 to fund     
relat$ rese>*1 & = o!r purposes4  #a4   
,%ort title ,?is ,act may be cit$ z !   
,int]national ,hydrocephalus ,treatm5t &
 ,tra9+ ,act4  #b4 ,f9d+s ,congress f9ds
 ! foll[+3  7#a7 ,hydrocephalus1 also   
kn[n z wat] on ! bra91 is a m$ical      
condition 9 :i* an abnormal accumulation
 ( c]ebrosp9al fluid 9 ! v5tricles or   
cavities ( ! bra9 causes increas$       
intracranial pressure inside ! skull &  
progressive enl>gem5t ( ! head4  7#b7   
,if left untreat$1 hydrocephalus leads  
to physical & m5tal disabilities &      

ev5tually dea?4  7#c7 ,hydrocephalus is 
an extremely pa9ful condition t mo/     
commonly occurs 9 infants & "y *ildr5 z 
a result ( a cong5ital abnormality      
7anatomic abnormality1 aqu$uctal /5osis1
 sp9a bifida or encephalocele71 or      
po/-infecti\s hydrocephalus 7,,pih7     
caus$ by infections acquir$ aft] bir?1  
su* z m5+itis1 t attack ! bra94  7#d7   
,,pih is ! mo/ common cause (           
hydrocephalus globally1 acc\nt+ =       
approximately #fj p]c5t ( all cases4    
7#e7 ,?ree to five out ( e #a1jjj       
newborns 9 develop+ c\ntries are ei!r   
born ) hydrocephalus or acquire x due to
 neonatal infections 9 ! fir/ few mon?s 
( life4  7#f7 ,x is cons]vatively       
e/imat$ t m ?an #cjj1jjj *ildr5 are born
 ) or acquire hydrocephalus 9 ! develop+
 _w ea* ye>4  7#g7 ,*ildr5 )            
hydrocephalus :o are n effectively      
treat$ or :o are n treat$ 9 ! e>ly /ages
 ( ! condition suff] f cognitive        
defici5cies or physical disabilities or 
bo?4  7#h7 ,families ( *ildr5 :o h      

hydrocephalus 9 develop+ c\ntries r>ely 
"k t x is a treatable condition1 :]e to 
g = treatm5t1 or h[ to c>e = a *ild     
suff]+ f ! condition4  7#i7 ,_m *ildr5 )
 hydrocephalus 9 develop+ c\ntries are  
ab&on$1 o/raciz$1 or abus$ due to _!    
appe>ance & physical & m5tal            
disabilities4  7#aj7 ,hydrocephalus c be
 treat$1 & advances 9 innovative m$ical 
proc$ures su* z ,,etv_/,,cpc h !        
pot5tial to save ?\s&s ( lives annually 
& prev5t or mitigate physical & m5tal   
disabilities 9 ?\s&s ( *ildr5 9 develop+
 c\ntries4  7#aa7 ,! curr5t /&>d        
treatm5t = hydrocephalus is ! ,,vp %unt 
:i* (t5 requires up to #e surgical      
revisions be=e a *ild rea*es adul?ood to
 rem$y blockages 9 ! %unt & to acc\nt = 
! *ild's gr[?4 ,blockages c be expect$  
dur+ ! life ( ! pati5t & c lead to dea?1
 p>ticul>ly 9 develop+ c\ntries :]e     
access to ! requisite m$ical exp]tise   
(t5 is n available4  7#ab7 ,due to ! ne$
 = multiple replacem5ts ( a ,,vp %unt1  
?is treatm5t is exp5sive & creates an   

increas$ burd5 on fragile heal? sy/ems1 
pati5ts1 & families4  7#ac7 ,,etv_/,,cpc
 is a %unt-less surg]y = hydrocephalus t
 does n require a ,,vp %unt & has be5   
%[n to be appropriate 9 at lea/         
two-?irds ( ! cases ( infants )         
hydrocephalus4 ,( ^? cases1 ,,etv_/,,cpc
 is #ic p]c5t effective 9 elim9at+      
hydrocephalus4  7#ad7 ,few hospitals ) !
 exp]tise & capacity to treat           
hydrocephalus exi/ 9 develop+ c\ntries1 
& ! dem& = treatm5t f> exce$s ! capacity
 ( heal? sy/ems 9 ^? c\ntries4  7#ae7   
,neurosurgical c>e = hydrocephalus 9    
develop+ c\ntries is widely unavailable 
due to a lack ( tra9$ neurosurgeons4 ,9 
,ea/ ,africa1 !re is only #a            
neurosurgeon p] #aj1jjj1jjj p4 ,9 _m    
develop+ c\ntries !re are no tra9$      
neurosurgeons4  7#af7 ,hundr$s ( ?\s&s (
 cases ( hydrocephalus 9 *ildr5 9       
develop+ c\ntries c\ld be successfully  
treat$ if adequate res\rces are devot$  
to tra9+ surgeons 9 new te*niques1 su* z
 ,,etv_/,,cpc1 & _m future cases c\ld be

