,i #aac? ,,congress #a/ ,session ,h4 ,r4 #affa ,,9 ,,! ,,h\se ,,( ,,repres5tatives ,april #ai1 #bjac ,mr4 ,israel 7= himself & ,mr4 ,tib]i7 introduc$ ! foll[+ bill2 :i* 0 ref]r$ to ! ,committee on ,en]gy & ,comm]ce1 & 9 addition to ! ,committee on ,ways & ,means1 = a p]iod to be subsequ5tly det]m9$ by ! ,speak]1 9 ea* case = consid]ation ( su* provisions z fall )9 ! jurisdiction ( ! committee conc]n$ ,a ,,bill ,to am5d title ,,xviii ( ! ,social ,security ,act to provide compreh5sive canc] pati5t treatm5t education "u ! ,m$ic>e program & to provide = rese>* to improve canc] symptom managem5t4 #a4 ,%ort title2 table ( cont5ts 7a7 ,%ort title ,?is ,act may be cit$ z ! ,improv+ ,canc] ,treatm5t ,education ,act ( #bjac4 7b7 ,table ( cont5ts ,! table ( cont5ts ( ?is ,act is z foll[s3 ,sec4 #a4 ,%ort title2 table ( cont5ts4 ,sec4 #b4 ,f9d+s4 ,title ,i--,compreh5sive ,canc] ,pati5t ,treatm5t ,education ,"u ! ,m$ic>e ,program ,sec4 #aja4 ,m$ic>e cov]age ( compreh5sive canc] pati5t treatm5t education s]vices4 ,title ,,ii--,rese>* on ,canc] ,symptom ,managem5t ,improvem5t ,sec4 #bja4 ,s5se ( ,congress4 ,sec4 #bjb4 ,,nih ,rese>* on canc] symptom managem5t improvem5t4 #b4 ,f9d+s ,! ,congress makes ! foll[+ f9d+s3 7#a7 ,_m p ) canc] exp]i5ce side effects1 symptoms1 & late complications associat$ ) _! disease & _! treatm5t1 :i* c h a s]i\s adv]se impact on _! heal?1 well-be+1 & quality ( life4 7#b7 ,_m side effects & symptoms associat$ ) canc] & its treatm5t c be r$uc$ or controll$ by ! provision ( timely symptom managem5t & s]vices & also by educat+ p ) canc] & _! c>egiv]s ab\t ! pot5tial effects be=e treatm5t beg9s4 7#c7 ,/udies h f\nd t individualiz$ educational int]v5tion = canc] pa9 managem5t f a regi/]$ nurse 0 effective = pati5ts ) canc] be+ treat$ 9 outpati5t & home-bas$ sett+s4 ,simil>ly1 ! numb] ( c>egiv]s :o said !y 7 well in=m$ & confid5t ab\t c>egiv+ aft] att5d+ a family c>egiv] canc] education program increas$ aft] program att5dance4 7#d7 ,p ) canc] b5efit f hav+ an educational session ) oncology nurses 9 advance ( ! initiation ( treatm5t to le>n h[ to r$uce ! risk ( & manage adv]se effects & maximize well-be+4 ,help+ pati5ts to manage _! side effects r$uces adv]se ev5ts & ! ne$ = urg5t or inpati5t c>e4 7#e7 ,! ,oncology ,nurs+ ,society has receiv$ reports f its memb]s t1 because ! ,m$ic>e program & o!r pay]s d n cov] ! provision ( pati5t treatm5t education1 pati5ts & _! c>egiv]s (t5 d n receive adequate education be=e ! onset ( su* pati5ts' treatm5t = canc] reg>d+ ! c\rse ( su* treatm5t & ! possible side effects & symptoms su* pati5ts may exp]i5ce4 ,! ,oncology ,nurs+ ,society recomm5ds t all pati5ts be+ treat$ = canc] h a "o-on-"o educational session ) a nurse 9 advance ( ! onset ( su* treatm5t s t su* pati5ts & _! c>egiv]s receive ! in=mation !y ne$ to help m9imize adv]se ev5ts relat$ to su* treatm5t & maximize ! well-be+ ( su* pati5ts4 7#f7 ,insuffici5t or non-exi/5t ,m$ic>e paym5ts c\pl$ ) poor inve/m5t 9 symptom managem5t rese>* contribute to ! inadequate education ( pati5ts1 poor managem5t & monitor+ ( canc] symptoms1 & inadequate h&l+ ( late effects ( canc] & its treatm5t4 7#g7 ,p ) canc] (t5 d n h ! symptoms associat$ ) _! disease & ! associat$ treatm5t manag$ 9 a compreh5sive or appropriate mann]4 7#h7 ,p ) canc] des]ve to h access to compreh5sive c>e t includes appropriate treatm5t & symptom managem5t4 7#i7 ,pati5ts :o receive infus$ *emo!rapy likely obta9 "s