,i #aac? ,,congress #a/ ,session ,h4 ,r4 #bdgg ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,june #be1 #bjac ,mrs4 ,capps 7= h]self & ,mr4 ,b\/any7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce1 & 9 addition to ! ,committee on ,ways & ,means1 = a p]iod to be subsequ5tly det]m9$ by ! ,speak]1 9 ea* case = consid]ation ( su* provisions z fall )9 ! jurisdiction ( ! committee conc]n$ ,a ,,bill ,to am5d title ,,xviii ( ! ,social ,security ,act to provide = cov]age ( canc] c>e plann+ & coord9ation "u ! ,m$ic>e program4 #a4 ,%ort title 7a7 ,%ort title ,?is ,act may be cit$ z ! ,plann+ ,actively = ,canc] ,treatm5t 7,,pact7 ,act ( #bjac4 7b7 ,f9d+s ,congress makes ! foll[+ f9d+s3 7#a7 ,individuals ) canc] (t5 d n h access to a canc] c>e sy/em t incorporates %>$ decision-mak+ & ! coord9ation ( all elem5ts ( c>e4 7#b7 ,! canc] c>e sy/em has n traditionally (f]$ individuals ) canc] a %>$ decision-mak+ process1 a prospective & compreh5sive plan = treatm5t1 symptom managem5t & supportive c>e1 /rategies = updat+ & evaluat+ su* plan ) ! assi/ance ( a heal? c>e pr(essional1 & a foll[-up plan = monitor+ & treat+ possible late effects ( canc] & its treatm5t4 7#c7 ,canc] survivors (t5 exp]i5ce ! "u-diagnosis & "u-treatm5t ( ! symptoms ( canc]1 a problem t beg9s at ! "t ( diagnosis & may become m sev]e ) disease progression & at ! end ( life4 ,! failure to treat ! symptoms1 side effects1 & late effects ( canc] & canc] treatm5t may h a s]i\s adv]se impact on ! heal?1 survival1 well-be+1 & quality ( life ( canc] survivors4 7#d7 ,! #aiii ,in/itute ( ,m$ic9e report entitl$ ,! ,unequal ,burd5 ( ,canc] f\nd t l[-income p (t5 lack access to adequate canc] c>e & t e?nic m9orities h n b5efitt$ fully f canc] treatm5t advances4 7#e7 ,individuals ) canc] (t5 d n p>ticipate 9 a %>$ decision-mak+ process t consid]s all treatm5t options & d n b5efit f coord9ation ( all elem5ts ( active treatm5t & palliative c>e4 7#f7 ,quality canc] c>e %\ld incorporate access to psy*osocial s]vices & managem5t ( ! symptoms ( canc] & ! symptoms ( canc] treatm5t1 includ+ pa91 nausea1 vomit+1 fatigue1 & depression4 7#g7 ,quality canc] c>e %\ld include a means = engag+ canc] survivors 9 a %>$ decision-mak+ process t produces a compreh5sive c>e summ>y & a plan = foll[-up c>e aft] prim>y treatm5t to ensure t canc] survivors h access to foll[-up monitor+ & treatm5t ( possible late effects ( canc] & canc] treatm5t1 includ+ appropriate psy*osocial s]vices4 7#h7 ,! ,in/itute ( ,m$ic9e report entitl$ ,ensur+ ,quality ,canc] ,c>e describ$ ! elem5ts ( quality c>e = an individual ) canc] to include-- 7,a7 ! developm5t ( initial treatm5t recomm5dations by an exp]i5c$ heal? c>e provid]2 7,b7 ! developm5t ( a plan = ! c\rse ( treatm5t ( ! individual & communication ( ! plan to ! individual2 7,c7 access to ! res\rces necess>y to implem5t ! c\rse ( treatm5t2 7,d7 access to high-quality cl9ical trials2 7,e7 a me*anism to coord9ate s]vices = ! treatm5t ( ! individual2 & 7,f7 psy*osocial support s]vices & compassionate c>e = ! individual4 7#i7 ,9 its report ,f ,canc] ,pati5t to ,canc] ,survivor3 ,lo/ 9 ,transition1 ! ,in/itute ( ,m$ic9e recomm5d$ t individuals ) canc] complet+ prim>y treatm5t be provid$ a compreh5sive summ>y ( _! c>e along ) a foll[-up survivor%ip plan ( treatm5t4 7#aj7 ,9 ,canc] ,c>e = ! ,:ole ,pati5t1 ! ,in/itute ( ,m$ic9e /at$ t ! developm5t ( a plan t includes biom$ical & psy*osocial c>e %\ld be a /&>d = quality canc] c>e 9 any quality measurem5t sy/em4 7#aa7 ,because m ?an half ( all canc] diagnoses occur among eld]ly ,m$ic>e b5efici>ies1 canc] c>e inadequacies %\ld be address$ ?r\gh ! ,m$ic>e program4 7#ab7 ,%ortcom+s 9 provid+ canc] c>e1 result+ 9 a lack ( %>$ decision-mak+1 inadequate managem5t ( canc] symptoms1 & insuffici5t monitor+ & treatm5t ( late effects ( canc] & its treatm5t1 relate 9 "p to ! inadequacy ( ,m$ic>e paym5ts = su* plann+ & coord9ation s]vices4 7#ac7 ,*anges 9 ,m$ic>e paym5t = canc] c>e plann+ & coord9ation w support %>$ decision-mak+ t reviews all treatm5t options & w contribute to improv$ c>e = individuals ) canc] f ! "t ( diagnosis ?r\gh ! end ( ! life4 #b4 ,cov]age ( canc] c>e plann+ & coord9ation s]vices 7a7 ,9 g5]al ,section #ahfa ( ! ,social ,security ,act 7#db ,u4,s4,c4 #aciex7 is am5d$-- 7#a7 9 subsection 7s77#b7-- 7,a7 by /rik+ & at ! end ( subp>agraph 7,,ee72 7,b7 by add+ & at ! end ( subp>agraph 7,,ff72 & 7,c7 by add+ at ! end ! foll[+ new subp>agraph3 7,,gg7 canc] c>e plann+ & coord9ation s]vices 7z def9$ 9 subsection 7iii77 2 & 7#b7 by add+ at ! end ! foll[+ new subsection3 7iii7 ,canc] ,c>e ,plann+ & ,coord9ation ,s]vices 7#a7 ,! t]m canc] c>e plann+ & coord9ation s]vices means-- 7,a7 ) respect to an individual :o is diagnos$ ) canc]1 ! developm5t ( a treatm5t plan by a physician1 nurse practition]1 or physician assi/ant t-- 7i7 includes an assessm5t ( ! individual's diagnosis1 heal? /atus1 treatm5t ne$s1 functional /atus1 pa9 control1 & psy*osocial ne$s2 7ii7 engages ! individual 9 a %>$ decision-mak+ process t reviews all treatm5t options2 7iii7 details1 to ! greate/ ext5t practicable all aspects ( ! c>e to be provid$ to ! individual ) respect to ! treatm5t ( su* canc]1 includ+ any curative treatm5t1 compreh5sive symptom managem5t1 & palliative c>e2 7iv7 is furni%$ 9 p]son1 9 writt5 =m1 to ! individual )9 a p]iod specifi$ by ! ,secret>y t is z soon z practicable aft] ! date on :i* ! individual is s diagnos$2 7v7 is furni%$1 to ! greate/ ext5t practicable1 9 a =m t appropriately takes into acc\nt cultural & l+ui/ic ne$s ( ! individual 9 ord] to make ! plan accessible to ! individual2 & 7vi7 is 9 accordance ) /&>ds det]m9$ by ! ,secret>y to be appropriate2 7,b7 ) respect to an individual = :om a treatm5t plan has be5 develop$ "u subp>agraph 7,a71 ! revision ( su* treatm5t plan z necess>y to acc\nt = any sub/antial *ange 9 ! condition ( ! individual1 recurr5ce ( disease1 *anges 9 ! individual's treatm5t pref]5ces1 or significant revision ( ! elem5ts ( curative c>e or symptom managem5t = ! individual1 if su* revision-- 7i7 is 9 accordance ) clauses 7i71 7ii71 7iv7 & 7v7 ( su* subp>agraph2 & 7ii7 is furni%$ 9 writt5 =m to ! individual )9 a p]iod specifi$ by ! ,secret>y t is z soon z practicable