,,iv  #aacth ,,congress  #ast ,session  
,h4 ,,con4 ,,res4 #ca  ,,in ,,the       
,,house ,,of ,,representatives  ,april  
#ae1 #bjac ,mr4 ,runyan 7for himself and
 ,mr4 ,schneider7 submitted the         
following concurrent resolution2 which  
was referred to the ,committee on       
,energy and ,commerce  ,,concurrent     
,,resolution  ,supporting ,rare         
,pituitary ,disease ,awareness4         
,whereas rare pituitary diseases are    
those which affect small patient        
populations1 typically populations      
smaller than #b-c cases per million     
individuals in the ,united ,states2     
,whereas many rare pituitary diseases   
are serious1 life-threatening1 and have 
limited treatment options2 ,whereas rare
 pituitary diseases and conditions      
include but are not limited to both     
,cushing's disease and ,acromegaly2     
,whereas people with rare pituitary     
disease experience challenges such as   
difficulty in obtaining an accurate     
diagnosis1 limited treatment options1   

difficulty finding physicians or        
treatment centers with expertise in     
their disease1 diminished quality of    
life and physical function if untreated2
 ,whereas there is a high need for      
medical education that will address the 
specific needs of patients with rare    
pituitary diseases1 increase the speed  
of diagnosis and a number of correctly  
diagnosed patients2 ,whereas there have 
been great strides made in research and 
treatment due to the ,orphan ,drug ,act 
of #aihc2 ,whereas ,rare ,pituitary     
,disease ,awareness helps to increase   
public awareness and understanding of   
rare pituitary diseases2 ,whereas there 
are a number of rare disease awareness  
initiatives for various rare conditions 
recognized on both ,state and ,federal  
levels but none for rare pituitary      
disorders2 ,whereas ,rare ,pituitary    
,disease ,awareness is anticipated to be
 observed globally in years to come1 to 
provide hope and information for        
patients afflicted by ,cushing's        

disease1 ,acromegaly and other pituitary
 diseases around the world2 and ,whereas
 both the ,food and ,drug               
,administration and the ,national       
,institutes of ,health have established 
special offices to advocate for rare    
disease research and treatments3 ,now1  
therefore1 be it  ,that the ,congress-- 
7#a7 supports ,rare ,pituitary ,disease 
,awareness2  7#b7 recognizes the        
importance of improving awareness and   
encouraging accurate and early diagnosis
 of ,cushing's disease1 ,acromegaly and 
other rare pituitary diseases2 and  7#c7
 supports a substantial national        
commitment to improving diagnostics and 
cures for rare pituitary diseases and   
quality of life for patients afflicted  
by these rare conditions4