treatm5t education dur+ ! c\rse ( ! adm9i/ration ( _! treatm5t2 yet1 _m d n1 & individuals :o may receive a diff]5t type ( canc] c>e1 su* z radiation or surgical int]v5tions or oral *emo!rapy tak5 at home1 likely d n receive treatm5t education dur+ _! treatm5t4 7#aj7 ,compreh5sive canc] c>e mu/ include access to s]vices & managem5t associat$ ) nausea1 vomit+1 fatigue1 depression1 pa91 & o!r symptoms4 7#aa7 ,! ,in/itute ( ,m$ic9e report1 ,ensur+ ,quality ,canc] ,c>e ass]ts t mu* c be done to relieve ! symptoms1 ease di/ress1 provide com=t1 & 9 o!r ways improve ! quality ( life ( someone ) canc]4 ,= a p]son ) canc]1 ma9t5ance ( quality ( life requires1 at a m9imum1 relief f pa9 & o!r di/ress+ symptoms1 relief f anxiety & depressions1 includ+ ! fe> ( pa91 & a s5se ( security t assi/ance w be readily available if ne$$44 7#ab7 ,! ,in/itute ( ,m$ic9e report1 ,canc] ,c>e = ! ,:ole ,pati5t3 ,meet+ ,psy*osocial ,heal? ,ne$s recognizes t canc] pati5ts' psy*osocial ne$s include in=mation ab\t _! !rapies & ! pot5tial side effects4 7#ac7 ,z m ?an half ( all canc] diagnoses occur among individuals age #fe & old]1 ! *all5ges ( manag+ canc] symptoms are gr[+ = pati5ts enroll$ 9 ! ,m$ic>e program4 7#ad7 ,provision ( ,m$ic>e paym5t = compreh5sive canc] pati5t treatm5t education1 c\pl$ ) exp&$ canc] symptom managem5t rese>*1 w help improve c>e & quality ( life = p ) canc] f ! "t ( diagnosis ?r\gh survivor%ip or end ( life4 ,i ,compreh5sive ,canc] ,pati5t ,treatm5t ,education ,"u ! ,m$ic>e ,program #aja4 ,m$ic>e cov]age ( compreh5sive canc] pati5t treatm5t education s]vices 7a7 ,9 g5]al ,section #ahfa ( ! ,social ,security ,act 7#db ,u4,s4,c4 #aciex7 is am5d$-- 7#a7 9 subsection 7s77#b7-- 7,a7 by /rik+ & at ! end ( subp>agraph 7,,ee72 7,b7 by add+ & at ! end ( subp>agraph 7,,ff72 & 7,c7 by add+ at ! end ! foll[+ new subp>agraph3 7,,gg7 compreh5sive canc] pati5t treatm5t education s]vices 7z def9$ 9 subsection 7iii77#a772 2 & 7#b7 by add+ at ! end ! foll[+ new subsection3 7iii7 ,compreh5sive canc] pati5t treatm5t education s]vices 7#a7 ,! t]m compreh5sive canc] pati5t treatm5t education s]vices means-- 7,a7 9 ! case ( an individual :o is diagnos$ ) canc]1 ! provision ( a "o-h\r pati5t treatm5t education session deliv]$ by a regi/]$ nurse t-- 7i7 is furni%$ to ! individual & ! c>egiv] 7or c>egiv]s7 ( ! individual 9 advance ( ! onset ( treatm5t & to ! ext5t practicable1 is n furni%$ on ! day ( diagnosis or on ! fir/ day ( treatm5t2 7ii7 educates ! individual & su* c>egiv] 7or c>egiv]s7 to ! greate/ ext5t practicable1 ab\t all aspects ( ! c>e to be furni%$ to ! individual1 in=ms ! individual reg>d+ any pot5tial symptoms1 side-effects1 or adv]se ev5ts1 & expla9s ways 9 :i* side effects & adv]se ev5ts c be m9imiz$ & heal? & well-be+ maximiz$1 & provides guidance reg>d+ ^? side effects to be report$ & to :i* heal? c>e provid] ! side effects %\ld be report$2 7iii7 includes ! provision1 9 writt5 =m1 ( in=mation ab\t ! c\rse ( treatm5t1 any responsibilities ( ! individual ) respect to self-dos+1 & ways 9 :i* to address symptoms & side-effects2 & 7iv7 is furni%$1 to ! greate/ ext5t practicable1 9 an oral1 writt51 or electronic =m t appropriately takes into acc\nt cultural & l+ui/ic ne$s ( ! individual 9 ord] to make ! in=mation compreh5sible to ! individual & su* c>egiv] 7or c>egiv]s72 & 7,b7 ) respect to an individual = :om a c\rse ( canc] treatm5t or !rapy is mat]ially modifi$1 a "o-h\r pati5t