 prev5t$ if adequate res\rces are devot$
 to rese>* means to mitigate !          
prev5table causes ( hydrocephalus4      
7#ag7 ,adoption ( innovative new        
te*niques to treat hydrocephalus1 su* z 
,,etv_/,,cpc1 are m co/ effective 9 !   
long t]m ?an curr5t treatm5t me?ods s9ce
 only "o surg]y is requir$ 9 mo/ cases1 
?us limit+ ! impact on ov]burd5$ heal?  
sy/ems 9 develop+ c\ntries4  #c4        
,assi/ance to treat hydrocephalus & tra9
 surgeons ,*apt] #a ( "p ,i ( ! ,=eign  
,assi/ance ,act ( #aifa 7#bb ,u4,s4,c4  
#baea et4 seq47 is am5d$--  7#a7 by     
r$esignat+ ! second section #ace 7z add$
 by section #e7;a7 ( ! ,s5ator ,paul    
,simon ,wat] = ! ,poor ,act ( #bjje     
7,public ,law #aji-aba2 #aai ,/at4      
#becf77 z section #acf2 &  7#b7 by add+ 
at ! end ! foll[+3  #acg4 ,assi/ance to 
treat hydrocephalus & tra9 surgeons  7a7
 ,purposes ,! purposes ( assi/ance      
au?oriz$ by ?is section are--  7#a7 to  
ensure t life-sav+ treatm5t (           
hydrocephalus is an important priority (

 ,unit$ ,/ates bilat]al =eign assi/ance1
 includ+ ?r\gh promotion ( innovative   
treatm5ts & tra9+ ( m$ical practition]s 
f ! develop+ _w 9 ! late/ treatm5t      
protocols & be/ practices = ! treatm5t (
 hydrocephalus1 includ+--  7,a7 surg]y &
 po/-surg]y c>e 9 develop+ c\ntries2    
7,b7 ! creation ( a compreh5sive        
hydrocephalus tra9+ program bas$ 9 !    
develop+ _w = surgeons & key memb]s ( _!
 m$ical team2 &  7,c7 ! tra9+ ( m$ical  
practition]s bas$ 9 ! develop+ _w 9     
,,etv_/,,cpc & o!r appropriate treatm5t 
protocols2 &  7#b7 to promote rese>* to 
r$uce ! incid5ce ( ,,pih epidemiology1  
pa?ophysiology1 & disease burd51 & to   
improve treatm5t ( hydrocephalus4  7b7  
,au?orization ,to c>ry out ! purposes ( 
subsection 7a71 ! ,presid5t is au?oriz$ 
to provide assi/ance to support a       
network ( tra9$ m$ical practition]s to  
treat hydrocephalus 9 *ildr5 at p$iatric
 hospitals & hydrocephalus treatm5t     
c5t]s 9 develop+ c\ntries ) a high      
incid5ce ( hydrocephalus4  7c7          

,activities support$  7#a7 ,compreh5sive
 program  7,a7 ,9 g5]al ,assi/ance      
provid$ "u subsection 7b7 %all1 to !    
maximum ext5t practicable1 be us$ to    
e/abli% a compreh5sive program to       
adm9i/] global hydrocephalus treatm5t & 
tra9+ activities utiliz+ a network (    
p$iatric hospitals capable ( p]=m+      
endoscopic surg]y 9 develop+ c\ntries4  
7,b7 ,adm9i/ration ,! program describ$ 9
 subp>agraph 7,a7 %all be adm9i/]$ by   
heal?c>e executives & neurosurgeons )   
exp]tise 9 ! treatm5t ( hydrocephalus4  
7,c7 ,responsibilities ,!               
responsibilities ( ! adm9i/rators       
describ$ 9 subp>agraph 7,b7 %all        
include--  7i7 develop+ an appropriate  
education & tra9+ curriculum2  7ii7     
e/abli%+ quality control /&>ds2  7iii7  
in/itut+ safety guidel9es & /&>ds2 &    
7iv7 develop+ monitor+ & evaluation     
protocols4  7#b7 ,tra9+ hospital  7,a7  
,9 g5]al ,assi/ance provid$ "u          
subsection 7b7 %all1 to ! maximum ext5t 
practicable1 be us$ to e/abli% a surgeon

 tra9+ program )9 a p$iatric hospital   
bas$ 9 a develop+ c\ntry ) a high       
incid5ce ( hydrocephalus ) ! goal (     
tra9+ f\r surgeons annually & a total ( 
#bj surgeons ov] a #e-ye> p]iod to treat
 hydrocephalus utiliz+ ! ,,etv_/,,cpc   
te*nique4  7,b7 ,timel9e ,to ! maximum  
ext5t practicable1 ! surgeon tra9+      
program describ$ 9 subp>agraph 7,a7 %\ld
 be op]ational no lat] ?an #a ye> aft] !
 date ( enactm5t ( ?is ,act4  7,c7      
,tra9+ admissions crit]ia ,c&idates = ! 
surgeon tra9+ program e/abli%$ "u       
subp>agraph 7,a7 %all--  7i7 h a        
demon/rat$ commitm5t to provid+ m$ical  
assi/ance 9 ! develop+ _w2 &  7ii7      
c]tify t ! c&idate int5ds to rema9 &    
practice m$ic9e 9 ! develop+ _w foll[+  
completion ( ! program4  7,d7 ,tra9+    
program me?odology ,! surgeon tra9+     
program e/abli%$ "u subp>agraph 7,a7    
%all--  7i7 be conduct$ by a            
neurosurgeon ) a m9imum ( #c ye>s (     
full-"t op]at+ exp]i5ce 9 ! develop+ _w2
  7ii7 be a h&s-on op]at+ room exp]i5ce 