aft] ! date ( su* revision2 7,c7 ) respect to an individual :o has complet$ ! prim>y treatm5t = canc]1 z def9$ by ! ,secret>y1 ! developm5t ( a foll[-up survivor%ip c>e plan t-- 7i7 includes an assessm5t ( ! individual's diagnosis1 heal? /atus1 treatm5t ne$s1 functional /atus1 pa9 control1 & psy*osocial ne$s2 7ii7 engages ! individual 9 a %>$ decision-mak+ process t reviews all survivor%ip c>e options2 7iii7 describes ! elem5ts ( ! prim>y treatm5t1 includ+ symptom managem5t & palliative c>e1 furni%$ to su* individual2 7iv7 provides recomm5dations = ! subsequ5t c>e ( ! individual ) respect to ! canc] involv$2 7v7 is furni%$1 9 p]son1 9 writt5 =m1 to ! individual )9 a p]iod specifi$ by ! ,secret>y t is z soon z practicable aft] ! completion ( su* prim>y treatm5t2 7vi7 is furni%$1 to ! greate/ ext5t practicable1 9 a =m t appropriately takes into acc\nt cultural & l+ui/ic ne$s ( ! individual 9 ord] to make ! plan accessible to ! individual2 & 7vii7 is 9 accordance ) /&>ds det]m9$ by ! ,secret>y to be appropriate2 & 7,d7 ) respect to an individual = :om a foll[-up canc] c>e plan has be5 develop$ "u subp>agraph 7,c71 ! revision ( su* plan z necess>y to acc\nt = any sub/antial *ange 9 ! condition ( ! individual1 diagnosis ( a second canc]1 *ange 9 ! individual's pref]5ce = survivor%ip c>e1 or significant revision ( ! plan = foll[-up c>e1 if su* revision-- 7i7 is 9 accordance ) clauses 7i71 7ii71 7iii71 7v71 & 7vi7 ( su* subp>agraph2 & 7ii7 is furni%$ 9 writt5 =m to ! individual )9 a p]iod specifi$ by ! ,secret>y t is z soon z practicable aft] ! date ( su* revision4 7#b7 ,! ,secret>y %all e/abli% /&>ds to c>ry out p>agraph 7#a7 9 consultation ) appropriate organizations repres5t+ suppli]s & provid]s ( s]vices relat$ to canc] treatm5t & organizations repres5t+ survivors ( canc]4 ,su* /&>ds %all include /&>ds = det]m9+ ! ne$ & frequ5cy = revisions ( ! treatm5t plans & foll[-up survivor%ip c>e plans bas$ on *anges 9 ! condition ( ! individual or elem5ts & int5t ( treatm5t & /&>ds = ! communication ( ! plan to ! individual4 7#c7 ,9 ?is subsection1 ! t]m %>$ decision-mak+ process means1 ) respect to an individual1 a process 9 :i* ! individual & ! individual's heal? c>e provid]s consid] ! individual's diagnosis1 treatm5t options1 ! m$ical evid5ce relat$ to treatm5t options1 ! risks & b5efits ( all treatm5t options1 & ! individual's pref]5ces reg>d+ treatm5t1 & !n jo9tly develop & implem5t a treatm5t plan4 4 7b7 ,paym5t "u physician fee s*$ule 7#a7 ,9 g5]al ,section #ahdh7;j77#c7 ( ! ,social ,security ,act 7#db ,u4,s4,c4 #aciew-#d7;j77#c77 is am5d$ by ins]t+ 7,,gg71 aft] heal? risk assessm5t714 7#b7 ,initial rates ,unless ! ,secret>y ( ,heal? & ,human ,s]vices o!rwise provides1 ! paym5t rate specifi$ "u ! physician fee s*$ule "u ! am5dm5t made by p>agraph 7#a7 = canc] c>e plann+ & coord9ation s]vices %all be ! same paym5t rate z provid$ = transitional c>e managem5t s]vices 7z def9$ 9 ,,cpt code #iidif74 7c7 ,effective date ,! am5dm5ts made by ?is section %all apply to s]vices furni%$ on or aft] ! fir/ day ( ! fir/ cal5d> ye> t beg9s aft] ! date ( ! enactm5t ( ?is ,act4