treatm5t education session describ$ 9 subp>agraph 7,a71 includ+ updat$ in=mation on ! matt]s describ$ 9 su* subp>agraph %\ld ! individual's oncologic heal? c>e pr(essional deem x appropriate & necess>y4 7#b7 ,9 e/abli%+ /&>ds to c>ry out p>agraph 7#a71 ! ,secret>y %all consult ) appropriate organizations repres5t+ provid]s ( oncology pati5t treatm5t education s]vices & organizations repres5t+ p ) canc]4 4 7b7 ,paym5t ,section #ahcc7;a77#a7 ( su* ,act 7#db ,u4,s4,c4 #aciel7a77#a77 is am5d$-- 7#a7 by /rik+ & be=e 7,z72 & 7#b7 by ins]t+ be=e ! semicolon at ! end ! foll[+3 1 & 7,,aa7 ) respect to compreh5sive canc] pati5t treatm5t education s]vices 7z def9$ 9 section #ahfa7;iii77#a771 #aej p]c5t ( ! paym5t rate e/abli%$ "u section #ahdh = diabetes outpati5t self-managem5t tra9+ s]vices 7z def9$ 9 section #ahfa7qq771 det]m9$ & appli$ )\t reg>d to any co9surance4 7c7 ,cov]age ,section #ahfb7;a77#a7 ( su* ,act 7#db ,u4,s4,c4 #aciey7a77#a77 is am5d$-- 7#a7 9 subp>agraph 7,o71 by /rik+ & at ! end2 7#b7 9 subp>agraph 7,p71 by /rik+ ! semicolon at ! end & ins]t+ 1 &2 & 7#c7 by add+ at ! end ! foll[+ new subp>agraph3 7,q7 9 ! case ( compreh5sive canc] pati5t treatm5t education s]vices 7z def9$ 9 subsection 7iii77#a77 :i* are p]=m$ m frequ5tly ?an is cov]$ "u su* section2 4 7d7 ,no impact on paym5t = o!r s]vices ,no?+ 9 ?is section %all be con/ru$ to affect or o!rwise au?orize any r$uction or modification1 9 ! ,m$ic>e paym5t am\nts o!rwise e/abli%$ = *emo!rapy infusion or injection codes ) respect to ! calculation & paym5t ( m9utes = *emo!rapy tea*+ or relat$ s]vices4 7e7 ,effective date ,! am5dm5ts made by ?is section %all apply to s]vices furni%$ on or aft] ! fir/ day ( ! fir/ cal5d> ye> t beg9s aft] ! date ( ! enactm5t ( ?is ,act4 ,,ii ,rese>* on ,canc] ,symptom ,managem5t ,improvem5t #bja4 ,s5se ( ,congress ,x is ! s5se ( ,congress t-- 7#a7 _m p ) canc] exp]i5ce side effects1 symptoms1 & late side effects associat$ ) _! disease & _! treatm5t1 & su* effects c h a s]i\s adv]se impact on ! effectiv5ess ( _! treatm5t1 _! heal?1 well-be+1 & quality ( life2 7#b7 ) ! numb] ( canc] survivors cont9u+ to gr[1 address+ ! effects ( _! symptoms & side effects is becom+ increas+ly critical 9 r$uc+ ! burd5 ( canc] & its treatm5ts2 7#c7 al?\gh rese>* is produc+ new insights into ! causes ( & cures = canc]1 ef=ts to manage ! symptoms & side effects ( ! disease & its treatm5ts h n kept pace2 & 7#d7 ! ,national ,in/itutes ( ,heal? %\ld cont9ue to support rese>* 9 ! area ( symptom managem5t & ! role t nurses play 9 provid+ ^? int]v5tions4 #bjb4 ,,nih ,rese>* on canc] symptom managem5t improvem5t 7a7 ,9 g5]al ,! ,director ( ! ,national ,in/itutes ( ,heal? %all exp&1 int5sify1 & coord9ate programs = ! conduct & support ( rese>* ) respect to-- 7#a7 improv+ ! treatm5t & managem5t ( symptoms & side effects associat$ ) canc] & canc] treatm5t2 & 7#b7 evaluat+ ! role ( nurs+ int]v5tions 9 ! amelioration ( su* symptoms & side effects4 7b7 ,adm9i/ration ,! ,director ( ! ,national ,in/itutes ( ,heal? is enc\rag$ to c>ry out ?is section ?r\gh ! ,director ( ! ,national ,canc] ,in/itute1 9 collaboration ) at lea/ ! directors ( ! ,national ,in/itute ( ,nurs+ ,rese>*1 ! ,national ,in/itute ( ,neurological ,disord]s & ,/roke1 ! ,national ,in/itute ( ,m5tal ,heal?1 ! ,national ,c5t] on ,m9ority ,heal? & ,heal? ,disp>ities1 ! ,national ,c5t] = ,complem5t>y & ,alt]native ,m$ic9e1 & ! ,ag5cy = ,heal?c>e ,rese>* & ,quality4