9 ! develop+ _w2  7iii7 utilize a       
hydrocephalus treatm5t protocol ) an    
emphasis on ,,etv_/,,cpc z ! pref]r$    
treatm5t :5 m$ically appropriate2 &     
7iv7 require t ea* tra9ee complete a    
m9imum ( #ej ,,etv_/,,cpc or ,,etv      
proc$ures & at lea/ #be ,,vp %unt       
proc$ures4  7#c7 ,treatm5t c5t]s  7,a7  
,9 g5]al ,assi/ance provid$ "u          
subsection 7b7 %all1 to ! maximum ext5t 
practicable1 be us$ to e/abli% at lea/  
#bj hydrocephalus treatm5t c5t]s locat$ 
at public & private hospital 9 develop+ 
c\ntries ) a high incid5ce (            
hydrocephalus1 :i* %all include treatm5t
 co/s1 endoscopy equipm5t & m$ical      
supplies necess>y to provide            
,,etv_/,,cpc proc$ures to treat         
hydrocephalus4  7,b7 ,/aff+ ,! treatm5t 
c5t]s describ$ 9 subp>agraph 7,a7 %all  
be /aff$ by--  7i7 "o or m surgeons :o h
 successfully complet$ ! surgeon tra9+  
program provid$ pursuant to p>agraph    
7#b72 &  7ii7 a pati5t c>e adm9i/rator4 
7,c7 ,treatm5t ,! treatm5t c5t]s        

describ$ 9 subp>agraph 7,a7 %all--  7i7 
provide surg]y to treat hydrocephalus 9 
*ildr52  7ii7 p]=m at lea/ #ej          
hydrocephalus surg]ies annually includ+ 
a m9imum ( #be ,,etv or ,,etv_/,,cpc    
surg]ies2 &  7iii7 provide po/-surg]y   
c>e & support = ! *ildr5 treat$ 9       
accordance ) clause 7i74  7#d7 ,m$ical  
records & data ,assi/ance provid$ "u    
subsection 7b7 %all1 to ! maximum ext5t 
practicable1 include ! ma9t5ance (      
m$ical records :i* track pati5t c>e     
activities & in=mation ab\t ! causes &  
incid5ce rates ( ,,pih4  7d7 ,def9itions
 ,9 ?is section3  7#a7 ,,cpc ,! t]m     
,,cpc means *oroid plexus caut]ization1 
a surgical proc$ure to r$uce !          
production ( c]ebrosp9al fluid 9 ! bra94
  7#b7 ,,etv ,! t]m ,,etv means         
endoscopic ?ird v5triculo/omy1 a        
%unt-less surgical proc$ure 9 :i* an    
op5+ is creat$ 9 ! floor ( ! ?ird       
v5tricle ( ! bra9 all[+ c]ebrosp9al     
fluid to bypass any ob/ruction & fl[    
directly to ! basal ci/]ns4  7#c7       

,,etv_/,,cpc ,! t]m ,,etv_/,,cpc means !
 %unt-less surgical me?od = treat+      
hydrocephalus ?r\gh ! comb9ation ( ,,etv
 & ,,cpc surgical proc$ures4  7#d7      
,hydrocephalus ,! t]m hydrocephalus     
means a m$ical condition 9 :i* an       
abnormal accumulation ( c]ebrosp9al     
fluid 9 ! v5tricles or cavities ( ! bra9
 causes increas$ intracranial pressure  
inside ! skull & progressive enl>gem5t (
 ! head4  7#e7 ,m$ical practition]s ,!  
t]m m$ical practition]s means           
physicians1 nurses & o!r cl9icians4     
7#f7 ,,pih ,! t]m ,,pih means           
po/-infecti\s or acquir$ hydrocephalus  
:i* is ! onset ( hydrocephalus aft] bir?
 due to ! affects ( an infection1 su* z 
m5+itis1 t has attack$ ! bra94  7#g7    
,,vp %unt ,! t]m ,,vp %unt means a      
v5triculop]itonea %unt :i* is a pla/ic  
tube t is regulat$ by a valve &         
surgically plac$ 9 a bra9 v5tricle t    
all[s ! c]ebrosp9al fluid to fl[ out ( !
 bra9 ?r\gh ! tube & into ! pati5t's    
abdom54  7e7 ,au?orization (            

appropriations ,( ! am\nts made         
available to c>ry out ?is *apt] = *ild  
survival & mat]nal heal? programs1 !re  
are au?oriz$ to be appropriat$ to !     
,presid5t su* sums z may be necess>y =  
ea* ( ! fiscal ye>s #bjad ?r\gh #bjah to
 c>ry out ?is section4  4